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    2004 Celiac.com Feedback


    Scott Adams

    Subject: Celiac.com
    Date: Thu, 22 Jan 2004 09:48:56 -0500


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    Hello,
    I found out that I had celiac sprue 3 years ago. I just wanted to thank you all for such a great web site. Of all the places on the web for celiac I find yours the most informative. I learned things here that I havent found anywhere. I signed up for the free news letter and I will visit your site regularly. Thankyou for helping me understand more what is going on with myself. Lets get more doctors aware of this as I have had systoms of this disease sense since the age of 16 ( I am currently 33) I am very poor I wish that there were more enexpensive alternatives to replace the foods I now cant eat. Thanks to your site I realize that I need to save money to get tested for type 1 diabetes. Thankyou again for your informative site.
    Christine Thomas


     

    Subject: Article in Feb. 04 Readers Digest
    Date: Sun, 1 Feb 2004 10:39:17 -0800

    Hi Scott-

    Your work on Celiac.com is greatly appreciated! Im a long-time nurse (42 years) and the grandmother of 4-year-old Katie who was diagnosed shortly before her 3rd birthday by her mother (my daughter). Katies diagnosis has not been confirmed by an official lab test or procedure, but it is obvious by her symptoms. She has been on a strict gluten-free diet since we first became aware of her problem. Contrary to my wishes and advice, they chose to continue with the diet and have her tested when she is a bit older. I believe this is based on the fact that Katies dad is in a bit of denial, thinking she will outgrow it.

    Keep up the great work!
    Alice


     

    Date: Sun, 08 Feb 2004 11:31:37 -0500
    Subject: Rice Beverages


    Dear Mr. Adams:

    I first want to express my sincere appreciation for your website. Because of the information it provided, I was able to diagnose the cause of my daughters asthma and skin rashes. In addition, I have cured my own, chronic bronchial and sinusoidal infections. THANK YOU!
    Robert L Fireovid


     

    Date: Thu, 12 Feb 2004 17:50:00 EST
    Subject: Celiac.com

    Hello Scott, I want to tell you how absolutely fabulous your newsletter is. THANKYOU!

    Yesterday, I received an e-mail about subscribing to the newsletter. I assumed that
    because I am a subscriber, my subscription must be running out so I renewed for
    another year. Please check to be sure the renewal that I did yesterday will extend my
    current subscription. Thank you again for a fabulous newsletter.

    Laurie Whitehill


     

    Date: Fri, 14 May 2004 07:53:44 -0500
    Subject: Re: Celiac.com Update

    Celiac.com Update Dear Scott,

    It never ceases to amaze me...the information you provide lines up so well
    with our experience with gluten intolerance and numerous issues related.

    The article Are Commensal Bacteria with a taste for Gluten the Missing Link
    in the Pathogenesis of Celiac Disease? by Roy S. Jamron is excellent. I
    believe you have hit on the biggest breakthrough with celiac disease and
    gluten sensitivity...that being the role of bacteria.

    This bacteria issue is something Ive become well familiar with in our search
    for answers for myself, our daughter and a friend. In my case, Klebsiella
    pneumonia and Helicobacter Pylori were present, in our daughters case and my
    friends case, no pathogenic bacteria was found. But, in each of our
    situations, we were lacking adequate amounts of friendly bacteria
    (Bifidobacteria and lactobacillus). I believe this is the missing link.
    Perhaps not the presence of a pathogenic bacteria, but simply the lack of
    healthy bacteria. Each of us had been prescribed numerous antibiotics in the
    past as well.

    Thanks so much for the work you do. Great Job!

    Grace and peace to you,

    Bonnie Hafeman


     

    Subject: Re: Free Food
    Date: Wed, 1 Dec 2004 05:21:31 -0500

    Scott,

    In 1996/1997 I was dying. I was around 31 years old. I had gone bankrupt, could not hold jobs, and was close to destitute. I could only work two days a week and was living in a small one bedroom apt. I had accomplished nothing in my life that I wanted to, never had a girlfriend (sick all the time), and was starting to lose my eyesight from bleeding in the back of the eye. When I went to the toilet, and I did often, it was all water...and nothing was digested. My stomach grew out like the children in Africa who starve does.

    I knew I would not last long. My goal was to get better so all I ate was healthy food. Lots of grains- wheat, rye, barley, etc- in soups and other ways...and I was failing. It was all I could do to work those two days to pay the bills as the rest of the time I spent in bed or near the bathroom.

    I remembered my mother saying I was sick as a very young child (one or two?) and after many specialists they could find nothing wrong and I was dying. The Doc said try taking him off gluten for a few months and see. It worked, I did live. But I was never really healthy...and never near 100% in studies or attention.

    As I lay there realizing I would be dying soon, I looked up gluten on AOL...and your site came up first. I saw the symptoms (a few of which were mine such as diarrhea, ADD, lethargy, and the like.) and I realized I was on to something.

    The next eight years have seen vast improvements in some parts of my life. I am slowly getting at goals I have been yearning to do for decades (such as the website, originally a magazine). Unfortunately the test has been not bingeing and realizing the community is wrong. I am now in the midst of the 14th day free of ALL grains. Only fruits, vegetables, meat, and water have gone into me. I am feeling much better for the first time, though still run down. I cannot eat anything except basic food groups or I think I will never get away from the addiction, for addiction it is.

    Although I am struggling now financially I am still healing and find I am able to work more than I was even 4 years ago..

    If anyone needs to pay someone it is I paying you. As I said in a letter once, your site changed my life and I have spent many an hour talking to people to help change theirs too. All I can say is my political aspirations revolve around the truest sense of making the world better and helping all people. If I ever get to a state or federal level you will hopefully feel proud that you were part of it and any good that I can do while up there.

    Thanks for everything.

    Bob Hoffman

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  • About Me

    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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  • Related Articles

    Scott Adams
    Date: Sat, 13 Jan 1996 08:31:23 -0800
    Subject: Celiac Helped
    Thanks Scott,
    I have been wheat free and pain free for almost two weeks now. The
    only exception was when I ate some corn,(I admit, a lot of corn.) which caused some bloating for two days. I now believe that the gluten was causing the problem. I am 51 years old and quit teaching karate because of the symptoms of Celiac Disease. I am now considering going back into Karate. Thanks again. It feels like I got my life back. -Frank
    Date: Mon, 22 Jan 1996 12:57:28 -0500
    Subject: Great Site!

    Thanks for all the great info on gluten. It has made my life easier.
    Karen Date: Wed, 24 Jan 96 01:37:02 0500
    From: Richard K. Puder
    First, before I get to the subject above, I want to thank you from the bottom of my heart (or even small bowel!) for all the wonderful work you
    have done in creating a fabulous web site. The very first search that I did on the Internet was to search for Sprue in Yahoo, and lo and behold, I found your home page. And what a find! It enabled me to gather information in a brief period of time that I couldnt possibly have found if I had visited 20 libraries and spent months. If there is anything I can do to be of assistance, please ask.
    Date: Sat, 27 Jan 96 06:26:11
    Subject: Thank you

    Hi Scott,
    your information is wonderful, and very nicely put together. It finally convinced my husband to go get himself tested. I wont bore you with gory details. Thanks, A. Sheldahl Date: Sat, 27 Jan 1996 10:33:40 -0500
    From: D. Resch
    Thank you for providing so much information on celiac disease. The presentation is so informative and well organized. I have certainly learned a lot and have referred several people to your web site. Well, thanks again and if there is anything I can do to help, please e-mail me.
    Debbie Resch
    New Jersey
    Date: Tue, 30 Jan 1996 01:05:22 -0500
    Subject: Julia Dear Mr. Adams,
    Last week, my 4 year-old daughter underwent both an endoscopy and colonoscopy. With results of her biopsy confirming celiac, I cant tell you how relieved I am to find a home page such as your own on the web.
    Date: Tue, 30 Jan 1996 01:07:07 -0500
    Dear Mr. Adams,
    Thanks for all your work. My 4 year-old was just diagnosed with celiac after
    11 months of sweating and fretting. Its great to have found your page on the
    web. Julia and her daddy thank you.
    Michael Brady
    Date: Tue, 30 Jan 96 03:46:27 -0800
    From: Charles Jarvis Jr.
    Subject: Scotts Celiac Disease / Gluten Intolerance Help Page Thanks for a great celiac homepage. Keep up the wonderful work. Its much appreciated.
    Date: Sat, 3 Feb 1996 23:22:54 -0600
    Subject: Wonderful work I hadnt read your info for months and I am so impressed with the wonderful job youre doing. Shortly before our support group meeting in March, Ill
    post the info for you. Thanks again and keep up the good work!
    - Lynn Samuel
    Date: Tue, 13 Feb 1996 13:22:53 -0500
    Subject: Congratulations All of us at IMMCO Diagnostics are very impressed with your web site. We have been perusing the site over the last month. It is very informative and thorough. Your efforts to disseminate this valuable information to celiac sufferers is commendable. Feel free to contact us if you require information, articles, or content for your page. We would be happy to help.
    Sincerely,
    Vijay Kumar
    Kurt Neukom
    Kevin Lawson
    Date: Thu, 15 Feb 1996 08:48:15 -0500
    Subject: Celiac disease I have just joined America-on-line and have accessed your Scotts Celiac Page. This is a letter of appreciation for all the work you have done to help
    celiacs. I am very impressed with the extent of your Table of Contents and have just printed about half of everything there. Fascinating articles.
    -J. Trevett

    Date: Mon, 26 Feb 1996 10:30:44 EST
    From: MS. BRENDA DAVIS
    Subject: Scotts Celiac Page Please add me to your list for updates and changes at your celiac site. I have enjoyed your site very much. It was the first place I found when desperately looking for celiac information. I found it sometime last October and I can truly say that it changed my life after not having any information after being diagnosed celiac approximately about a year and a half ago. I appreciate your hard work on this.
    Date: Mon, 18 Mar 1996 15:53:49 +0000
    From: Carol Young
    I love your home page and it has helped me as well as my doctor better understand how to be wheat and gluten free. What you are doing here is
    wonderful.
    Date: Sat, 6 Apr 1996 23:08:48 -0500
    Subject: just wanted to thank you Hi, my name is Michael and I wanted to thank you for you great home page. My grandmother is a Celiac patient and she is lost as to what to do. She heard about something called the internet and I told her I would look. I did look and their was no better place than yours. Your home page and the various links will make her day. She is 75, which is strange for Celiac patients but also it is harder for her to learn or even know where to look. Thanks to you she now does. This disease needs to be brought out in the open, it seems like many people have it yet, not many companies etc... cater to them. It is very hard to find these products but you have helped. Thanks again!
    Date: Sat, 20 Apr 96 06:03:56 -0700
    From: Michael Esker
    Subject: Celiac Home Page What a great site! This is a great example of the real benefit of the Internet. I was born with celiac, although it was not diagnosed until I was about 3! I dont remember, but my parents say the first few years of my life was hell for them and me. I felt I grew out of it at about 18 so I went off my gluten free diet. Mainly so I could drink beer. I am 31 now, but due to not feeling as well as I think I could, and possible long-term consequences, I think I am getting back on the diet to see what happens. Part of this action stems from my young nephew who also might have the
    disease. At least its being considered and tested for with diet these days! Your home page will be an invaluable resource as I, and my nephew, try
    to get back to a better life. Thanks for your effort.
    Date: Tue, 23 Apr 1996 22:26:51 -0400
    To: sadams@hooked.net
    Subject: celiac information Your page on the Internet is a Godsend to those few of us who need info & support for celiac disease. My adult daughter has just been diagnosed & Im searching for her benefit since she doesnt have access to a computer. Now I just have to figure out how to use the Internet & I cant think of a better reason to learn! Please add me to your mailing list for your newsletter which Ill forward to my daughter. Many thanks - keep up the good work.
    - Judy Fitzpatrick
    Date: Wed, 05 Jun 96 08:41:29 -0700
    From: Bertie Lynch
    Scott: First, Id like to thank you for posting your Scotts Celiac page on the Internet. Wonderful info, and a lifesaver for our family, as my
    husband was diagnosed with the disease last year, so once again, thanks.
    -Regards, B. Lynch
    Date: Tue, 18 Jun 1996 09:31:24 -0400
    Subject: Thanks for Information
    Thanks very much for sharing your Celiac information with others who have gluten problems. I have been very frustrated trying to find out what my
    problem is and now believe I may be gluten-sensitive. Your web page has been of great help to me in finding out if my symptoms are consistent
    with gluten sensitivity/intolerance. I am truly grateful that people like you make the effort to help those of us out there who are mystified by these symptoms. Thanks again, and keep up the good work!!!
    - Stefanie Crampton
    Date: Sun, 30 Jun 1996 01:15:46 -0400
    Please add me to your email list. Secondly what a blessing you sight has been to me and three other people to date. I have battled what everyone told
    me was IBS for the past three years and it was ruling and controlling my life. In the past three weeks with the information I found through your sight my life is so much better and I feel so much better. My sister and a friend are now experiencing the same effect since I share what I found with
    them. Thank you!
    -Jean
    Date: Sun, 07 Jul 96 14:26:25 -0700
    From: Cherie Jameison
    Subject: Mail list Please add me to your e-mail list. I deeply appreciate your web page, as well as all gluten-intolerance material on the Net. Like any of us who have celiac disease, I have my own tragic history until I cut out gluten from my diet (in my 40s). My childhood was painful, due in large part to gluten intolerance. What wasted, tragic years. Anyhow, weve all been through our own, sad backgrounds. Im so grateful that now increasing information is coming out and is available. Scott, thank you so very much for the wonderful work you are doing to help others!
    With warm regards,
    - Cherie
    Date: 09 Jul 96 11:05:02 EDT
    From: Karen Brody
    Subject: Praise for your efforts Hi. Ive needed to do some research on celiac sprue from the UK for a book Im writing for Sheldon Press called Coping with Coeliac Disease and your information on the internet has been very useful. Thanks from the bottom of my heart. The world needs more special people like you who care about peoples health!
    Thanks again for your help,
    - Karen
    From: Perron Lino
    Date: Sat, 10 Aug 96 21:11:03 -700
    Subject: mailing list
    Thank you for your page and all the info. I will appreciate to be in your mailing list and learn about anything new about celiac sprue. My daughter is doing a lot better and she is growing ok on a gluten free diet. If for any reason you are traveling trough Italy come see us Be happy to meet you and thank you for he big help. Lino Perron Breuil Cervinia at the foot of the Matterhorn on the Italian side. Good place to climb and ski.
    From: Davis, Pamela
    Subject: Celiac mailing list
    Your web page is very informative. My mother was diagnosed with celiac a few years ago. She has a hard time finding information on the disease and has had to completely change the way she eats and cooks. This web site is a godsend to people like my mother. Please add her to your distribution list for any information that you e-mail out. Thank You.
    Date: Tue, 24 Sep 1996 09:20:13 -0700
    From: Randina Bliss
    Subject: well done

    Kudos to you for bringing this extremely well written Web page on Sprue and the pertinent articles that are necessary to better deal with
    diagnosis. My brother was diagnosed with this disease this spring, following lengthy testing for whatever they could think of. He was very anemic,
    losing weight and having odorous diarrhea. Now that he is following a gluten free diet the dark circles under his eyes have gone, his
    hemoglobin is going up and has even managed to gain a few pounds. We have since learned from our older sister that my brother was
    considered malnourished when he was younger, the age of younger is unknown. He was always thin and had a low energy level. It is a shame
    the puzzles pieces took so long to be put together. His birthday is this Saturday (turning the big 50) and I wanted to make
    him something home baked (if I could find the ingredients). When I did a search via Yahoo, it gave me only this one. I am extremely grateful
    that it did as I have found this to be extremely helpful and will pass it on to my brother if he doesnt already have it.
    Your web page is the nicest I have seen to date. I really like and appreciate the graphics, the colors and the layout of the entire contents. It gets a four star rating in by book and is already bookmarked for reference. Thank you for gathering this information and sharing it with all of us.
    Date: Thu, 26 Sep 96 10:24:20 UT
    Subject: Thanks for this web page! Scott- Your web page has been extremely helpful to me in understanding this disease & helping my daughter, who is away at college in the US diagnose her problems. I am living in Germany, and have been feeling very frustrated and helpless when she reported her symptoms to me, and we sent her to dr. after Dr. for different tests. This has helped us solve her mystery, and after a gluten-free diet for several months, she feels like herself again. Your list of stores enabled me to call & order gluten-free care packages.. She was having severe pasta withdrawal & I was able to come to the rescue! Through your list of organizations I was able to contact Diane Schafer (New Orleans) who has called her & been most helpful in giving her encouragement & recommending a local doctor & nutritionist. Again, Thanks!!! Please add me to your e-mailing list.
    Gratefully, Ann Webb
    Date: Wed, 30 Oct 96 11:45:23 -0800
    From: FDC Librarian Linda Petriuk
    Organization: Food Development Centre, Portage la Prairie, Manitoba
    Subject: Bless you! Im a librarian at the Food Development Centre (were a special operating agency of the Manitoba provincial government in Canada) and a distressed
    library patrons query about gluten-free foods has landed me on your website. I am astounded at how wonderful this page is! Really, the amount of work that has gone into your site is obviously great, and the information contained in it, some of which Ive passed on to my library patron, has helped a great deal. Particularly I had been looking for information about gluten-free foods for (fastidious) children with the intolerance, and it has been wonderful to see how much information there is. The library patron is very grateful that there is someone like yourself providing this sort of help to people in great distress with gluten intolerance,
    Date: Tue, 05 Nov 96 20:10:00 -0800
    From: Connie Christiansen With enormous gratitude for giving me the answers to long-sought questions. I am feeling so much better since following this program for two months. After years of searching, I have no more pain.
    Date: Wed, 20 Nov 1996 02:49:47 -0500 Thank you for putting together your home page. I have just discovered it, and it has opened up my celiac opportunities immensely. I have had celiac disease for 11 years, and have been so pleasantly surprised to find out that there are so many recourses now that were not available in 1985. Your page is one of my favorite places because of its listing of vendors, cookbooks, and recipes. Your information has led me to send for food catalogs,
    cookbooks, and newsletters. All of these things are a godsend to someone who thought Id never eat bread, cookies, pastas, and cakes again. Thank you for impacting my life in such a positive fashion.
    -Christine Zabel

    Date: Sat, 23 Nov 1996 11:40:49 -0800
    From: Fullerton, Stephanie
    Hi I just wanted to tell you that last spring my 11 year old son had to do a paper on a disease. He said he did not want to do something everyone knew about so I suggested Sprue because my mom had it all my life and I always was interested in it. At work I printed out your information and he loved reading it (much more than the medical books we got at the library!). He got an A on his report and the teachers comment was that it was very interesting! My mother passed away six years ago and I am so sorry she never got to see sprue on the internet!!
    Thank you!!
    Stephanie Fullerton
    Seattle, WA

    Scott Adams
    Date: Sat, 17 Jan 1998 22:36:17 -0700
    From: Alan Sheffield
    Subject: Research/Thanks
    Id just like to express my appreciation for your effort and concern in putting up this site. I dont know how many people its helped, but the
    idea alone is wonderful. Im glad to see that there are still people in this world that are concerned with others welfare. Keep up the good work.
    I originally found out about celiac disease through this site. My little sisters friend was suspected of having the disease. Her family had a
    history of it, and her mother had asked me to find some information on it. I hurriedly read about it, and printed some information for her (she later found out that she didnt have the disease, and her reactions were unrelated).
    Sometime later, I returned and read some more. My fanatical biology teacher has assigned us to write an extended essay on a biological function/problem/something. Ive looked around on your site, and several others, and am confident that I will be able to find the detailed
    information I need (the class is taught at, no joke, a college level--a little heavy for a Freshman, but it will save me time later).
    Thanks again, and good luck!
    -Alan Sheffield
    Date: Tue, 03 Feb 1998 17:33:50 -0600
    From: RM Molloy
    Subject: Hello Just a note to compliment you on your excellent site on Celiac Disease; Unless you object, we would like to allow our patients to link to your
    site through our own site under a section on our webpage entitled Patient Support. We are a group of 6 Gastroenterologists in Milwaukee, Wisconsin (Milwaukee GI Specialists, S.C.). I will email you again when our site is up and running. Congratulations on your excellent website!
    R. Michael Molloy, MD
    Date: Fri, 13 Feb 1998 13:43:39 +0600 (PAV)
     
    We are doctors immunologists from Pavlodar Kazakhstan. We are involved in the problem of different diseases due to intestinal and skin disorders. We suspect that some of our patients have celiac disease. The matter is that we have no available serological tests for celiac disease. We would be very grateful to you if you provide us with email addresses of the institutions distributing laboratory kits for celiac disease. We like your web site very much. We think it is interesting and useful not only for celiac disease patients but for medical professionals either.
    Thank you very much.
    Doctors H. Junusov and M. Valivach
    From: Judy Parelman
    Subject: Thanks
    Date: Mon, 23 Feb 1998 22:08:51 -0600
    Thanks for all of your hard and diligent that you do regarding this web site. I have found it to be an enormous help. In fact, I cant imagine how much more difficult it would have been to function with out all of the info I have learned from you.
    Thanks!
    Date: Fri, 17 Apr 1998 00:02:02 +1200
    Subject: You beautiful people Wonderful, Marvelous, I believe that you should all be awarded first prizes. Keep up the good work great. Im not a coeliac but my brother is.
    He was rescued from death by a coincidence. After being tested for coeliacs in 1988, the test came back negative. He went on to suffer very severe symptoms, with no apparent change needed to his diet. His bones started to break, he broke his back and was admitted for psychiatric treatment because everyone thought hed become a obsessively depressed person. Nobody tested for coeliacs again until 1991. At the end of the day, the first test from 1988 proved to have been misread by the laboratory or doctor or someone and the results then, if they had been interpreted correctly, would have saved my brother from severe health disorder, financial ruin and a marriage breakup. After all, who wants to live with a dying depressed bankrupt.!!!!
    After the second test in 1991, it was discovered that my brother had coeliacs and his gluten free diet has brought him back from the dead. Hes alive again and trying to put his life together again. Its not easy. As his brother (and accountant) Ive been able to keep him afloat and out of the clutches of the IRS etc. But when things went bad, I wasnt there (I lived on the other side of the world at the time). In short, weve been able to pick up most of the pieces together since 1992 although I must admit, its still hard going at times.
    I am absolutely shocked that coeliacs is not more widely known. Thats certainly not your fault as you people are doing excellent work by
    keeping the celiac.com together. Keep it up. You have our support. Where do we send a donation !!!!!
    Ill keep browsing through your site and looking for more info. Once again... great stuff. excellent.
    Keep it up. Thanks a million bye now regards,
    -Peter van Bussel

    Subject: Great Job
    Date: Mon, 1 Jun 98 07:31:54 -0000
    From: Connie Pearce
    Scott, youre doing a great job. Your Celiac Web Site is extremely helpful to all of us. I just wish you had that magic cure you could pull out of the hat to help us all. But who knows, maybe when the medical professionals become better listeners and are better educated, there
    might just be a cure. Thanks again,
    Keep a Positive Thought,
    Connie
    Date: Sat, 13 Jun 1998 12:59:21 EDT
    Two years ago I was really sick, was going down the usual diagnostic pathway with a colonoscopy etc., having all the tests come back negative but still feeling very ill. I started with a search for IBS info and arrived at your site via that pathway. As soon as I started reading it, I realized that all
    my symptoms exactly matched those described. With NO help from the doctors, but a lot of help from your site, I correctly diagnosed myself with celiac disease. I couldnt agree with what you said above more. The LISTSERV wouldnt have helped me then because I didnt know I had celiac disease. Keep up the good work Scott, you are doing more good probably than you know. Thanks so much for the help. You may have saved me months, maybe years of misery!
    Best Regards,
    Susan Wagener
    Date: Tue, 9 Jun 1998 17:18:54 EDT

    I agree with you and two years ago when I was put a gluten free diet by my skin doctor for DH, your web site was the first one that my husband found for me and it was so exciting to print up all the interesting information you provided on my condition. I was so excited! I was not interested in learning how to access information on my own until last September when I was diagnosed with Celiac by intestinal biopsy and felt I needed to meet people like me. That is when I learned how to join the Listserve and have since then looked everything up by myself. I still am thankful to you and your website and still enjoy the updates you send to me. I look up every update and many times will print them up for my files.
    Thanks, Barb from NE Ohio
    Date: Tue, 9 Jun 1998 00:04:34 EDT

    I dont have count of the number of times I have felt better knowing that there were sites such as yours which could help me in gathering more
    information....and comfort...during the past year and a half. You are one of my heroes!
    Carole Hagstrom From: Mary A. Halas, Ph.D.

    This is an overdue thank you for your web site. I have used it so many times in the last three years and it is well-written and invaluable.
    Mary Halas
    Date: Mon, 13 Jul 1998 14:16:02 -0600
    From: Shani Byrd
    Subject: Thanks Im a registered dietitian who works at the Air Force Academy. Your site has been extremely helpful in instructing my clients on their
    disorder and in helping them know how to treat it via diet. I think the information you provide is sound, accurate, and extremely useful and
    practical I can only hope that dietitians all over the country find out about your site and use your valuable information. Thanks again!
    Lt Shani Byrd, RD
    USAFA Health and Wellness Center

    Date: Fri, 31 Jul 1998 08:35:05 EDT

    God bless you for the time energy and expertise you put into your web site. It is the best on the Internet and I know you are helping thousands of people all over the world.
    -Jane Trevett Date: Sat, 15 Aug 1998 05:03:51 -0700
    It has been a while since visiting your celiac site... it is still the best on the net, thanks!
    Thank you,
    -Brett

    Date: Wed, 26 Aug 1998 12:23:06 EDT
    Subject: Thank you for a new Life Scott
    In ones life, there are few times when a person comes along who profoundly changes them. I ran across your web site around 5/26/97 and realized that I was a celiac. I was diagnosed as a baby, taken off grains, then put back on. I lifetime of intestinal problems (and no medical advice) has been hell. I have been fighting what i can only call grain addiction, but i am making headway.
    I can never pay you back for the door you have opened for me, and i shall never forget you. Inspired by you, I have changed quite a few lives already and am working on more. My life long goal is to be in politics on the federal level. You can be sure I will be there, fighting the ignorance of this disease, which i no longer believe to be a disease, but I believe it is a fundamental diet change that all humans should consider.
    Thank you O Great One...
    Robert James Hoffman
    From: Cynthia Rudert, M.D., F.A.C.P.
    Subject: Celiac Disease
    Date: Wed, 16 Sep 1998 13:54:40 -0400

    Congratulations on your wonderful Web site for Celiac Disease. It has been an incredible resource for my patients. I am a board certified gastroenterologist specializing in Celiac Disease in Atlanta. Presently I am following over 100 patients with gluten sensitive enteropathy. I am
    also the president of the Gluten Sensitive Support Group of Atlanta and I lecture nationally. If I can help you or anyone with questions regarding
    Celiac Disease, please let me know.
    Fondly,
    Cynthia S. Rudert, M.D., F.A.C.P.
    President Gluten Sensitive Support Group of Atlanta
    President and Founder of the Atlanta Womens Medical Alliance From: Zeca Martins
    Subject: From Zeca Martins- Brazil
    Date: Fri, 2 Oct 1998 01:41:09 -0300

    I hope you remember me. A few days ago, I wrote about my son, Miguel. The information you sent me were absolutely GREAT. The e-mail os ACELBRA belongs to Almir, a guy that lives A FEW BLOCKS AWAY FROM ME. And thats not everything: he told me about the only place here in São Paulo were I could find gluten-free pasta, and his wife started a small bakery of gluten-free breads.

    So, Miguel started to eat his own pasta and bread for the first time after the diagnosis, without pain or diarrhea. That was a great experience to see him eating pasta and thousands of bread slices. He didnt even look around. Well, we all felt something strange in our throats, you know... we almost started crying.

    Now, I and Almir are trying to start something greater, helping ACELBRA to improve its efforts. I mean, we are planning a series of activities involving press releases, advertising (we are both publicists), the creation of a complete internet site (something as you have been doing, but in Portuguese) and so forth.

    Thats all by now. And THANK YOU VERY MUCH again. God bless you and all those people who help each other.
    Zeca Martins

    Date: Wed, 25 Nov 1998 20:47:11 EST
    Subject: The Celiac page
    Just a note to say that your page - the way it is structured, the simplicity of the excellent graphics and, above all, the wealth of useful information
    that it contains has to make this the finest site I have ever encountered. My sincere congratulations.
    I found it when I searched with just two words - gluten and neuropathy. I have been diagnosed with CIDP -Chronic Inflammatory Demyelinating Polyneurpathy - and after months of the Neurologists knocking down my immune system with all the guns they can find they still have not stopped the cells producing whatever antibody it is that is attacking the myelin sheath.
    I have the idea that it is related to what I have ingested most of my life but that doesnt appear to wash with the experts. Hence my interest in your
    site. Again - a fantastic job - it was certainly a help to me and I am going to go ahead with the serological tests. Doesnt seem like much to loose.
    Best regards,
    Ian Bruce
    Date: Sat, 05 Dec 1998 05:56:06 -0800
    From: Richard E. Jeske
    Subject: Thank You Thank you for the excellent information on your site. I used the lists of safe and forbidden lists to get gluten free and my symptoms of
    fatigue and exercise intolerance were gone in 24 hours. Over the last four years I have slowly lost ability to function to the point where I could no longer work and am on disability. During that time several doctors could not diagnose the problem and had a diagnosis of chronic fatigue syndrome. When a friend mentioned Celiac may be the problem, the symptoms on one of your pages matched mine.
    I have had the best 4 days in recent years and plan to be back to work in 2 weeks. Staying gluten free is a small price to pay to having my
    life back. Thanks Again,
    Dick Jeske
    Date: Sat, 12 Dec 1998 20:56:17 EST
    Subject: THANKS

    Scott - many people do not realize you are a real person. Your service to celiacs is fantastic and during this holiday season, we all want thank you for the marvelous job you are doing. Lets hope more doctors read your page and test more people. Many people are devoting all their spare time to GETTING MORE CELIACS DIAGNOSED and we are thankful for the help you are giving in this effort.
    Thanks for a marvelous service. Keep with it!!
    Jane Trevett

    Scott Adams
    From: Carol C.
    Subject: Case Histories
    Date: Mon, 3 Jan 2000 14:12:55 -0500

    I am sending you a copy of a letter I am sending to my brothers doctor. My brothers story is sad as you will read from the letter. In fact, unknown to us, my entire family has suffered from celiac disease over many generations. Information from your web site has been copied and handed out, faxed, or emailed to many people, including doctors. . It has been our main source of insight and information.

    It is always a good feeling to know that your life has touched many and helped many, and your life has indeed done that. Thank you from my family. As a family we have only discovered celiac disease in our midst in the last few months. Here is the letter. Bruce probably would have gone on to become progressively more ill were it not for the information on related disorders that you provide. We await his biopsy results with hope for his renewed health.
    Date: Mon, 3 Jan 2000 13:56:57 -0600
    Subject: WebsiteI would just like to thank you and anyone else that is responsible for providing such an excellent website. I am a new sprue and also a RN.
    I have been quite frustrated in the huge amount of conflicting and anecdotal information available to me. Your site seems to be balanced
    and has more primary source material.
    Thanks,
    Sharon Ward

    Date: Sat, 11 Mar 2000 23:20:32 -0500
    Subject: Please Add MeThe hour is late, however I have to tell you just how much your site helped me tonight. My 8 year old son was just diagnosed with Celiac Disease - never having heard of it, you can imagine what all was running through my head as they explained to me the whys and wherefores!!! We return to the docs on Tuesday, your site helped me link to some very valuable information, giving me of course, a very long list of questions.... and the knowledge, that I should be tested, as I was told I had any number of things, the latter being IBS, I am also have thyroid disease, Hypothyroid, which too has been difficult to manage. I am just overwhelmed with the information so carefully laid out here. Im sure there have been those that have said Thank You - let me be counted among them - truly, you gave me a place to start from, where I had nothing... *smiles* thank you!!!! thank you!!!! thank you!!!!
    Please add me to your mailing list!
    Christine Schettig
    Date: Mon, 15 May 2000 11:03:03 -0400
    Dear Sir, Ive just received my first Celiac Support Page and want to tell you how very much it means to receive such current information.
    Ill not continue to bother you with e-mails but must thank you very sincerely for what you are doing. Sincerely, Joyce Dozois
    Date: Mon, 9 Oct 2000 15:07:27 EDT
    Subject: celiac websites

    Bless you or whoever put out the safe & forbidden food list, recipes, info, products etc...thank you, thank you, THANK YOU!!!! I have been omitting foods for 4 years, some which I dont have to omit. A whole new world just opened up for me between buying a computer and finding you guys. All too often people complain, so heres a compliment to brighten your day!! thanks again!
    From: Scott Wilterdink
    Subject: thanks!
    Date: Sun, 5 Nov 2000 04:13:06 -0600

    My name is also scott and Im writing to tell you how wonderful your web site is and will be for my friend Linda. She was recently diagnosed
    with celiac sprue disease, and like you, it took many doctors and many years of pain before someone came about this diagnosis. When i talked with her tonight, she was feeling really depressed because she was worrying what shed be able to eat, how she could find gluten-free products, and how she could stop the pain from coming back. Then, we found your wonderful web page! Not only do you explain more about the disease and give first hand experience to dealing with the disease, but u have gone out of your way to list countless numbers of web sites that will be beneficial to Linda, and other celiac sufferers.I just thought Id let you know that your hard work and effort has given Linda a much needed boost and change in attitude. They always say if i can just reach one person and help them, all the work is worth it. well my friend, your work was well worth it because you have helped put a smile back on Lindas face and hopefully it stays there for many years to come!

    Thanks again!
    Scott Wilterdink
    Date: Mon, 6 Nov 2000 21:31:24 -0600

    I am the Linda that Scott Wilterdink wrote to you about a couple of days of ago. I was in really getting in a deep depression and wondering how I was going to continue my own existence! I mean in order to eat I had to find something I could eat. However, every thing I was finding was just telling what the disease was. NOT what I do about being able to find the proper foods to heal my pain and suffering. You have been a God send to me as well as my friend Scott. I cant thank you enough. You have gone to an enormous amount of work to build your web site and I for one, cant tell you what it has meant to me. I will go through it like a fine tooth comb.. I dont want to miss a word or meaning. I want to also go just as thoroughly through the other web sites. Again I thank you so much for some hope that I was being to think was hopeless. I was worried about 2 sons and one son has 3 children of his own. I couldnt imagine passing on a gene that could make my grandbabies or my own babies suffer as I have without having a way to help them. And thanks to you... I have that answer now. I could go on forever on my feelings of your help and I wouldnt come close to how much it means to me. You have done a great job and great justice to anyone with celiac. I will surely send anyone in our position straight to you. I wish there was something I could do to repay you the life you have given back to me. I had given up. I was depressed and now I see a light at the end of the tunnel and with a husband that loves the challenge to help me and so VERY supportive.. I am one of the luckiest women in the world. and you have been a big part of me feeling so good about me again for the first time in many years!! I know that Scott W. has thanked you but I wanted to do that personally myself. What you are doing is so wonderful. So God bless you....you have to be one of his guardian angels.. I think maybe you have this disease because He knew how useful you would be to all the rest of us that just sit around feeling sorry for ourselves instead of doing what you have done. But no more of that. I intend to learn everything about this that is I possibly can and look at life as a positive thing rather than one that is just pain and suffering every morning. Thanks to YOU. That isnt true anymore.. I wake up feeling little pain to none on some days. And that my, guardian angel... is due to your efforts and hard work! I thank God every minute for friends like you and Scott W. Without people like you in the world...well it just wouldnt be the wonderful place that people like you two make it!!!! Thank you so much again..
    From a fellow celiac from depression to loving life without pain again!!!
    Linda Koenig
    Date: 5 Dec 2000 19:06:58 -0800
    Hello, My name is Anna and I take care of an geriatric patient and have had my first encounter with a gluten intolerant person. I have visited this site many times and have received countless amount of help. w/o this site, Im sure this patient would be dead or close to it. At the time I started research on gluten intolerance and what it was exactly...she had already lost 35 pounds and was steadily losing. I emailed this site and received via snail mail various articles, cook books, pamphlets. Need I say...they have become our bibles and w/o them, we would be totally lost. I have emailed this site many times and my questions have always been answered quickly. I was truly surprised of the amount of ppl who arent even aware of this disease/condition....even her own doctor and our dietitian was not even aware of things she could or couldnt have. But, needless to say, with the help of this site...I have enlightened them!! I would really appreciate being put on the email list of updates and various a
    Sincerely,
    Anna Gibson

    Scott Adams
    Date: Tue, 2 Jan 2001 23:30:56 -0700

    Your sight is the most informative and easy to navigate that I have encountered. In less than one hour I have found links, advice and basic
    helps to questions that I have been unable to answer. My 10 year old son has hypogammaglobulin anemia, he was diagnosed with celiac sprue 3 years earlier. Since that time, we have felt he did not have CS...even though our son is doing well, he is not growing and often does not feel well. I will pursue CS again to make sure it was truly a mistake. Our 6 year old son will be going in for tests on January 5, 2001. I had not considered food to be the source of his asthma, respiratory or skin problems, but your sight has made me rethink what I am going to discuss with the Doctor. I am also in the process of testing. I had no idea Lupus, Sclerederma etc. were common. I have both. I have been trying to do a gluten free diet on my own and I actually feel better than I have for a long time.
    I feel our families plate is full without adding to it, but your sight is the ray of sunshine I need to get us through and realize it isnt so bad. Thank you so very much.
    Connie Worthen
    Subject: Thank you
    Date: Tue, 16 Jan 2001 14:41:52 -0600

    Just wanted to say thank you for your work and information re. gluten. It is great. Thank you.

    R.J.Meyer, MD

    Date: Fri, 2 Mar 2001 10:20:24 -0500
    First let me say that you are a life saver!!! I mean that literally -- YOU SAVE LIVES! The knowledge and information that Celiac.com has provided is amazing and very sincerely appreciated. Through the use of Celiac.com, I was able to determine that my husbands undiagnosable skin condition was DH and that he has celiac disease. I am sure youve heard the stories before, but in my husbands situation, the doctors we visited (Primary care physician, Dermatologist, G/I specialist) had no clue. But something in MY gut (no pun intended) knew that it was DH and celiac disease. After having to sell the GI specialist on celiac disease as a possibility, he agreed that my husband should have his blood antibodies checked to rule out celiac disease (and to shut me up). Sure enough, the test came back clearly positive. And we (me too) are now on our new adventure of a gluten-free diet for life.
    Thank you from the bottom of my heart!
    Michelle A. Straub
    Date: Tue, 1 May 2001 08:28:49 -0700 (PDT)
    From: carol poe
    Subject: just a word of thanks
    Hello my name is Carol Poe, my husband has celiac, and I would just like to tell how much I really appreciate your site. We only just recently found out about celiac and your website has been a great help to us. I read your bio and it sounded just like my husband. We had wondered if we would ever find out what was wrong with him, but thank God we did. He felt completely alone and now he sees he is not. This has been going on for so long his own family (on mothers side) has called him lazy and treated him very cruelly. Now we finally know whats going on and he is a completely changed man. His dads side of the family is truly grateful also for we feel there are several people who have it on his dads side, even a brother who had diabetes and complained all the time about his stomach until he died just over two years ago. If he had celiac then I can only imagine what could have eventually happened to my husband, I owe you more than I could ever afford.
    Date: Thu, 3 May 2001 00:27:38 EDT

    Scott, I appreciated your level-headed response. It is extremely disconcerting to read some of these allegations, particularly since I have a
    21 year old celiac daughter who is just finishing a third year abroad program in England and who, after much thought, made the decision to follow the guidelines put forth in The (English)Coeliac Societys booklet of safe foods, which of course includes Codex wheat starch. She is completely asymptomatic, on the outside anyway, and thus does not know if/when she has ingested gluten, but is extremely diligent and was advised before going by someone whose daughter is extremely symptomatic that the daughter had no problem whatsoever when doing HER year abroad. Our daughter (like the other persons daughter) has found living and eating there much easier than here in the U.S. Ours is also a Type 1 Diabetic. Anyway, I have worried enough about her being there; to have the additional worry about the wheat starch has been unsettling. Thanks. Bev, outside Chicago.

    Date: Fri, 04 May 2001 21:27:53 -0700
    From: Fred Tanner
    Subject: re your website. celiac disease.
    I am the 77yr old father of an adult daughter who has just been diagnosed with Celiac disease... my curiosity about her condition led me
    immediately to your web site.... I just wish to compliment you on this effort... had no idea that so much information could be made available
    by a single individual, and you are doing a very great thing for those of us to whom this condition is not only unknown but totally
    baffling. Thanks. Fred G. Tanner.
    Date: Tue, 8 May 2001 20:22:36 EDT
    Id like to send my thanks for your web site and the great service it provides. Keep up the good work there are a lot of us out here who depend on
    all that you do.
    Mike Dudley
    Subject: feed back
    Date: Mon, 14 May 2001 21:55:19 +0100

    Thank you for a very informative site, Ive found more answers in a few minutes than I have in one year from my sons consultant, thank you.
    Justeen Higgins.

    From: LORRAINE NEDELL
    Subject: reiders syndrome
    Date: Thu, 17 May 2001 02:28:25 -0400

    Your website has saved my friends life!! The doctors didnt have a clue why her weight had dropped to 67 lbs. I found your website, a blood test was done and it looks like she is on her way to recovery. After only one week on the diet her pain level has dropped significantly. Thank you.
    Date: Fri, 18 May 2001 12:45:01 +0000
    From: Sarah Rudisill
    Subject: THANK YOU!
    Thank you so much for this site. You have saved my life! Literally! The doctors only tell you so much. There are other sites out there that are giving false information that if I relied on those sites I would be constantly sick. I visit this site every couple of days & have ordered from the shopping
    mall! I thank you for your scientific postings. I thank you for your safe & forbidden lists. I thank you for letting me know that there are others
    out there. I thank you for enabling me to be able to handle this. Ever since I found out I may have celiac sprue - all the test results are not back yet - I have researched & used this site as a guide. I feel like a while new person. So THANK YOU!
    I wish there was something I could do for you.
    All my gratitude,
    Sarah
    From: Uerz, Lori
    Date: Tue, 29 May 2001 09:01:51 -0400
    Dear Scott: Just wanted to thank you from the bottom of my heart for producing this web page every month. When my son was first diagnosed I
    spent weeks calling and writing manufacturers about the gluten content in their products. This website is like a life-line for me and I just can not
    thank you enough for your time and effort on behalf of people with celiacs disease. My son will be turning 6 in a couple of weeks and has been very successful on the gluten-free diet for a little over a year now and while he has other special needs (Down Syndrome and irritable bowel syndrome), at least I can know that anything I need to know about celiacs I can find out here at your website.
    May God bless you & THANK YOU!!!!!!!
    Sincerely,
    Lori Tatsapaugh Uerz
    Subject: web page
    Date: Wed, 30 May 2001 09:10:35 +1000

    I just want to thank you so much for your web page. I have just had to go gluten and dairy free after a long illness and was struggling to find information and someone to answer my most basic questions. Your web site has answered all my questions along with valuable information that I would not have known.
    Thanks again
    Kate Dani
    From: KellyMcdon@aol.com
    Date: Wed, 1 Aug 2001 21:04:31 EDT
    Subject: celiac in children

    My son is 12 years old. He has had a bowel problem all of his life. The doctors just took a test and found out what he has. He is an ADD child also. I am so dissatisfied with how we were treated by so many pediatricians. They told me that my child was lazy and that he should be potty trained by now. After so many missed diagnoses it is good to know that my child is indeed not lazy and has celiac disease. He has been through the ringer, being
    treated for diarrhea, constipation. He has had several enemas and rectal exams that I have to lie when it is time to go to the doctor.
    Thank you for this informative website. I look forward to receiving your newsletter for the first time.

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
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    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
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    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
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    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
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    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au