• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Member Statistics

    72,251
    Total Members
    3,093
    Most Online
    Arianne
    Newest Member
    Arianne
    Joined
  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  • 0

    1998 CELIAC.COM FEEDBACK


    admin

    Date: Sat, 17 Jan 1998 22:36:17 -0700
    From: Alan Sheffield
    Subject: Research/Thanks


    Ads by Google:




    ARTICLE CONTINUES BELOW ADS
    Ads by Google:



    Id just like to express my appreciation for your effort and concern in putting up this site. I dont know how many people its helped, but the
    idea alone is wonderful. Im glad to see that there are still people in this world that are concerned with others welfare. Keep up the good work.

    I originally found out about celiac disease through this site. My little sisters friend was suspected of having the disease. Her family had a
    history of it, and her mother had asked me to find some information on it. I hurriedly read about it, and printed some information for her (she later found out that she didnt have the disease, and her reactions were unrelated).

    Sometime later, I returned and read some more. My fanatical biology teacher has assigned us to write an extended essay on a biological function/problem/something. Ive looked around on your site, and several others, and am confident that I will be able to find the detailed
    information I need (the class is taught at, no joke, a college level--a little heavy for a Freshman, but it will save me time later).

    Thanks again, and good luck!
    -Alan Sheffield


    Date: Tue, 03 Feb 1998 17:33:50 -0600
    From: RM Molloy
    Subject: Hello

    Just a note to compliment you on your excellent site on Celiac Disease; Unless you object, we would like to allow our patients to link to your
    site through our own site under a section on our webpage entitled Patient Support. We are a group of 6 Gastroenterologists in Milwaukee, Wisconsin (Milwaukee GI Specialists, S.C.). I will email you again when our site is up and running. Congratulations on your excellent website!
    R. Michael Molloy, MD


    Date: Fri, 13 Feb 1998 13:43:39 +0600 (PAV)

     

    We are doctors immunologists from Pavlodar Kazakhstan. We are involved in the problem of different diseases due to intestinal and skin disorders. We suspect that some of our patients have celiac disease. The matter is that we have no available serological tests for celiac disease. We would be very grateful to you if you provide us with email addresses of the institutions distributing laboratory kits for celiac disease. We like your web site very much. We think it is interesting and useful not only for celiac disease patients but for medical professionals either.
    Thank you very much.
    Doctors H. Junusov and M. Valivach


    From: Judy Parelman
    Subject: Thanks
    Date: Mon, 23 Feb 1998 22:08:51 -0600

    Thanks for all of your hard and diligent that you do regarding this web site. I have found it to be an enormous help. In fact, I cant imagine how much more difficult it would have been to function with out all of the info I have learned from you.
    Thanks!


    Date: Fri, 17 Apr 1998 00:02:02 +1200
    Subject: You beautiful people

    Wonderful, Marvelous, I believe that you should all be awarded first prizes. Keep up the good work great. Im not a coeliac but my brother is.
    He was rescued from death by a coincidence. After being tested for coeliacs in 1988, the test came back negative. He went on to suffer very severe symptoms, with no apparent change needed to his diet. His bones started to break, he broke his back and was admitted for psychiatric treatment because everyone thought hed become a obsessively depressed person. Nobody tested for coeliacs again until 1991. At the end of the day, the first test from 1988 proved to have been misread by the laboratory or doctor or someone and the results then, if they had been interpreted correctly, would have saved my brother from severe health disorder, financial ruin and a marriage breakup. After all, who wants to live with a dying depressed bankrupt.!!!!

    After the second test in 1991, it was discovered that my brother had coeliacs and his gluten free diet has brought him back from the dead. Hes alive again and trying to put his life together again. Its not easy. As his brother (and accountant) Ive been able to keep him afloat and out of the clutches of the IRS etc. But when things went bad, I wasnt there (I lived on the other side of the world at the time). In short, weve been able to pick up most of the pieces together since 1992 although I must admit, its still hard going at times.

    I am absolutely shocked that coeliacs is not more widely known. Thats certainly not your fault as you people are doing excellent work by
    keeping the celiac.com together. Keep it up. You have our support. Where do we send a donation !!!!!

    Ill keep browsing through your site and looking for more info. Once again... great stuff. excellent.
    Keep it up. Thanks a million bye now regards,
    -Peter van Bussel


    Subject: Great Job
    Date: Mon, 1 Jun 98 07:31:54 -0000
    From: Connie Pearce

    Scott, youre doing a great job. Your Celiac Web Site is extremely helpful to all of us. I just wish you had that magic cure you could pull out of the hat to help us all. But who knows, maybe when the medical professionals become better listeners and are better educated, there
    might just be a cure. Thanks again,
    Keep a Positive Thought,
    Connie


    Date: Sat, 13 Jun 1998 12:59:21 EDT

    Two years ago I was really sick, was going down the usual diagnostic pathway with a colonoscopy etc., having all the tests come back negative but still feeling very ill. I started with a search for IBS info and arrived at your site via that pathway. As soon as I started reading it, I realized that all
    my symptoms exactly matched those described. With NO help from the doctors, but a lot of help from your site, I correctly diagnosed myself with celiac disease. I couldnt agree with what you said above more. The LISTSERV wouldnt have helped me then because I didnt know I had celiac disease. Keep up the good work Scott, you are doing more good probably than you know. Thanks so much for the help. You may have saved me months, maybe years of misery!
    Best Regards,
    Susan Wagener


    Date: Tue, 9 Jun 1998 17:18:54 EDT

    I agree with you and two years ago when I was put a gluten free diet by my skin doctor for DH, your web site was the first one that my husband found for me and it was so exciting to print up all the interesting information you provided on my condition. I was so excited! I was not interested in learning how to access information on my own until last September when I was diagnosed with Celiac by intestinal biopsy and felt I needed to meet people like me. That is when I learned how to join the Listserve and have since then looked everything up by myself.

    I still am thankful to you and your website and still enjoy the updates you send to me. I look up every update and many times will print them up for my files.
    Thanks, Barb from NE Ohio


    Date: Tue, 9 Jun 1998 00:04:34 EDT

    I dont have count of the number of times I have felt better knowing that there were sites such as yours which could help me in gathering more
    information....and comfort...during the past year and a half. You are one of my heroes!
    Carole Hagstrom
    From: Mary A. Halas, Ph.D.

    This is an overdue thank you for your web site. I have used it so many times in the last three years and it is well-written and invaluable.
    Mary Halas

    Date: Mon, 13 Jul 1998 14:16:02 -0600
    From: Shani Byrd
    Subject: Thanks

    Im a registered dietitian who works at the Air Force Academy. Your site has been extremely helpful in instructing my clients on their
    disorder and in helping them know how to treat it via diet. I think the information you provide is sound, accurate, and extremely useful and
    practical I can only hope that dietitians all over the country find out about your site and use your valuable information. Thanks again!
    Lt Shani Byrd, RD
    USAFA Health and Wellness Center


    Date: Fri, 31 Jul 1998 08:35:05 EDT

    God bless you for the time energy and expertise you put into your web site. It is the best on the Internet and I know you are helping thousands of people all over the world.
    -Jane Trevett
    Date: Sat, 15 Aug 1998 05:03:51 -0700

    It has been a while since visiting your celiac site... it is still the best on the net, thanks!
    Thank you,
    -Brett


    Date: Wed, 26 Aug 1998 12:23:06 EDT
    Subject: Thank you for a new Life Scott

    In ones life, there are few times when a person comes along who profoundly changes them. I ran across your web site around 5/26/97 and realized that I was a celiac. I was diagnosed as a baby, taken off grains, then put back on. I lifetime of intestinal problems (and no medical advice) has been hell. I have been fighting what i can only call grain addiction, but i am making headway.

    I can never pay you back for the door you have opened for me, and i shall never forget you. Inspired by you, I have changed quite a few lives already and am working on more. My life long goal is to be in politics on the federal level. You can be sure I will be there, fighting the ignorance of this disease, which i no longer believe to be a disease, but I believe it is a fundamental diet change that all humans should consider.
    Thank you O Great One...
    Robert James Hoffman


    From: Cynthia Rudert, M.D., F.A.C.P.
    Subject: Celiac Disease
    Date: Wed, 16 Sep 1998 13:54:40 -0400

    Congratulations on your wonderful Web site for Celiac Disease. It has been an incredible resource for my patients. I am a board certified gastroenterologist specializing in Celiac Disease in Atlanta. Presently I am following over 100 patients with gluten sensitive enteropathy. I am
    also the president of the Gluten Sensitive Support Group of Atlanta and I lecture nationally. If I can help you or anyone with questions regarding
    Celiac Disease, please let me know.
    Fondly,
    Cynthia S. Rudert, M.D., F.A.C.P.
    President Gluten Sensitive Support Group of Atlanta
    President and Founder of the Atlanta Womens Medical Alliance

    From: Zeca Martins
    Subject: From Zeca Martins- Brazil
    Date: Fri, 2 Oct 1998 01:41:09 -0300

    I hope you remember me. A few days ago, I wrote about my son, Miguel. The information you sent me were absolutely GREAT. The e-mail os ACELBRA belongs to Almir, a guy that lives A FEW BLOCKS AWAY FROM ME. And thats not everything: he told me about the only place here in São Paulo were I could find gluten-free pasta, and his wife started a small bakery of gluten-free breads.

    So, Miguel started to eat his own pasta and bread for the first time after the diagnosis, without pain or diarrhea. That was a great experience to see him eating pasta and thousands of bread slices. He didnt even look around. Well, we all felt something strange in our throats, you know... we almost started crying.

    Now, I and Almir are trying to start something greater, helping ACELBRA to improve its efforts. I mean, we are planning a series of activities involving press releases, advertising (we are both publicists), the creation of a complete internet site (something as you have been doing, but in Portuguese) and so forth.

    Thats all by now. And THANK YOU VERY MUCH again. God bless you and all those people who help each other.
    Zeca Martins


    Date: Wed, 25 Nov 1998 20:47:11 EST
    Subject: The Celiac page

    Just a note to say that your page - the way it is structured, the simplicity of the excellent graphics and, above all, the wealth of useful information
    that it contains has to make this the finest site I have ever encountered. My sincere congratulations.

    I found it when I searched with just two words - gluten and neuropathy. I have been diagnosed with CIDP -Chronic Inflammatory Demyelinating Polyneurpathy - and after months of the Neurologists knocking down my immune system with all the guns they can find they still have not stopped the cells producing whatever antibody it is that is attacking the myelin sheath.

    I have the idea that it is related to what I have ingested most of my life but that doesnt appear to wash with the experts. Hence my interest in your
    site. Again - a fantastic job - it was certainly a help to me and I am going to go ahead with the serological tests. Doesnt seem like much to loose.
    Best regards,
    Ian Bruce


    Date: Sat, 05 Dec 1998 05:56:06 -0800
    From: Richard E. Jeske
    Subject: Thank You

    Thank you for the excellent information on your site. I used the lists of safe and forbidden lists to get gluten free and my symptoms of
    fatigue and exercise intolerance were gone in 24 hours. Over the last four years I have slowly lost ability to function to the point where I could no longer work and am on disability. During that time several doctors could not diagnose the problem and had a diagnosis of chronic fatigue syndrome. When a friend mentioned Celiac may be the problem, the symptoms on one of your pages matched mine.

    I have had the best 4 days in recent years and plan to be back to work in 2 weeks. Staying gluten free is a small price to pay to having my
    life back. Thanks Again,
    Dick Jeske


    Date: Sat, 12 Dec 1998 20:56:17 EST
    Subject: THANKS

    Scott - many people do not realize you are a real person. Your service to celiacs is fantastic and during this holiday season, we all want thank you for the marvelous job you are doing.

    Lets hope more doctors read your page and test more people. Many people are devoting all their spare time to GETTING MORE CELIACS DIAGNOSED and we are thankful for the help you are giving in this effort.

    Thanks for a marvelous service. Keep with it!!
    Jane Trevett


    0


    User Feedback

    Recommended Comments

    There are no comments to display.



    Your content will need to be approved by a moderator

    Guest
    You are commenting as a guest. If you have an account, please sign in.
    Add a comment...

    ×   Pasted as rich text.   Paste as plain text instead

      Only 75 emoticons maximum are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.


  • Popular Contributors

  • Ads by Google:

  • Who's Online   5 Members, 0 Anonymous, 513 Guests (See full list)

  • Related Articles

    admin
    Date: Sat, 13 Jan 1996 08:31:23 -0800
    Subject: Celiac Helped
    Thanks Scott,
    I have been wheat free and pain free for almost two weeks now. The
    only exception was when I ate some corn,(I admit, a lot of corn.) which caused some bloating for two days. I now believe that the gluten was causing the problem. I am 51 years old and quit teaching karate because of the symptoms of Celiac Disease. I am now considering going back into Karate. Thanks again. It feels like I got my life back. -Frank
    Date: Mon, 22 Jan 1996 12:57:28 -0500
    Subject: Great Site!

    Thanks for all the great info on gluten. It has made my life easier.
    Karen Date: Wed, 24 Jan 96 01:37:02 0500
    From: Richard K. Puder
    First, before I get to the subject above, I want to thank you from the bottom of my heart (or even small bowel!) for all the wonderful work you
    have done in creating a fabulous web site. The very first search that I did on the Internet was to search for Sprue in Yahoo, and lo and behold, I found your home page. And what a find! It enabled me to gather information in a brief period of time that I couldnt possibly have found if I had visited 20 libraries and spent months. If there is anything I can do to be of assistance, please ask.
    Date: Sat, 27 Jan 96 06:26:11
    Subject: Thank you

    Hi Scott,
    your information is wonderful, and very nicely put together. It finally convinced my husband to go get himself tested. I wont bore you with gory details. Thanks, A. Sheldahl Date: Sat, 27 Jan 1996 10:33:40 -0500
    From: D. Resch
    Thank you for providing so much information on celiac disease. The presentation is so informative and well organized. I have certainly learned a lot and have referred several people to your web site. Well, thanks again and if there is anything I can do to help, please e-mail me.
    Debbie Resch
    New Jersey
    Date: Tue, 30 Jan 1996 01:05:22 -0500
    Subject: Julia Dear Mr. Adams,
    Last week, my 4 year-old daughter underwent both an endoscopy and colonoscopy. With results of her biopsy confirming celiac, I cant tell you how relieved I am to find a home page such as your own on the web.
    Date: Tue, 30 Jan 1996 01:07:07 -0500
    Dear Mr. Adams,
    Thanks for all your work. My 4 year-old was just diagnosed with celiac after
    11 months of sweating and fretting. Its great to have found your page on the
    web. Julia and her daddy thank you.
    Michael Brady
    Date: Tue, 30 Jan 96 03:46:27 -0800
    From: Charles Jarvis Jr.
    Subject: Scotts Celiac Disease / Gluten Intolerance Help Page Thanks for a great celiac homepage. Keep up the wonderful work. Its much appreciated.
    Date: Sat, 3 Feb 1996 23:22:54 -0600
    Subject: Wonderful work I hadnt read your info for months and I am so impressed with the wonderful job youre doing. Shortly before our support group meeting in March, Ill
    post the info for you. Thanks again and keep up the good work!
    - Lynn Samuel
    Date: Tue, 13 Feb 1996 13:22:53 -0500
    Subject: Congratulations All of us at IMMCO Diagnostics are very impressed with your web site. We have been perusing the site over the last month. It is very informative and thorough. Your efforts to disseminate this valuable information to celiac sufferers is commendable. Feel free to contact us if you require information, articles, or content for your page. We would be happy to help.
    Sincerely,
    Vijay Kumar
    Kurt Neukom
    Kevin Lawson
    Date: Thu, 15 Feb 1996 08:48:15 -0500
    Subject: Celiac disease I have just joined America-on-line and have accessed your Scotts Celiac Page. This is a letter of appreciation for all the work you have done to help
    celiacs. I am very impressed with the extent of your Table of Contents and have just printed about half of everything there. Fascinating articles.
    -J. Trevett

    Date: Mon, 26 Feb 1996 10:30:44 EST
    From: MS. BRENDA DAVIS
    Subject: Scotts Celiac Page Please add me to your list for updates and changes at your celiac site. I have enjoyed your site very much. It was the first place I found when desperately looking for celiac information. I found it sometime last October and I can truly say that it changed my life after not having any information after being diagnosed celiac approximately about a year and a half ago. I appreciate your hard work on this.
    Date: Mon, 18 Mar 1996 15:53:49 +0000
    From: Carol Young
    I love your home page and it has helped me as well as my doctor better understand how to be wheat and gluten free. What you are doing here is
    wonderful.
    Date: Sat, 6 Apr 1996 23:08:48 -0500
    Subject: just wanted to thank you Hi, my name is Michael and I wanted to thank you for you great home page. My grandmother is a Celiac patient and she is lost as to what to do. She heard about something called the internet and I told her I would look. I did look and their was no better place than yours. Your home page and the various links will make her day. She is 75, which is strange for Celiac patients but also it is harder for her to learn or even know where to look. Thanks to you she now does. This disease needs to be brought out in the open, it seems like many people have it yet, not many companies etc... cater to them. It is very hard to find these products but you have helped. Thanks again!
    Date: Sat, 20 Apr 96 06:03:56 -0700
    From: Michael Esker
    Subject: Celiac Home Page What a great site! This is a great example of the real benefit of the Internet. I was born with celiac, although it was not diagnosed until I was about 3! I dont remember, but my parents say the first few years of my life was hell for them and me. I felt I grew out of it at about 18 so I went off my gluten free diet. Mainly so I could drink beer. I am 31 now, but due to not feeling as well as I think I could, and possible long-term consequences, I think I am getting back on the diet to see what happens. Part of this action stems from my young nephew who also might have the
    disease. At least its being considered and tested for with diet these days! Your home page will be an invaluable resource as I, and my nephew, try
    to get back to a better life. Thanks for your effort.
    Date: Tue, 23 Apr 1996 22:26:51 -0400
    To: sadams@hooked.net
    Subject: celiac information Your page on the Internet is a Godsend to those few of us who need info & support for celiac disease. My adult daughter has just been diagnosed & Im searching for her benefit since she doesnt have access to a computer. Now I just have to figure out how to use the Internet & I cant think of a better reason to learn! Please add me to your mailing list for your newsletter which Ill forward to my daughter. Many thanks - keep up the good work.
    - Judy Fitzpatrick
    Date: Wed, 05 Jun 96 08:41:29 -0700
    From: Bertie Lynch
    Scott: First, Id like to thank you for posting your Scotts Celiac page on the Internet. Wonderful info, and a lifesaver for our family, as my
    husband was diagnosed with the disease last year, so once again, thanks.
    -Regards, B. Lynch
    Date: Tue, 18 Jun 1996 09:31:24 -0400
    Subject: Thanks for Information
    Thanks very much for sharing your Celiac information with others who have gluten problems. I have been very frustrated trying to find out what my
    problem is and now believe I may be gluten-sensitive. Your web page has been of great help to me in finding out if my symptoms are consistent
    with gluten sensitivity/intolerance. I am truly grateful that people like you make the effort to help those of us out there who are mystified by these symptoms. Thanks again, and keep up the good work!!!
    - Stefanie Crampton
    Date: Sun, 30 Jun 1996 01:15:46 -0400
    Please add me to your email list. Secondly what a blessing you sight has been to me and three other people to date. I have battled what everyone told
    me was IBS for the past three years and it was ruling and controlling my life. In the past three weeks with the information I found through your sight my life is so much better and I feel so much better. My sister and a friend are now experiencing the same effect since I share what I found with
    them. Thank you!
    -Jean
    Date: Sun, 07 Jul 96 14:26:25 -0700
    From: Cherie Jameison
    Subject: Mail list Please add me to your e-mail list. I deeply appreciate your web page, as well as all gluten-intolerance material on the Net. Like any of us who have celiac disease, I have my own tragic history until I cut out gluten from my diet (in my 40s). My childhood was painful, due in large part to gluten intolerance. What wasted, tragic years. Anyhow, weve all been through our own, sad backgrounds. Im so grateful that now increasing information is coming out and is available. Scott, thank you so very much for the wonderful work you are doing to help others!
    With warm regards,
    - Cherie
    Date: 09 Jul 96 11:05:02 EDT
    From: Karen Brody
    Subject: Praise for your efforts Hi. Ive needed to do some research on celiac sprue from the UK for a book Im writing for Sheldon Press called Coping with Coeliac Disease and your information on the internet has been very useful. Thanks from the bottom of my heart. The world needs more special people like you who care about peoples health!
    Thanks again for your help,
    - Karen
    From: Perron Lino
    Date: Sat, 10 Aug 96 21:11:03 -700
    Subject: mailing list
    Thank you for your page and all the info. I will appreciate to be in your mailing list and learn about anything new about celiac sprue. My daughter is doing a lot better and she is growing ok on a gluten free diet. If for any reason you are traveling trough Italy come see us Be happy to meet you and thank you for he big help. Lino Perron Breuil Cervinia at the foot of the Matterhorn on the Italian side. Good place to climb and ski.
    From: Davis, Pamela
    Subject: Celiac mailing list
    Your web page is very informative. My mother was diagnosed with celiac a few years ago. She has a hard time finding information on the disease and has had to completely change the way she eats and cooks. This web site is a godsend to people like my mother. Please add her to your distribution list for any information that you e-mail out. Thank You.
    Date: Tue, 24 Sep 1996 09:20:13 -0700
    From: Randina Bliss
    Subject: well done

    Kudos to you for bringing this extremely well written Web page on Sprue and the pertinent articles that are necessary to better deal with
    diagnosis. My brother was diagnosed with this disease this spring, following lengthy testing for whatever they could think of. He was very anemic,
    losing weight and having odorous diarrhea. Now that he is following a gluten free diet the dark circles under his eyes have gone, his
    hemoglobin is going up and has even managed to gain a few pounds. We have since learned from our older sister that my brother was
    considered malnourished when he was younger, the age of younger is unknown. He was always thin and had a low energy level. It is a shame
    the puzzles pieces took so long to be put together. His birthday is this Saturday (turning the big 50) and I wanted to make
    him something home baked (if I could find the ingredients). When I did a search via Yahoo, it gave me only this one. I am extremely grateful
    that it did as I have found this to be extremely helpful and will pass it on to my brother if he doesnt already have it.
    Your web page is the nicest I have seen to date. I really like and appreciate the graphics, the colors and the layout of the entire contents. It gets a four star rating in by book and is already bookmarked for reference. Thank you for gathering this information and sharing it with all of us.
    Date: Thu, 26 Sep 96 10:24:20 UT
    Subject: Thanks for this web page! Scott- Your web page has been extremely helpful to me in understanding this disease & helping my daughter, who is away at college in the US diagnose her problems. I am living in Germany, and have been feeling very frustrated and helpless when she reported her symptoms to me, and we sent her to dr. after Dr. for different tests. This has helped us solve her mystery, and after a gluten-free diet for several months, she feels like herself again. Your list of stores enabled me to call & order gluten-free care packages.. She was having severe pasta withdrawal & I was able to come to the rescue! Through your list of organizations I was able to contact Diane Schafer (New Orleans) who has called her & been most helpful in giving her encouragement & recommending a local doctor & nutritionist. Again, Thanks!!! Please add me to your e-mailing list.
    Gratefully, Ann Webb
    Date: Wed, 30 Oct 96 11:45:23 -0800
    From: FDC Librarian Linda Petriuk
    Organization: Food Development Centre, Portage la Prairie, Manitoba
    Subject: Bless you! Im a librarian at the Food Development Centre (were a special operating agency of the Manitoba provincial government in Canada) and a distressed
    library patrons query about gluten-free foods has landed me on your website. I am astounded at how wonderful this page is! Really, the amount of work that has gone into your site is obviously great, and the information contained in it, some of which Ive passed on to my library patron, has helped a great deal. Particularly I had been looking for information about gluten-free foods for (fastidious) children with the intolerance, and it has been wonderful to see how much information there is. The library patron is very grateful that there is someone like yourself providing this sort of help to people in great distress with gluten intolerance,
    Date: Tue, 05 Nov 96 20:10:00 -0800
    From: Connie Christiansen With enormous gratitude for giving me the answers to long-sought questions. I am feeling so much better since following this program for two months. After years of searching, I have no more pain.
    Date: Wed, 20 Nov 1996 02:49:47 -0500 Thank you for putting together your home page. I have just discovered it, and it has opened up my celiac opportunities immensely. I have had celiac disease for 11 years, and have been so pleasantly surprised to find out that there are so many recourses now that were not available in 1985. Your page is one of my favorite places because of its listing of vendors, cookbooks, and recipes. Your information has led me to send for food catalogs,
    cookbooks, and newsletters. All of these things are a godsend to someone who thought Id never eat bread, cookies, pastas, and cakes again. Thank you for impacting my life in such a positive fashion.
    -Christine Zabel

    Date: Sat, 23 Nov 1996 11:40:49 -0800
    From: Fullerton, Stephanie
    Hi I just wanted to tell you that last spring my 11 year old son had to do a paper on a disease. He said he did not want to do something everyone knew about so I suggested Sprue because my mom had it all my life and I always was interested in it. At work I printed out your information and he loved reading it (much more than the medical books we got at the library!). He got an A on his report and the teachers comment was that it was very interesting! My mother passed away six years ago and I am so sorry she never got to see sprue on the internet!!
    Thank you!!
    Stephanie Fullerton
    Seattle, WA

    admin
    Date: Sun, 26 Jan 1997 00:05:09 -0700
    From: Jane Warner
    Subject: Thank you & add me to the list
    Please add me to your e-mail list. Thank you. Wow! What else can I say after skimming your site? What a lot of thought and work went into these pages, and to good account, too. They are very well organized. I found a wealth of information that will help me get a good test for celiac disease. Thank you, thank you, thank you!
    Date: Wed, 29 Jan 1997 13:26:32 -0800
    From: Sue Metz
    Subject: THANK YOU! I dont even know where to begin....I only wish Id had this information on celiac disease 10 years ago, it would have saved me SO MUCH suffering and frustration (not to mention $$!!). Please add me to your e-mail distribution for updates. Thanks again!
    Date: Sun, 9 Feb 1997 14:22:40 -0500 (EST)
    Subject: Coeliac I just wanted to drop you a short note to say how pleased we were to discover the information about coeliac disease on your
    web-site.
    My wife, Val, has very recently been diagnosed, but has probably been suffering from it for 30 years or more. At first, news like that is quite overwhelming and gives rise to a lot of confusion and seemingly thousands of questions. For us this was an especially difficult time as we had only just previously had confirmation that our younger son (14) was diabetic.
    The information on Coeliac on your web site was the most helpful that we have yet come across - and that includes what we have received from our own health service professionals here in the UK - and gave us more confidence about reverting to some sort of normality, which we now think we are beginning to realize. Once again, thanks for your efforts - they are much appreciated.
    - Roger Brenton.
    Date: Mon, 10 Feb 1997 00:44:03 -0600
    From: John Gruber
    Subject: Thanks Just wish to thank you for your website which I hit in April last year. I am Gluten intolerant and have suffered for many years. Thanks to you I can now say that I am almost restored. The doctors had no idea. Thank you.
    Date: Wed, 12 Feb 1997 19:53:08 -0500 (EST)
    Subject: To Scott Adams Scott: Thanks so much for your original Celiac page! You literally saved my life. I had heard about Celiac disease on a TV program, but did not have the full picture of the disease until I hit your site in November of 1995. I had gone thru several doctors in an attempt to figure out what was wrong, including an endoscopy with a gastroenterologist. (My regular MD, who was completely stumped by this condition, asked me if I was claustrophobic!) I suffered with the symptoms of this disease for 2 long years, and within 2-3 days after dumping the wheat I was back to normal. After this ordeal was over, I began backtracking into family history, and quickly realized that my Grandmother had been plagued with this disease, and that my Father had the disease as well. He had been taking Dapsone from his dermatologist for 15 years for various rashes. I quickly put the pieces together and confronted his doctor with this new information. He appeared to be quite stunned by the findings. At any rate, my fathers stomach and skin problems, as well as my stomach problems were all cured your article. I had not experienced any of my Celiac symptoms until November, 1993, (at age 33), when the symptoms appeared after taking daily dosages of Nuprin for reoccurring headaches I was having. Has anyone else been affected by the Nuprin that also suffers from Celiac Disease? Also, have you noticed the irritating Imodium ads on TV lately? They appear to be directly targeted toward the celiac disease crowd. While the ads are portraying individuals in humorous moments, Im sure it affects Celiacs in a very negative way, and I wonder if there has been any contact by your group with the manufacturers of Imodium. Again, thanks for all your help. You started me on the road to recovery and I thank you for that.
    Date: Tue, 11 Mar 1997 19:21:01 -0500 (EST)
    You cant believe the journey you have sent me on! As a very small child I was diagnosed with celiac disease. All my photos of me show a tiny 4 year old with an enormous abdomen. I guess I was lucky to be diagnosed so early. I ate tons of bananas (but that is another story).
    Totally unrelated, at age 16 I developed a terrible skin disease which was finally brought under control in my late 20s with a medicine called Dapsone. I was told at age 16 that I had a disease caller Dermatitis Herpetiformis and it would last 15 years or so...wrong.
    Many years later, at age 50-something I had a routine bone densitometry test because I began to see a small hump developing on my back. DX: SEVERE OSTEOPOROSIS! Now that was a shocker! I expected to hear early Osteo, but never SEVERE!
    One year later, on the internet you, Mr. Scott Adams put it all together. I cant believe the connections! My mother has severe osteoporosis and
    arthritis, my daughter has multiple sclerosis. I am still in shock! When I added my name to your e-mail list, I couldnt even tell you how you
    had connected it all for me. Thank you! You made a real connection for me!

    Date: Wed, 2 Apr 1997 07:21:34 -0500
    Subject: Celiac Website The other day Cindy in NJ sent me an email in response to my query about dextrins and maltodextrins suggesting that I look at Scott Adams web site, Celiac Support Page. Its incredible and I cannot believe that I hadnt discovered it sooner. I highly recommend this to all of you as its clearly written and extensive. For instance, his Other WWW Sites that deal with celiac disease is 14 pages long when printed out!
    That list of 4 pages is Safe & Forbidden Lists. From there you can go to Whats New?, FAQ, Broad Overview of celiac disease, Celiac in the 90s, History of celiac disease, Treatment for CE, Diseases Which Resemble celiac disease and Related Disorders, Research Data on celiac disease, etc. As I said the site is
    extensive. If you have any questions, comments or additions for Scott Adams, you can
    write him. This man has done us all a great service.
    - Sarah Barnett
    Date: Tue, 08 Apr 1997 11:40:01 -0700
    Subject: Your site I have entered your web site a number of times. You are certainly doing a great service to celiacs and DHers. I imagine people get to your site
    by searching key words and then it pops up. I talk to many new people who have done research on the Internet first and then find local contacts.
    Also, you may or may not know that I am the new (since Oct. 1996) president of CSA/USA. Thanks. Again congratulations on all the good work. Keep it up! Janet Rinehart in Houston.
    Date: Sun, 13 Apr 1997 20:56:49 -0700
    From: Richard Tanasi
    Subject: SPRUE THANK YOU VERY MUCH ! I HAVE JUST BEEN DIAGNOSED AND YOUR LETTER ON THE HOME PAGE DESCRIBES WHAT I WENT THROUGH TO THE TEE. ON -GOING FOR YEARS.I HAVE SURFED THE NET AND BY FAR THIS IS THE BEST.IT GIVES ME PLENTY OF INFORMATION AND DIRECTION. I HOPE MY NEW DIET WILL WORK ITS TWO FOLD BOTH GLUTEN FREE AND LACTOSE INTOLERANT. THINGS COULD BE WORSE. AGAIN THANK YOU FOR TAKING THE TIME AND IF I CAN BE OF ANY HELP,LET ME KNOW. RICK
    From: Kathleen Shipley
    Date: Mon, 12 May 1997 21:30:02 -0500 Thank you so much for all the time and effort (not to mention money) that you have dedicated to your web site. It is wonderful! You will never know how much it has helped many, many people. My husband found it soon after I was diagnosed. The doctor had diagnosed me quickly, but his information was pretty worthless. Your web site explained everything and gave me hope. Please add me to the automatic update e-mail list. Thank you very much! Keep up the good work!
    - Kathleen Shipley
    Date: Wed, 21 May 1997 22:04:22 -0400 (EDT)
    Subject: Please add me to e-mail list We are about to start the diagnostic blood tests for our daughter . The pieces of the puzzle may be coming together and we were wonder if there is any link to heredity, as my husbands sister was considered years ago to be lactose intolerant as an infant and has suffered years from unexplained migraine headaches. There is an * after the reference to headaches as a symptom. I could not find the footnote it refers to. Could you help me find more info on it. This page may be very helpful to not only our daughter who is 2 ½ years old and only weights 23 lbs. and is only 33 inches tall, but may also help her aunt lead a fuller life, free from headaches. Thank you so much for the time youve spent in this endeavor. I wonder if you fully realize how much it really means and the number of people you may reach. Thank you again!

    Date: Fri, 23 May 1997 22:03:58 -0400
    From: Duane Kling
    Subject: Just another fan letter !
    I am so impressed with this site i cant even tell you. all the info i have found is so easy to understand and so helpful .i have told so many people about you in the past week . keep up the great job and i look forward to your news letter that i already signed up for. thank you, thank you, thank you !!!!!!!!!!!
    Laure Kling
    Date: Wed, 11 Jun 1997 01:15:36 -0400 (EDT)
    Hello Scott. First, I want to thank you for all the helpful info that you provide about celiac disease. You have no idea how many you have helped with your
    outstanding site. I have a nephew (age 3) that almost died before diagnosed at 18 months. His Mom (my sister) was diagnosed 6 months ago even though over-weight and asymptomatic. I have been printing and mailing them tons of educational material for about a month now. I live in Texas and they live near Windsor, Ontario, Canada. My sister belongs to the Tri-County group near Detroit (Jim Lyles group) as well as a small group in
    Canada. The group in Canada does not have anyone on the internet and they have none of the latest info. My sister would like to share some of the
    articles Ive sent her with the group members and is currently trying to set up an education committee. One thing we feel very strongly about is that everyone must always be told to verify info and be responsible for their own decisions. Personally, my sis is zero tolerance,
    very strictly gluten-free (by USA standards).
    Your info on related disorders has been enlightening, to say the least. We have several family members that need testing. Our Mom was just tested by a very good (celiac informed) Dr. and found to only have IBS. Sounds fishy, I know, but he had a gazillion tests run. She is also diabetic(Type 2) and had colon cancer 10 yrs ago. She gets that awful test every year. Anyway, we have about half of those disorders that you list in our family members and, thanks to people like you, we know now that we must investigate further. We have been helped so much by the net info that we cant help but want to share with others who really seem in need. Thank you again. We value your opinions.
    - Diane Wright
    Date: Fri, 13 Jun 1997 18:02:57 +1000
    From: Bruce Gary

    Hi Scott, just browsing for info on celiac disease. I got to say this is a really well designed site; uncluttered, logical, and to the point.
    Congratulations, it says a lot about you.
    Cheers,
    Bruce Gray Date: Sun, 22 Jun 1997 16:27:41 -0700 Because of contact with your page, I went on a gluten- and lactose-free diet about a year ago and all my symptoms have disappeared.
    Additionally, many other symptoms I didnt even recognize as symptoms any more because I had had them for so long disappeared.
    Thank you for helping me make my life happy and meaningful after so many years of terrible suffering while doctors simply showed me the palms of
    their hands and then acted insulted when I cured everything by going on a gluten- and lactose-free diet.
    You are a very special guy and I owe my health, vigor and freedom from pain to you and Ill never forget that. You can count on that. If there is ever any way you feel I could repay you for all youve done for me, you have my address.
    - Joe Clemens
    From: Ruth Campagna
    Subject: Thank you
    Date: Sat, 19 Jul 1997 14:37:09 -0400
    Scott, thank you for all the work that you have done to make so much helpful information available to us. Just when youve been beaten down by
    one more doctor who has no clue, it is so nice to be able to hand them a copy of one of your articles with a smile and a suggestion that perhaps
    they might find this information useful....and you dont feel so alone.
    Date: Mon, 18 Aug 1997 18:14:06 -0400 (EDT)
    Subject: overwhelmed  
    Dear Scott,
    I have just finished four consecutive hours on your web site and have bookmarked as much information as I thought I needed to help educate my
    doctor, myself, and my family.....even our accountant will get drawn into this when it comes to tax deductions! I want to tell you that I am more than impressed with the quality and the quantity of the work which you have presented......and I dont impress easily!! It is just absolutely unreal, and I want to thank you from the bottom of my heart. You will never know how grateful to you and your efforts I am!!
    Thank you for being in my life.
    Sincerely,
    Carole Hagstrom
    Date: Sat, 15 Nov 1997 12:09:39 -0500
    Subject: Thank You Dear Scott, I am a new celiac, (This year.) I live in a rural area and do not have access to a lot of information on gluten intolerance. There is a support group for my area, but it is 147 miles round trip on 2 lane highways. I have joined the group but will not be able to attend much. Your site is a God-send for me and I would like you to know how grateful I am for your site.
    Thank You; Sue Grupczynski
    Date: Sun, 16 Nov 1997 10:49:15 -0500 (EST)
    Subject: congratulations! I read your deserved excellent reviews--may I add mine. The best overall resource, and one I visit whenever you add new items
    Thanks, congrats.
    Chris
    Date: Mon, 17 Nov 1997 21:38:48 -0500 (EST)
    Subject: celiac disease Please add me to your mailing list. You have no idea what you have done for my husband. If not for your page, I honestly believe he would not be alive today. He has not been able to work for the past 5 years. We hasnt had the money for him to see a Doctor. I have a friend whos son had celiac disease, she said my husbands symptoms seemed the same as her sons. By the way her son was diagnosed while on a business trip in Canada. I got on my computer and found your page, he is following the diet and buys gluten free bread and all the other gluten free products we need. We now believe that all the people in my husbands family have celiac disease. That was a year ago. I have created several recipes and altered many more. Recently, the husband of another friend, who has been very sick for years without doctors finding the cause, took the information I got from your page to her husbands doctor. He finally referred him to a gastroenterologist and was found to have celiac disease. He was 66 year old man who was down to 120 pounds at 6 feet tall. Today he is healthy. I know my husband needs to see a doctor but right now there is just no way. I am trying.
    Thank you for doing what you do. We are more grateful than you will ever know.
    Sincerely,
    D. Penningto
    Date: Thu, 4 Dec 1997 19:44:06 -0600
    From: Dr. Noakes
    Subject: Re: celiac list I know that you are not expecting a reply to your email, but I wanted to say thanks very much for connecting me to your email list, and also that I
    think your web page is the best out of all the Celiac pages Ive seen. Looking forward to communicating with you,
    Kate
    Department of Physiology and Pharmacology

    admin
    Date: Tue, 2 Jan 2001 23:30:56 -0700

    Your sight is the most informative and easy to navigate that I have encountered. In less than one hour I have found links, advice and basic
    helps to questions that I have been unable to answer. My 10 year old son has hypogammaglobulin anemia, he was diagnosed with celiac sprue 3 years earlier. Since that time, we have felt he did not have CS...even though our son is doing well, he is not growing and often does not feel well. I will pursue CS again to make sure it was truly a mistake. Our 6 year old son will be going in for tests on January 5, 2001. I had not considered food to be the source of his asthma, respiratory or skin problems, but your sight has made me rethink what I am going to discuss with the Doctor. I am also in the process of testing. I had no idea Lupus, Sclerederma etc. were common. I have both. I have been trying to do a gluten free diet on my own and I actually feel better than I have for a long time.
    I feel our families plate is full without adding to it, but your sight is the ray of sunshine I need to get us through and realize it isnt so bad. Thank you so very much.
    Connie Worthen
    Subject: Thank you
    Date: Tue, 16 Jan 2001 14:41:52 -0600

    Just wanted to say thank you for your work and information re. gluten. It is great. Thank you.

    R.J.Meyer, MD

    Date: Fri, 2 Mar 2001 10:20:24 -0500
    First let me say that you are a life saver!!! I mean that literally -- YOU SAVE LIVES! The knowledge and information that Celiac.com has provided is amazing and very sincerely appreciated. Through the use of Celiac.com, I was able to determine that my husbands undiagnosable skin condition was DH and that he has celiac disease. I am sure youve heard the stories before, but in my husbands situation, the doctors we visited (Primary care physician, Dermatologist, G/I specialist) had no clue. But something in MY gut (no pun intended) knew that it was DH and celiac disease. After having to sell the GI specialist on celiac disease as a possibility, he agreed that my husband should have his blood antibodies checked to rule out celiac disease (and to shut me up). Sure enough, the test came back clearly positive. And we (me too) are now on our new adventure of a gluten-free diet for life.
    Thank you from the bottom of my heart!
    Michelle A. Straub
    Date: Tue, 1 May 2001 08:28:49 -0700 (PDT)
    From: carol poe
    Subject: just a word of thanks
    Hello my name is Carol Poe, my husband has celiac, and I would just like to tell how much I really appreciate your site. We only just recently found out about celiac and your website has been a great help to us. I read your bio and it sounded just like my husband. We had wondered if we would ever find out what was wrong with him, but thank God we did. He felt completely alone and now he sees he is not. This has been going on for so long his own family (on mothers side) has called him lazy and treated him very cruelly. Now we finally know whats going on and he is a completely changed man. His dads side of the family is truly grateful also for we feel there are several people who have it on his dads side, even a brother who had diabetes and complained all the time about his stomach until he died just over two years ago. If he had celiac then I can only imagine what could have eventually happened to my husband, I owe you more than I could ever afford.
    Date: Thu, 3 May 2001 00:27:38 EDT

    Scott, I appreciated your level-headed response. It is extremely disconcerting to read some of these allegations, particularly since I have a
    21 year old celiac daughter who is just finishing a third year abroad program in England and who, after much thought, made the decision to follow the guidelines put forth in The (English)Coeliac Societys booklet of safe foods, which of course includes Codex wheat starch. She is completely asymptomatic, on the outside anyway, and thus does not know if/when she has ingested gluten, but is extremely diligent and was advised before going by someone whose daughter is extremely symptomatic that the daughter had no problem whatsoever when doing HER year abroad. Our daughter (like the other persons daughter) has found living and eating there much easier than here in the U.S. Ours is also a Type 1 Diabetic. Anyway, I have worried enough about her being there; to have the additional worry about the wheat starch has been unsettling. Thanks. Bev, outside Chicago.

    Date: Fri, 04 May 2001 21:27:53 -0700
    From: Fred Tanner
    Subject: re your website. celiac disease.
    I am the 77yr old father of an adult daughter who has just been diagnosed with Celiac disease... my curiosity about her condition led me
    immediately to your web site.... I just wish to compliment you on this effort... had no idea that so much information could be made available
    by a single individual, and you are doing a very great thing for those of us to whom this condition is not only unknown but totally
    baffling. Thanks. Fred G. Tanner.
    Date: Tue, 8 May 2001 20:22:36 EDT
    Id like to send my thanks for your web site and the great service it provides. Keep up the good work there are a lot of us out here who depend on
    all that you do.
    Mike Dudley
    Subject: feed back
    Date: Mon, 14 May 2001 21:55:19 +0100

    Thank you for a very informative site, Ive found more answers in a few minutes than I have in one year from my sons consultant, thank you.
    Justeen Higgins.

    From: LORRAINE NEDELL
    Subject: reiders syndrome
    Date: Thu, 17 May 2001 02:28:25 -0400

    Your website has saved my friends life!! The doctors didnt have a clue why her weight had dropped to 67 lbs. I found your website, a blood test was done and it looks like she is on her way to recovery. After only one week on the diet her pain level has dropped significantly. Thank you.
    Date: Fri, 18 May 2001 12:45:01 +0000
    From: Sarah Rudisill
    Subject: THANK YOU!
    Thank you so much for this site. You have saved my life! Literally! The doctors only tell you so much. There are other sites out there that are giving false information that if I relied on those sites I would be constantly sick. I visit this site every couple of days & have ordered from the shopping
    mall! I thank you for your scientific postings. I thank you for your safe & forbidden lists. I thank you for letting me know that there are others
    out there. I thank you for enabling me to be able to handle this. Ever since I found out I may have celiac sprue - all the test results are not back yet - I have researched & used this site as a guide. I feel like a while new person. So THANK YOU!
    I wish there was something I could do for you.
    All my gratitude,
    Sarah
    From: Uerz, Lori
    Date: Tue, 29 May 2001 09:01:51 -0400
    Dear Scott: Just wanted to thank you from the bottom of my heart for producing this web page every month. When my son was first diagnosed I
    spent weeks calling and writing manufacturers about the gluten content in their products. This website is like a life-line for me and I just can not
    thank you enough for your time and effort on behalf of people with celiacs disease. My son will be turning 6 in a couple of weeks and has been very successful on the gluten-free diet for a little over a year now and while he has other special needs (Down Syndrome and irritable bowel syndrome), at least I can know that anything I need to know about celiacs I can find out here at your website.
    May God bless you & THANK YOU!!!!!!!
    Sincerely,
    Lori Tatsapaugh Uerz
    Subject: web page
    Date: Wed, 30 May 2001 09:10:35 +1000

    I just want to thank you so much for your web page. I have just had to go gluten and dairy free after a long illness and was struggling to find information and someone to answer my most basic questions. Your web site has answered all my questions along with valuable information that I would not have known.
    Thanks again
    Kate Dani
    From: KellyMcdon@aol.com
    Date: Wed, 1 Aug 2001 21:04:31 EDT
    Subject: celiac in children

    My son is 12 years old. He has had a bowel problem all of his life. The doctors just took a test and found out what he has. He is an ADD child also. I am so dissatisfied with how we were treated by so many pediatricians. They told me that my child was lazy and that he should be potty trained by now. After so many missed diagnoses it is good to know that my child is indeed not lazy and has celiac disease. He has been through the ringer, being
    treated for diarrhea, constipation. He has had several enemas and rectal exams that I have to lie when it is time to go to the doctor.
    Thank you for this informative website. I look forward to receiving your newsletter for the first time.

    admin
    Subject: Celiac.com
    Date: Thu, 22 Jan 2004 09:48:56 -0500
    Hello,
    I found out that I had celiac sprue 3 years ago. I just wanted to thank you all for such a great web site. Of all the places on the web for celiac I find yours the most informative. I learned things here that I havent found anywhere. I signed up for the free news letter and I will visit your site regularly. Thankyou for helping me understand more what is going on with myself. Lets get more doctors aware of this as I have had systoms of this disease sense since the age of 16 ( I am currently 33) I am very poor I wish that there were more enexpensive alternatives to replace the foods I now cant eat. Thanks to your site I realize that I need to save money to get tested for type 1 diabetes. Thankyou again for your informative site.
    Christine Thomas
     
    Subject: Article in Feb. 04 Readers Digest
    Date: Sun, 1 Feb 2004 10:39:17 -0800
    Hi Scott-

    Your work on Celiac.com is greatly appreciated! Im a long-time nurse (42 years) and the grandmother of 4-year-old Katie who was diagnosed shortly before her 3rd birthday by her mother (my daughter). Katies diagnosis has not been confirmed by an official lab test or procedure, but it is obvious by her symptoms. She has been on a strict gluten-free diet since we first became aware of her problem. Contrary to my wishes and advice, they chose to continue with the diet and have her tested when she is a bit older. I believe this is based on the fact that Katies dad is in a bit of denial, thinking she will outgrow it.

    Keep up the great work!
    Alice
     
    Date: Sun, 08 Feb 2004 11:31:37 -0500
    Subject: Rice Beverages

    Dear Mr. Adams:
    I first want to express my sincere appreciation for your website. Because of the information it provided, I was able to diagnose the cause of my daughters asthma and skin rashes. In addition, I have cured my own, chronic bronchial and sinusoidal infections. THANK YOU!
    Robert L Fireovid
     
    Date: Thu, 12 Feb 2004 17:50:00 EST
    Subject: Celiac.com
    Hello Scott, I want to tell you how absolutely fabulous your newsletter is. THANKYOU!
    Yesterday, I received an e-mail about subscribing to the newsletter. I assumed that
    because I am a subscriber, my subscription must be running out so I renewed for
    another year. Please check to be sure the renewal that I did yesterday will extend my
    current subscription. Thank you again for a fabulous newsletter.

    Laurie Whitehill
     
    Date: Fri, 14 May 2004 07:53:44 -0500
    Subject: Re: Celiac.com Update
    Celiac.com Update Dear Scott,
    It never ceases to amaze me...the information you provide lines up so well
    with our experience with gluten intolerance and numerous issues related.

    The article Are Commensal Bacteria with a taste for Gluten the Missing Link
    in the Pathogenesis of Celiac Disease? by Roy S. Jamron is excellent. I
    believe you have hit on the biggest breakthrough with celiac disease and
    gluten sensitivity...that being the role of bacteria.
    This bacteria issue is something Ive become well familiar with in our search
    for answers for myself, our daughter and a friend. In my case, Klebsiella
    pneumonia and Helicobacter Pylori were present, in our daughters case and my
    friends case, no pathogenic bacteria was found. But, in each of our
    situations, we were lacking adequate amounts of friendly bacteria
    (Bifidobacteria and lactobacillus). I believe this is the missing link.
    Perhaps not the presence of a pathogenic bacteria, but simply the lack of
    healthy bacteria. Each of us had been prescribed numerous antibiotics in the
    past as well.
    Thanks so much for the work you do. Great Job!
    Grace and peace to you,
    Bonnie Hafeman
     
    Subject: Re: Free Food
    Date: Wed, 1 Dec 2004 05:21:31 -0500
    Scott,

    In 1996/1997 I was dying. I was around 31 years old. I had gone bankrupt, could not hold jobs, and was close to destitute. I could only work two days a week and was living in a small one bedroom apt. I had accomplished nothing in my life that I wanted to, never had a girlfriend (sick all the time), and was starting to lose my eyesight from bleeding in the back of the eye. When I went to the toilet, and I did often, it was all water...and nothing was digested. My stomach grew out like the children in Africa who starve does.

    I knew I would not last long. My goal was to get better so all I ate was healthy food. Lots of grains- wheat, rye, barley, etc- in soups and other ways...and I was failing. It was all I could do to work those two days to pay the bills as the rest of the time I spent in bed or near the bathroom.

    I remembered my mother saying I was sick as a very young child (one or two?) and after many specialists they could find nothing wrong and I was dying. The Doc said try taking him off gluten for a few months and see. It worked, I did live. But I was never really healthy...and never near 100% in studies or attention.

    As I lay there realizing I would be dying soon, I looked up gluten on AOL...and your site came up first. I saw the symptoms (a few of which were mine such as diarrhea, ADD, lethargy, and the like.) and I realized I was on to something.

    The next eight years have seen vast improvements in some parts of my life. I am slowly getting at goals I have been yearning to do for decades (such as the website, originally a magazine). Unfortunately the test has been not bingeing and realizing the community is wrong. I am now in the midst of the 14th day free of ALL grains. Only fruits, vegetables, meat, and water have gone into me. I am feeling much better for the first time, though still run down. I cannot eat anything except basic food groups or I think I will never get away from the addiction, for addiction it is.

    Although I am struggling now financially I am still healing and find I am able to work more than I was even 4 years ago..

    If anyone needs to pay someone it is I paying you. As I said in a letter once, your site changed my life and I have spent many an hour talking to people to help change theirs too. All I can say is my political aspirations revolve around the truest sense of making the world better and helping all people. If I ever get to a state or federal level you will hopefully feel proud that you were part of it and any good that I can do while up there.

    Thanks for everything.
    Bob Hoffman

  • Recent Articles

    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
    In their study, a team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. They found that E. gallinarum triggered an autoimmune response in the mice when it traveled beyond the gut.
    They also found that the response can be countered by using antibiotics or vaccines to suppress the autoimmune reaction and prevent the bacterium from growing. The researchers were able to duplicate this mechanism using cultured human liver cells, and they also found the bacteria E. gallinarum in the livers of people with autoimmune disease.
    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
    Team research team plans to further investigate the biological mechanisms that are associated with E. gallinarum, along with the potential implications for systemic lupus and autoimmune liver disease.
    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
    Read the full study in Science.

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com