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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    TRAVELING GLUTEN-FREE - ARE GLUTEN-FREE MENUS GOOD OR BAD?


    Daniel Moran

    Celiac.com 05/25/2008 - When traveling should you go to a restaurant with a gluten-free menu or not—that is the question. It is important to let you know that because of your comments I can come up with discussions like this, so please keep them coming.  Let’s talk about gluten-free menus (this is, of course, only my opinion).


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    Gluten-Free Menu Pros:

    • Gives the person a chance to order from a menu that was made for them.
    • The restaurant should know about all the ingredients that will make you sick.   
    Gluten-Free Menu Cons (Sorry but experiences when going to restaurants with gluten-frees menus have only been bad ones, although I am sure that there are good restaurants out there.  I live in a very small town that is surrounded by small towns.  I am the only celiac for 100 miles that I know of.  I’m sure that in a big city it would be different. I have eaten in the big city too, and also had a terrible experience with their gluten-free menu):
    • The staff often has no idea what gluten-free really means. The staff thinks that it is only wheat and not all the other items that are on our forbidden list. Sometimes they don’t even know that their restaurant does offer a gluten-free menu.
    • The staff has not been properly trained.  That goes for the wait staff and the cooks or chefs who are making your meal.  Cross-contamination occurs and there is nothing that you can do about it.
    • The restaurant is trying to do something nice for us but may be focused more on the extra money that can make with such a menu.
    • The gluten-free menu is so small and only offers a few items, while regular customers have 50 items to choose from.
    • We travel so far to go to one of these restaurants, when we could be getting the same or better service from a nice, local restaurant.
    You can see were I am going with this, so I will stop. 

    Let’s look at traveling options and my experiences.  I have traveled with my boys around the USA.  Normally we live in a tent and stay at state parks where it is cheap.  We have hit Gettysburg, Niagara Falls, Hershey Pennsylvania, Boston, Florida, Georgia, Colorado, South Dakota, Chicago, New York, and many more places.  I also have gone with my wife to Las Vegas, Washington and some more places.  I have traveled in the USA and do not plan my meals around gluten-free menus at restaurants—and I want to explain why.  I was in New York twice.  I went with my two boys and the other time it was just me and my wife.

    The first time in New York with my boys we stopped at Nathan’s in Coney Island.  We watched them eat hot dogs on July 4th on the TV—you know every year somebody eats 50 or so of them.  So we traveled to Coney Island just to go to Nathan’s.  We went to Nathan’s and I waited until there was no line at the window (Rule 1—always wait until it is slow).  I approached the window with my boys (Rule 2, observe how they cook the item you are going to ask for—are they sloppy when they are serving the food? If so ask them to change gloves or give them a fork to get your food).  Noone was behind us so I knew it would be no trouble to ask for special help.  I told the server I have a special diet request and could they help me.  I asked if they had the package handy so I could look at the wrapper the dogs came in.  They go through a lot of dogs so it was right there.  After I reviewed the package I asked them if they could use a plastic fork to get me a couple of dogs. They did and they were great.  Ask for condiments to go, those had the ingredients on them.

    Another time I was with my wife and she wanted to go to T.G.I.F.—at that time they had no gluten-free menu (they might now, I don’t know).  We went in at a slow time and I gave them my Chef Daniel P. restaurant form and I also ate very well with no illness the next day. I used the two rules mentioned above that I always go by.

    This year my wife and I went to Las Vegas.  My wife wanted to go to the Las Vegas Stratosphere Tower to eat while overlooking Las Vegas.  They also didn’t have a gluten-free menu, and she made our reservations.  She used Rule 1 and made it for the last reservation they would accept.  I asked for the manager and told him I have a special diet request and tonight I would love to have the duck breast if they were not marinated.  He said he would check with the chef.  A few minutes later the executive chef came out to our table to speak with us (this chef is well paid, and this is what I have been saying from day one to you about chefs in fine dining establishments—they care just like I do).  The fact that he had time to come to our table happened for a few reasons I believe:

    • They were slow enough that the chef could take time away from the kitchen to help his customer.
    • This is the type of place that cares what you think, what you say about their establishment to others—and they don’t want to make anyone sick.
    • I was direct and to the point in what I wanted to eat and the chef could do it. When the chef came out I told him exactly what I told the manager about my illness and the nature of it.   I asked him if he could sauté me some duck breast. Duck breast was on the menu but it was with a terraki sauce and the soy sauce normally has wheat in it.  I wasn’t in the mood for terraki anyway, so this how I ordered my meal—and yes I did write it down on my chef Daniel P restaurant form:
    1. Sauté the duck breast in olive oil until ¾ of the way done.  Pull it out and put it to the side and deglaze the pan with white wine.  Add orange juice, a hint of pineapple juice and tighten it with corn starch or arrow root.  Add the duck breast, orange zest and a splash of lime juice.
    2. Microwave some white rice.
    3. Microwave any fresh vegetables.
    4. No seasonings or garnish.

    I just had them make Duck ala Orange for me—and you can do something like this too if you just believe in yourself and do it. Our meal took extra time but we were on top of the world so who cares?  It is worth the wait to not get sick, and we ended up having a fantastic meal.

    I have a few thoughts to share with you for when you start to look for gluten-free menus.  Gluten-free menus are good but they are not great.  If I was in Japan and I had to go out to a restaurant, I would want to go to a sushi restaurant.  I would not search around for a place with a gluten-free menu.  I am always going to use Rules 1 and 2 anyway.  In Japan I would look for the restaurant that cuts and serves the sushi right in front of me.  If I was in France, I would use the two Rules first, and also try to find a place that does table-side cooking.  If I was in Louisiana, I would do rule 1 and rule 2 then go to a restaurant that I know has a good reputation and give them my Chef Daniel form and enjoy my meal like everyone else.

    You need to eat where you want to eat and not limit yourself.  How many of you would want to eat at Wolfgang Pucks restaurant?  Are you going to say that eating where there is a gluten-free menu will be better than eating at Wolfgang’s place?  What if you were visiting the Eiffel Tower in Paris or a bistro across the street from it?  It would be nice to have a gluten-free menu in those places, but it is unlikely. We have to come together as one group and order the same way.  In time I will convert menus at the cruise ships or the chains of motels that have chain restaurants.  Traveling is what we do and it doesn’t matter if you have to restrict your diet or not. We all love food and we will pay extra if we have to, but we must expect not to get sick. 

    My ultimate goal is to be able to walk into any restaurant and have a great gluten-free menu. I would love to see a real gluten-free menu with lots of great entrées to pick from.  Ultimately it is up to us to educate workers in the places that we eat in about the gluten-free diet.   We need to come together and start standing up and saying that we are special too.

    Chef Daniel.
     


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    Guest LaVella

    Posted

    Thank you so much for your comments on eating out. It is so frustrating at times. We were in Sacramento, CA this winter and went to a restaurant that supposedly had a gluten-free menu. It was a joke! I listed the ingredients of many of the foods they serve but didn't specify whether it was gluten-free or not. It was up to me to decide that fact just by reading the listed ingredients, which I didn't trust. Here in Portland, OR we do have some real choices of a true gluten-free menu. I really enjoy eating at Corbett's Fish House which has very good food and I don't get sick! They use rice flour for the breading on the fish and it's nice and lightly crisp.

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    Guest Kate

    Posted

    Thanks for what you are doing to spread the word with restaurants! We were recently on vacation and were thrilled to find a gluten-free menu at a Chili's in Florida, but when they brought out the Gluten Free burger which we still specifically requested WITHOUT a bun, it was on a bun. The Gluten Free menu listed mashed potatoes, but they came with a thick gravy on them, which my son ate before we realized what was going on, and he had a stomach ache the next day. Obviously, even a Gluten Free menu doesn't mean much at this point in time. But, we appreciate your efforts to educate those who prepare food for the public!

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    I recently returned from 3 weeks in France; before that it was Germany; now I'm in Hawaii. I have restaurant cards in many languages, and I've never had a problem with meals. I've been doing this for 40 years and consider the cards a god-send--no more misunderstandings about what constitutes a Gluten Free meal.

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    Guest Jude Lawlor

    Posted

    I have been afraid to eat out since I was told I have celiac disease and thought I was dying. It helped to kill my mother. I was just diagnosed 3 years ago and am now 60. So late in life and still learning. Thanks for great info as we love to travel.

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    Guest debslo

    Posted

    Excellent article. I too, have had problems eating at places that offer a gluten free menu, only to find that my burger came with the bun as well as with a side that was not gluten-free...and this was NOT during a busy time!

     

    One must always be diligent...and trust yourself only...

     

    Recently, some friends wanted to eat a a diner in CT, and they were reluctant because of my needs. I am always open to new things, and like to try to eat like 'normal' people, so I obtained the phone number and called in advance, asking about my special needs as well as what time to come. They said, in typical diner style 'don't worry, honey, we'll take care of you...just ask for a fresh pan, and you can come anytime, even during busy hours.' I didn't worry, brought my own bun, and ended up having the best philly cheese steak sandwich--I haven't had one in 5 years!

     

    Too bad we live in Vermont and are almost 2 hours away...

     

    Good luck, everyone, eating out and feeling well is a wonderful thing when it happens.

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    Guest Pat Sigue

    Posted

    I live in Union City, CA and have gone to the Outback Steakhouse in Dublin, CA and they have a gluten free menu which includes a flourless dessert. It is very rich but delicious. On the menu, it will let you know exactly what is gluten free and what is not. I have also asked the Olive Garden in Hayward, CA if I could bring my own pasta for them to cook and I was told no. Needless to say I never go there.

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    Guest Karen Broussard

    Posted

    I applaud your current mission and career choice! It sounds like you have some great experiences to share. Good luck with your work!

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    Guest Barbara Vande Berg

    Posted

    Wonderful that you are getting this word out. I recently went to a restaurant with a gluten free (rather a list of what I COULD NOT eat) that did not know that soy sauce has gluten in it. I informed them and also told them it would help if the list was what I COULD eat and in alphabetical order. The manager was very grateful. And yes, most people have NO idea how complicated it is. Bragg's liquid is a good substitute (if you aren't allergic to soy) for soy sauce. There is also a WHEAT free Tamari sauce that works pretty well for me but I don't know about for true Celiacs. I just have a bad case of gluten intolerance which set off a dairy intolerance as well. So eating out is a real challenge. I just say, 'meat, vegetables, and rice/potato/french fries---check with cook about the oil they are done in...you'd be surprised...' I basically say, 'whole, healthy food, un-adultered with ANYTHING except olive oil and pure salt.' Many just don't understand that spices and mixes, etc., can often have gluten in them.

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    Guest Joanne DeGarimore

    Posted

    Being a Restaurant owner and putting together a menu for gluten free / celiac sufferers, all this information is crucial to "get it right". We can't rely on our own selves to think we're putting together a good menu; we need our customers and the sufferers themselves to guide us to what your needs are. Thank you and I hope to serve some happy customers as soon as I make the new menu public. Not sure if I will be back to this particular website but if you have more suggestions, I'd love to hear all! -Joanne, Pier 46 Seafood, Templeton CA

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    Guest angela west

    Posted

    Being a Restaurant owner and putting together a menu for gluten free / celiac sufferers, all this information is crucial to "get it right". We can't rely on our own selves to think we're putting together a good menu; we need our customers and the sufferers themselves to guide us to what your needs are. Thank you and I hope to serve some happy customers as soon as I make the new menu public. Not sure if I will be back to this particular website but if you have more suggestions, I'd love to hear all! -Joanne, Pier 46 Seafood, Templeton CA

    Outback BBQ sauce, my favorite.. PF changs, and Chilis all have gluten-free menus here in the Bay area. I often treat my 4 year old twins with celiac out to eat when family comes into town. I have no idea how safe this is. But I am learning how to educate others about this disease. I really appreciate this article so hopefully we will be able to travel when they are older and know how to do it without bringing a second suitcase full of gluten-free food. Well we still will, but we won't be as afraid to travel with your tips.

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    I try to bring my spice mix and ask for Worcestershire sauce, that makes the tastes much more pleasant! Oil, butter, and salt are good from them, but when they have no idea what is in their spices and no way to tell when I am in small towns, I let them know of my needs and try to make them interested.

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    Daniel Moran
    Celiac.com 05/08/2008 - I am here to help you with your needs as you travel, and to be able to keep the "Gluten Monster" away, so you can enjoy your trip.
    When getting ready to fly you have to expect long delays.  As a celiac that means you have to try to find food.  If you haven’t traveled by plane before you will be in for a big surprise.  The restaurants that are in the airports are always busy.  This means that it is like going to a restaurant at peak time, and, in my opinion, that is not the best time for celiacs to eat in restaurants.  You might want to try the fast food places that are chains if they are in the airport.  The usual method is to try to get the manager to help you.  Give the manager a fresh plastic fork to retrieve your meat or chicken so they don’t use gloves that have bread crumbs on them.  Ask for catsup or mayo packages so you can read the ingredients.  You can ask for them to make a fresh salad if that is what you like.  One of the good things about most of the restaurants in airports is that at many of them you will be able to see the cooks prepare your food. Never be afraid to say “I saw you put my food on the table and bread got on it” and ask for a new meal.
    If there are no chain restaurants at the airport go to one of the restaurants where you can watch your food get made.  Some of the restaurants have the cooking grill right in front of you.  See if they can cook the food (hamburger, chicken) on the grill.  You have to determine if they put the buns on the grill. If they do grill the buns on the same grill where they cook your food there is a good chance that crumbs are there and you should stay away or ask them to clean the grill with the razor blade tool.  You have to determine how busy they are and if they are too busy don’t ask for something like that.  Sometimes I ask for my food to be covered and microwaved.  This is a very safe way to have your food cooked and if it is busy in the kitchen, your food is well protected.
    You still need to be careful with the salads in these types of restaurants.  Remember that these places are usually busy and crumbs fly around everywhere.  If they are slow ask if they can open a fresh bag of processed salad for you because you get very ill from the smallest crumb.
    What Chef Daniel does when Flying
    When I fly I always have a plan B.  I bring a carry on bag with some gluten-free food that is in a clear plastic bag.  This is food that if security says throw it away, I do.  So far all the times I have traveled by air I haven’t been asked to throw anything away. I bring food that can last all day without spoiling.  I bring food that if it gets hot and melts it is still good to eat.  I like ham, pepperoni, cheese, vegetables, peanuts and some candy to keep me going. Just remember to tell the security that you have a special diet in case they ask, but don’t offer the info unless they ask.  You need to be truthful and most folks are going to understand.  Let the security know that you are unable to eat in the local airport restaurants and you have a long day ahead of you. You don’t want to cause any trouble in an airport so be willing to throw it away the second they ask.  You could pull out your chef Daniel restaurant paper to show them how serous you take eating and by providing your list it will show them that you are very serious.  It is just a way to show security how serious you take your health.
    Now you should be ok if you got through security and when the flight attendant comes around offering food, especially if you are on a flight for a long time, you have some food that will carry you over.  Most airlines will take special requests for meals but you are taking a huge chance on eating that food.  The caterers who do these meals for the planes do thousands and thousands of meals.  I don’t take the chance of eating such a meal.  I get way to sick if there is any contamination. When I call in for a special request for a meal I ask for whole fruit or whole vegetables, anything I know that hasn’t been on a cutting board.  
    I usually ask for carrots or other vegetables or fruit that I like.  I am scared of being sick so I will cut or break my food then eat it.  Even at restaurants I ask for whole vegetables for me to cut myself.  If you read my last article about my salad with croutons coming to me you can see why I am so scared of restaurants. Once you are burned you never forget...but you do learn.
    If you call ahead to the airport to ask for a special diet request make sure you are thorough with your request and tell them how sick you can get.  Ask the airlines if you can send a request per email or snail mail with your directions in how to prepare your meal.  I would ask the caterer to tape your request right to your plate so when you board the plane it will be easy to see.  As you board notify the stewards you are the special meal request.  Be sure to have a plan B. Look at your meal carefully when you get it and determine if it is up to your standards.
    I believe this article can help you travel gluten-free on board any airline.  There are always little stops where you can buy a piece of fruit or packaged products but if you want something more like a hot meal you will need to follow my advice to stay safe.
    Gluten-Free Air Travel Hints:

    You should always try to getthe manager to help you.  In any restaurant they have the most time tohelp you and they will help you because they typically care more thanthe regular workers (today’s restaurants have employees that come inone day and are gone the next.help.  It is sad but that is the way itis so at least try to get the manager. Don’t be ashamed to askfor anything. If you want a hot dog or the chips they put on the sideof the plate ask for a bag with the product inside.  Take out your safeand forbidden lists if needed and look at them to see if you can eat aproduct. 
    Always have your Chef Daniel's restaurant paper with you in your walletor purse.
    Always have a copy of your safe and forbidden lists with youin case you need it to read ingredients. Always have a gluten-free restaurant card in the language you need.
    Crosscontamination is the greatest risk for a celiac when traveling.  Crosscontamination can happen and you would never know it, such as when thechef uses a knife to cut a piece of bread, and then they use the sameknife on your vegetables, or when the chef uses a pair of tongs to flipa breaded chicken and then uses them to flip your sauté chicken.Thereare too many other ways to mention, but the main thing is that glutencould be on the tool before it is used on your meal, and it doesn’tmatter how safe the chef thought he was because you got one crumb andyou are sick for days and that ruins your vacation. Chef Daniel

    Hallie Davis
    Celiac.com 10/02/2009 - My hubby and I just returned from a wonderful 5 days in Florida’s Key West, and so I want to write about it  while it is fresh in my memory, for I think my experience may benefit others who are trying to stay gluten-free during a stay there.
    In preparation for this trip, I first made a list of the top 20 rated hotels and bed and breakfasts (B& according to information I found on the internet. I made a separate list of restaurants, bars, and health food stores that also had received good reviews as to being able to provide gluten-free food. We had heard that it is not necessary to rent a car on Key West, so I wanted our hotel to be close to as many of the gluten-free sources of food as possible. So then I found each hotel on Mapquest, and then used the “find nearby” feature to get a list of restaurants near each, noting how many were also on my gluten-free list.
    I discovered that two hotels dominated in being close to multiple restaurants of my gluten-free list: The Gardens Hotel, and Seascape An Inn. Both were close to the main street, which is Duval Street. The Gardens was also close to Pepe’s, Santiago Bodegas, Mangoes, Help Yourself, The Café, Sugar Apple, and Blue Heaven. On the other Hand, Seascape was slightly closer to Duval Street, just around the corner from Hemingway House, and close to Sugar apple, Blue Heaven, Mangoes, and Santiago Bodega’s.
    I called both to get prices. The Gardens Hotel said they charged $185 per night. Seascape said they could give us an off-season discount, bringing our stay down to 109 per night. No contest. We booked with Seascape. When talking with the wonderful Koko, at Seascape, I told him that I was gluten-free, and he said that they would be sure to have boiled eggs, a large selection of cut-up fresh fruits (strawberries, cantelope, honeydew, fresh pineapple, dried apricots), and gluten-free yogurt at their breakfast buffet. He was as good as his word.
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    We had arrived late in the day, so after we were settled in our room we just wanted to have dinner and then return for a nice soak in the spa. I tested the water, and it was a bit cool for me (I have Raynaud’s), so I asked Marcia if they could raise the thermostat on it just slightly. She said “Absolutely!” I asked for an extension cord for my CPAP machine and she was quick to bring one to our room. When we returned from dinner, we had our soak in the spa, and the temperature was perfect! There was a basket of large towels laid out, and a basket for putting used towels into when done.
    In the morning, we discovered that once we had loaded our  breakfast plates and poured our free Champaign mimosas, they could be taken to the covered porch at the side of the house, which had little glass-topped tables. All around were orchids in full bloom – about 8 different kinds. There was a cooling breeze on the porch. Fred and Blackie joined us there, probably hoping for a handout, but polite enough not to ask. 
    Now about dinner. Our first and last dinner of our stay were both at Santiago Bodega’s (SB). Marcia had told us that they had a half-priced tapas special early in the week during the off-season. So we went there.
    There were certain standouts on the Tapas menu at SB. We absolutely loved the dates stuffed with goat cheese, and wrapped with Canadian bacon. Be sure to squeeze a bit of your lime over them. Yum! The beef tenderloin with melted goat cheese on top was to die for. Double-yum! The chicken skewers were also delicious, as were the pork with mango salsa. However, truth be told, the mango salsa was more like raisin salsa, with only a couple tiny bits of mango, and all the rest raisins. The green bean and the asparagus tapas were also tasty. The sangria (you can have your choice of red or white) was also delicious. I should caution that the servings though delicious, seem skimpy, so if you don’t want to break the bank trying to get full, either go on a night when there is a half price special, or follow up your dinner with a trip to Better Than Sex Desserts (see below). Both times we were there, SB had no gluten-free deserts.
    We went to Mangoes twice: once for dinner and once for frozen daiquiri and frozen pina colada and shrimp cocktail. The dinner was scrumptious. We started out with a wonderful salad (big enough to be split in two) of chopped fresh mango, shrimp, lettuce, onion, heart of palm, bacon, etc.) It was yummy! Then my hubby, who is not gluten-free ordered a lobster stuffed with crabmeat. Unfortunately I couldn’t have that because the crab was mixed with a bit of bread. However, hubby shared an untainted bit of the lobster with me, and it was sweet, juicy and succulent. I had the broiled Grouper with broiled tomatoes, served on a bed of rice and asparagus. It was delicious!
    Sloppy Joe’s at 201 Duval Street was also on our list of restaurants. I’m not sure why. They had absolutely nothing on the menu that was gluten-free except for the Havana Nachos. Those were good though: a serving large enough for two, with lots of sliced olives, chopped tomatoes, chopped onions, grated white cheese mixed in, and then chedder on top and melted over it all. It was served with on-the-side containers of sour cream and salsa.
    And remember that there is a Wendy’s at 355 Duval. Be sure to print out their gluten free menu and take it in your purse, so you can know what is safe to order there. One day we had baked potatoes with chives and sour cream, and Cokes, to hold us until a late dinner.
    We had a great time! If you go, be sure to take the Fury glass bottom boat trip. Time it to take the one that is scheduled so as to include the Champaign toast to the sunset on your return from seeing the reef. Then as the boat docks, go over to the Mallory Square sunset celebration to see the various entertainers: tightrope-walking dogs, cats jumping through hoops of fire, magicians, mimes, etc. Lot’s of fun. On your first day, take the on-and-off trolly tour, learning about the history of the island. Be sure to get off and see the butterfly museum, Hemingway House, the Audubon museum, and the Mel Fisher museam that tells about his reclaimation of $200 million in sunken treasure. Explore the various art galleries higher up Duval Street. Buy souvenir T-shirts for your children or nieces and nephews. Enjoy seeing the 6-toed cats, and roosters everywhere! Soak in the spa every evening after dinner.
    I have saved perhaps one of my favorite places for last: Better Than Sex Desserts. Marcia told us about this little dessert and wine restaurant just through the alley from her B&B. We went there after a light dinner elsewhere. We were greeted at the door by the owners: Len Johnson. His wife, Dani is the chef and chocolatier. She came over to talk to me about their gluten-free offering: the “Tongue Bath Truffle.” She was a delightful person, and I really enjoyed talking with her. Anyway, I ordered this dark, rich gluten-free wheatless truffle cake, served dusted with confectioner’s sugar, and dollups of whipped cream. Also served with it was my choice of various sorbets and sherbets. I opted for the raspberry sorbet. Hubby ordered the fresh strawberries to be dipped in a bowl of decadent warm chocolate sauce. We also ordered wine with the dessert, and a decaf coffee for me which had a faint suggestion of cinnamon – great with the dessert. As we were practically groaning with pleasure over these deserts, a live musician was playing the guitar and singing wonderful old songs. My hubby requested two of my favorite songs: Sweet Lorraine, and Nature Boy. I asked for a second cup of decaf in order to stay and listen more. What a lovely end to our evening and our week at Key West!
    Disclaimer: I am not related to Marcia, Dave, Koko, Len, or Dani, or anyone else in Key West! I just know that if anyone deserves to do well in business, it’s them at the Seascape An Inn, and at Better than Sex Desserts. Do give them your business! You won’t be sorry!


    Destiny Stone
    Celiac.com 05/20/2010 - The weather is getting warm and it's almost that time again-time to go camping! Camping is supposed to be relaxing and fun. Most people camp to escape the monotony of the daily rut, and to get back to the basics. Eating gluten-free while camping is really easy, once you know what to bring and what to avoid.
    Camping trips usually consist of the same easy to prepare foods. Chili, pasta, canned soups, hot chocolate, sandwiches, hot cereal, trail mix and  s'mores are the high-lights of most camping meals. All of those things can easily be prepared gluten-free. In fact, many gluten-free already prepared foods can be used for camping trips. Anything canned or boxed that you normally enjoy at home, can typically be converted to camping food.
    It is important to eat the perishable foods first. A  camping trip lasting for more than one night can render perishable foods inedible. That's why it's important to eat  refrigerated food on the first day or two, and save the shelf-stable food for the remainder of the trip. Store  perishables in a cooler with plenty of ice and/or cold packs. To grill gluten-free food,  avoid gluten contamination by using a grill from home. Using the grill provided at the camping site is possible, but using aluminum foil or a pan as a buffer  will keep food away from gluten contamination. There are even special racks with ridges that can be placed on the the grill and will keep food from touching the grill.

    Two Day Sample Meal Plan (everything should be gluten-free):
    Day 1-
    Breakfast- Pancakes with fresh berries and real maple syrup Snack- Energy Bars Lunch- Sandwiches with gluten-free bread Snack- Carrots & celery sticks Dinner- Instant mashed potatoes, instant gravy, grilled meat and/or veggies.  Dessert- S'mores (see recipe below)
    Day 2-
    Breakfast- Hot cereal with fresh berries or raisins Snack- Trail mix  Lunch- Sandwiches Snack- Jerky Dinner- Chili, hot dogs,  buns, canned vegetables Dessert-  hot chocolate
    Make sure to buy all gluten-free products. Don't forget the gluten-free sunscreen and the gluten-free insect repellent.
    Gluten-Free S'mores Recipe
    Ingredients
    Gluten-free marshmallows Gluten-free graham crackers Gluten-free chocolate bars
    To Make
    1. Put your marshmallow on a fire safe skewer. Heat the marshmallow over an open flame until it begins to brown and melt.
    2. Break the graham cracker in half. Sandwich the chocolate between the cracker and the hot marshmallow. Allow the chocolate to melt and the marshmallow to cool a moment before eating.
    3. Add strawberries or other gluten-free favorites.Happy Trails!


    Vanessa Oakley
    Celiac.com 08/06/2013 - I recently went camping with a good friend of mine and her boyfriend. This was a last minute trip that I knew I was kind of going solo. I have never been camping without a partner or at least a tent mate. So this was the first time I only had to think of me. How cool is that?!
    I start every out of town adventures the same way—I make a trip calendar to plan out my clothes, meals and supplies (If I could only show you guys all the lists I make!).  I find that when I'm camping there is a level of community in the supplies and food department. I forgot forks, no worries buddy I brought extra. Try this, I made it myself or I brought too many hot dogs, eat them. This can be dangerous for a celiac. No one wants to be the guy that has to read everything in sight before they touch it. Or maybe you do, that's cool too—be yourself. I have always subscribed to the theory that if I don't know what it is or what's in it, I simply say "no thank you," even if it kills me to say no, and makes me think about how yummy that thing could have been.
    The day before I went camping I took my list and headed to the grocery store. When I got home and packed I was pretty happy with my haul. I know that I have a lot—more than enough to feed myself for the trip, including snacks. I am self-sufficient…as long as they have some sanitizer and some biodegradable soap for dishes. But I had everything else I needed...I hoped.
    To my delight and surprise my lovely friend and her lovely boyfriend had over-packed in the food department with stuff that happened to be gluten-free. I know that some things she would have packed with me in mind (thank you Lindsay!), but other things were as much a surprise to her as they were to me. Between the both of us we all ate like kings that weekend!
    It is a bit difficult to write about gluten-free trials and tribulations when everything works out. Where there is no worry about cross-contamination or drunken mix-ups. I was the only person to bring out "bread." I found some hotdog buns that looked promising. They got toasted over the fire in a wire basket thing and were so good!
    There are, of course, some things to look out for when you are camping. Be aware of a stove top or grill if you have things like that at the site. You never know what someone else cooked on that, even if it's just meat it may have been seasoned with things that contain gluten. Also, don't mix up your hotdog stick with someone else, unless everyone also has gluten-free dogs. Don't borrow shampoo or face wash. There are so many things that can have gluten in them!
    I definitely learned some stuff about myself on this trip. I learned that I am lucky enough to have surrounded myself with good caring, thoughtful people.  I love camping and I never knew how easy celiac disease would eventually become for me. Did I mention that I am also terrified of spiders!

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com

    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com