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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  • 0

    1996 CELIAC.COM FEEDBACK


    admin

    Date: Sat, 13 Jan 1996 08:31:23 -0800
    Subject: Celiac Helped


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    Thanks Scott,

    I have been wheat free and pain free for almost two weeks now. The
    only exception was when I ate some corn,(I admit, a lot of corn.) which caused some bloating for two days. I now believe that the gluten was causing the problem. I am 51 years old and quit teaching karate because of the symptoms of Celiac Disease. I am now considering going back into Karate. Thanks again. It feels like I got my life back. -Frank


    Date: Mon, 22 Jan 1996 12:57:28 -0500
    Subject: Great Site!

    Thanks for all the great info on gluten. It has made my life easier.
    Karen
    Date: Wed, 24 Jan 96 01:37:02 0500
    From: Richard K. Puder

    First, before I get to the subject above, I want to thank you from the bottom of my heart (or even small bowel!) for all the wonderful work you
    have done in creating a fabulous web site. The very first search that I did on the Internet was to search for Sprue in Yahoo, and lo and behold, I found your home page. And what a find! It enabled me to gather information in a brief period of time that I couldnt possibly have found if I had visited 20 libraries and spent months. If there is anything I can do to be of assistance, please ask.


    Date: Sat, 27 Jan 96 06:26:11
    Subject: Thank you

    Hi Scott,
    your information is wonderful, and very nicely put together. It finally convinced my husband to go get himself tested. I wont bore you with gory details. Thanks, A. Sheldahl
    Date: Sat, 27 Jan 1996 10:33:40 -0500
    From: D. Resch

    Thank you for providing so much information on celiac disease. The presentation is so informative and well organized. I have certainly learned a lot and have referred several people to your web site. Well, thanks again and if there is anything I can do to help, please e-mail me.
    Debbie Resch
    New Jersey


    Date: Tue, 30 Jan 1996 01:05:22 -0500
    Subject: Julia

    Dear Mr. Adams,
    Last week, my 4 year-old daughter underwent both an endoscopy and colonoscopy. With results of her biopsy confirming celiac, I cant tell you how relieved I am to find a home page such as your own on the web.

    Date: Tue, 30 Jan 1996 01:07:07 -0500
    Dear Mr. Adams,
    Thanks for all your work. My 4 year-old was just diagnosed with celiac after
    11 months of sweating and fretting. Its great to have found your page on the
    web. Julia and her daddy thank you.
    Michael Brady


    Date: Tue, 30 Jan 96 03:46:27 -0800
    From: Charles Jarvis Jr.
    Subject: Scotts Celiac Disease / Gluten Intolerance Help Page

    Thanks for a great celiac homepage. Keep up the wonderful work. Its much appreciated.


    Date: Sat, 3 Feb 1996 23:22:54 -0600
    Subject: Wonderful work

    I hadnt read your info for months and I am so impressed with the wonderful job youre doing. Shortly before our support group meeting in March, Ill
    post the info for you. Thanks again and keep up the good work!
    - Lynn Samuel


    Date: Tue, 13 Feb 1996 13:22:53 -0500
    Subject: Congratulations

    All of us at IMMCO Diagnostics are very impressed with your web site. We have been perusing the site over the last month. It is very informative and thorough. Your efforts to disseminate this valuable information to celiac sufferers is commendable. Feel free to contact us if you require information, articles, or content for your page. We would be happy to help.

    Sincerely,
    Vijay Kumar
    Kurt Neukom
    Kevin Lawson


    Date: Thu, 15 Feb 1996 08:48:15 -0500
    Subject: Celiac disease

    I have just joined America-on-line and have accessed your Scotts Celiac Page. This is a letter of appreciation for all the work you have done to help
    celiacs. I am very impressed with the extent of your Table of Contents and have just printed about half of everything there. Fascinating articles.
    -J. Trevett


    Date: Mon, 26 Feb 1996 10:30:44 EST
    From: MS. BRENDA DAVIS
    Subject: Scotts Celiac Page

    Please add me to your list for updates and changes at your celiac site. I have enjoyed your site very much. It was the first place I found when desperately looking for celiac information. I found it sometime last October and I can truly say that it changed my life after not having any information after being diagnosed celiac approximately about a year and a half ago. I appreciate your hard work on this.


    Date: Mon, 18 Mar 1996 15:53:49 +0000
    From: Carol Young

    I love your home page and it has helped me as well as my doctor better understand how to be wheat and gluten free. What you are doing here is
    wonderful.


    Date: Sat, 6 Apr 1996 23:08:48 -0500
    Subject: just wanted to thank you

    Hi, my name is Michael and I wanted to thank you for you great home page. My grandmother is a Celiac patient and she is lost as to what to do. She heard about something called the internet and I told her I would look. I did look and their was no better place than yours. Your home page and the various links will make her day. She is 75, which is strange for Celiac patients but also it is harder for her to learn or even know where to look. Thanks to you she now does. This disease needs to be brought out in the open, it seems like many people have it yet, not many companies etc... cater to them. It is very hard to find these products but you have helped. Thanks again!


    Date: Sat, 20 Apr 96 06:03:56 -0700
    From: Michael Esker
    Subject: Celiac Home Page

    What a great site! This is a great example of the real benefit of the Internet. I was born with celiac, although it was not diagnosed until I was about 3! I dont remember, but my parents say the first few years of my life was hell for them and me. I felt I grew out of it at about 18 so I went off my gluten free diet. Mainly so I could drink beer. I am 31 now, but due to not feeling as well as I think I could, and possible long-term consequences, I think I am getting back on the diet to see what happens. Part of this action stems from my young nephew who also might have the
    disease. At least its being considered and tested for with diet these days! Your home page will be an invaluable resource as I, and my nephew, try
    to get back to a better life. Thanks for your effort.


    Date: Tue, 23 Apr 1996 22:26:51 -0400
    To: sadams@hooked.net
    Subject: celiac information

    Your page on the Internet is a Godsend to those few of us who need info & support for celiac disease. My adult daughter has just been diagnosed & Im searching for her benefit since she doesnt have access to a computer. Now I just have to figure out how to use the Internet & I cant think of a better reason to learn! Please add me to your mailing list for your newsletter which Ill forward to my daughter. Many thanks - keep up the good work.
    - Judy Fitzpatrick


    Date: Wed, 05 Jun 96 08:41:29 -0700
    From: Bertie Lynch

    Scott: First, Id like to thank you for posting your Scotts Celiac page on the Internet. Wonderful info, and a lifesaver for our family, as my
    husband was diagnosed with the disease last year, so once again, thanks.
    -Regards, B. Lynch


    Date: Tue, 18 Jun 1996 09:31:24 -0400
    Subject: Thanks for Information

    Thanks very much for sharing your Celiac information with others who have gluten problems. I have been very frustrated trying to find out what my
    problem is and now believe I may be gluten-sensitive. Your web page has been of great help to me in finding out if my symptoms are consistent
    with gluten sensitivity/intolerance. I am truly grateful that people like you make the effort to help those of us out there who are mystified by these symptoms. Thanks again, and keep up the good work!!!
    - Stefanie Crampton


    Date: Sun, 30 Jun 1996 01:15:46 -0400

    Please add me to your email list. Secondly what a blessing you sight has been to me and three other people to date. I have battled what everyone told
    me was IBS for the past three years and it was ruling and controlling my life. In the past three weeks with the information I found through your sight my life is so much better and I feel so much better. My sister and a friend are now experiencing the same effect since I share what I found with
    them. Thank you!
    -Jean


    Date: Sun, 07 Jul 96 14:26:25 -0700
    From: Cherie Jameison
    Subject: Mail list

    Please add me to your e-mail list. I deeply appreciate your web page, as well as all gluten-intolerance material on the Net. Like any of us who have celiac disease, I have my own tragic history until I cut out gluten from my diet (in my 40s). My childhood was painful, due in large part to gluten intolerance. What wasted, tragic years. Anyhow, weve all been through our own, sad backgrounds. Im so grateful that now increasing information is coming out and is available. Scott, thank you so very much for the wonderful work you are doing to help others!
    With warm regards,
    - Cherie


    Date: 09 Jul 96 11:05:02 EDT
    From: Karen Brody
    Subject: Praise for your efforts

    Hi. Ive needed to do some research on celiac sprue from the UK for a book Im writing for Sheldon Press called Coping with Coeliac Disease and your information on the internet has been very useful. Thanks from the bottom of my heart. The world needs more special people like you who care about peoples health!

    Thanks again for your help,
    - Karen


    From: Perron Lino
    Date: Sat, 10 Aug 96 21:11:03 -700
    Subject: mailing list

    Thank you for your page and all the info. I will appreciate to be in your mailing list and learn about anything new about celiac sprue. My daughter is doing a lot better and she is growing ok on a gluten free diet. If for any reason you are traveling trough Italy come see us Be happy to meet you and thank you for he big help. Lino Perron Breuil Cervinia at the foot of the Matterhorn on the Italian side. Good place to climb and ski.


    From: Davis, Pamela
    Subject: Celiac mailing list

    Your web page is very informative. My mother was diagnosed with celiac a few years ago. She has a hard time finding information on the disease and has had to completely change the way she eats and cooks. This web site is a godsend to people like my mother. Please add her to your distribution list for any information that you e-mail out. Thank You.


    Date: Tue, 24 Sep 1996 09:20:13 -0700
    From: Randina Bliss
    Subject: well done

    Kudos to you for bringing this extremely well written Web page on Sprue and the pertinent articles that are necessary to better deal with
    diagnosis.

    My brother was diagnosed with this disease this spring, following lengthy testing for whatever they could think of. He was very anemic,
    losing weight and having odorous diarrhea. Now that he is following a gluten free diet the dark circles under his eyes have gone, his
    hemoglobin is going up and has even managed to gain a few pounds. We have since learned from our older sister that my brother was
    considered malnourished when he was younger, the age of younger is unknown. He was always thin and had a low energy level. It is a shame
    the puzzles pieces took so long to be put together. His birthday is this Saturday (turning the big 50) and I wanted to make
    him something home baked (if I could find the ingredients). When I did a search via Yahoo, it gave me only this one. I am extremely grateful
    that it did as I have found this to be extremely helpful and will pass it on to my brother if he doesnt already have it.

    Your web page is the nicest I have seen to date. I really like and appreciate the graphics, the colors and the layout of the entire contents. It gets a four star rating in by book and is already bookmarked for reference. Thank you for gathering this information and sharing it with all of us.


    Date: Thu, 26 Sep 96 10:24:20 UT
    Subject: Thanks for this web page!

    Scott- Your web page has been extremely helpful to me in understanding this disease & helping my daughter, who is away at college in the US diagnose her problems. I am living in Germany, and have been feeling very frustrated and helpless when she reported her symptoms to me, and we sent her to dr. after Dr. for different tests. This has helped us solve her mystery, and after a gluten-free diet for several months, she feels like herself again. Your list of stores enabled me to call & order gluten-free care packages.. She was having severe pasta withdrawal & I was able to come to the rescue! Through your list of organizations I was able to contact Diane Schafer (New Orleans) who has called her & been most helpful in giving her encouragement & recommending a local doctor & nutritionist. Again, Thanks!!! Please add me to your e-mailing list.
    Gratefully, Ann Webb


    Date: Wed, 30 Oct 96 11:45:23 -0800
    From: FDC Librarian Linda Petriuk
    Organization: Food Development Centre, Portage la Prairie, Manitoba
    Subject: Bless you!

    Im a librarian at the Food Development Centre (were a special operating agency of the Manitoba provincial government in Canada) and a distressed
    library patrons query about gluten-free foods has landed me on your website. I am astounded at how wonderful this page is! Really, the amount of work that has gone into your site is obviously great, and the information contained in it, some of which Ive passed on to my library patron, has helped a great deal. Particularly I had been looking for information about gluten-free foods for (fastidious) children with the intolerance, and it has been wonderful to see how much information there is. The library patron is very grateful that there is someone like yourself providing this sort of help to people in great distress with gluten intolerance,


    Date: Tue, 05 Nov 96 20:10:00 -0800
    From: Connie Christiansen

    With enormous gratitude for giving me the answers to long-sought questions. I am feeling so much better since following this program for two months. After years of searching, I have no more pain.


    Date: Wed, 20 Nov 1996 02:49:47 -0500

    Thank you for putting together your home page. I have just discovered it, and it has opened up my celiac opportunities immensely. I have had celiac disease for 11 years, and have been so pleasantly surprised to find out that there are so many recourses now that were not available in 1985. Your page is one of my favorite places because of its listing of vendors, cookbooks, and recipes. Your information has led me to send for food catalogs,
    cookbooks, and newsletters. All of these things are a godsend to someone who thought Id never eat bread, cookies, pastas, and cakes again. Thank you for impacting my life in such a positive fashion.
    -Christine Zabel


    Date: Sat, 23 Nov 1996 11:40:49 -0800
    From: Fullerton, Stephanie

    Hi I just wanted to tell you that last spring my 11 year old son had to do a paper on a disease. He said he did not want to do something everyone knew about so I suggested Sprue because my mom had it all my life and I always was interested in it. At work I printed out your information and he loved reading it (much more than the medical books we got at the library!). He got an A on his report and the teachers comment was that it was very interesting! My mother passed away six years ago and I am so sorry she never got to see sprue on the internet!!
    Thank you!!
    Stephanie Fullerton
    Seattle, WA


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    admin
    Date: Sat, 17 Jan 1998 22:36:17 -0700
    From: Alan Sheffield
    Subject: Research/Thanks
    Id just like to express my appreciation for your effort and concern in putting up this site. I dont know how many people its helped, but the
    idea alone is wonderful. Im glad to see that there are still people in this world that are concerned with others welfare. Keep up the good work.
    I originally found out about celiac disease through this site. My little sisters friend was suspected of having the disease. Her family had a
    history of it, and her mother had asked me to find some information on it. I hurriedly read about it, and printed some information for her (she later found out that she didnt have the disease, and her reactions were unrelated).
    Sometime later, I returned and read some more. My fanatical biology teacher has assigned us to write an extended essay on a biological function/problem/something. Ive looked around on your site, and several others, and am confident that I will be able to find the detailed
    information I need (the class is taught at, no joke, a college level--a little heavy for a Freshman, but it will save me time later).
    Thanks again, and good luck!
    -Alan Sheffield
    Date: Tue, 03 Feb 1998 17:33:50 -0600
    From: RM Molloy
    Subject: Hello Just a note to compliment you on your excellent site on Celiac Disease; Unless you object, we would like to allow our patients to link to your
    site through our own site under a section on our webpage entitled Patient Support. We are a group of 6 Gastroenterologists in Milwaukee, Wisconsin (Milwaukee GI Specialists, S.C.). I will email you again when our site is up and running. Congratulations on your excellent website!
    R. Michael Molloy, MD
    Date: Fri, 13 Feb 1998 13:43:39 +0600 (PAV)
     
    We are doctors immunologists from Pavlodar Kazakhstan. We are involved in the problem of different diseases due to intestinal and skin disorders. We suspect that some of our patients have celiac disease. The matter is that we have no available serological tests for celiac disease. We would be very grateful to you if you provide us with email addresses of the institutions distributing laboratory kits for celiac disease. We like your web site very much. We think it is interesting and useful not only for celiac disease patients but for medical professionals either.
    Thank you very much.
    Doctors H. Junusov and M. Valivach
    From: Judy Parelman
    Subject: Thanks
    Date: Mon, 23 Feb 1998 22:08:51 -0600
    Thanks for all of your hard and diligent that you do regarding this web site. I have found it to be an enormous help. In fact, I cant imagine how much more difficult it would have been to function with out all of the info I have learned from you.
    Thanks!
    Date: Fri, 17 Apr 1998 00:02:02 +1200
    Subject: You beautiful people Wonderful, Marvelous, I believe that you should all be awarded first prizes. Keep up the good work great. Im not a coeliac but my brother is.
    He was rescued from death by a coincidence. After being tested for coeliacs in 1988, the test came back negative. He went on to suffer very severe symptoms, with no apparent change needed to his diet. His bones started to break, he broke his back and was admitted for psychiatric treatment because everyone thought hed become a obsessively depressed person. Nobody tested for coeliacs again until 1991. At the end of the day, the first test from 1988 proved to have been misread by the laboratory or doctor or someone and the results then, if they had been interpreted correctly, would have saved my brother from severe health disorder, financial ruin and a marriage breakup. After all, who wants to live with a dying depressed bankrupt.!!!!
    After the second test in 1991, it was discovered that my brother had coeliacs and his gluten free diet has brought him back from the dead. Hes alive again and trying to put his life together again. Its not easy. As his brother (and accountant) Ive been able to keep him afloat and out of the clutches of the IRS etc. But when things went bad, I wasnt there (I lived on the other side of the world at the time). In short, weve been able to pick up most of the pieces together since 1992 although I must admit, its still hard going at times.
    I am absolutely shocked that coeliacs is not more widely known. Thats certainly not your fault as you people are doing excellent work by
    keeping the celiac.com together. Keep it up. You have our support. Where do we send a donation !!!!!
    Ill keep browsing through your site and looking for more info. Once again... great stuff. excellent.
    Keep it up. Thanks a million bye now regards,
    -Peter van Bussel

    Subject: Great Job
    Date: Mon, 1 Jun 98 07:31:54 -0000
    From: Connie Pearce
    Scott, youre doing a great job. Your Celiac Web Site is extremely helpful to all of us. I just wish you had that magic cure you could pull out of the hat to help us all. But who knows, maybe when the medical professionals become better listeners and are better educated, there
    might just be a cure. Thanks again,
    Keep a Positive Thought,
    Connie
    Date: Sat, 13 Jun 1998 12:59:21 EDT
    Two years ago I was really sick, was going down the usual diagnostic pathway with a colonoscopy etc., having all the tests come back negative but still feeling very ill. I started with a search for IBS info and arrived at your site via that pathway. As soon as I started reading it, I realized that all
    my symptoms exactly matched those described. With NO help from the doctors, but a lot of help from your site, I correctly diagnosed myself with celiac disease. I couldnt agree with what you said above more. The LISTSERV wouldnt have helped me then because I didnt know I had celiac disease. Keep up the good work Scott, you are doing more good probably than you know. Thanks so much for the help. You may have saved me months, maybe years of misery!
    Best Regards,
    Susan Wagener
    Date: Tue, 9 Jun 1998 17:18:54 EDT

    I agree with you and two years ago when I was put a gluten free diet by my skin doctor for DH, your web site was the first one that my husband found for me and it was so exciting to print up all the interesting information you provided on my condition. I was so excited! I was not interested in learning how to access information on my own until last September when I was diagnosed with Celiac by intestinal biopsy and felt I needed to meet people like me. That is when I learned how to join the Listserve and have since then looked everything up by myself. I still am thankful to you and your website and still enjoy the updates you send to me. I look up every update and many times will print them up for my files.
    Thanks, Barb from NE Ohio
    Date: Tue, 9 Jun 1998 00:04:34 EDT

    I dont have count of the number of times I have felt better knowing that there were sites such as yours which could help me in gathering more
    information....and comfort...during the past year and a half. You are one of my heroes!
    Carole Hagstrom From: Mary A. Halas, Ph.D.

    This is an overdue thank you for your web site. I have used it so many times in the last three years and it is well-written and invaluable.
    Mary Halas
    Date: Mon, 13 Jul 1998 14:16:02 -0600
    From: Shani Byrd
    Subject: Thanks Im a registered dietitian who works at the Air Force Academy. Your site has been extremely helpful in instructing my clients on their
    disorder and in helping them know how to treat it via diet. I think the information you provide is sound, accurate, and extremely useful and
    practical I can only hope that dietitians all over the country find out about your site and use your valuable information. Thanks again!
    Lt Shani Byrd, RD
    USAFA Health and Wellness Center

    Date: Fri, 31 Jul 1998 08:35:05 EDT

    God bless you for the time energy and expertise you put into your web site. It is the best on the Internet and I know you are helping thousands of people all over the world.
    -Jane Trevett Date: Sat, 15 Aug 1998 05:03:51 -0700
    It has been a while since visiting your celiac site... it is still the best on the net, thanks!
    Thank you,
    -Brett

    Date: Wed, 26 Aug 1998 12:23:06 EDT
    Subject: Thank you for a new Life Scott
    In ones life, there are few times when a person comes along who profoundly changes them. I ran across your web site around 5/26/97 and realized that I was a celiac. I was diagnosed as a baby, taken off grains, then put back on. I lifetime of intestinal problems (and no medical advice) has been hell. I have been fighting what i can only call grain addiction, but i am making headway.
    I can never pay you back for the door you have opened for me, and i shall never forget you. Inspired by you, I have changed quite a few lives already and am working on more. My life long goal is to be in politics on the federal level. You can be sure I will be there, fighting the ignorance of this disease, which i no longer believe to be a disease, but I believe it is a fundamental diet change that all humans should consider.
    Thank you O Great One...
    Robert James Hoffman
    From: Cynthia Rudert, M.D., F.A.C.P.
    Subject: Celiac Disease
    Date: Wed, 16 Sep 1998 13:54:40 -0400

    Congratulations on your wonderful Web site for Celiac Disease. It has been an incredible resource for my patients. I am a board certified gastroenterologist specializing in Celiac Disease in Atlanta. Presently I am following over 100 patients with gluten sensitive enteropathy. I am
    also the president of the Gluten Sensitive Support Group of Atlanta and I lecture nationally. If I can help you or anyone with questions regarding
    Celiac Disease, please let me know.
    Fondly,
    Cynthia S. Rudert, M.D., F.A.C.P.
    President Gluten Sensitive Support Group of Atlanta
    President and Founder of the Atlanta Womens Medical Alliance From: Zeca Martins
    Subject: From Zeca Martins- Brazil
    Date: Fri, 2 Oct 1998 01:41:09 -0300

    I hope you remember me. A few days ago, I wrote about my son, Miguel. The information you sent me were absolutely GREAT. The e-mail os ACELBRA belongs to Almir, a guy that lives A FEW BLOCKS AWAY FROM ME. And thats not everything: he told me about the only place here in São Paulo were I could find gluten-free pasta, and his wife started a small bakery of gluten-free breads.

    So, Miguel started to eat his own pasta and bread for the first time after the diagnosis, without pain or diarrhea. That was a great experience to see him eating pasta and thousands of bread slices. He didnt even look around. Well, we all felt something strange in our throats, you know... we almost started crying.

    Now, I and Almir are trying to start something greater, helping ACELBRA to improve its efforts. I mean, we are planning a series of activities involving press releases, advertising (we are both publicists), the creation of a complete internet site (something as you have been doing, but in Portuguese) and so forth.

    Thats all by now. And THANK YOU VERY MUCH again. God bless you and all those people who help each other.
    Zeca Martins

    Date: Wed, 25 Nov 1998 20:47:11 EST
    Subject: The Celiac page
    Just a note to say that your page - the way it is structured, the simplicity of the excellent graphics and, above all, the wealth of useful information
    that it contains has to make this the finest site I have ever encountered. My sincere congratulations.
    I found it when I searched with just two words - gluten and neuropathy. I have been diagnosed with CIDP -Chronic Inflammatory Demyelinating Polyneurpathy - and after months of the Neurologists knocking down my immune system with all the guns they can find they still have not stopped the cells producing whatever antibody it is that is attacking the myelin sheath.
    I have the idea that it is related to what I have ingested most of my life but that doesnt appear to wash with the experts. Hence my interest in your
    site. Again - a fantastic job - it was certainly a help to me and I am going to go ahead with the serological tests. Doesnt seem like much to loose.
    Best regards,
    Ian Bruce
    Date: Sat, 05 Dec 1998 05:56:06 -0800
    From: Richard E. Jeske
    Subject: Thank You Thank you for the excellent information on your site. I used the lists of safe and forbidden lists to get gluten free and my symptoms of
    fatigue and exercise intolerance were gone in 24 hours. Over the last four years I have slowly lost ability to function to the point where I could no longer work and am on disability. During that time several doctors could not diagnose the problem and had a diagnosis of chronic fatigue syndrome. When a friend mentioned Celiac may be the problem, the symptoms on one of your pages matched mine.
    I have had the best 4 days in recent years and plan to be back to work in 2 weeks. Staying gluten free is a small price to pay to having my
    life back. Thanks Again,
    Dick Jeske
    Date: Sat, 12 Dec 1998 20:56:17 EST
    Subject: THANKS

    Scott - many people do not realize you are a real person. Your service to celiacs is fantastic and during this holiday season, we all want thank you for the marvelous job you are doing. Lets hope more doctors read your page and test more people. Many people are devoting all their spare time to GETTING MORE CELIACS DIAGNOSED and we are thankful for the help you are giving in this effort.
    Thanks for a marvelous service. Keep with it!!
    Jane Trevett

    admin
    Date: Mon, 06 Jan 2003 07:19:02 0000
    Subject: Newsletter
    Just wanted you to know that Ive just finished reading all three issues of the Scott Free
    newsletter. It is excellent! It is very professional; interesting articles. The
    newsletter seems to have started at a good time--I was just diagnosed with Celiac Disease
    in October 2002, and have been emersing myself in information about it. Thank you and
    keep up the good work!!
    Subject: thanks
    Date: Thu, 23 Jan 2003 12:35:28 -0600
    Thanks for the great website. I refer to it and recommend it all the time. Also I love your Scott Free newsletter. I have formed a local support group and used reference material from celiac.com all the time. You have helped many people.

    Keep up the good work!
    Lila Brendel
    Date: Fri, 7 Feb 2003 11:35:52 -0800 (PST)
    Subject: Thank you
    This is just a simple comment saying thank you for this website. I just turned 19 and have had stomach problems for 11 years now. Ive been to doctors before telling me that they thought it was nothing and so forth, and then I came upon this website and did a little "testing" as far as what I ate and what the results were. Sure enough I self-diagnosed myself and went on a Gluten-Free Diet after making another doctors appointment. It took nearly 2 months to finally get to the Doctor, but by then I had already determined I knew what was wrong with my body and had told him my situation and what I believed to be the problem. I had blood work done and they determined that I had celiac disease. I just want to thank you because you have no idea how much this boosts my emotions and my
    self-esteem, b/c i will finally be able to gain weight, and most importantly be able to live a Healthy life. Thank you so much
    -Patrick Dangolhick
    Date: Sat, 8 Mar 2003 15:35:00 EST
    Subject: Re: 2002 Summer Newsletter
    Scott,
    Your website was my salvation when I was recently diagnosed with Celiac Disease. The doctor just told me to go on a gluten free diet and that was all the info I got. I ordered Shelly Longs book and the info I got from your site has given me the info I needed to start this whole new life style. Thank you for your website and the hard work (I know) you do to maintain and update it!
    A Fan,
    Pat Minnigh
    Subject: Scott-Free Newsletter
    Date: Mon, 17 Mar 2003 09:10:50 -0500
    I dont usually send testimonials, but your newsletter is an excellent
    source of up-to-date information about Celiac Disease. I highly recommend
    it to anyone with celiac disease.
    Regards,
    Mack Cawthon
    Subject: Re: newsletter
    Date: Tue, 15 Apr 2003 15:48:48 -0600
    Thanks Scott, I want to tell you how much I appreciate your site. I am a mental health therapist and am accustomed to reading the original articles in journals. In several cases, I read the original article and your review later. I found your reviews to be on track in conveying the essential information in a vocabulary that is accessible to the layperson. Your site is my first stop when I need to do some research on a celiac topic. The Scott-Free newsletter appears to be maintaining that high standard already. Thank you for making being the mom of a kid with celiac a little less stressful.
    Kathleen Apodaca
    Date: Thu, 15 May 2003 21:29:09 EDT
    Subject: I just want to say thank you!
    I am 22 years old and I have been suffering with this disease for a number of years. My stomach would wake me up everyday with severe intestinal cramps and then I would commandeer the bathroom for about an hour (I am sure you know what I mean). Sometimes my intestines would wake me up in the middle of the night and I would be in the bathroom for hours. Just like you I have had a barrage of tests ranging from liver tests to being diagnosed with IBS. I did everything I could to restrict my diet (except eliminating gluten of course) but nothing seemed to help, until I began to eat less and less food because I was literally scared to eat. I gave up on doctors or ever possibly finding a cure. I began to rapidly lose weight, I scared my friends and family who automatically thought I was an anorexic (which is not the case fear of becoming fat and fear of food because it will make you ill are two different things). So anyway my mother found this page emailed it to me and I thought "I can give this diet a shot? Why not?", I am happy to report that I have not had the slightest bit of pain since starting this diet. I wake up in the morning and I could honestly cry because it is such a relief to not feel sick everyday with no apparent cause. I apologize for rambling but I want to thank you from the bottom of my heart because without you I might have died. So thank you again. You are a Godsend.
    Feeling Healthy,
    Trish
    Date: Wed, 25 Jun 2003 09:33:42 -0400
    Subject: Re: Celiac.com
    Dear Scott,
    I must tell you that your site celiac.com saved my life. Its a long story, but I was just diagnosed with celiac at the age of 45 after a life time of stomach, bowel, joint and muscle problems. With the help of a nutritionist and your site, I was properly diagnosed and Im feeling better than I have ever felt in my life! Thank you for your continued hard work. We must continue to get the word out to friends, family and especially doctors, who seem to feel that celiac is not a major illness.
    Take care and thanks a million.
    Rita Gurkin
    Date: Sat, 12 Jul 2003 18:12:04 -0400
    Subject: Thank you!!!!
    Hi,
    I just found your site. It is absolutely incredible. My 18 year old son is celiac and some(most) of the recipes are so fantastic I cant wait to make them. I am just as excited about them as he is. He is going off to university in Sept. and most of the recipes say they keep well. One less worry for me, to know he has food he can eat!
    Thank you so very much for all the work you have put into your site. You are a God-send!
    Myra Lewis
    Date: Tue, 5 Aug 2003 22:09:40 EDT
    Subject: comments
    I would like to congratulate you on your website, and newsletters.
    The information is fantastic and very helpful.. Recently diagnosed with gluten intolerance (yeast and casein), I find your site one of the best for being informative.
    thanks, Linda Rendely
     
    Subject: Thank you
    Date: Tue, 30 Sep 2003 15:30:33 -0700
    The website is fabulous, well-constructed, and very useful. Thank you so much!
    Leigh Davisson
    Subject: RE: Scott-Free Newsletter - Technical Support
    Date: Wed, 10 Dec 2003 08:56:39 -0500
    Hi Scott,
    Thanks for the info on the newsletter. Please accept my sincere thank you
    for all the effort and work you put into producing the newsletter. I find
    it to be a most valuable resource in managing my sons celiacs disease.
    Best wishes for a safe and happy holiday season to you and your family.
    Best wishes,
    Lori Uerz
    Date: Sun, 14 Dec 2003 09:15:14 -0700
    Subject: Re: Celiac.com
    Scott, thanks SO much for your help. I dont know how much of a one-person effort your newsletter is, but kudos to you and those who might be helping you. My daughter was not physically well enough to work but was always looking for ways in which to help others. Her ideas were grand but her diseases (diabetes and glucogen storage disease) were too devastating and her life all too short. She would have been 28 on December 18. I applaud your efforts to pass along such vital information to those who are gluten intolerant.
    Have a blessed holiday season!
    Terri Curry
     
    Date: Sun, 21 Dec 2003 06:52:52 -0600
    Celiac.com Update!Dear Mr. Adams,
    I just had to send a note of thanks to you...I appreciate all the information you provide through celiac.com. Very informative and helpful!
    Coming to learn about celiac disease/gluten intolerance in my family has answered many questions with health problems throughout the years. Having the information from your web site has been a primary source of information for us as we move from chronic sickness to new vitality. Thanks so much...you are a blessing.
    Grace and peace to you.
    Bonnie Hafeman

    admin
    Subject: Celiac.com
    Date: Thu, 22 Jan 2004 09:48:56 -0500
    Hello,
    I found out that I had celiac sprue 3 years ago. I just wanted to thank you all for such a great web site. Of all the places on the web for celiac I find yours the most informative. I learned things here that I havent found anywhere. I signed up for the free news letter and I will visit your site regularly. Thankyou for helping me understand more what is going on with myself. Lets get more doctors aware of this as I have had systoms of this disease sense since the age of 16 ( I am currently 33) I am very poor I wish that there were more enexpensive alternatives to replace the foods I now cant eat. Thanks to your site I realize that I need to save money to get tested for type 1 diabetes. Thankyou again for your informative site.
    Christine Thomas
     
    Subject: Article in Feb. 04 Readers Digest
    Date: Sun, 1 Feb 2004 10:39:17 -0800
    Hi Scott-

    Your work on Celiac.com is greatly appreciated! Im a long-time nurse (42 years) and the grandmother of 4-year-old Katie who was diagnosed shortly before her 3rd birthday by her mother (my daughter). Katies diagnosis has not been confirmed by an official lab test or procedure, but it is obvious by her symptoms. She has been on a strict gluten-free diet since we first became aware of her problem. Contrary to my wishes and advice, they chose to continue with the diet and have her tested when she is a bit older. I believe this is based on the fact that Katies dad is in a bit of denial, thinking she will outgrow it.

    Keep up the great work!
    Alice
     
    Date: Sun, 08 Feb 2004 11:31:37 -0500
    Subject: Rice Beverages

    Dear Mr. Adams:
    I first want to express my sincere appreciation for your website. Because of the information it provided, I was able to diagnose the cause of my daughters asthma and skin rashes. In addition, I have cured my own, chronic bronchial and sinusoidal infections. THANK YOU!
    Robert L Fireovid
     
    Date: Thu, 12 Feb 2004 17:50:00 EST
    Subject: Celiac.com
    Hello Scott, I want to tell you how absolutely fabulous your newsletter is. THANKYOU!
    Yesterday, I received an e-mail about subscribing to the newsletter. I assumed that
    because I am a subscriber, my subscription must be running out so I renewed for
    another year. Please check to be sure the renewal that I did yesterday will extend my
    current subscription. Thank you again for a fabulous newsletter.

    Laurie Whitehill
     
    Date: Fri, 14 May 2004 07:53:44 -0500
    Subject: Re: Celiac.com Update
    Celiac.com Update Dear Scott,
    It never ceases to amaze me...the information you provide lines up so well
    with our experience with gluten intolerance and numerous issues related.

    The article Are Commensal Bacteria with a taste for Gluten the Missing Link
    in the Pathogenesis of Celiac Disease? by Roy S. Jamron is excellent. I
    believe you have hit on the biggest breakthrough with celiac disease and
    gluten sensitivity...that being the role of bacteria.
    This bacteria issue is something Ive become well familiar with in our search
    for answers for myself, our daughter and a friend. In my case, Klebsiella
    pneumonia and Helicobacter Pylori were present, in our daughters case and my
    friends case, no pathogenic bacteria was found. But, in each of our
    situations, we were lacking adequate amounts of friendly bacteria
    (Bifidobacteria and lactobacillus). I believe this is the missing link.
    Perhaps not the presence of a pathogenic bacteria, but simply the lack of
    healthy bacteria. Each of us had been prescribed numerous antibiotics in the
    past as well.
    Thanks so much for the work you do. Great Job!
    Grace and peace to you,
    Bonnie Hafeman
     
    Subject: Re: Free Food
    Date: Wed, 1 Dec 2004 05:21:31 -0500
    Scott,

    In 1996/1997 I was dying. I was around 31 years old. I had gone bankrupt, could not hold jobs, and was close to destitute. I could only work two days a week and was living in a small one bedroom apt. I had accomplished nothing in my life that I wanted to, never had a girlfriend (sick all the time), and was starting to lose my eyesight from bleeding in the back of the eye. When I went to the toilet, and I did often, it was all water...and nothing was digested. My stomach grew out like the children in Africa who starve does.

    I knew I would not last long. My goal was to get better so all I ate was healthy food. Lots of grains- wheat, rye, barley, etc- in soups and other ways...and I was failing. It was all I could do to work those two days to pay the bills as the rest of the time I spent in bed or near the bathroom.

    I remembered my mother saying I was sick as a very young child (one or two?) and after many specialists they could find nothing wrong and I was dying. The Doc said try taking him off gluten for a few months and see. It worked, I did live. But I was never really healthy...and never near 100% in studies or attention.

    As I lay there realizing I would be dying soon, I looked up gluten on AOL...and your site came up first. I saw the symptoms (a few of which were mine such as diarrhea, ADD, lethargy, and the like.) and I realized I was on to something.

    The next eight years have seen vast improvements in some parts of my life. I am slowly getting at goals I have been yearning to do for decades (such as the website, originally a magazine). Unfortunately the test has been not bingeing and realizing the community is wrong. I am now in the midst of the 14th day free of ALL grains. Only fruits, vegetables, meat, and water have gone into me. I am feeling much better for the first time, though still run down. I cannot eat anything except basic food groups or I think I will never get away from the addiction, for addiction it is.

    Although I am struggling now financially I am still healing and find I am able to work more than I was even 4 years ago..

    If anyone needs to pay someone it is I paying you. As I said in a letter once, your site changed my life and I have spent many an hour talking to people to help change theirs too. All I can say is my political aspirations revolve around the truest sense of making the world better and helping all people. If I ever get to a state or federal level you will hopefully feel proud that you were part of it and any good that I can do while up there.

    Thanks for everything.
    Bob Hoffman

    admin
    Sent: Sunday, January 23, 2005 9:01 PM
    Subject: Celiac? Whats that??
    I entered wheat gluten in Google, I was amazed by the information that I got from some of the web sites on celiac disease. Ive been X-rayed up, down and all around, all kinds of tests for everything you can think of during the last 25 yrs. Ive been diagnosed with Grovers disease, atopical dermatitis, my legs itched (excruciating) for over a year, my skin is easily bruised. Im borderline anemic. Huge amounts of gas (flatulence) and several more signs, symptoms, all related to celiac disease AND not one M.D. has brought up the possibility of celiac disease, let alone test for it! After going on a gluten free diet a few days ago,(and dairy free) Im feeling a lot better. No more gas attacks, no more belly pains etc. Thanks to CELIAC.COM Im getting my life back. Bob Thompson
    Date: Sun, 30 Jan 2005 18:34:25 EST
    Subject: info request
    Dear Scott,
    I am a Registered Nurse. i work with the developmentally disabled. There have been quite a few of our patients with Down syndrome, that have been tested positive for Celiac disease.
    I am putting together a presentation on celiac disease for our staff. I found your website to be very informative and easy to navigate. Please let me know if you have any further resources for me .
    Thank you
    Maureen Gavin RN,C CDDN
     
    Subject: RE: Request for permission to reproduce selected information on celiac.com
    Date: Wed, 9 Feb 2005 15:52:48 -0500
    I would also like to take this opportunity to thank you for your efforts in producing celiac.com web site. Seven years ago my symptoms became sever enough that I could no longer work on a regular basis and I started what turned out to be the long process of finding the root cause of my illness. I lost count of all the doctors I saw. I lived in pain from colitis and other side effects of celiac. Several doctors labeled me a "drug seeker" and discounted anything being wrong with me. At some point I decided that I needed to be proactive in my own diagnosis and started research. My wife first came across celiac disease and after eliminating some other candidate illness I insisted that I be retested for celiac which came back positive. Even then I found that I had to "educate" my own doctors about the illness and actually it took my own recovery after starting a gluten free diet for my doctors to accept that this was indeed the problem. Celiac.com was an invaluable resource during this period. Had I not had your site available, I do not know if we would have put all the pieces of the puzzle together and might still be searching. While not full recovered, I am making progress. I never dreamed how difficult it would be to eliminate gluten from my diet, nor how sensitive I would become to contamination. Most of my contact now comes from things like obscure additives in foods and health care products. The lists you have provided at celiac.com have become invaluable to me. Thank you and I hope that I can help make this information available to others that need it. I know that others in my family also suffer from some degree sensitivity to gluten and has suffered all there lives from the results. I am convinced that my mother died from complications caused my it. She died of cancer some years ago. While I will never be certain of this, I can take steps to prevent the same thing happening to me. My daughter also shows some signs of being gluten sensitive. Perhaps she will not have to go through what I have, and you have played a big part in this. I know how much effort you have put into making this web site and maintaining it. You have given much and I want you to know that this effort has not been for naught.

    Thank you again,
    Paul Montgomery
     
    Subject: Thank you
    Date: Tue, 29 Mar 2005 13:45:36 -0500
    Just wanted to say thank you for a great site. I am adapting to the gluten free diet. Your listings and several resources are perfect and clear. The site is easy to negotiate. I cant thank you enough.
    Margaret Collins
     
    Date: Tue, 26 Apr 2005 07:07:24 -0700 (PDT)
    Subject: Re: Celiac.com Update
    Great issue, Scott! Thanks for all the hard work you do. I was diagnosed
    almost 9 years ago and there wasnt nearly as much action as there is now. I
    truly feel this diagnosis is a gift for long life and good health.
    Norie Erickson
     
    Date: Thu, 5 May 2005 09:44:05 +0200
    Subject: Re: celiac&depression
    Dear Scott, as you might imagine, I was hit by the gluten free experience (why would I otherwise have sent you this abstract?). As many others, I stumbled into your site by chance, and, wow, there was not only the story of my own life, but the story of my whole family ... Ive been gluten-free 2 months, man this is the most exciting&interesting period of my life.

    This gluten thing is HUGE, and its coming towards us like a tsunami ... can you imagine, when people collectively start to understand, the cause of ALL our cultures health problems ... IT WAS THE WHEAT STUPID !

    Youre making revolution! Fantastic work! And thank you for saving not only my life, but the lives of my 2 children, my 8 brothers and sisters, and my 16 nieces and nephews! And several friends, colleagues & neighbors Ive approached cause I believe they might benefit from this diet ... Of course they are not all gluten-free yet, but they now have the facts (theyre kind of pondering them), and as soon as they start getting really crappy, they now have a life-saving option!
    wishing you the best, Ines
     
    Date: Thu, 25 Aug 2005 20:09:36 EDT
    Subject: Re: HELP!
    Thanks Scott, I have always meant to sit down and write to you, I truly appreciate all the help and guidance you have given me via your web site. I was diagnosed 5 years ago with Celiac Disease after a lifetime of terrible health, starting off as a failure to thrive baby, my health history is one disaster after another, many of them quite serious, a few life threatening. I was seeing 5 specialists for 5 inflammatory conditions to different organs by the time I was 48 and going down fast, I had a constant temp of 100 +and was burning up with inflammation, my immune system was just shot. I was lucky enough to have a very smart husband who found mention of the disease in the Lancet, we had the tests done and it was the best thing that ever happened to me, the world is a new place and I am pretty well most of the time. After finding your site I could buckle down to the work of getting completely gluten free, I have achieved that and while everything is still not perfect its a vast improvement, I no longer have to take the rounds of drugs, antibiotics, anti-inflammatorily, anti-virals, prednisone and cortisone enemas have stopped. You have truly been an inspiration as well as a friend from afar. Best regards, Kirsten
     
    Date: Thu, 15 Sep 2005 13:56:56 -0700 (PDT)
    Subject: Re: Celiac.com Update
    From: Patricia Dillon
    THANK YOU FROM THE BOTTOM OF MY HEART...I HAVE HAD CELIAC DISEASE FOR 25 YEARS AND NOW MY 2 SONS HAVE IT. I AM SURE ONE OF MY SONS EMAILED THIS WONDERFUL WEBSITE TO ME. I WILL BE TOTALLY INVOLVED WITH YOU AND ALL THE WONDERFUL IDEAS, REPORTS ON CELIAC AND THE RECIPES....THANKS AGAIN, WE ALL THANK YOU
     
    Date: Thu, 29 Sep 2005 13:52:43 EDT
    Subject: Thanks
    I simply wish to thank whoever has been responsible for providing this site.
    I have recently come to believe that I am Celiac, and your site (through a friend), has provided me with alternatives that I didnt know existed. So, thank you very much.
    Sincerely
     
    Date: Fri, 11 Nov 2005 11:53:31 -0800
    Subject: CORN PROBLEM????????????
    Dear Scott,
    I dont spend much time on the internet because of many reasons. However, whenever I receive an update from you, I am always pleased and enjoy the information that you dispose. It is so nice to know that there is help when you need it, in regard to gluten intolerance.
    Thank you so very much for your response.
    Terry Dellasala
     
    Date: Wed, 7 Dec 2005 05:53:18 EST
    Subject: Re: Message Board
    Thanks so much. I wrote you for advice a while back Scott, regarding advice because I was so sick...not sure if you ever got it, just wanted you to know Im still having some problems but the Doc at the mayo clinic helped me greatly. If it were not for your board I would have never heard of him.
    Thanks
    Bridget
     
    Date: Thu, 8 Dec 2005 18:04:01 -0800
    Subject: Forum Subscription New Topic Notification ( Gluten-Free Celiac Disease Forum at Celiac.com
    Who started Celiac.com and is responsible for maintaining this wonderful website? I would just like to say thank you to whomever you are. You have provided a source of great knowledge and encouragement to all of those who have been fortunate enough to stubble upon you in our quest to find answers, support and encouragement. I could not survive a gluten-free life without you.
    Thank you from the bottom of my heart. Your efforts, and those of all the members of the forum are forever appreciated.
    Because of the advise of others here and reading there trials and tribulations, I, after 15 + years have finally gotten some answers. And more importantly, my son will not have to suffer the way I did because I now know that you have to question your doctors, ask them for certain tests and be vigilant in finding the answers and causes to the symptoms.
    Laurie

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com