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    1997 Celiac.com Feedback


    Scott Adams

    Date: Sun, 26 Jan 1997 00:05:09 -0700
    From: Jane Warner
    Subject: Thank you & add me to the list


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    Please add me to your e-mail list. Thank you. Wow! What else can I say after skimming your site? What a lot of thought and work went into these pages, and to good account, too. They are very well organized. I found a wealth of information that will help me get a good test for celiac disease. Thank you, thank you, thank you!


    Date: Wed, 29 Jan 1997 13:26:32 -0800
    From: Sue Metz
    Subject: THANK YOU!

    I dont even know where to begin....I only wish Id had this information on celiac disease 10 years ago, it would have saved me SO MUCH suffering and frustration (not to mention $$!!). Please add me to your e-mail distribution for updates. Thanks again!


    Date: Sun, 9 Feb 1997 14:22:40 -0500 (EST)
    Subject: Coeliac

    I just wanted to drop you a short note to say how pleased we were to discover the information about coeliac disease on your
    web-site.

    My wife, Val, has very recently been diagnosed, but has probably been suffering from it for 30 years or more. At first, news like that is quite overwhelming and gives rise to a lot of confusion and seemingly thousands of questions. For us this was an especially difficult time as we had only just previously had confirmation that our younger son (14) was diabetic.

    The information on Coeliac on your web site was the most helpful that we have yet come across - and that includes what we have received from our own health service professionals here in the UK - and gave us more confidence about reverting to some sort of normality, which we now think we are beginning to realize. Once again, thanks for your efforts - they are much appreciated.
    - Roger Brenton.


    Date: Mon, 10 Feb 1997 00:44:03 -0600
    From: John Gruber
    Subject: Thanks

    Just wish to thank you for your website which I hit in April last year. I am Gluten intolerant and have suffered for many years. Thanks to you I can now say that I am almost restored. The doctors had no idea. Thank you.


    Date: Wed, 12 Feb 1997 19:53:08 -0500 (EST)
    Subject: To Scott Adams

    Scott: Thanks so much for your original Celiac page! You literally saved my life. I had heard about Celiac disease on a TV program, but did not have the full picture of the disease until I hit your site in November of 1995. I had gone thru several doctors in an attempt to figure out what was wrong, including an endoscopy with a gastroenterologist. (My regular MD, who was completely stumped by this condition, asked me if I was claustrophobic!) I suffered with the symptoms of this disease for 2 long years, and within 2-3 days after dumping the wheat I was back to normal. After this ordeal was over, I began backtracking into family history, and quickly realized that my Grandmother had been plagued with this disease, and that my Father had the disease as well. He had been taking Dapsone from his dermatologist for 15 years for various rashes. I quickly put the pieces together and confronted his doctor with this new information. He appeared to be quite stunned by the findings. At any rate, my fathers stomach and skin problems, as well as my stomach problems were all cured your article. I had not experienced any of my Celiac symptoms until November, 1993, (at age 33), when the symptoms appeared after taking daily dosages of Nuprin for reoccurring headaches I was having. Has anyone else been affected by the Nuprin that also suffers from Celiac Disease? Also, have you noticed the irritating Imodium ads on TV lately? They appear to be directly targeted toward the celiac disease crowd. While the ads are portraying individuals in humorous moments, Im sure it affects Celiacs in a very negative way, and I wonder if there has been any contact by your group with the manufacturers of Imodium. Again, thanks for all your help. You started me on the road to recovery and I thank you for that.


    Date: Tue, 11 Mar 1997 19:21:01 -0500 (EST)

    You cant believe the journey you have sent me on! As a very small child I was diagnosed with celiac disease. All my photos of me show a tiny 4 year old with an enormous abdomen. I guess I was lucky to be diagnosed so early. I ate tons of bananas (but that is another story).

    Totally unrelated, at age 16 I developed a terrible skin disease which was finally brought under control in my late 20s with a medicine called Dapsone. I was told at age 16 that I had a disease caller Dermatitis Herpetiformis and it would last 15 years or so...wrong.

    Many years later, at age 50-something I had a routine bone densitometry test because I began to see a small hump developing on my back. DX: SEVERE OSTEOPOROSIS! Now that was a shocker! I expected to hear early Osteo, but never SEVERE!

    One year later, on the internet you, Mr. Scott Adams put it all together. I cant believe the connections! My mother has severe osteoporosis and
    arthritis, my daughter has multiple sclerosis. I am still in shock! When I added my name to your e-mail list, I couldnt even tell you how you
    had connected it all for me. Thank you! You made a real connection for me!


    Date: Wed, 2 Apr 1997 07:21:34 -0500
    Subject: Celiac Website

    The other day Cindy in NJ sent me an email in response to my query about dextrins and maltodextrins suggesting that I look at Scott Adams web site, Celiac Support Page. Its incredible and I cannot believe that I hadnt discovered it sooner. I highly recommend this to all of you as its clearly written and extensive. For instance, his Other WWW Sites that deal with celiac disease is 14 pages long when printed out!

    That list of 4 pages is Safe & Forbidden Lists. From there you can go to Whats New?, FAQ, Broad Overview of celiac disease, Celiac in the 90s, History of celiac disease, Treatment for CE, Diseases Which Resemble celiac disease and Related Disorders, Research Data on celiac disease, etc. As I said the site is
    extensive. If you have any questions, comments or additions for Scott Adams, you can
    write him. This man has done us all a great service.
    - Sarah Barnett


    Date: Tue, 08 Apr 1997 11:40:01 -0700
    Subject: Your site

    I have entered your web site a number of times. You are certainly doing a great service to celiacs and DHers. I imagine people get to your site
    by searching key words and then it pops up. I talk to many new people who have done research on the Internet first and then find local contacts.
    Also, you may or may not know that I am the new (since Oct. 1996) president of CSA/USA. Thanks. Again congratulations on all the good work. Keep it up! Janet Rinehart in Houston.


    Date: Sun, 13 Apr 1997 20:56:49 -0700
    From: Richard Tanasi
    Subject: SPRUE

    THANK YOU VERY MUCH ! I HAVE JUST BEEN DIAGNOSED AND YOUR LETTER ON THE HOME PAGE DESCRIBES WHAT I WENT THROUGH TO THE TEE. ON -GOING FOR YEARS.I HAVE SURFED THE NET AND BY FAR THIS IS THE BEST.IT GIVES ME PLENTY OF INFORMATION AND DIRECTION. I HOPE MY NEW DIET WILL WORK ITS TWO FOLD BOTH GLUTEN FREE AND LACTOSE INTOLERANT. THINGS COULD BE WORSE. AGAIN THANK YOU FOR TAKING THE TIME AND IF I CAN BE OF ANY HELP,LET ME KNOW. RICK


    From: Kathleen Shipley
    Date: Mon, 12 May 1997 21:30:02 -0500

    Thank you so much for all the time and effort (not to mention money) that you have dedicated to your web site. It is wonderful! You will never know how much it has helped many, many people. My husband found it soon after I was diagnosed. The doctor had diagnosed me quickly, but his information was pretty worthless. Your web site explained everything and gave me hope. Please add me to the automatic update e-mail list. Thank you very much! Keep up the good work!
    - Kathleen Shipley


    Date: Wed, 21 May 1997 22:04:22 -0400 (EDT)
    Subject: Please add me to e-mail list

    We are about to start the diagnostic blood tests for our daughter . The pieces of the puzzle may be coming together and we were wonder if there is any link to heredity, as my husbands sister was considered years ago to be lactose intolerant as an infant and has suffered years from unexplained migraine headaches. There is an * after the reference to headaches as a symptom. I could not find the footnote it refers to. Could you help me find more info on it. This page may be very helpful to not only our daughter who is 2 ½ years old and only weights 23 lbs. and is only 33 inches tall, but may also help her aunt lead a fuller life, free from headaches. Thank you so much for the time youve spent in this endeavor. I wonder if you fully realize how much it really means and the number of people you may reach. Thank you again!


    Date: Fri, 23 May 1997 22:03:58 -0400
    From: Duane Kling
    Subject: Just another fan letter !

    I am so impressed with this site i cant even tell you. all the info i have found is so easy to understand and so helpful .i have told so many people about you in the past week . keep up the great job and i look forward to your news letter that i already signed up for. thank you, thank you, thank you !!!!!!!!!!!
    Laure Kling


    Date: Wed, 11 Jun 1997 01:15:36 -0400 (EDT)

    Hello Scott. First, I want to thank you for all the helpful info that you provide about celiac disease. You have no idea how many you have helped with your
    outstanding site. I have a nephew (age 3) that almost died before diagnosed at 18 months. His Mom (my sister) was diagnosed 6 months ago even though over-weight and asymptomatic. I have been printing and mailing them tons of educational material for about a month now. I live in Texas and they live near Windsor, Ontario, Canada. My sister belongs to the Tri-County group near Detroit (Jim Lyles group) as well as a small group in
    Canada. The group in Canada does not have anyone on the internet and they have none of the latest info. My sister would like to share some of the
    articles Ive sent her with the group members and is currently trying to set up an education committee. One thing we feel very strongly about is that everyone must always be told to verify info and be responsible for their own decisions. Personally, my sis is zero tolerance,
    very strictly gluten-free (by USA standards).

    Your info on related disorders has been enlightening, to say the least. We have several family members that need testing. Our Mom was just tested by a very good (celiac informed) Dr. and found to only have IBS. Sounds fishy, I know, but he had a gazillion tests run. She is also diabetic(Type 2) and had colon cancer 10 yrs ago. She gets that awful test every year. Anyway, we have about half of those disorders that you list in our family members and, thanks to people like you, we know now that we must investigate further. We have been helped so much by the net info that we cant help but want to share with others who really seem in need. Thank you again. We value your opinions.
    - Diane Wright


    Date: Fri, 13 Jun 1997 18:02:57 +1000
    From: Bruce Gary

    Hi Scott, just browsing for info on celiac disease. I got to say this is a really well designed site; uncluttered, logical, and to the point.
    Congratulations, it says a lot about you.
    Cheers,
    Bruce Gray
    Date: Sun, 22 Jun 1997 16:27:41 -0700

    Because of contact with your page, I went on a gluten- and lactose-free diet about a year ago and all my symptoms have disappeared.
    Additionally, many other symptoms I didnt even recognize as symptoms any more because I had had them for so long disappeared.

    Thank you for helping me make my life happy and meaningful after so many years of terrible suffering while doctors simply showed me the palms of
    their hands and then acted insulted when I cured everything by going on a gluten- and lactose-free diet.

    You are a very special guy and I owe my health, vigor and freedom from pain to you and Ill never forget that. You can count on that. If there is ever any way you feel I could repay you for all youve done for me, you have my address.
    - Joe Clemens


    From: Ruth Campagna
    Subject: Thank you
    Date: Sat, 19 Jul 1997 14:37:09 -0400

    Scott, thank you for all the work that you have done to make so much helpful information available to us. Just when youve been beaten down by
    one more doctor who has no clue, it is so nice to be able to hand them a copy of one of your articles with a smile and a suggestion that perhaps
    they might find this information useful....and you dont feel so alone.


    Date: Mon, 18 Aug 1997 18:14:06 -0400 (EDT)
    Subject: overwhelmed

     

    Dear Scott,
    I have just finished four consecutive hours on your web site and have bookmarked as much information as I thought I needed to help educate my
    doctor, myself, and my family.....even our accountant will get drawn into this when it comes to tax deductions! I want to tell you that I am more than impressed with the quality and the quantity of the work which you have presented......and I dont impress easily!! It is just absolutely unreal, and I want to thank you from the bottom of my heart. You will never know how grateful to you and your efforts I am!!
    Thank you for being in my life.
    Sincerely,
    Carole Hagstrom


    Date: Sat, 15 Nov 1997 12:09:39 -0500
    Subject: Thank You

    Dear Scott, I am a new celiac, (This year.) I live in a rural area and do not have access to a lot of information on gluten intolerance. There is a support group for my area, but it is 147 miles round trip on 2 lane highways. I have joined the group but will not be able to attend much. Your site is a God-send for me and I would like you to know how grateful I am for your site.
    Thank You; Sue Grupczynski


    Date: Sun, 16 Nov 1997 10:49:15 -0500 (EST)
    Subject: congratulations!

    I read your deserved excellent reviews--may I add mine. The best overall resource, and one I visit whenever you add new items
    Thanks, congrats.
    Chris


    Date: Mon, 17 Nov 1997 21:38:48 -0500 (EST)
    Subject: celiac disease

    Please add me to your mailing list. You have no idea what you have done for my husband. If not for your page, I honestly believe he would not be alive today. He has not been able to work for the past 5 years. We hasnt had the money for him to see a Doctor. I have a friend whos son had celiac disease, she said my husbands symptoms seemed the same as her sons. By the way her son was diagnosed while on a business trip in Canada. I got on my computer and found your page, he is following the diet and buys gluten free bread and all the other gluten free products we need. We now believe that all the people in my husbands family have celiac disease. That was a year ago. I have created several recipes and altered many more. Recently, the husband of another friend, who has been very sick for years without doctors finding the cause, took the information I got from your page to her husbands doctor. He finally referred him to a gastroenterologist and was found to have celiac disease. He was 66 year old man who was down to 120 pounds at 6 feet tall. Today he is healthy. I know my husband needs to see a doctor but right now there is just no way. I am trying.

    Thank you for doing what you do. We are more grateful than you will ever know.
    Sincerely,
    D. Penningto


    Date: Thu, 4 Dec 1997 19:44:06 -0600
    From: Dr. Noakes
    Subject: Re: celiac list

    I know that you are not expecting a reply to your email, but I wanted to say thanks very much for connecting me to your email list, and also that I
    think your web page is the best out of all the Celiac pages Ive seen. Looking forward to communicating with you,
    Kate
    Department of Physiology and Pharmacology

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  • About Me

    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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    Scott Adams
    From: Macniven, Jennifer
    Subject: Thank You!!

    Thank you so much for taking the time and putting so much effort into the Celiac Support Page. I am finding it very informative and also reassuring.
     
    Since changing diet, I have significantly improved. I have gained around 14lbs in weight, I am no longer so pale, my bowel functions are close to
    normal and the depression has lifted. I do, however, still suffer from a mental confusion or sluggishness. Given that I was an above average scholar,
    gaining a degree in French Language & Commercial French, I find it very frustrating now when I struggle for words. I also notice that my attention
    span is not good. Despite this, I still hold down a very successful career and speak at large conferences both here in the UK and also in the US.
    I thank you once again for your excellent web page. At one time, during my struggle to find out what was wrong with me, I thought I was going mad. I only wish I had been able to access the Web back then and visit your page.
    My very best regards,
    Jennifer Macniven
    Date: Mon, 10 May 1999 17:37:33 EDT
    thank you for your responses, as a newly diagnosed coeliac i found a lot of conflicting advice. You have managed to make some things a lot clearer.
    thank you, kind regards,
    Sandra
    From: Pat Shechter
    Date: Wed, 2 Jun 1999 12:41:10 -0400 First, I want to give a huge (and long overdue) THANK YOU for the Web Site!! It has been so very helpful to me as I learn to live gluten-free and as my body recovers from the years of damage gluten did to it prior to my diagnosis. Even before I was diagnosed (in late April 1998), my
    gastroenterologist, strongly suspecting Celiac Disease, suggested that I begin to acquaint myself with the disease and the changes I would likely
    need to make by looking at the resources available on the Web. Your site was one of the first I found, and I have returned to it often in the past
    13-plus months. So many, many thanks.
    Best regards,
    Patricia Shechter
    From: L and J Morden
    Date: Sat, 17 Jul 1999 15:02:14 -0400
    Please forgive the familiarity but I feel I know you so well. Your web page is a very big part of our lives. Our oldest daughter, Emma was diagnosed as Celiac when she was only 8 mos. old. Thanks to the web page we have gotten many creative answers to some of lives many
    challenges; including birthdays, sleepovers and the like. Thank You to you et al.
    Lloyd Morden
    Date: Wed, 22 Sep 1999 15:29:24 EDT
    Subject: Re: Utah Research Project
    I want to thank you for your very informative web site. I have had 3 sisters diagnosed with Sprue since July. (Two of them were biopsy proven and the other was the overall clinical picture along with positive blood tests.) In your Miscellaneous Information Page, you had included information about several research projects that were recruiting families with two or more biopsy proven cases. With the second biopsy proven case coming back this week, we finally qualified. Now everyone in the family will be able to be tested. We have one sister who has been denied testing by the insurance company, and several other family members who do not have any insurance at all to help cover the costs.

    I spoke with Jeff Black today, and our family is now being included in the project. Jeff was very interested in the fact that there are 3 out of 6 siblings diagnosed with this, and c=several other suspected cases. Again, thanks...without your website, some of us would never get tested
    at all.
    Blessings, Judy Harp
    Date: Sat, 9 Oct 1999 16:22:07 EDT
    Subject: Harvard Family Health Guide

    I edited and contributed to the Celiac information in the newly published Harvard Medical School Family Health Guide. The Editor in Chief, Tony
    Komaroff, MD, asked me to recommend the single best Celiac site for their web pages and I recommended your site without reservation, since you have done such a marvelous job coordinating all the celiac information. Your site is highlighted on the FHG web site.
    Thanks for all you have done,
    Jane Spector Davis

    From: Zeca Martins
    Subject: from Zeca Martins - Sao Paulo - Brazil
    Date: Tue, 26 Oct 1999 12:05:32 -0200

    Congratulations for the new look of the Celiac site! I do not remember if I had already told you, but my project to change the Brazilian law about foods (I want all the food packages to show also the inscription It does not contain gluten, as well as the government provides all diagnostic support) has been accepted by the Brazilian Federal Congress and it is under technical analysis. Your internet site gave all the important information I needed to develop the project. So, thank you very much!!!
    Best regards,
    Zeca Martins
    Date: Sat, 6 Nov 1999 17:32:04 -0800

    You are one of the few sensible voices in the celiac community and I have always found everything you posted anywhere to be rational and unemotional, which is wonderful. I always get the feeling your efforts for the celiac community are pure and that you have no political agenda. That is EXTREMELY rare as Im sure you already know. You are a very special guy!
    -Joe Clemens

    Scott Adams
    From: Carol C.
    Subject: Case Histories
    Date: Mon, 3 Jan 2000 14:12:55 -0500

    I am sending you a copy of a letter I am sending to my brothers doctor. My brothers story is sad as you will read from the letter. In fact, unknown to us, my entire family has suffered from celiac disease over many generations. Information from your web site has been copied and handed out, faxed, or emailed to many people, including doctors. . It has been our main source of insight and information.

    It is always a good feeling to know that your life has touched many and helped many, and your life has indeed done that. Thank you from my family. As a family we have only discovered celiac disease in our midst in the last few months. Here is the letter. Bruce probably would have gone on to become progressively more ill were it not for the information on related disorders that you provide. We await his biopsy results with hope for his renewed health.
    Date: Mon, 3 Jan 2000 13:56:57 -0600
    Subject: WebsiteI would just like to thank you and anyone else that is responsible for providing such an excellent website. I am a new sprue and also a RN.
    I have been quite frustrated in the huge amount of conflicting and anecdotal information available to me. Your site seems to be balanced
    and has more primary source material.
    Thanks,
    Sharon Ward

    Date: Sat, 11 Mar 2000 23:20:32 -0500
    Subject: Please Add MeThe hour is late, however I have to tell you just how much your site helped me tonight. My 8 year old son was just diagnosed with Celiac Disease - never having heard of it, you can imagine what all was running through my head as they explained to me the whys and wherefores!!! We return to the docs on Tuesday, your site helped me link to some very valuable information, giving me of course, a very long list of questions.... and the knowledge, that I should be tested, as I was told I had any number of things, the latter being IBS, I am also have thyroid disease, Hypothyroid, which too has been difficult to manage. I am just overwhelmed with the information so carefully laid out here. Im sure there have been those that have said Thank You - let me be counted among them - truly, you gave me a place to start from, where I had nothing... *smiles* thank you!!!! thank you!!!! thank you!!!!
    Please add me to your mailing list!
    Christine Schettig
    Date: Mon, 15 May 2000 11:03:03 -0400
    Dear Sir, Ive just received my first Celiac Support Page and want to tell you how very much it means to receive such current information.
    Ill not continue to bother you with e-mails but must thank you very sincerely for what you are doing. Sincerely, Joyce Dozois
    Date: Mon, 9 Oct 2000 15:07:27 EDT
    Subject: celiac websites

    Bless you or whoever put out the safe & forbidden food list, recipes, info, products etc...thank you, thank you, THANK YOU!!!! I have been omitting foods for 4 years, some which I dont have to omit. A whole new world just opened up for me between buying a computer and finding you guys. All too often people complain, so heres a compliment to brighten your day!! thanks again!
    From: Scott Wilterdink
    Subject: thanks!
    Date: Sun, 5 Nov 2000 04:13:06 -0600

    My name is also scott and Im writing to tell you how wonderful your web site is and will be for my friend Linda. She was recently diagnosed
    with celiac sprue disease, and like you, it took many doctors and many years of pain before someone came about this diagnosis. When i talked with her tonight, she was feeling really depressed because she was worrying what shed be able to eat, how she could find gluten-free products, and how she could stop the pain from coming back. Then, we found your wonderful web page! Not only do you explain more about the disease and give first hand experience to dealing with the disease, but u have gone out of your way to list countless numbers of web sites that will be beneficial to Linda, and other celiac sufferers.I just thought Id let you know that your hard work and effort has given Linda a much needed boost and change in attitude. They always say if i can just reach one person and help them, all the work is worth it. well my friend, your work was well worth it because you have helped put a smile back on Lindas face and hopefully it stays there for many years to come!

    Thanks again!
    Scott Wilterdink
    Date: Mon, 6 Nov 2000 21:31:24 -0600

    I am the Linda that Scott Wilterdink wrote to you about a couple of days of ago. I was in really getting in a deep depression and wondering how I was going to continue my own existence! I mean in order to eat I had to find something I could eat. However, every thing I was finding was just telling what the disease was. NOT what I do about being able to find the proper foods to heal my pain and suffering. You have been a God send to me as well as my friend Scott. I cant thank you enough. You have gone to an enormous amount of work to build your web site and I for one, cant tell you what it has meant to me. I will go through it like a fine tooth comb.. I dont want to miss a word or meaning. I want to also go just as thoroughly through the other web sites. Again I thank you so much for some hope that I was being to think was hopeless. I was worried about 2 sons and one son has 3 children of his own. I couldnt imagine passing on a gene that could make my grandbabies or my own babies suffer as I have without having a way to help them. And thanks to you... I have that answer now. I could go on forever on my feelings of your help and I wouldnt come close to how much it means to me. You have done a great job and great justice to anyone with celiac. I will surely send anyone in our position straight to you. I wish there was something I could do to repay you the life you have given back to me. I had given up. I was depressed and now I see a light at the end of the tunnel and with a husband that loves the challenge to help me and so VERY supportive.. I am one of the luckiest women in the world. and you have been a big part of me feeling so good about me again for the first time in many years!! I know that Scott W. has thanked you but I wanted to do that personally myself. What you are doing is so wonderful. So God bless you....you have to be one of his guardian angels.. I think maybe you have this disease because He knew how useful you would be to all the rest of us that just sit around feeling sorry for ourselves instead of doing what you have done. But no more of that. I intend to learn everything about this that is I possibly can and look at life as a positive thing rather than one that is just pain and suffering every morning. Thanks to YOU. That isnt true anymore.. I wake up feeling little pain to none on some days. And that my, guardian angel... is due to your efforts and hard work! I thank God every minute for friends like you and Scott W. Without people like you in the world...well it just wouldnt be the wonderful place that people like you two make it!!!! Thank you so much again..
    From a fellow celiac from depression to loving life without pain again!!!
    Linda Koenig
    Date: 5 Dec 2000 19:06:58 -0800
    Hello, My name is Anna and I take care of an geriatric patient and have had my first encounter with a gluten intolerant person. I have visited this site many times and have received countless amount of help. w/o this site, Im sure this patient would be dead or close to it. At the time I started research on gluten intolerance and what it was exactly...she had already lost 35 pounds and was steadily losing. I emailed this site and received via snail mail various articles, cook books, pamphlets. Need I say...they have become our bibles and w/o them, we would be totally lost. I have emailed this site many times and my questions have always been answered quickly. I was truly surprised of the amount of ppl who arent even aware of this disease/condition....even her own doctor and our dietitian was not even aware of things she could or couldnt have. But, needless to say, with the help of this site...I have enlightened them!! I would really appreciate being put on the email list of updates and various a
    Sincerely,
    Anna Gibson

    Scott Adams
    Date: Tue, 2 Jan 2001 23:30:56 -0700

    Your sight is the most informative and easy to navigate that I have encountered. In less than one hour I have found links, advice and basic
    helps to questions that I have been unable to answer. My 10 year old son has hypogammaglobulin anemia, he was diagnosed with celiac sprue 3 years earlier. Since that time, we have felt he did not have CS...even though our son is doing well, he is not growing and often does not feel well. I will pursue CS again to make sure it was truly a mistake. Our 6 year old son will be going in for tests on January 5, 2001. I had not considered food to be the source of his asthma, respiratory or skin problems, but your sight has made me rethink what I am going to discuss with the Doctor. I am also in the process of testing. I had no idea Lupus, Sclerederma etc. were common. I have both. I have been trying to do a gluten free diet on my own and I actually feel better than I have for a long time.
    I feel our families plate is full without adding to it, but your sight is the ray of sunshine I need to get us through and realize it isnt so bad. Thank you so very much.
    Connie Worthen
    Subject: Thank you
    Date: Tue, 16 Jan 2001 14:41:52 -0600

    Just wanted to say thank you for your work and information re. gluten. It is great. Thank you.

    R.J.Meyer, MD

    Date: Fri, 2 Mar 2001 10:20:24 -0500
    First let me say that you are a life saver!!! I mean that literally -- YOU SAVE LIVES! The knowledge and information that Celiac.com has provided is amazing and very sincerely appreciated. Through the use of Celiac.com, I was able to determine that my husbands undiagnosable skin condition was DH and that he has celiac disease. I am sure youve heard the stories before, but in my husbands situation, the doctors we visited (Primary care physician, Dermatologist, G/I specialist) had no clue. But something in MY gut (no pun intended) knew that it was DH and celiac disease. After having to sell the GI specialist on celiac disease as a possibility, he agreed that my husband should have his blood antibodies checked to rule out celiac disease (and to shut me up). Sure enough, the test came back clearly positive. And we (me too) are now on our new adventure of a gluten-free diet for life.
    Thank you from the bottom of my heart!
    Michelle A. Straub
    Date: Tue, 1 May 2001 08:28:49 -0700 (PDT)
    From: carol poe
    Subject: just a word of thanks
    Hello my name is Carol Poe, my husband has celiac, and I would just like to tell how much I really appreciate your site. We only just recently found out about celiac and your website has been a great help to us. I read your bio and it sounded just like my husband. We had wondered if we would ever find out what was wrong with him, but thank God we did. He felt completely alone and now he sees he is not. This has been going on for so long his own family (on mothers side) has called him lazy and treated him very cruelly. Now we finally know whats going on and he is a completely changed man. His dads side of the family is truly grateful also for we feel there are several people who have it on his dads side, even a brother who had diabetes and complained all the time about his stomach until he died just over two years ago. If he had celiac then I can only imagine what could have eventually happened to my husband, I owe you more than I could ever afford.
    Date: Thu, 3 May 2001 00:27:38 EDT

    Scott, I appreciated your level-headed response. It is extremely disconcerting to read some of these allegations, particularly since I have a
    21 year old celiac daughter who is just finishing a third year abroad program in England and who, after much thought, made the decision to follow the guidelines put forth in The (English)Coeliac Societys booklet of safe foods, which of course includes Codex wheat starch. She is completely asymptomatic, on the outside anyway, and thus does not know if/when she has ingested gluten, but is extremely diligent and was advised before going by someone whose daughter is extremely symptomatic that the daughter had no problem whatsoever when doing HER year abroad. Our daughter (like the other persons daughter) has found living and eating there much easier than here in the U.S. Ours is also a Type 1 Diabetic. Anyway, I have worried enough about her being there; to have the additional worry about the wheat starch has been unsettling. Thanks. Bev, outside Chicago.

    Date: Fri, 04 May 2001 21:27:53 -0700
    From: Fred Tanner
    Subject: re your website. celiac disease.
    I am the 77yr old father of an adult daughter who has just been diagnosed with Celiac disease... my curiosity about her condition led me
    immediately to your web site.... I just wish to compliment you on this effort... had no idea that so much information could be made available
    by a single individual, and you are doing a very great thing for those of us to whom this condition is not only unknown but totally
    baffling. Thanks. Fred G. Tanner.
    Date: Tue, 8 May 2001 20:22:36 EDT
    Id like to send my thanks for your web site and the great service it provides. Keep up the good work there are a lot of us out here who depend on
    all that you do.
    Mike Dudley
    Subject: feed back
    Date: Mon, 14 May 2001 21:55:19 +0100

    Thank you for a very informative site, Ive found more answers in a few minutes than I have in one year from my sons consultant, thank you.
    Justeen Higgins.

    From: LORRAINE NEDELL
    Subject: reiders syndrome
    Date: Thu, 17 May 2001 02:28:25 -0400

    Your website has saved my friends life!! The doctors didnt have a clue why her weight had dropped to 67 lbs. I found your website, a blood test was done and it looks like she is on her way to recovery. After only one week on the diet her pain level has dropped significantly. Thank you.
    Date: Fri, 18 May 2001 12:45:01 +0000
    From: Sarah Rudisill
    Subject: THANK YOU!
    Thank you so much for this site. You have saved my life! Literally! The doctors only tell you so much. There are other sites out there that are giving false information that if I relied on those sites I would be constantly sick. I visit this site every couple of days & have ordered from the shopping
    mall! I thank you for your scientific postings. I thank you for your safe & forbidden lists. I thank you for letting me know that there are others
    out there. I thank you for enabling me to be able to handle this. Ever since I found out I may have celiac sprue - all the test results are not back yet - I have researched & used this site as a guide. I feel like a while new person. So THANK YOU!
    I wish there was something I could do for you.
    All my gratitude,
    Sarah
    From: Uerz, Lori
    Date: Tue, 29 May 2001 09:01:51 -0400
    Dear Scott: Just wanted to thank you from the bottom of my heart for producing this web page every month. When my son was first diagnosed I
    spent weeks calling and writing manufacturers about the gluten content in their products. This website is like a life-line for me and I just can not
    thank you enough for your time and effort on behalf of people with celiacs disease. My son will be turning 6 in a couple of weeks and has been very successful on the gluten-free diet for a little over a year now and while he has other special needs (Down Syndrome and irritable bowel syndrome), at least I can know that anything I need to know about celiacs I can find out here at your website.
    May God bless you & THANK YOU!!!!!!!
    Sincerely,
    Lori Tatsapaugh Uerz
    Subject: web page
    Date: Wed, 30 May 2001 09:10:35 +1000

    I just want to thank you so much for your web page. I have just had to go gluten and dairy free after a long illness and was struggling to find information and someone to answer my most basic questions. Your web site has answered all my questions along with valuable information that I would not have known.
    Thanks again
    Kate Dani
    From: KellyMcdon@aol.com
    Date: Wed, 1 Aug 2001 21:04:31 EDT
    Subject: celiac in children

    My son is 12 years old. He has had a bowel problem all of his life. The doctors just took a test and found out what he has. He is an ADD child also. I am so dissatisfied with how we were treated by so many pediatricians. They told me that my child was lazy and that he should be potty trained by now. After so many missed diagnoses it is good to know that my child is indeed not lazy and has celiac disease. He has been through the ringer, being
    treated for diarrhea, constipation. He has had several enemas and rectal exams that I have to lie when it is time to go to the doctor.
    Thank you for this informative website. I look forward to receiving your newsletter for the first time.

    Scott Adams
    Sent: Sunday, January 23, 2005 9:01 PM
    Subject: Celiac? Whats that??
    I entered wheat gluten in Google, I was amazed by the information that I got from some of the web sites on celiac disease. Ive been X-rayed up, down and all around, all kinds of tests for everything you can think of during the last 25 yrs. Ive been diagnosed with Grovers disease, atopical dermatitis, my legs itched (excruciating) for over a year, my skin is easily bruised. Im borderline anemic. Huge amounts of gas (flatulence) and several more signs, symptoms, all related to celiac disease AND not one M.D. has brought up the possibility of celiac disease, let alone test for it! After going on a gluten free diet a few days ago,(and dairy free) Im feeling a lot better. No more gas attacks, no more belly pains etc. Thanks to CELIAC.COM Im getting my life back. Bob Thompson
    Date: Sun, 30 Jan 2005 18:34:25 EST
    Subject: info request
    Dear Scott,
    I am a Registered Nurse. i work with the developmentally disabled. There have been quite a few of our patients with Down syndrome, that have been tested positive for Celiac disease.
    I am putting together a presentation on celiac disease for our staff. I found your website to be very informative and easy to navigate. Please let me know if you have any further resources for me .
    Thank you
    Maureen Gavin RN,C CDDN
     
    Subject: RE: Request for permission to reproduce selected information on celiac.com
    Date: Wed, 9 Feb 2005 15:52:48 -0500
    I would also like to take this opportunity to thank you for your efforts in producing celiac.com web site. Seven years ago my symptoms became sever enough that I could no longer work on a regular basis and I started what turned out to be the long process of finding the root cause of my illness. I lost count of all the doctors I saw. I lived in pain from colitis and other side effects of celiac. Several doctors labeled me a "drug seeker" and discounted anything being wrong with me. At some point I decided that I needed to be proactive in my own diagnosis and started research. My wife first came across celiac disease and after eliminating some other candidate illness I insisted that I be retested for celiac which came back positive. Even then I found that I had to "educate" my own doctors about the illness and actually it took my own recovery after starting a gluten free diet for my doctors to accept that this was indeed the problem. Celiac.com was an invaluable resource during this period. Had I not had your site available, I do not know if we would have put all the pieces of the puzzle together and might still be searching. While not full recovered, I am making progress. I never dreamed how difficult it would be to eliminate gluten from my diet, nor how sensitive I would become to contamination. Most of my contact now comes from things like obscure additives in foods and health care products. The lists you have provided at celiac.com have become invaluable to me. Thank you and I hope that I can help make this information available to others that need it. I know that others in my family also suffer from some degree sensitivity to gluten and has suffered all there lives from the results. I am convinced that my mother died from complications caused my it. She died of cancer some years ago. While I will never be certain of this, I can take steps to prevent the same thing happening to me. My daughter also shows some signs of being gluten sensitive. Perhaps she will not have to go through what I have, and you have played a big part in this. I know how much effort you have put into making this web site and maintaining it. You have given much and I want you to know that this effort has not been for naught.

    Thank you again,
    Paul Montgomery
     
    Subject: Thank you
    Date: Tue, 29 Mar 2005 13:45:36 -0500
    Just wanted to say thank you for a great site. I am adapting to the gluten free diet. Your listings and several resources are perfect and clear. The site is easy to negotiate. I cant thank you enough.
    Margaret Collins
     
    Date: Tue, 26 Apr 2005 07:07:24 -0700 (PDT)
    Subject: Re: Celiac.com Update
    Great issue, Scott! Thanks for all the hard work you do. I was diagnosed
    almost 9 years ago and there wasnt nearly as much action as there is now. I
    truly feel this diagnosis is a gift for long life and good health.
    Norie Erickson
     
    Date: Thu, 5 May 2005 09:44:05 +0200
    Subject: Re: celiac&depression
    Dear Scott, as you might imagine, I was hit by the gluten free experience (why would I otherwise have sent you this abstract?). As many others, I stumbled into your site by chance, and, wow, there was not only the story of my own life, but the story of my whole family ... Ive been gluten-free 2 months, man this is the most exciting&interesting period of my life.

    This gluten thing is HUGE, and its coming towards us like a tsunami ... can you imagine, when people collectively start to understand, the cause of ALL our cultures health problems ... IT WAS THE WHEAT STUPID !

    Youre making revolution! Fantastic work! And thank you for saving not only my life, but the lives of my 2 children, my 8 brothers and sisters, and my 16 nieces and nephews! And several friends, colleagues & neighbors Ive approached cause I believe they might benefit from this diet ... Of course they are not all gluten-free yet, but they now have the facts (theyre kind of pondering them), and as soon as they start getting really crappy, they now have a life-saving option!
    wishing you the best, Ines
     
    Date: Thu, 25 Aug 2005 20:09:36 EDT
    Subject: Re: HELP!
    Thanks Scott, I have always meant to sit down and write to you, I truly appreciate all the help and guidance you have given me via your web site. I was diagnosed 5 years ago with Celiac Disease after a lifetime of terrible health, starting off as a failure to thrive baby, my health history is one disaster after another, many of them quite serious, a few life threatening. I was seeing 5 specialists for 5 inflammatory conditions to different organs by the time I was 48 and going down fast, I had a constant temp of 100 +and was burning up with inflammation, my immune system was just shot. I was lucky enough to have a very smart husband who found mention of the disease in the Lancet, we had the tests done and it was the best thing that ever happened to me, the world is a new place and I am pretty well most of the time. After finding your site I could buckle down to the work of getting completely gluten free, I have achieved that and while everything is still not perfect its a vast improvement, I no longer have to take the rounds of drugs, antibiotics, anti-inflammatorily, anti-virals, prednisone and cortisone enemas have stopped. You have truly been an inspiration as well as a friend from afar. Best regards, Kirsten
     
    Date: Thu, 15 Sep 2005 13:56:56 -0700 (PDT)
    Subject: Re: Celiac.com Update
    From: Patricia Dillon
    THANK YOU FROM THE BOTTOM OF MY HEART...I HAVE HAD CELIAC DISEASE FOR 25 YEARS AND NOW MY 2 SONS HAVE IT. I AM SURE ONE OF MY SONS EMAILED THIS WONDERFUL WEBSITE TO ME. I WILL BE TOTALLY INVOLVED WITH YOU AND ALL THE WONDERFUL IDEAS, REPORTS ON CELIAC AND THE RECIPES....THANKS AGAIN, WE ALL THANK YOU
     
    Date: Thu, 29 Sep 2005 13:52:43 EDT
    Subject: Thanks
    I simply wish to thank whoever has been responsible for providing this site.
    I have recently come to believe that I am Celiac, and your site (through a friend), has provided me with alternatives that I didnt know existed. So, thank you very much.
    Sincerely
     
    Date: Fri, 11 Nov 2005 11:53:31 -0800
    Subject: CORN PROBLEM????????????
    Dear Scott,
    I dont spend much time on the internet because of many reasons. However, whenever I receive an update from you, I am always pleased and enjoy the information that you dispose. It is so nice to know that there is help when you need it, in regard to gluten intolerance.
    Thank you so very much for your response.
    Terry Dellasala
     
    Date: Wed, 7 Dec 2005 05:53:18 EST
    Subject: Re: Message Board
    Thanks so much. I wrote you for advice a while back Scott, regarding advice because I was so sick...not sure if you ever got it, just wanted you to know Im still having some problems but the Doc at the mayo clinic helped me greatly. If it were not for your board I would have never heard of him.
    Thanks
    Bridget
     
    Date: Thu, 8 Dec 2005 18:04:01 -0800
    Subject: Forum Subscription New Topic Notification ( Gluten-Free Celiac Disease Forum at Celiac.com
    Who started Celiac.com and is responsible for maintaining this wonderful website? I would just like to say thank you to whomever you are. You have provided a source of great knowledge and encouragement to all of those who have been fortunate enough to stubble upon you in our quest to find answers, support and encouragement. I could not survive a gluten-free life without you.
    Thank you from the bottom of my heart. Your efforts, and those of all the members of the forum are forever appreciated.
    Because of the advise of others here and reading there trials and tribulations, I, after 15 + years have finally gotten some answers. And more importantly, my son will not have to suffer the way I did because I now know that you have to question your doctors, ask them for certain tests and be vigilant in finding the answers and causes to the symptoms.
    Laurie

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    Source:
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.