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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    JUST LIKE LIPTON'S ONION SOUP MIX (GLUTEN-FREE)


    Jefferson Adams

    There's been some confusion as to whether Lipton's Onion Soup mix contains gluten. Officially, Lipton's lists the ingredients as: Onions (deyhydrated), salt, cornstarch, onion powder, sugar, corn syrup, hydrolyzed soy protein, caramel color, partially hydrogenated soybean oil, monosodium glutamate, yeast extract, natural flavors (wheat), disodium inosinate, disodium guanylate.


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    Also, some folks point out that the kosher version lists yeast extract from barley as an ingredient.

    Others point out, as does the website for Unilver, which makes Lipton products, that Lipton Onion Soup mix is "made in a facility that also processes milk, eggs, soy, wheat, sesame and sulfites."

    To be on the safe side, I usually make my own mix and store it for later use. Here's a great recipe for a tasty gluten-free onion soup mix that tastes very much like Lipton's, and works great as a substitute in other recipes. It goes great in meatloaf, stew, and works well to make dip.

    Ingredients:
    1½ cups dried minced onion
    ¼ cup beef bouillon powder (gluten-free)
    2½ tablespoons onion powder
    ½ teaspoon crushed celery seed
    ½ teaspoon sugar

    Directions:
    Combine all ingredients and store in an airtight container. About 5 tablespoons equals a single 1¼-ounce package of Lipton's mix.


    Image Caption: Image: Patty Gardner, Homemakersdaily.com
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    I see many questionable items in the Lipton's ingredients. MSG, caramel coloring, natural flavors - all can contain gluten. Lets face it, some of the other ingredients are not all that healthy for you, corn syrup to name one.

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    It is not gluten-free as it has corn in it. All grains have a type of gluten in them and make me very ill. The definition of gluten is incorrect. That is a seed protection from being eaten.

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    I haven't tried this yet, but I've been looking for a substitute since I have a few recipes that call for Lipton's Onion Soup Mix. The packages (both kosher and regular) say there is wheat in it, so I am very grateful that you posted this recipe.

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    Guest gryphon

    Posted

    It is not gluten-free as it has corn in it. All grains have a type of gluten in them and make me very ill. The definition of gluten is incorrect. That is a seed protection from being eaten.

    Most people with celiac disease do not react to corn. It's a different kind of gluten.

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    Giant Eagle onion soup mix is gluten-free. Not quite as hearty as Lipton, but serves the purpose.... Also Herb OX bouillon is gluten-free.

     

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    Thanks for the recipe. I actually have a family recipe for cranberry chicken that called for this. Ocean Spray whole cranberries are gluten-free in that to less than 20 parts per million cross contamination which is very minimal indeed. So you take the above homemade Lipton soup recipe, combine with one can of whole cranberries, one 8 oz. jar of french dressing, mix together and cover chicken in a baking pan. You can use a whole chicken cut up or if you're on a budget use legs and thighs equal to about a whole chicken. Cook at 350 degrees until chicken is cooked through about 3/4 hour to an hour for an equivalent of one whole chicken. half way through be sure to take it out and baste the chicken with the sauce.

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    I use Orrington Farms Beef & Chicken flavored broth base and also I bought their new gravy one. Haven't tried the gravy but happy with the broth base. I will try this Onion Soup mix...thank you. I was thinking I would have to go without on some recipes.

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    Guest Angelee

    Posted

    This was a welcomed find. As a celiac, it's always good to find something that tastes as good as what I use to eat before my diagnosis. I will be making this mix for the holidays. Thank you!

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    Guest Amber

    Posted

    Thanks for the recipe and info!

     

    Does anyone know roughly how long this mix can be kept once it's made?

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    Thanks for the recipe and info!

     

    Does anyone know roughly how long this mix can be kept once it's made?

    I think if kept sealed in Ziploc type bag, as all the ingredients are dry a couple months. I have family with celiac so I made 1/2 a batch to use in crock pot for a pork roast today I will date and place in fridge.

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    Thanks for posting this alternative! We use it in our slow cooker roast. Ive printed it and added it to my son's gluten-free binder. I've started our own Gluten-free 3 ring binder to keep our favorites gluten-free replacements in. He's only 5 , but one day it will be given to his wife.

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    Does anyone know if Goodman's Kosher for Passover Onion Soup Mix is gluten free? The ingredient list is:

    Onions, Salt, Sugar, Potato Starch, Monosodium Glutamate, Vegetable Shortening (Partially Hydrogenated Cottonseed Oil), Tomatoes, Mushrooms, Caramel Color, Paprika, Garlic, Pepper

    I am learning to cook gluten free on occasion for friends, so do not know if any of those ingredients raise red flags.

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    Guest Gluten Free Soup Mix

    Posted

    I JUST discovered your site, and I'm already addicted. I love gluten free product. Thanks for sharing recipe and I can't wait to try out this recipe!

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    Does anyone know if Goodman's Kosher for Passover Onion Soup Mix is gluten free? The ingredient list is:

    Onions, Salt, Sugar, Potato Starch, Monosodium Glutamate, Vegetable Shortening (Partially Hydrogenated Cottonseed Oil), Tomatoes, Mushrooms, Caramel Color, Paprika, Garlic, Pepper

    I am learning to cook gluten free on occasion for friends, so do not know if any of those ingredients raise red flags.

    If it is certified Kosher for Passover, it shouldn't have *any* grains in it, so should be gluten free. That's why Kosher for Passover Coke is so popular - it has real sugar in it instead of HFCS.

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    I have been using Goodman's since I was diagnosed with celiac. Both the Kosher for Passover and non-Passover are gluten free and make great dip. Lipton's kosher lists wheat as an ingredient.

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    Thanks for posting this alternative! We use it in our slow cooker roast. Ive printed it and added it to my son's gluten-free binder. I've started our own Gluten-free 3 ring binder to keep our favorites gluten-free replacements in. He's only 5 , but one day it will be given to his wife.

    Fantastic idea. I will be starting one tomorrow.

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    Guest pholsch

    Posted

    Thanks for the recipe and info!

     

    Does anyone know roughly how long this mix can be kept once it's made?

    Dry spices themselves are typically shelf stable for up to three years. In this case, I would check the expiration date of each ingredient and use the closets expiration date. Keep in mind that storing in a glass jar will keep the ingredients fresher than a plastic bag.

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    Guest Lynn

    Posted

    Try Herb OX brand. It's gluten-free.

    Your recipe is a life saver it allows my daughter to enjoy all the foods at our family celebrations! Thank you so much.

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    Jefferson Adams
    Mark it in your calendars: it is officially soup weather. I love to stock my freezer with fresh soups and enjoy them as the temperatures continue to drop. I recently tried a cauliflower soup made with sweet potatoes, yielding a lovely autumn-orange color, but any potatoes you have on hand will do.
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    Celiac.com 12/18/2014 - Clam chowder has always been one of Mica's favorite soups. This is Mica's newest gluten-free creation, and perfect for a cold winter day! 
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    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center