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    2002 Celiac.com Feedback


    Scott Adams


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    Date: Mon, 21 Jan 2002 12:04:04 EDT
    Subject: Thank You!

    Thank you for your excellent website! One of my wonderful California cousins, Steve, found your website back in 1995 when I was newly diagnosed with celiac disease so thats how I learned about your www.Celiac.com! I just got hooked up on e-mail as of last Wednesday! Could a person get any slower than this!!! :) Its a MailStation thing without a PC. Thanks for all that youve done and continue to do for us fellow celiacs, Scott!! Ive been spreading the news about your website since 1995 here in the Fargo (ND)-Moorhead (MN) communities!
    Sincerely,
    Lynda Nelson


    From: Norm Brunette
    Subject: Thanks
    Date: Fri, 29 Mar 2002 08:16:53 -0500

    A friend of mine has been suffering for about three years. Her story is almost identical to yours. Yesterday her doctor asked her how much bread she was eating, A lot, she likes sandwiches. The same doctor she has been going to for years in addition to the specialists he has referred her to. I think he has just discovered Celiac Disease. He never asked about bread before. In any case I got on the Web, started searching and found your page. I feel so confident that we have found the problem and that she will finally get some relief. If he doesnt run the proper tests we will find someone who will. Thanks for your Web Site, now we have some direction.
    Have a good day.
    Norm Brunette


    From: Robert Hoffman
    Subject: Celiac running for office?
    Date: Sat, 8 Jun 2002 01:22:12 -0400

    I hope all is well with you. I hope you are still running the site, I havent been here much over the last year. I have sent many people to the site though. Scott, I am running for County Commissioner in my district down here in South Florida. In my political life I will try to spread the information about this disease as best I can. My first step is to put it in my bio part of my campaign page. It is a start. I referenced your site as the leading authority on the web, and I hope that is okay. You changed my life, and where I am now is because of your efforts and the whole internet thing.

    Thank you, and I hope this news item is of interest to you.
    Bob Hoffman


    Subject: Request for Information
    Date: Thu, 20 Jun 2002 8:3:4 -0400

    You have a fabulous web site with a wealth of information. Thank you so much.

    Louise Parish


    Date: Mon, 24 Jun 2002 10:19:45 -0400
    Subject: support group

    Hello :) My name is Trisha Lyons. I am a registered dietitian and have celiac disease. Your site was a lifesaver when I first was diagnosed! I have been referring people to it ever since. Thank you!

    Thank you very much!

    Sincerely,
    Trisha Lyons, R.D., L.D.


    Date: Mon, 24 Jun 2002 09:14:20 -0700
    Subject: asthma

    Dear Scott,
    Thank you for your wonderful site. It saved my life and the lives of my 4 children. Could you please add asthma to the list of diseases caused by celiac disease?

    I cannot thank you enough!

    All the best,
    Susan Carmack



    Date: Thu, 18 Jul 2002 13:19:25 -0400
    Subject: Thank you !!!!

    Thank you for your site.

    I found out I was celiac because of your site, especially through Ronald Hoggans articles that I read four years ago.

    It ended years (found out at 40) of suffering.

    Thank you very much, you changed my life, actually you gave me a life.

    Johanne Johnson


    Subject: Finally a reason!!!
    Date: Sat, 2 Nov 2002 09:25:56 -0800

    Hi- I was hoping to relay a message to Scott here......
    My 12 year old son was recently diagnosed with Celiac Disease. Hes had abdominal pain since he was 2 yrs old, (when I quit nursing him) Hes been worked up, had an appendectomy, lactose intolerance tests, his doctor was going in the direction of Chrons disease and Kyle was going to be scheduled for a lower GI scoping. Hes been surviving the acute stomach aches with Donnatal and Tagamet..
    I am so thankful to finally have changed doctors, Kyle had a blood test and now we have answers and ways to make his stomach pain manageable, and I am grateful for this web site. Thank you.
    Sharon Barnes, Kyles mom :)


    Date: Sun, 3 Nov 2002 17:41:44 -0500

    I too, have to tell you how really great your newsletter is. Its
    obvious you put a great deal of time and energy and love into the
    preparation of it. The most important thing my Doctor told me to do when
    I was first diagnosed with Celiac disease, next to taking all gluten out
    of my diet, was to learn, and learn and learn as much as I possibly could
    about the disease. Your newsletter is so full of useful information, I
    cant wait for the next issue to come out.

    Thank you for a job, very well done.
    Annette Leveque


    Subject: Thank you
    Date: Tue, 12 Nov 2002 14:01:25 -0600

    Scott, I want to say thank you for your newsletter. It has helped me so much. Im not sure I had Celiac Disease but the symptoms you described for yourself really fit me, from the pain in the right side to the off and on diarrhea. I did not have the weight loss associated with the other symptoms, but I had something and the research I did has enabled me to not have it any more. When I got rid of gluten I got rid of more than the digestive problem I was having.

    For instance, I WAS diabetic for 4-5 years, and when I went on the gluten free diet, my blood glucose counts went down, down, down - now Im normal ! I WAS about 30# overweight, but began to lose weight and the 10# I lost has made a difference.

    An interesting observation about the doctors and diabetes - neither of mine ever sought to find out what caused it. They simply treated the symptoms ! "Your mother had it?, your father had it? Now you have it."

    I notice that our local grocery has put in a health food section and they carry a lot of gluten-free items. To me that means there are a lot of people who are discovering this health connection.

    30-40 years ago I read (I think it was Adele Davisbook) that when the big bakeries started up here in the States, we all started using highly refined wheat products and that has led to a lot of health problems.

    I appreciate all the work you have done to help others, and I just wanted to say, Hey, Im one of them.

    Thank you again.

    Rosemary Perkins


    Date: Thu, 14 Nov 2002 18:56:51 -0800
    Subject: questions from a newly-diagnosed celiac

    Dear Celiac.com,

    Thank you so much for investing so much time into your website. Having
    recently been diagnosed with celiac disease, I found the information on
    your website to be far more comprehensive and informative than any other
    source that I have. The nutritionist I have been assigned to does not even
    have information that is as current as yours.

    Sincerely,
    Melinda Mulcahy


    Date: Sat, 16 Nov 2002 16:30:32 -0500
    Subject: Re: Info? Help!

    Scott,

    Thank you so much for your reply! I wasnt sure Id get a detailed reply, never mind a personal note. I greatly appreciate it! Thank you for the information regarding the health and life insurances, it is a blessing in disguise, one I hadnt thought of. Looking at it that way, even if I dont get the disability $$ I will probably still have saved.

    Thank you for your website. It is solely because of the information and ability to network on your website I was able to get on track so quickly and get back to health and back to life! Thank you......

    Jennifer Puckett


    Subject: Re: newsletter
    Date: Mon, 9 Dec 2002 07:25:28 -0600

    Good Morning Scott,
    I was especially interested in the Malignancy in Celiac Disease article, as my mother was never diagnosed with Celica but died from what was then termed a rare form of cancer. Her mother and sister also died with the rare form of cancer. We are now understanding that the probability that she had Celiac and didnt know it, lead to her death.

    The doctors at M. D. Anderson, Houston, Tx told us her primary cancer was in her stomach not in her ovaries as was suspected. The doctors wanted my siblings and myself tested then, however we felt we wanted to bring our mother home as she was given 2 months to live. After caring for her until her death I put off having myself tested for any digestive problems. Later, becoming very sick myself I was checked time after time by local specialist who kept telling me I was just experiencing depression systems. Finally a young doctor had blood drawn, sent to Mayos confirming what he thought I might have. CELIAC!! biopsies confirmed that I had Celiac. I have been gluten free since and feel better in most ways.

    My daughter was diagnosed with stage 2 of Celiac this past spring. She suffers from severe headaches, has juvenile diabetes, and Thyroid disease. The doctor tells her she has the complete triangle now.

    Again, thank you for your very informative newsletters. Keep up the good work.
    Virginia Comaward


    Date: Wed, 25 Dec 2002 18:29:46 -0800 (PST)
    Subject: Thank you

    Scott,

    I want to Thank you for the wonderful and informative website. Its been a tremendous help to us after our 3 (now 4) year old daughter was diagnosed. We went through testing as you did, however, our daughter experienced seizures. Also, due to her immune system being so weak, she had pneumonia 2 times in 5 months. Then, she was diagnosed with asthma. I understand what its like to be frustrated with physicians who dont know what theyre trying to treat. We had a wonderful gastroenterologist that has helped out beyond expectations.

    Thank you again for taking the time to have created this site.

    Cathey Stone

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  • About Me

    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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    Scott Adams
    Date: Sat, 17 Jan 1998 22:36:17 -0700
    From: Alan Sheffield
    Subject: Research/Thanks
    Id just like to express my appreciation for your effort and concern in putting up this site. I dont know how many people its helped, but the
    idea alone is wonderful. Im glad to see that there are still people in this world that are concerned with others welfare. Keep up the good work.
    I originally found out about celiac disease through this site. My little sisters friend was suspected of having the disease. Her family had a
    history of it, and her mother had asked me to find some information on it. I hurriedly read about it, and printed some information for her (she later found out that she didnt have the disease, and her reactions were unrelated).
    Sometime later, I returned and read some more. My fanatical biology teacher has assigned us to write an extended essay on a biological function/problem/something. Ive looked around on your site, and several others, and am confident that I will be able to find the detailed
    information I need (the class is taught at, no joke, a college level--a little heavy for a Freshman, but it will save me time later).
    Thanks again, and good luck!
    -Alan Sheffield
    Date: Tue, 03 Feb 1998 17:33:50 -0600
    From: RM Molloy
    Subject: Hello Just a note to compliment you on your excellent site on Celiac Disease; Unless you object, we would like to allow our patients to link to your
    site through our own site under a section on our webpage entitled Patient Support. We are a group of 6 Gastroenterologists in Milwaukee, Wisconsin (Milwaukee GI Specialists, S.C.). I will email you again when our site is up and running. Congratulations on your excellent website!
    R. Michael Molloy, MD
    Date: Fri, 13 Feb 1998 13:43:39 +0600 (PAV)
     
    We are doctors immunologists from Pavlodar Kazakhstan. We are involved in the problem of different diseases due to intestinal and skin disorders. We suspect that some of our patients have celiac disease. The matter is that we have no available serological tests for celiac disease. We would be very grateful to you if you provide us with email addresses of the institutions distributing laboratory kits for celiac disease. We like your web site very much. We think it is interesting and useful not only for celiac disease patients but for medical professionals either.
    Thank you very much.
    Doctors H. Junusov and M. Valivach
    From: Judy Parelman
    Subject: Thanks
    Date: Mon, 23 Feb 1998 22:08:51 -0600
    Thanks for all of your hard and diligent that you do regarding this web site. I have found it to be an enormous help. In fact, I cant imagine how much more difficult it would have been to function with out all of the info I have learned from you.
    Thanks!
    Date: Fri, 17 Apr 1998 00:02:02 +1200
    Subject: You beautiful people Wonderful, Marvelous, I believe that you should all be awarded first prizes. Keep up the good work great. Im not a coeliac but my brother is.
    He was rescued from death by a coincidence. After being tested for coeliacs in 1988, the test came back negative. He went on to suffer very severe symptoms, with no apparent change needed to his diet. His bones started to break, he broke his back and was admitted for psychiatric treatment because everyone thought hed become a obsessively depressed person. Nobody tested for coeliacs again until 1991. At the end of the day, the first test from 1988 proved to have been misread by the laboratory or doctor or someone and the results then, if they had been interpreted correctly, would have saved my brother from severe health disorder, financial ruin and a marriage breakup. After all, who wants to live with a dying depressed bankrupt.!!!!
    After the second test in 1991, it was discovered that my brother had coeliacs and his gluten free diet has brought him back from the dead. Hes alive again and trying to put his life together again. Its not easy. As his brother (and accountant) Ive been able to keep him afloat and out of the clutches of the IRS etc. But when things went bad, I wasnt there (I lived on the other side of the world at the time). In short, weve been able to pick up most of the pieces together since 1992 although I must admit, its still hard going at times.
    I am absolutely shocked that coeliacs is not more widely known. Thats certainly not your fault as you people are doing excellent work by
    keeping the celiac.com together. Keep it up. You have our support. Where do we send a donation !!!!!
    Ill keep browsing through your site and looking for more info. Once again... great stuff. excellent.
    Keep it up. Thanks a million bye now regards,
    -Peter van Bussel

    Subject: Great Job
    Date: Mon, 1 Jun 98 07:31:54 -0000
    From: Connie Pearce
    Scott, youre doing a great job. Your Celiac Web Site is extremely helpful to all of us. I just wish you had that magic cure you could pull out of the hat to help us all. But who knows, maybe when the medical professionals become better listeners and are better educated, there
    might just be a cure. Thanks again,
    Keep a Positive Thought,
    Connie
    Date: Sat, 13 Jun 1998 12:59:21 EDT
    Two years ago I was really sick, was going down the usual diagnostic pathway with a colonoscopy etc., having all the tests come back negative but still feeling very ill. I started with a search for IBS info and arrived at your site via that pathway. As soon as I started reading it, I realized that all
    my symptoms exactly matched those described. With NO help from the doctors, but a lot of help from your site, I correctly diagnosed myself with celiac disease. I couldnt agree with what you said above more. The LISTSERV wouldnt have helped me then because I didnt know I had celiac disease. Keep up the good work Scott, you are doing more good probably than you know. Thanks so much for the help. You may have saved me months, maybe years of misery!
    Best Regards,
    Susan Wagener
    Date: Tue, 9 Jun 1998 17:18:54 EDT

    I agree with you and two years ago when I was put a gluten free diet by my skin doctor for DH, your web site was the first one that my husband found for me and it was so exciting to print up all the interesting information you provided on my condition. I was so excited! I was not interested in learning how to access information on my own until last September when I was diagnosed with Celiac by intestinal biopsy and felt I needed to meet people like me. That is when I learned how to join the Listserve and have since then looked everything up by myself. I still am thankful to you and your website and still enjoy the updates you send to me. I look up every update and many times will print them up for my files.
    Thanks, Barb from NE Ohio
    Date: Tue, 9 Jun 1998 00:04:34 EDT

    I dont have count of the number of times I have felt better knowing that there were sites such as yours which could help me in gathering more
    information....and comfort...during the past year and a half. You are one of my heroes!
    Carole Hagstrom From: Mary A. Halas, Ph.D.

    This is an overdue thank you for your web site. I have used it so many times in the last three years and it is well-written and invaluable.
    Mary Halas
    Date: Mon, 13 Jul 1998 14:16:02 -0600
    From: Shani Byrd
    Subject: Thanks Im a registered dietitian who works at the Air Force Academy. Your site has been extremely helpful in instructing my clients on their
    disorder and in helping them know how to treat it via diet. I think the information you provide is sound, accurate, and extremely useful and
    practical I can only hope that dietitians all over the country find out about your site and use your valuable information. Thanks again!
    Lt Shani Byrd, RD
    USAFA Health and Wellness Center

    Date: Fri, 31 Jul 1998 08:35:05 EDT

    God bless you for the time energy and expertise you put into your web site. It is the best on the Internet and I know you are helping thousands of people all over the world.
    -Jane Trevett Date: Sat, 15 Aug 1998 05:03:51 -0700
    It has been a while since visiting your celiac site... it is still the best on the net, thanks!
    Thank you,
    -Brett

    Date: Wed, 26 Aug 1998 12:23:06 EDT
    Subject: Thank you for a new Life Scott
    In ones life, there are few times when a person comes along who profoundly changes them. I ran across your web site around 5/26/97 and realized that I was a celiac. I was diagnosed as a baby, taken off grains, then put back on. I lifetime of intestinal problems (and no medical advice) has been hell. I have been fighting what i can only call grain addiction, but i am making headway.
    I can never pay you back for the door you have opened for me, and i shall never forget you. Inspired by you, I have changed quite a few lives already and am working on more. My life long goal is to be in politics on the federal level. You can be sure I will be there, fighting the ignorance of this disease, which i no longer believe to be a disease, but I believe it is a fundamental diet change that all humans should consider.
    Thank you O Great One...
    Robert James Hoffman
    From: Cynthia Rudert, M.D., F.A.C.P.
    Subject: Celiac Disease
    Date: Wed, 16 Sep 1998 13:54:40 -0400

    Congratulations on your wonderful Web site for Celiac Disease. It has been an incredible resource for my patients. I am a board certified gastroenterologist specializing in Celiac Disease in Atlanta. Presently I am following over 100 patients with gluten sensitive enteropathy. I am
    also the president of the Gluten Sensitive Support Group of Atlanta and I lecture nationally. If I can help you or anyone with questions regarding
    Celiac Disease, please let me know.
    Fondly,
    Cynthia S. Rudert, M.D., F.A.C.P.
    President Gluten Sensitive Support Group of Atlanta
    President and Founder of the Atlanta Womens Medical Alliance From: Zeca Martins
    Subject: From Zeca Martins- Brazil
    Date: Fri, 2 Oct 1998 01:41:09 -0300

    I hope you remember me. A few days ago, I wrote about my son, Miguel. The information you sent me were absolutely GREAT. The e-mail os ACELBRA belongs to Almir, a guy that lives A FEW BLOCKS AWAY FROM ME. And thats not everything: he told me about the only place here in São Paulo were I could find gluten-free pasta, and his wife started a small bakery of gluten-free breads.

    So, Miguel started to eat his own pasta and bread for the first time after the diagnosis, without pain or diarrhea. That was a great experience to see him eating pasta and thousands of bread slices. He didnt even look around. Well, we all felt something strange in our throats, you know... we almost started crying.

    Now, I and Almir are trying to start something greater, helping ACELBRA to improve its efforts. I mean, we are planning a series of activities involving press releases, advertising (we are both publicists), the creation of a complete internet site (something as you have been doing, but in Portuguese) and so forth.

    Thats all by now. And THANK YOU VERY MUCH again. God bless you and all those people who help each other.
    Zeca Martins

    Date: Wed, 25 Nov 1998 20:47:11 EST
    Subject: The Celiac page
    Just a note to say that your page - the way it is structured, the simplicity of the excellent graphics and, above all, the wealth of useful information
    that it contains has to make this the finest site I have ever encountered. My sincere congratulations.
    I found it when I searched with just two words - gluten and neuropathy. I have been diagnosed with CIDP -Chronic Inflammatory Demyelinating Polyneurpathy - and after months of the Neurologists knocking down my immune system with all the guns they can find they still have not stopped the cells producing whatever antibody it is that is attacking the myelin sheath.
    I have the idea that it is related to what I have ingested most of my life but that doesnt appear to wash with the experts. Hence my interest in your
    site. Again - a fantastic job - it was certainly a help to me and I am going to go ahead with the serological tests. Doesnt seem like much to loose.
    Best regards,
    Ian Bruce
    Date: Sat, 05 Dec 1998 05:56:06 -0800
    From: Richard E. Jeske
    Subject: Thank You Thank you for the excellent information on your site. I used the lists of safe and forbidden lists to get gluten free and my symptoms of
    fatigue and exercise intolerance were gone in 24 hours. Over the last four years I have slowly lost ability to function to the point where I could no longer work and am on disability. During that time several doctors could not diagnose the problem and had a diagnosis of chronic fatigue syndrome. When a friend mentioned Celiac may be the problem, the symptoms on one of your pages matched mine.
    I have had the best 4 days in recent years and plan to be back to work in 2 weeks. Staying gluten free is a small price to pay to having my
    life back. Thanks Again,
    Dick Jeske
    Date: Sat, 12 Dec 1998 20:56:17 EST
    Subject: THANKS

    Scott - many people do not realize you are a real person. Your service to celiacs is fantastic and during this holiday season, we all want thank you for the marvelous job you are doing. Lets hope more doctors read your page and test more people. Many people are devoting all their spare time to GETTING MORE CELIACS DIAGNOSED and we are thankful for the help you are giving in this effort.
    Thanks for a marvelous service. Keep with it!!
    Jane Trevett

    Scott Adams
    From: Carol C.
    Subject: Case Histories
    Date: Mon, 3 Jan 2000 14:12:55 -0500

    I am sending you a copy of a letter I am sending to my brothers doctor. My brothers story is sad as you will read from the letter. In fact, unknown to us, my entire family has suffered from celiac disease over many generations. Information from your web site has been copied and handed out, faxed, or emailed to many people, including doctors. . It has been our main source of insight and information.

    It is always a good feeling to know that your life has touched many and helped many, and your life has indeed done that. Thank you from my family. As a family we have only discovered celiac disease in our midst in the last few months. Here is the letter. Bruce probably would have gone on to become progressively more ill were it not for the information on related disorders that you provide. We await his biopsy results with hope for his renewed health.
    Date: Mon, 3 Jan 2000 13:56:57 -0600
    Subject: WebsiteI would just like to thank you and anyone else that is responsible for providing such an excellent website. I am a new sprue and also a RN.
    I have been quite frustrated in the huge amount of conflicting and anecdotal information available to me. Your site seems to be balanced
    and has more primary source material.
    Thanks,
    Sharon Ward

    Date: Sat, 11 Mar 2000 23:20:32 -0500
    Subject: Please Add MeThe hour is late, however I have to tell you just how much your site helped me tonight. My 8 year old son was just diagnosed with Celiac Disease - never having heard of it, you can imagine what all was running through my head as they explained to me the whys and wherefores!!! We return to the docs on Tuesday, your site helped me link to some very valuable information, giving me of course, a very long list of questions.... and the knowledge, that I should be tested, as I was told I had any number of things, the latter being IBS, I am also have thyroid disease, Hypothyroid, which too has been difficult to manage. I am just overwhelmed with the information so carefully laid out here. Im sure there have been those that have said Thank You - let me be counted among them - truly, you gave me a place to start from, where I had nothing... *smiles* thank you!!!! thank you!!!! thank you!!!!
    Please add me to your mailing list!
    Christine Schettig
    Date: Mon, 15 May 2000 11:03:03 -0400
    Dear Sir, Ive just received my first Celiac Support Page and want to tell you how very much it means to receive such current information.
    Ill not continue to bother you with e-mails but must thank you very sincerely for what you are doing. Sincerely, Joyce Dozois
    Date: Mon, 9 Oct 2000 15:07:27 EDT
    Subject: celiac websites

    Bless you or whoever put out the safe & forbidden food list, recipes, info, products etc...thank you, thank you, THANK YOU!!!! I have been omitting foods for 4 years, some which I dont have to omit. A whole new world just opened up for me between buying a computer and finding you guys. All too often people complain, so heres a compliment to brighten your day!! thanks again!
    From: Scott Wilterdink
    Subject: thanks!
    Date: Sun, 5 Nov 2000 04:13:06 -0600

    My name is also scott and Im writing to tell you how wonderful your web site is and will be for my friend Linda. She was recently diagnosed
    with celiac sprue disease, and like you, it took many doctors and many years of pain before someone came about this diagnosis. When i talked with her tonight, she was feeling really depressed because she was worrying what shed be able to eat, how she could find gluten-free products, and how she could stop the pain from coming back. Then, we found your wonderful web page! Not only do you explain more about the disease and give first hand experience to dealing with the disease, but u have gone out of your way to list countless numbers of web sites that will be beneficial to Linda, and other celiac sufferers.I just thought Id let you know that your hard work and effort has given Linda a much needed boost and change in attitude. They always say if i can just reach one person and help them, all the work is worth it. well my friend, your work was well worth it because you have helped put a smile back on Lindas face and hopefully it stays there for many years to come!

    Thanks again!
    Scott Wilterdink
    Date: Mon, 6 Nov 2000 21:31:24 -0600

    I am the Linda that Scott Wilterdink wrote to you about a couple of days of ago. I was in really getting in a deep depression and wondering how I was going to continue my own existence! I mean in order to eat I had to find something I could eat. However, every thing I was finding was just telling what the disease was. NOT what I do about being able to find the proper foods to heal my pain and suffering. You have been a God send to me as well as my friend Scott. I cant thank you enough. You have gone to an enormous amount of work to build your web site and I for one, cant tell you what it has meant to me. I will go through it like a fine tooth comb.. I dont want to miss a word or meaning. I want to also go just as thoroughly through the other web sites. Again I thank you so much for some hope that I was being to think was hopeless. I was worried about 2 sons and one son has 3 children of his own. I couldnt imagine passing on a gene that could make my grandbabies or my own babies suffer as I have without having a way to help them. And thanks to you... I have that answer now. I could go on forever on my feelings of your help and I wouldnt come close to how much it means to me. You have done a great job and great justice to anyone with celiac. I will surely send anyone in our position straight to you. I wish there was something I could do to repay you the life you have given back to me. I had given up. I was depressed and now I see a light at the end of the tunnel and with a husband that loves the challenge to help me and so VERY supportive.. I am one of the luckiest women in the world. and you have been a big part of me feeling so good about me again for the first time in many years!! I know that Scott W. has thanked you but I wanted to do that personally myself. What you are doing is so wonderful. So God bless you....you have to be one of his guardian angels.. I think maybe you have this disease because He knew how useful you would be to all the rest of us that just sit around feeling sorry for ourselves instead of doing what you have done. But no more of that. I intend to learn everything about this that is I possibly can and look at life as a positive thing rather than one that is just pain and suffering every morning. Thanks to YOU. That isnt true anymore.. I wake up feeling little pain to none on some days. And that my, guardian angel... is due to your efforts and hard work! I thank God every minute for friends like you and Scott W. Without people like you in the world...well it just wouldnt be the wonderful place that people like you two make it!!!! Thank you so much again..
    From a fellow celiac from depression to loving life without pain again!!!
    Linda Koenig
    Date: 5 Dec 2000 19:06:58 -0800
    Hello, My name is Anna and I take care of an geriatric patient and have had my first encounter with a gluten intolerant person. I have visited this site many times and have received countless amount of help. w/o this site, Im sure this patient would be dead or close to it. At the time I started research on gluten intolerance and what it was exactly...she had already lost 35 pounds and was steadily losing. I emailed this site and received via snail mail various articles, cook books, pamphlets. Need I say...they have become our bibles and w/o them, we would be totally lost. I have emailed this site many times and my questions have always been answered quickly. I was truly surprised of the amount of ppl who arent even aware of this disease/condition....even her own doctor and our dietitian was not even aware of things she could or couldnt have. But, needless to say, with the help of this site...I have enlightened them!! I would really appreciate being put on the email list of updates and various a
    Sincerely,
    Anna Gibson

    Scott Adams
    Subject: Celiac.com
    Date: Thu, 22 Jan 2004 09:48:56 -0500
    Hello,
    I found out that I had celiac sprue 3 years ago. I just wanted to thank you all for such a great web site. Of all the places on the web for celiac I find yours the most informative. I learned things here that I havent found anywhere. I signed up for the free news letter and I will visit your site regularly. Thankyou for helping me understand more what is going on with myself. Lets get more doctors aware of this as I have had systoms of this disease sense since the age of 16 ( I am currently 33) I am very poor I wish that there were more enexpensive alternatives to replace the foods I now cant eat. Thanks to your site I realize that I need to save money to get tested for type 1 diabetes. Thankyou again for your informative site.
    Christine Thomas
     
    Subject: Article in Feb. 04 Readers Digest
    Date: Sun, 1 Feb 2004 10:39:17 -0800
    Hi Scott-

    Your work on Celiac.com is greatly appreciated! Im a long-time nurse (42 years) and the grandmother of 4-year-old Katie who was diagnosed shortly before her 3rd birthday by her mother (my daughter). Katies diagnosis has not been confirmed by an official lab test or procedure, but it is obvious by her symptoms. She has been on a strict gluten-free diet since we first became aware of her problem. Contrary to my wishes and advice, they chose to continue with the diet and have her tested when she is a bit older. I believe this is based on the fact that Katies dad is in a bit of denial, thinking she will outgrow it.

    Keep up the great work!
    Alice
     
    Date: Sun, 08 Feb 2004 11:31:37 -0500
    Subject: Rice Beverages

    Dear Mr. Adams:
    I first want to express my sincere appreciation for your website. Because of the information it provided, I was able to diagnose the cause of my daughters asthma and skin rashes. In addition, I have cured my own, chronic bronchial and sinusoidal infections. THANK YOU!
    Robert L Fireovid
     
    Date: Thu, 12 Feb 2004 17:50:00 EST
    Subject: Celiac.com
    Hello Scott, I want to tell you how absolutely fabulous your newsletter is. THANKYOU!
    Yesterday, I received an e-mail about subscribing to the newsletter. I assumed that
    because I am a subscriber, my subscription must be running out so I renewed for
    another year. Please check to be sure the renewal that I did yesterday will extend my
    current subscription. Thank you again for a fabulous newsletter.

    Laurie Whitehill
     
    Date: Fri, 14 May 2004 07:53:44 -0500
    Subject: Re: Celiac.com Update
    Celiac.com Update Dear Scott,
    It never ceases to amaze me...the information you provide lines up so well
    with our experience with gluten intolerance and numerous issues related.

    The article Are Commensal Bacteria with a taste for Gluten the Missing Link
    in the Pathogenesis of Celiac Disease? by Roy S. Jamron is excellent. I
    believe you have hit on the biggest breakthrough with celiac disease and
    gluten sensitivity...that being the role of bacteria.
    This bacteria issue is something Ive become well familiar with in our search
    for answers for myself, our daughter and a friend. In my case, Klebsiella
    pneumonia and Helicobacter Pylori were present, in our daughters case and my
    friends case, no pathogenic bacteria was found. But, in each of our
    situations, we were lacking adequate amounts of friendly bacteria
    (Bifidobacteria and lactobacillus). I believe this is the missing link.
    Perhaps not the presence of a pathogenic bacteria, but simply the lack of
    healthy bacteria. Each of us had been prescribed numerous antibiotics in the
    past as well.
    Thanks so much for the work you do. Great Job!
    Grace and peace to you,
    Bonnie Hafeman
     
    Subject: Re: Free Food
    Date: Wed, 1 Dec 2004 05:21:31 -0500
    Scott,

    In 1996/1997 I was dying. I was around 31 years old. I had gone bankrupt, could not hold jobs, and was close to destitute. I could only work two days a week and was living in a small one bedroom apt. I had accomplished nothing in my life that I wanted to, never had a girlfriend (sick all the time), and was starting to lose my eyesight from bleeding in the back of the eye. When I went to the toilet, and I did often, it was all water...and nothing was digested. My stomach grew out like the children in Africa who starve does.

    I knew I would not last long. My goal was to get better so all I ate was healthy food. Lots of grains- wheat, rye, barley, etc- in soups and other ways...and I was failing. It was all I could do to work those two days to pay the bills as the rest of the time I spent in bed or near the bathroom.

    I remembered my mother saying I was sick as a very young child (one or two?) and after many specialists they could find nothing wrong and I was dying. The Doc said try taking him off gluten for a few months and see. It worked, I did live. But I was never really healthy...and never near 100% in studies or attention.

    As I lay there realizing I would be dying soon, I looked up gluten on AOL...and your site came up first. I saw the symptoms (a few of which were mine such as diarrhea, ADD, lethargy, and the like.) and I realized I was on to something.

    The next eight years have seen vast improvements in some parts of my life. I am slowly getting at goals I have been yearning to do for decades (such as the website, originally a magazine). Unfortunately the test has been not bingeing and realizing the community is wrong. I am now in the midst of the 14th day free of ALL grains. Only fruits, vegetables, meat, and water have gone into me. I am feeling much better for the first time, though still run down. I cannot eat anything except basic food groups or I think I will never get away from the addiction, for addiction it is.

    Although I am struggling now financially I am still healing and find I am able to work more than I was even 4 years ago..

    If anyone needs to pay someone it is I paying you. As I said in a letter once, your site changed my life and I have spent many an hour talking to people to help change theirs too. All I can say is my political aspirations revolve around the truest sense of making the world better and helping all people. If I ever get to a state or federal level you will hopefully feel proud that you were part of it and any good that I can do while up there.

    Thanks for everything.
    Bob Hoffman

    Scott Adams
    Date: Thu, 09 Feb 2006 13:41:02 -0500
    Subject: Great site!
    Hi Scott,
    As a newly diagnosed G.I. patient, I am in dire need of information. Your website is a gift. Thank you so much for creating it. I hope that Ill be able to eat in restaurants one day..... they seem to be few and far between in my neck of the woods. Take care and all the best to you.
    Jeannine Ouellette
     
    Subject: RE: Celiac.coms Scott-Free Newsletter - Subscribe Today
    Date: Wed, 21 Jun 2006 08:33:44 -0400

    Hi Scott!
    You are wonderful and so helpful in a time that can be so stressful! I have passed you on to so many who love you also. Keep up the good work and God bless you!
    LoisAnne
     
    Date: Wed, 2 Aug 2006 15:15:12 -0700 (PDT)
    Subject: Re: Site

    BTW, already finding a wealth of information including the link to the EnteroLabs site.. already ordered the cheek swab test for my daughter. Much cheaper than the 325/test my husband and I paid to find out who had the gene (my 5 year old son was diagnosed in March 2006). Thank goodness for you and the Gluten Free Mall!!!

    Regards,
    Lori Swanson
     
    Date: Thu, 3 Aug 2006 01:37:00 EDT
    Subject: Re: Enquiry from Gluten-Free Mall

    Dear Scott:
    You and your team have been so nice, understanding, and informative that I do not have enough word to express how much you all mean to me. The message board is a great help when I am really feeling down because I come up negative on all the tests, but put wheat in my diet and I am violently sick.

    I appreciate you taking the time to respond to me.
    Karen McCain Mish

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
    The team cross-referenced each article with the words ‘Asia,’ ‘Europe,’ ‘Africa,’ ‘South America,’ ‘North America,’ and ‘Australia.’ They defined celiac diagnosis based on European Society of Pediatric Gastroenterology, Hepatology, and Nutrition guidelines. The team used 96 articles of 3,843 articles in their final analysis.
    Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals. That means that numerous people with celiac disease potentially remain undiagnosed.
    Rates of celiac disease were 0.4% in South America, 0.5% in Africa and North America, 0.6% in Asia, and 0.8% in Europe and Oceania; the prevalence was 0.6% in female vs 0.4% males. Celiac disease was significantly more common in children than adults.
    This systematic review and meta-analysis showed celiac disease to be reported worldwide. Blood test data shows celiac disease rate of 1.4%, while biopsy data shows 0.7%. The prevalence of celiac disease varies with sex, age, and location. 
    This review demonstrates a need for more comprehensive population-based studies of celiac disease in numerous countries.  The 1.4% rate indicates that there are 91.2 million people worldwide with celiac disease, and 3.9 million are in the U.S.A.
    Source:
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.