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By cyclinglady · Posted
When I was diagnosed five years ago, my GI told me that everything looked good on my scope. My biopsies revealed a Marsh Stage IIIB. Turns out his scope was not able to visually see the villi. My new GI has the latest and greatest scope. We could actually see the healthy villi during a repeat endoscopy. My biopsies confirmed no signs of celiac disease. Great news indeed! I think you have to wait for the biopsies. -
GI doc said he didn't see much damage and that he'd contact me monday with the biopsy results. He then told me that according to my "titers" I do have celiac disease. How? I thought the biopsy was the end all be all.... -
I associated my needles feeling and some other issues with malabsorbtion of B-vitamins and Magnesium. It always spiked after a exposure and upping my dosing lessened the severity.
It could have also been my gluten ataxia both correspond along the same time lines, but some of the ataxia symptoms linger for a month or so.
If it is direct correlation to your antibodies and a form of ataxia it might take a little over 6 weeks (I have D issues that start to resolve after week 6) to clear as your antibodies go back down to normal.
My suggestion and I am not a doctor is try try supplementing and double checking your diet. Perhaps talk with your doctor for a medical opinion. If it does not improve any over 6 weeks consider finding a specialist or getting further testing done checking for other complications, nerve damage, brain damage, thyroid, etc.
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