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    2003 Celiac.com Feedback


    Scott Adams

    Date: Mon, 06 Jan 2003 07:19:02 0000
    Subject: Newsletter


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    Just wanted you to know that Ive just finished reading all three issues of the Scott Free
    newsletter. It is excellent! It is very professional; interesting articles. The
    newsletter seems to have started at a good time--I was just diagnosed with Celiac Disease
    in October 2002, and have been emersing myself in information about it. Thank you and
    keep up the good work!!


    Subject: thanks
    Date: Thu, 23 Jan 2003 12:35:28 -0600

    Thanks for the great website. I refer to it and recommend it all the time. Also I love your Scott Free newsletter. I have formed a local support group and used reference material from celiac.com all the time. You have helped many people.

    Keep up the good work!
    Lila Brendel


    Date: Fri, 7 Feb 2003 11:35:52 -0800 (PST)
    Subject: Thank you

    This is just a simple comment saying thank you for this website. I just turned 19 and have had stomach problems for 11 years now. Ive been to doctors before telling me that they thought it was nothing and so forth, and then I came upon this website and did a little "testing" as far as what I ate and what the results were. Sure enough I self-diagnosed myself and went on a Gluten-Free Diet after making another doctors appointment. It took nearly 2 months to finally get to the Doctor, but by then I had already determined I knew what was wrong with my body and had told him my situation and what I believed to be the problem. I had blood work done and they determined that I had celiac disease. I just want to thank you because you have no idea how much this boosts my emotions and my
    self-esteem, b/c i will finally be able to gain weight, and most importantly be able to live a Healthy life. Thank you so much

    -Patrick Dangolhick


    Date: Sat, 8 Mar 2003 15:35:00 EST
    Subject: Re: 2002 Summer Newsletter

    Scott,

    Your website was my salvation when I was recently diagnosed with Celiac Disease. The doctor just told me to go on a gluten free diet and that was all the info I got. I ordered Shelly Longs book and the info I got from your site has given me the info I needed to start this whole new life style. Thank you for your website and the hard work (I know) you do to maintain and update it!

    A Fan,
    Pat Minnigh


    Subject: Scott-Free Newsletter
    Date: Mon, 17 Mar 2003 09:10:50 -0500

    I dont usually send testimonials, but your newsletter is an excellent
    source of up-to-date information about Celiac Disease. I highly recommend
    it to anyone with celiac disease.

    Regards,
    Mack Cawthon


    Subject: Re: newsletter
    Date: Tue, 15 Apr 2003 15:48:48 -0600

    Thanks Scott, I want to tell you how much I appreciate your site. I am a mental health therapist and am accustomed to reading the original articles in journals. In several cases, I read the original article and your review later. I found your reviews to be on track in conveying the essential information in a vocabulary that is accessible to the layperson. Your site is my first stop when I need to do some research on a celiac topic. The Scott-Free newsletter appears to be maintaining that high standard already. Thank you for making being the mom of a kid with celiac a little less stressful.
    Kathleen Apodaca


    Date: Thu, 15 May 2003 21:29:09 EDT
    Subject: I just want to say thank you!

    I am 22 years old and I have been suffering with this disease for a number of years. My stomach would wake me up everyday with severe intestinal cramps and then I would commandeer the bathroom for about an hour (I am sure you know what I mean). Sometimes my intestines would wake me up in the middle of the night and I would be in the bathroom for hours. Just like you I have had a barrage of tests ranging from liver tests to being diagnosed with IBS. I did everything I could to restrict my diet (except eliminating gluten of course) but nothing seemed to help, until I began to eat less and less food because I was literally scared to eat. I gave up on doctors or ever possibly finding a cure. I began to rapidly lose weight, I scared my friends and family who automatically thought I was an anorexic (which is not the case fear of becoming fat and fear of food because it will make you ill are two different things). So anyway my mother found this page emailed it to me and I thought "I can give this diet a shot? Why not?", I am happy to report that I have not had the slightest bit of pain since starting this diet. I wake up in the morning and I could honestly cry because it is such a relief to not feel sick everyday with no apparent cause. I apologize for rambling but I want to thank you from the bottom of my heart because without you I might have died. So thank you again. You are a Godsend.

    Feeling Healthy,

    Trish


    Date: Wed, 25 Jun 2003 09:33:42 -0400
    Subject: Re: Celiac.com

    Dear Scott,
    I must tell you that your site celiac.com saved my life. Its a long story, but I was just diagnosed with celiac at the age of 45 after a life time of stomach, bowel, joint and muscle problems. With the help of a nutritionist and your site, I was properly diagnosed and Im feeling better than I have ever felt in my life! Thank you for your continued hard work. We must continue to get the word out to friends, family and especially doctors, who seem to feel that celiac is not a major illness.
    Take care and thanks a million.
    Rita Gurkin


    Date: Sat, 12 Jul 2003 18:12:04 -0400
    Subject: Thank you!!!!

    Hi,
    I just found your site. It is absolutely incredible. My 18 year old son is celiac and some(most) of the recipes are so fantastic I cant wait to make them. I am just as excited about them as he is. He is going off to university in Sept. and most of the recipes say they keep well. One less worry for me, to know he has food he can eat!
    Thank you so very much for all the work you have put into your site. You are a God-send!
    Myra Lewis


    Date: Tue, 5 Aug 2003 22:09:40 EDT
    Subject: comments

    I would like to congratulate you on your website, and newsletters.
    The information is fantastic and very helpful.. Recently diagnosed with gluten intolerance (yeast and casein), I find your site one of the best for being informative.

    thanks, Linda Rendely

     


    Subject: Thank you
    Date: Tue, 30 Sep 2003 15:30:33 -0700

    The website is fabulous, well-constructed, and very useful. Thank you so much!

    Leigh Davisson


    Subject: RE: Scott-Free Newsletter - Technical Support
    Date: Wed, 10 Dec 2003 08:56:39 -0500

    Hi Scott,
    Thanks for the info on the newsletter. Please accept my sincere thank you
    for all the effort and work you put into producing the newsletter. I find
    it to be a most valuable resource in managing my sons celiacs disease.

    Best wishes for a safe and happy holiday season to you and your family.

    Best wishes,
    Lori Uerz


    Date: Sun, 14 Dec 2003 09:15:14 -0700
    Subject: Re: Celiac.com

    Scott, thanks SO much for your help. I dont know how much of a one-person effort your newsletter is, but kudos to you and those who might be helping you. My daughter was not physically well enough to work but was always looking for ways in which to help others. Her ideas were grand but her diseases (diabetes and glucogen storage disease) were too devastating and her life all too short. She would have been 28 on December 18. I applaud your efforts to pass along such vital information to those who are gluten intolerant.
    Have a blessed holiday season!
    Terri Curry


     

    Date: Sun, 21 Dec 2003 06:52:52 -0600
    Celiac.com Update!Dear Mr. Adams,

    I just had to send a note of thanks to you...I appreciate all the information you provide through celiac.com. Very informative and helpful!

    Coming to learn about celiac disease/gluten intolerance in my family has answered many questions with health problems throughout the years. Having the information from your web site has been a primary source of information for us as we move from chronic sickness to new vitality. Thanks so much...you are a blessing.

    Grace and peace to you.

    Bonnie Hafeman

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  • Related Articles

    Scott Adams
    Date: Sun, 26 Jan 1997 00:05:09 -0700
    From: Jane Warner
    Subject: Thank you & add me to the list
    Please add me to your e-mail list. Thank you. Wow! What else can I say after skimming your site? What a lot of thought and work went into these pages, and to good account, too. They are very well organized. I found a wealth of information that will help me get a good test for celiac disease. Thank you, thank you, thank you!
    Date: Wed, 29 Jan 1997 13:26:32 -0800
    From: Sue Metz
    Subject: THANK YOU! I dont even know where to begin....I only wish Id had this information on celiac disease 10 years ago, it would have saved me SO MUCH suffering and frustration (not to mention $$!!). Please add me to your e-mail distribution for updates. Thanks again!
    Date: Sun, 9 Feb 1997 14:22:40 -0500 (EST)
    Subject: Coeliac I just wanted to drop you a short note to say how pleased we were to discover the information about coeliac disease on your
    web-site.
    My wife, Val, has very recently been diagnosed, but has probably been suffering from it for 30 years or more. At first, news like that is quite overwhelming and gives rise to a lot of confusion and seemingly thousands of questions. For us this was an especially difficult time as we had only just previously had confirmation that our younger son (14) was diabetic.
    The information on Coeliac on your web site was the most helpful that we have yet come across - and that includes what we have received from our own health service professionals here in the UK - and gave us more confidence about reverting to some sort of normality, which we now think we are beginning to realize. Once again, thanks for your efforts - they are much appreciated.
    - Roger Brenton.
    Date: Mon, 10 Feb 1997 00:44:03 -0600
    From: John Gruber
    Subject: Thanks Just wish to thank you for your website which I hit in April last year. I am Gluten intolerant and have suffered for many years. Thanks to you I can now say that I am almost restored. The doctors had no idea. Thank you.
    Date: Wed, 12 Feb 1997 19:53:08 -0500 (EST)
    Subject: To Scott Adams Scott: Thanks so much for your original Celiac page! You literally saved my life. I had heard about Celiac disease on a TV program, but did not have the full picture of the disease until I hit your site in November of 1995. I had gone thru several doctors in an attempt to figure out what was wrong, including an endoscopy with a gastroenterologist. (My regular MD, who was completely stumped by this condition, asked me if I was claustrophobic!) I suffered with the symptoms of this disease for 2 long years, and within 2-3 days after dumping the wheat I was back to normal. After this ordeal was over, I began backtracking into family history, and quickly realized that my Grandmother had been plagued with this disease, and that my Father had the disease as well. He had been taking Dapsone from his dermatologist for 15 years for various rashes. I quickly put the pieces together and confronted his doctor with this new information. He appeared to be quite stunned by the findings. At any rate, my fathers stomach and skin problems, as well as my stomach problems were all cured your article. I had not experienced any of my Celiac symptoms until November, 1993, (at age 33), when the symptoms appeared after taking daily dosages of Nuprin for reoccurring headaches I was having. Has anyone else been affected by the Nuprin that also suffers from Celiac Disease? Also, have you noticed the irritating Imodium ads on TV lately? They appear to be directly targeted toward the celiac disease crowd. While the ads are portraying individuals in humorous moments, Im sure it affects Celiacs in a very negative way, and I wonder if there has been any contact by your group with the manufacturers of Imodium. Again, thanks for all your help. You started me on the road to recovery and I thank you for that.
    Date: Tue, 11 Mar 1997 19:21:01 -0500 (EST)
    You cant believe the journey you have sent me on! As a very small child I was diagnosed with celiac disease. All my photos of me show a tiny 4 year old with an enormous abdomen. I guess I was lucky to be diagnosed so early. I ate tons of bananas (but that is another story).
    Totally unrelated, at age 16 I developed a terrible skin disease which was finally brought under control in my late 20s with a medicine called Dapsone. I was told at age 16 that I had a disease caller Dermatitis Herpetiformis and it would last 15 years or so...wrong.
    Many years later, at age 50-something I had a routine bone densitometry test because I began to see a small hump developing on my back. DX: SEVERE OSTEOPOROSIS! Now that was a shocker! I expected to hear early Osteo, but never SEVERE!
    One year later, on the internet you, Mr. Scott Adams put it all together. I cant believe the connections! My mother has severe osteoporosis and
    arthritis, my daughter has multiple sclerosis. I am still in shock! When I added my name to your e-mail list, I couldnt even tell you how you
    had connected it all for me. Thank you! You made a real connection for me!

    Date: Wed, 2 Apr 1997 07:21:34 -0500
    Subject: Celiac Website The other day Cindy in NJ sent me an email in response to my query about dextrins and maltodextrins suggesting that I look at Scott Adams web site, Celiac Support Page. Its incredible and I cannot believe that I hadnt discovered it sooner. I highly recommend this to all of you as its clearly written and extensive. For instance, his Other WWW Sites that deal with celiac disease is 14 pages long when printed out!
    That list of 4 pages is Safe & Forbidden Lists. From there you can go to Whats New?, FAQ, Broad Overview of celiac disease, Celiac in the 90s, History of celiac disease, Treatment for CE, Diseases Which Resemble celiac disease and Related Disorders, Research Data on celiac disease, etc. As I said the site is
    extensive. If you have any questions, comments or additions for Scott Adams, you can
    write him. This man has done us all a great service.
    - Sarah Barnett
    Date: Tue, 08 Apr 1997 11:40:01 -0700
    Subject: Your site I have entered your web site a number of times. You are certainly doing a great service to celiacs and DHers. I imagine people get to your site
    by searching key words and then it pops up. I talk to many new people who have done research on the Internet first and then find local contacts.
    Also, you may or may not know that I am the new (since Oct. 1996) president of CSA/USA. Thanks. Again congratulations on all the good work. Keep it up! Janet Rinehart in Houston.
    Date: Sun, 13 Apr 1997 20:56:49 -0700
    From: Richard Tanasi
    Subject: SPRUE THANK YOU VERY MUCH ! I HAVE JUST BEEN DIAGNOSED AND YOUR LETTER ON THE HOME PAGE DESCRIBES WHAT I WENT THROUGH TO THE TEE. ON -GOING FOR YEARS.I HAVE SURFED THE NET AND BY FAR THIS IS THE BEST.IT GIVES ME PLENTY OF INFORMATION AND DIRECTION. I HOPE MY NEW DIET WILL WORK ITS TWO FOLD BOTH GLUTEN FREE AND LACTOSE INTOLERANT. THINGS COULD BE WORSE. AGAIN THANK YOU FOR TAKING THE TIME AND IF I CAN BE OF ANY HELP,LET ME KNOW. RICK
    From: Kathleen Shipley
    Date: Mon, 12 May 1997 21:30:02 -0500 Thank you so much for all the time and effort (not to mention money) that you have dedicated to your web site. It is wonderful! You will never know how much it has helped many, many people. My husband found it soon after I was diagnosed. The doctor had diagnosed me quickly, but his information was pretty worthless. Your web site explained everything and gave me hope. Please add me to the automatic update e-mail list. Thank you very much! Keep up the good work!
    - Kathleen Shipley
    Date: Wed, 21 May 1997 22:04:22 -0400 (EDT)
    Subject: Please add me to e-mail list We are about to start the diagnostic blood tests for our daughter . The pieces of the puzzle may be coming together and we were wonder if there is any link to heredity, as my husbands sister was considered years ago to be lactose intolerant as an infant and has suffered years from unexplained migraine headaches. There is an * after the reference to headaches as a symptom. I could not find the footnote it refers to. Could you help me find more info on it. This page may be very helpful to not only our daughter who is 2 ½ years old and only weights 23 lbs. and is only 33 inches tall, but may also help her aunt lead a fuller life, free from headaches. Thank you so much for the time youve spent in this endeavor. I wonder if you fully realize how much it really means and the number of people you may reach. Thank you again!

    Date: Fri, 23 May 1997 22:03:58 -0400
    From: Duane Kling
    Subject: Just another fan letter !
    I am so impressed with this site i cant even tell you. all the info i have found is so easy to understand and so helpful .i have told so many people about you in the past week . keep up the great job and i look forward to your news letter that i already signed up for. thank you, thank you, thank you !!!!!!!!!!!
    Laure Kling
    Date: Wed, 11 Jun 1997 01:15:36 -0400 (EDT)
    Hello Scott. First, I want to thank you for all the helpful info that you provide about celiac disease. You have no idea how many you have helped with your
    outstanding site. I have a nephew (age 3) that almost died before diagnosed at 18 months. His Mom (my sister) was diagnosed 6 months ago even though over-weight and asymptomatic. I have been printing and mailing them tons of educational material for about a month now. I live in Texas and they live near Windsor, Ontario, Canada. My sister belongs to the Tri-County group near Detroit (Jim Lyles group) as well as a small group in
    Canada. The group in Canada does not have anyone on the internet and they have none of the latest info. My sister would like to share some of the
    articles Ive sent her with the group members and is currently trying to set up an education committee. One thing we feel very strongly about is that everyone must always be told to verify info and be responsible for their own decisions. Personally, my sis is zero tolerance,
    very strictly gluten-free (by USA standards).
    Your info on related disorders has been enlightening, to say the least. We have several family members that need testing. Our Mom was just tested by a very good (celiac informed) Dr. and found to only have IBS. Sounds fishy, I know, but he had a gazillion tests run. She is also diabetic(Type 2) and had colon cancer 10 yrs ago. She gets that awful test every year. Anyway, we have about half of those disorders that you list in our family members and, thanks to people like you, we know now that we must investigate further. We have been helped so much by the net info that we cant help but want to share with others who really seem in need. Thank you again. We value your opinions.
    - Diane Wright
    Date: Fri, 13 Jun 1997 18:02:57 +1000
    From: Bruce Gary

    Hi Scott, just browsing for info on celiac disease. I got to say this is a really well designed site; uncluttered, logical, and to the point.
    Congratulations, it says a lot about you.
    Cheers,
    Bruce Gray Date: Sun, 22 Jun 1997 16:27:41 -0700 Because of contact with your page, I went on a gluten- and lactose-free diet about a year ago and all my symptoms have disappeared.
    Additionally, many other symptoms I didnt even recognize as symptoms any more because I had had them for so long disappeared.
    Thank you for helping me make my life happy and meaningful after so many years of terrible suffering while doctors simply showed me the palms of
    their hands and then acted insulted when I cured everything by going on a gluten- and lactose-free diet.
    You are a very special guy and I owe my health, vigor and freedom from pain to you and Ill never forget that. You can count on that. If there is ever any way you feel I could repay you for all youve done for me, you have my address.
    - Joe Clemens
    From: Ruth Campagna
    Subject: Thank you
    Date: Sat, 19 Jul 1997 14:37:09 -0400
    Scott, thank you for all the work that you have done to make so much helpful information available to us. Just when youve been beaten down by
    one more doctor who has no clue, it is so nice to be able to hand them a copy of one of your articles with a smile and a suggestion that perhaps
    they might find this information useful....and you dont feel so alone.
    Date: Mon, 18 Aug 1997 18:14:06 -0400 (EDT)
    Subject: overwhelmed  
    Dear Scott,
    I have just finished four consecutive hours on your web site and have bookmarked as much information as I thought I needed to help educate my
    doctor, myself, and my family.....even our accountant will get drawn into this when it comes to tax deductions! I want to tell you that I am more than impressed with the quality and the quantity of the work which you have presented......and I dont impress easily!! It is just absolutely unreal, and I want to thank you from the bottom of my heart. You will never know how grateful to you and your efforts I am!!
    Thank you for being in my life.
    Sincerely,
    Carole Hagstrom
    Date: Sat, 15 Nov 1997 12:09:39 -0500
    Subject: Thank You Dear Scott, I am a new celiac, (This year.) I live in a rural area and do not have access to a lot of information on gluten intolerance. There is a support group for my area, but it is 147 miles round trip on 2 lane highways. I have joined the group but will not be able to attend much. Your site is a God-send for me and I would like you to know how grateful I am for your site.
    Thank You; Sue Grupczynski
    Date: Sun, 16 Nov 1997 10:49:15 -0500 (EST)
    Subject: congratulations! I read your deserved excellent reviews--may I add mine. The best overall resource, and one I visit whenever you add new items
    Thanks, congrats.
    Chris
    Date: Mon, 17 Nov 1997 21:38:48 -0500 (EST)
    Subject: celiac disease Please add me to your mailing list. You have no idea what you have done for my husband. If not for your page, I honestly believe he would not be alive today. He has not been able to work for the past 5 years. We hasnt had the money for him to see a Doctor. I have a friend whos son had celiac disease, she said my husbands symptoms seemed the same as her sons. By the way her son was diagnosed while on a business trip in Canada. I got on my computer and found your page, he is following the diet and buys gluten free bread and all the other gluten free products we need. We now believe that all the people in my husbands family have celiac disease. That was a year ago. I have created several recipes and altered many more. Recently, the husband of another friend, who has been very sick for years without doctors finding the cause, took the information I got from your page to her husbands doctor. He finally referred him to a gastroenterologist and was found to have celiac disease. He was 66 year old man who was down to 120 pounds at 6 feet tall. Today he is healthy. I know my husband needs to see a doctor but right now there is just no way. I am trying.
    Thank you for doing what you do. We are more grateful than you will ever know.
    Sincerely,
    D. Penningto
    Date: Thu, 4 Dec 1997 19:44:06 -0600
    From: Dr. Noakes
    Subject: Re: celiac list I know that you are not expecting a reply to your email, but I wanted to say thanks very much for connecting me to your email list, and also that I
    think your web page is the best out of all the Celiac pages Ive seen. Looking forward to communicating with you,
    Kate
    Department of Physiology and Pharmacology

    Scott Adams
    From: Carol C.
    Subject: Case Histories
    Date: Mon, 3 Jan 2000 14:12:55 -0500

    I am sending you a copy of a letter I am sending to my brothers doctor. My brothers story is sad as you will read from the letter. In fact, unknown to us, my entire family has suffered from celiac disease over many generations. Information from your web site has been copied and handed out, faxed, or emailed to many people, including doctors. . It has been our main source of insight and information.

    It is always a good feeling to know that your life has touched many and helped many, and your life has indeed done that. Thank you from my family. As a family we have only discovered celiac disease in our midst in the last few months. Here is the letter. Bruce probably would have gone on to become progressively more ill were it not for the information on related disorders that you provide. We await his biopsy results with hope for his renewed health.
    Date: Mon, 3 Jan 2000 13:56:57 -0600
    Subject: WebsiteI would just like to thank you and anyone else that is responsible for providing such an excellent website. I am a new sprue and also a RN.
    I have been quite frustrated in the huge amount of conflicting and anecdotal information available to me. Your site seems to be balanced
    and has more primary source material.
    Thanks,
    Sharon Ward

    Date: Sat, 11 Mar 2000 23:20:32 -0500
    Subject: Please Add MeThe hour is late, however I have to tell you just how much your site helped me tonight. My 8 year old son was just diagnosed with Celiac Disease - never having heard of it, you can imagine what all was running through my head as they explained to me the whys and wherefores!!! We return to the docs on Tuesday, your site helped me link to some very valuable information, giving me of course, a very long list of questions.... and the knowledge, that I should be tested, as I was told I had any number of things, the latter being IBS, I am also have thyroid disease, Hypothyroid, which too has been difficult to manage. I am just overwhelmed with the information so carefully laid out here. Im sure there have been those that have said Thank You - let me be counted among them - truly, you gave me a place to start from, where I had nothing... *smiles* thank you!!!! thank you!!!! thank you!!!!
    Please add me to your mailing list!
    Christine Schettig
    Date: Mon, 15 May 2000 11:03:03 -0400
    Dear Sir, Ive just received my first Celiac Support Page and want to tell you how very much it means to receive such current information.
    Ill not continue to bother you with e-mails but must thank you very sincerely for what you are doing. Sincerely, Joyce Dozois
    Date: Mon, 9 Oct 2000 15:07:27 EDT
    Subject: celiac websites

    Bless you or whoever put out the safe & forbidden food list, recipes, info, products etc...thank you, thank you, THANK YOU!!!! I have been omitting foods for 4 years, some which I dont have to omit. A whole new world just opened up for me between buying a computer and finding you guys. All too often people complain, so heres a compliment to brighten your day!! thanks again!
    From: Scott Wilterdink
    Subject: thanks!
    Date: Sun, 5 Nov 2000 04:13:06 -0600

    My name is also scott and Im writing to tell you how wonderful your web site is and will be for my friend Linda. She was recently diagnosed
    with celiac sprue disease, and like you, it took many doctors and many years of pain before someone came about this diagnosis. When i talked with her tonight, she was feeling really depressed because she was worrying what shed be able to eat, how she could find gluten-free products, and how she could stop the pain from coming back. Then, we found your wonderful web page! Not only do you explain more about the disease and give first hand experience to dealing with the disease, but u have gone out of your way to list countless numbers of web sites that will be beneficial to Linda, and other celiac sufferers.I just thought Id let you know that your hard work and effort has given Linda a much needed boost and change in attitude. They always say if i can just reach one person and help them, all the work is worth it. well my friend, your work was well worth it because you have helped put a smile back on Lindas face and hopefully it stays there for many years to come!

    Thanks again!
    Scott Wilterdink
    Date: Mon, 6 Nov 2000 21:31:24 -0600

    I am the Linda that Scott Wilterdink wrote to you about a couple of days of ago. I was in really getting in a deep depression and wondering how I was going to continue my own existence! I mean in order to eat I had to find something I could eat. However, every thing I was finding was just telling what the disease was. NOT what I do about being able to find the proper foods to heal my pain and suffering. You have been a God send to me as well as my friend Scott. I cant thank you enough. You have gone to an enormous amount of work to build your web site and I for one, cant tell you what it has meant to me. I will go through it like a fine tooth comb.. I dont want to miss a word or meaning. I want to also go just as thoroughly through the other web sites. Again I thank you so much for some hope that I was being to think was hopeless. I was worried about 2 sons and one son has 3 children of his own. I couldnt imagine passing on a gene that could make my grandbabies or my own babies suffer as I have without having a way to help them. And thanks to you... I have that answer now. I could go on forever on my feelings of your help and I wouldnt come close to how much it means to me. You have done a great job and great justice to anyone with celiac. I will surely send anyone in our position straight to you. I wish there was something I could do to repay you the life you have given back to me. I had given up. I was depressed and now I see a light at the end of the tunnel and with a husband that loves the challenge to help me and so VERY supportive.. I am one of the luckiest women in the world. and you have been a big part of me feeling so good about me again for the first time in many years!! I know that Scott W. has thanked you but I wanted to do that personally myself. What you are doing is so wonderful. So God bless you....you have to be one of his guardian angels.. I think maybe you have this disease because He knew how useful you would be to all the rest of us that just sit around feeling sorry for ourselves instead of doing what you have done. But no more of that. I intend to learn everything about this that is I possibly can and look at life as a positive thing rather than one that is just pain and suffering every morning. Thanks to YOU. That isnt true anymore.. I wake up feeling little pain to none on some days. And that my, guardian angel... is due to your efforts and hard work! I thank God every minute for friends like you and Scott W. Without people like you in the world...well it just wouldnt be the wonderful place that people like you two make it!!!! Thank you so much again..
    From a fellow celiac from depression to loving life without pain again!!!
    Linda Koenig
    Date: 5 Dec 2000 19:06:58 -0800
    Hello, My name is Anna and I take care of an geriatric patient and have had my first encounter with a gluten intolerant person. I have visited this site many times and have received countless amount of help. w/o this site, Im sure this patient would be dead or close to it. At the time I started research on gluten intolerance and what it was exactly...she had already lost 35 pounds and was steadily losing. I emailed this site and received via snail mail various articles, cook books, pamphlets. Need I say...they have become our bibles and w/o them, we would be totally lost. I have emailed this site many times and my questions have always been answered quickly. I was truly surprised of the amount of ppl who arent even aware of this disease/condition....even her own doctor and our dietitian was not even aware of things she could or couldnt have. But, needless to say, with the help of this site...I have enlightened them!! I would really appreciate being put on the email list of updates and various a
    Sincerely,
    Anna Gibson

    Scott Adams
    Date: Tue, 2 Jan 2001 23:30:56 -0700

    Your sight is the most informative and easy to navigate that I have encountered. In less than one hour I have found links, advice and basic
    helps to questions that I have been unable to answer. My 10 year old son has hypogammaglobulin anemia, he was diagnosed with celiac sprue 3 years earlier. Since that time, we have felt he did not have CS...even though our son is doing well, he is not growing and often does not feel well. I will pursue CS again to make sure it was truly a mistake. Our 6 year old son will be going in for tests on January 5, 2001. I had not considered food to be the source of his asthma, respiratory or skin problems, but your sight has made me rethink what I am going to discuss with the Doctor. I am also in the process of testing. I had no idea Lupus, Sclerederma etc. were common. I have both. I have been trying to do a gluten free diet on my own and I actually feel better than I have for a long time.
    I feel our families plate is full without adding to it, but your sight is the ray of sunshine I need to get us through and realize it isnt so bad. Thank you so very much.
    Connie Worthen
    Subject: Thank you
    Date: Tue, 16 Jan 2001 14:41:52 -0600

    Just wanted to say thank you for your work and information re. gluten. It is great. Thank you.

    R.J.Meyer, MD

    Date: Fri, 2 Mar 2001 10:20:24 -0500
    First let me say that you are a life saver!!! I mean that literally -- YOU SAVE LIVES! The knowledge and information that Celiac.com has provided is amazing and very sincerely appreciated. Through the use of Celiac.com, I was able to determine that my husbands undiagnosable skin condition was DH and that he has celiac disease. I am sure youve heard the stories before, but in my husbands situation, the doctors we visited (Primary care physician, Dermatologist, G/I specialist) had no clue. But something in MY gut (no pun intended) knew that it was DH and celiac disease. After having to sell the GI specialist on celiac disease as a possibility, he agreed that my husband should have his blood antibodies checked to rule out celiac disease (and to shut me up). Sure enough, the test came back clearly positive. And we (me too) are now on our new adventure of a gluten-free diet for life.
    Thank you from the bottom of my heart!
    Michelle A. Straub
    Date: Tue, 1 May 2001 08:28:49 -0700 (PDT)
    From: carol poe
    Subject: just a word of thanks
    Hello my name is Carol Poe, my husband has celiac, and I would just like to tell how much I really appreciate your site. We only just recently found out about celiac and your website has been a great help to us. I read your bio and it sounded just like my husband. We had wondered if we would ever find out what was wrong with him, but thank God we did. He felt completely alone and now he sees he is not. This has been going on for so long his own family (on mothers side) has called him lazy and treated him very cruelly. Now we finally know whats going on and he is a completely changed man. His dads side of the family is truly grateful also for we feel there are several people who have it on his dads side, even a brother who had diabetes and complained all the time about his stomach until he died just over two years ago. If he had celiac then I can only imagine what could have eventually happened to my husband, I owe you more than I could ever afford.
    Date: Thu, 3 May 2001 00:27:38 EDT

    Scott, I appreciated your level-headed response. It is extremely disconcerting to read some of these allegations, particularly since I have a
    21 year old celiac daughter who is just finishing a third year abroad program in England and who, after much thought, made the decision to follow the guidelines put forth in The (English)Coeliac Societys booklet of safe foods, which of course includes Codex wheat starch. She is completely asymptomatic, on the outside anyway, and thus does not know if/when she has ingested gluten, but is extremely diligent and was advised before going by someone whose daughter is extremely symptomatic that the daughter had no problem whatsoever when doing HER year abroad. Our daughter (like the other persons daughter) has found living and eating there much easier than here in the U.S. Ours is also a Type 1 Diabetic. Anyway, I have worried enough about her being there; to have the additional worry about the wheat starch has been unsettling. Thanks. Bev, outside Chicago.

    Date: Fri, 04 May 2001 21:27:53 -0700
    From: Fred Tanner
    Subject: re your website. celiac disease.
    I am the 77yr old father of an adult daughter who has just been diagnosed with Celiac disease... my curiosity about her condition led me
    immediately to your web site.... I just wish to compliment you on this effort... had no idea that so much information could be made available
    by a single individual, and you are doing a very great thing for those of us to whom this condition is not only unknown but totally
    baffling. Thanks. Fred G. Tanner.
    Date: Tue, 8 May 2001 20:22:36 EDT
    Id like to send my thanks for your web site and the great service it provides. Keep up the good work there are a lot of us out here who depend on
    all that you do.
    Mike Dudley
    Subject: feed back
    Date: Mon, 14 May 2001 21:55:19 +0100

    Thank you for a very informative site, Ive found more answers in a few minutes than I have in one year from my sons consultant, thank you.
    Justeen Higgins.

    From: LORRAINE NEDELL
    Subject: reiders syndrome
    Date: Thu, 17 May 2001 02:28:25 -0400

    Your website has saved my friends life!! The doctors didnt have a clue why her weight had dropped to 67 lbs. I found your website, a blood test was done and it looks like she is on her way to recovery. After only one week on the diet her pain level has dropped significantly. Thank you.
    Date: Fri, 18 May 2001 12:45:01 +0000
    From: Sarah Rudisill
    Subject: THANK YOU!
    Thank you so much for this site. You have saved my life! Literally! The doctors only tell you so much. There are other sites out there that are giving false information that if I relied on those sites I would be constantly sick. I visit this site every couple of days & have ordered from the shopping
    mall! I thank you for your scientific postings. I thank you for your safe & forbidden lists. I thank you for letting me know that there are others
    out there. I thank you for enabling me to be able to handle this. Ever since I found out I may have celiac sprue - all the test results are not back yet - I have researched & used this site as a guide. I feel like a while new person. So THANK YOU!
    I wish there was something I could do for you.
    All my gratitude,
    Sarah
    From: Uerz, Lori
    Date: Tue, 29 May 2001 09:01:51 -0400
    Dear Scott: Just wanted to thank you from the bottom of my heart for producing this web page every month. When my son was first diagnosed I
    spent weeks calling and writing manufacturers about the gluten content in their products. This website is like a life-line for me and I just can not
    thank you enough for your time and effort on behalf of people with celiacs disease. My son will be turning 6 in a couple of weeks and has been very successful on the gluten-free diet for a little over a year now and while he has other special needs (Down Syndrome and irritable bowel syndrome), at least I can know that anything I need to know about celiacs I can find out here at your website.
    May God bless you & THANK YOU!!!!!!!
    Sincerely,
    Lori Tatsapaugh Uerz
    Subject: web page
    Date: Wed, 30 May 2001 09:10:35 +1000

    I just want to thank you so much for your web page. I have just had to go gluten and dairy free after a long illness and was struggling to find information and someone to answer my most basic questions. Your web site has answered all my questions along with valuable information that I would not have known.
    Thanks again
    Kate Dani
    From: KellyMcdon@aol.com
    Date: Wed, 1 Aug 2001 21:04:31 EDT
    Subject: celiac in children

    My son is 12 years old. He has had a bowel problem all of his life. The doctors just took a test and found out what he has. He is an ADD child also. I am so dissatisfied with how we were treated by so many pediatricians. They told me that my child was lazy and that he should be potty trained by now. After so many missed diagnoses it is good to know that my child is indeed not lazy and has celiac disease. He has been through the ringer, being
    treated for diarrhea, constipation. He has had several enemas and rectal exams that I have to lie when it is time to go to the doctor.
    Thank you for this informative website. I look forward to receiving your newsletter for the first time.

    Scott Adams
    Date: Thu, 09 Feb 2006 13:41:02 -0500
    Subject: Great site!
    Hi Scott,
    As a newly diagnosed G.I. patient, I am in dire need of information. Your website is a gift. Thank you so much for creating it. I hope that Ill be able to eat in restaurants one day..... they seem to be few and far between in my neck of the woods. Take care and all the best to you.
    Jeannine Ouellette
     
    Subject: RE: Celiac.coms Scott-Free Newsletter - Subscribe Today
    Date: Wed, 21 Jun 2006 08:33:44 -0400

    Hi Scott!
    You are wonderful and so helpful in a time that can be so stressful! I have passed you on to so many who love you also. Keep up the good work and God bless you!
    LoisAnne
     
    Date: Wed, 2 Aug 2006 15:15:12 -0700 (PDT)
    Subject: Re: Site

    BTW, already finding a wealth of information including the link to the EnteroLabs site.. already ordered the cheek swab test for my daughter. Much cheaper than the 325/test my husband and I paid to find out who had the gene (my 5 year old son was diagnosed in March 2006). Thank goodness for you and the Gluten Free Mall!!!

    Regards,
    Lori Swanson
     
    Date: Thu, 3 Aug 2006 01:37:00 EDT
    Subject: Re: Enquiry from Gluten-Free Mall

    Dear Scott:
    You and your team have been so nice, understanding, and informative that I do not have enough word to express how much you all mean to me. The message board is a great help when I am really feeling down because I come up negative on all the tests, but put wheat in my diet and I am violently sick.

    I appreciate you taking the time to respond to me.
    Karen McCain Mish

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/16/2018 - Summer is the time for chips and salsa. This fresh salsa recipe relies on cabbage, yes, cabbage, as a secret ingredient. The cabbage brings a delicious flavor and helps the salsa hold together nicely for scooping with your favorite chips. The result is a fresh, tasty salsa that goes great with guacamole.
    Ingredients:
    3 cups ripe fresh tomatoes, diced 1 cup shredded green cabbage ½ cup diced yellow onion ¼ cup chopped fresh cilantro 1 jalapeno, seeded 1 Serrano pepper, seeded 2 tablespoons lemon juice 2 tablespoons red wine vinegar 2 garlic cloves, minced salt to taste black pepper, to taste Directions:
    Purée all ingredients together in a blender.
    Cover and refrigerate for at least 1 hour. 
    Adjust seasoning with salt and pepper, as desired. 
    Serve is a bowl with tortilla chips and guacamole.

    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
    So how, you may ask, is all this related to gluten? As a starting point, one report from the medical literature identifies a patient who developed aphasia after admission for severe diarrhea. By the time celiac disease was diagnosed, he had completely lost his faculty of speech. However, his speech and normal bowel function gradually returned after beginning a gluten free diet (8). This finding was so controversial at the time of publication (1988) that the authors chose to remain anonymous. Nonetheless, it is a valuable clue that suggests gluten as a factor in compromised speech production. At about the same time (late 1980’s) reports of connections between untreated celiac disease and seizures/epilepsy were emerging in the medical literature (9).
    With the advent of the Internet a whole new field of anecdotal information was emerging, connecting a variety of neurological symptoms to celiac disease. While many medical practitioners and researchers were casting aspersions on these assertions, a select few chose to explore such claims using scientific research designs and methods. While connections between stuttering and gluten consumption seem to have been overlooked by the medical research community, there is a rich literature on the Internet that cries out for more structured investigation of this connection. Conversely, perhaps a publication bias of the peer review process excludes work that explores this connection.
    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
    Celiac.com 06/13/2018 - There have been numerous reports that olmesartan, aka Benicar, seems to trigger sprue‐like enteropathy in many patients, but so far, studies have produced mixed results, and there really hasn’t been a rigorous study of the issue. A team of researchers recently set out to assess whether olmesartan is associated with a higher rate of enteropathy compared with other angiotensin II receptor blockers (ARBs).
    The research team included Y.‐H. Dong; Y. Jin; TN Tsacogianis; M He; PH Hsieh; and JJ Gagne. They are variously affiliated with the Division of Pharmacoepidemiology and Pharmacoeconomics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School in Boston, MA, USA; the Faculty of Pharmacy, School of Pharmaceutical Science at National Yang‐Ming University in Taipei, Taiwan; and the Department of Hepato‐Gastroenterology, Chi Mei Medical Center in Tainan, Taiwan.
    To get solid data on the issue, the team conducted a cohort study among ARB initiators in 5 US claims databases covering numerous health insurers. They used Cox regression models to estimate hazard ratios (HRs) and 95% confidence intervals (CIs) for enteropathy‐related outcomes, including celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy. In all, they found nearly two million eligible patients. 
    They then assessed those patients and compared the results for olmesartan initiators to initiators of other ARBs after propensity score (PS) matching. They found unadjusted incidence rates of 0.82, 1.41, 1.66 and 29.20 per 1,000 person‐years for celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy respectively. 
    After PS matching comparing olmesartan to other ARBs, hazard ratios were 1.21 (95% CI, 1.05‐1.40), 1.00 (95% CI, 0.88‐1.13), 1.22 (95% CI, 1.10‐1.36) and 1.04 (95% CI, 1.01‐1.07) for each outcome. Patients aged 65 years and older showed greater hazard ratios for celiac disease, as did patients receiving treatment for more than 1 year, and patients receiving higher cumulative olmesartan doses.
    This is the first comprehensive multi‐database study to document a higher rate of enteropathy in olmesartan initiators as compared to initiators of other ARBs, though absolute rates were low for both groups.
    Source:
    Alimentary Pharmacology & Therapeutics

    Jefferson Adams
    Celiac.com 06/12/2018 - A life-long gluten-free diet is the only proven treatment for celiac disease. However, current methods for assessing gluten-free diet compliance are lack the sensitivity to detect occasional dietary transgressions that may cause gut mucosal damage. So, basically, there’s currently no good way to tell if celiac patients are suffering gut damage from low-level gluten contamination.
    A team of researchers recently set out to develop a method to determine gluten intake and monitor gluten-free dietary compliance in patients with celiac disease, and to determine its correlation with mucosal damage. The research team included ML Moreno, Á Cebolla, A Muñoz-Suano, C Carrillo-Carrion, I Comino, Á Pizarro, F León, A Rodríguez-Herrera, and C Sousa. They are variously affiliated with Facultad de Farmacia, Departamento de Microbiología y Parasitología, Universidad de Sevilla, Sevilla, Spain; Biomedal S.L., Sevilla, Spain; Unidad Clínica de Aparato Digestivo, Hospital Universitario Virgen del Rocío, Sevilla, Spain; Celimmune, Bethesda, Maryland, USA; and the Unidad de Gastroenterología y Nutrición, Instituto Hispalense de Pediatría, Sevilla, Spain.
    For their study, the team collected urine samples from 76 healthy subjects and 58 patients with celiac disease subjected to different gluten dietary conditions. To quantify gluten immunogenic peptides in solid-phase extracted urines, the team used a lateral flow test (LFT) with the highly sensitive and specific G12 monoclonal antibody for the most dominant GIPs and an LFT reader. 
    They detected GIPs in concentrated urines from healthy individuals previously subjected to gluten-free diet as early as 4-6 h after single gluten intake, and for 1-2 days afterward. The urine test showed gluten ingestion in about 50% of patients. Biopsy analysis showed that nearly 9 out of 10 celiac patients with no villous atrophy had no detectable GIP in urine, while all patients with quantifiable GIP in urine showed signs of gut damage.
    The ability to use GIP in urine to reveal gluten consumption will likely help lead to new and non-invasive methods for monitoring gluten-free diet compliance. The test is sensitive, specific and simple enough for clinical monitoring of celiac patients, as well as for basic and clinical research applications including drug development.
    Source:
    Gut. 2017 Feb;66(2):250-257.  doi: 10.1136/gutjnl-2015-310148.