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  • Miranda Jade
    Miranda Jade
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    Being Young and Celiac

    Caption: Photo: CC--Palliativo

    Celiac.com 06/06/2012 - Celiac disease is an autoimmune disease caused by a reaction to the component of wheat, barley, and rye called gluten and can affect the entire body. Dermatitis herpetiformis (DH) is a blistering and extremely itchy skin rash. It’s usually symmetrical in shape and is most commonly located on the elbows, knees, buttocks, and upper back. It’s common for people with DH to have rashes appear in the same spot, and they can either be consistent or come and go.

    Photo: CC -- PalliativoIt is hard enough being a young adult, having celiac disease is the icing on the cake, and having Dermatitis Herpetiformis is the cherry on top. So how is it that I have been able to so easily make the transition from eating gluten on a daily basis to being 100% gluten-free for over six years now? Simple: by getting educated.

    When I was first diagnosed it was very hard for me. I didn’t know what had gluten in it, what body products to use, etc. My mother Tina Turbin, founder of GlutenFreeHelp.info, gave me some great advice. She told me to do my own research. So I set off to get a real understanding of celiac disease and DH. I was going to have to live with them both my whole life so I felt it couldn’t hurt knowing more about them.

    This was the best advice anyone could have ever given me. With the broad knowledge of celiac disease and DH available these days, I was able to read so much information and get a real grasp of the subjects. I finally was able to easily know which products would have gluten in them and what the gluten actually did internally to my body.

    I really made being gluten-free a priority in my life. I made sure this priority was known among my family and friends as well. They all were more than willing to help. Now, whether going out for brunch with friends or traveling, the people I surround myself with are always picking places where I will have an easy time following my gluten-free diet. Just yesterday, a friend of mine let me know she picked a place for us to eat that would prepare any of their pasta dishes with gluten-free pasta.

    So, my advice to you is this: First, do your own research. There are so many people out there with great advice and so much information to share. The more we join up with others, the easier it will be. Secondly, inform the people you are surrounded with of your dietary needs. Too many people think being gluten-free is just a fad when in reality celiac disease and DH are extremely important and should not be made fun of.

    Last, enjoy life. Living gluten-free can actually be quite fun. The food is delicious and the health benefits are outstanding. Being gluten-free doesn’t have to cause you stress. In fact, by following these guidelines, gluten-free living can become quite rewarding.


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    I worry that your anecdote of the pasta restaurant making you gluten-free pasta spreads a bit of misinformation, of which I've found the hardest to get people to understand. Gluten-free pasta is great, but what about the counter tops, pots and pans, strainers, handling, etc? This seems to be the hardest concept for my friends and family to understand. I think we can help our loved ones, and ultimately ourselves, by being consistent and educating them on the topic of cross-contamination.

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    I worry that your anecdote of the pasta restaurant making you gluten-free pasta spreads a bit of misinformation, of which I've found the hardest to get people to understand. Gluten-free pasta is great, but what about the counter tops, pots and pans, strainers, handling, etc? This seems to be the hardest concept for my friends and family to understand. I think we can help our loved ones, and ultimately ourselves, by being consistent and educating them on the topic of cross-contamination.

    I agree with TysonHolly on the comment about cross-contamination. It is not easy to keep my own kitchen gluten-free with friends and family bringing food to "share" and to eat for themselves. From donuts to buns to cookies and cake, secret ingredients and special recipes galore, there is no end to what people think is safe to bring into my home. I have only managed to eat out just a few times without having a gluten issue. I do not trust ANY kitchen but my own! Once we stayed at a resort that insured me before hand that the chef was well trained in gluten-free cooking. Yes, he was, but his staff failed me and I became very ill, ending our vacation on a bad note with a very uncomfortable trip home. I have celiac disease with severe dermatitis herpetiformis.

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    I too worry of the cross-contamination in this restaurant. I do not know where she lives, but finding a place to eat out at is, I feel, very difficult. I do not live in or near big cities and this process is daunting. I also have to disagree about the food, other than your fresh fruits, vegetables and meat. A lot of what I have bought that states it is gluten-free tastes horrible, and when the dog won't eat it, you also have to wonder what is in it. I am only two years into knowing I have this disease and I am still learning.

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    I worry that your anecdote of the pasta restaurant making you gluten-free pasta spreads a bit of misinformation, of which I've found the hardest to get people to understand. Gluten-free pasta is great, but what about the counter tops, pots and pans, strainers, handling, etc? This seems to be the hardest concept for my friends and family to understand. I think we can help our loved ones, and ultimately ourselves, by being consistent and educating them on the topic of cross-contamination.

    Thank you for the above comment, for I wholeheartedly agree with you and find this to be the most frustrating thing when reading gluten-free websites. Cross-contamination is so important to living gluten-free with celiac disease, and makes me question any author who does not acknowledge that fact.

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    Guest Miranda Jade Turbin

    Posted

    I worry that your anecdote of the pasta restaurant making you gluten-free pasta spreads a bit of misinformation, of which I've found the hardest to get people to understand. Gluten-free pasta is great, but what about the counter tops, pots and pans, strainers, handling, etc? This seems to be the hardest concept for my friends and family to understand. I think we can help our loved ones, and ultimately ourselves, by being consistent and educating them on the topic of cross-contamination.

    You are totally right. In fact, I got "gluten poisoning" two days ago from cross contamination. Just a tiny bit of gluten can really make you sick. I usually ask restaurants to clean their grill, etc. when I order. If they put up a stink about it, I don't feel safe about eating there and I will leave. For the most part, I find that restaurants in my area are very accommodating.

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    I agree with TysonHolly on the comment about cross-contamination. It is not easy to keep my own kitchen gluten-free with friends and family bringing food to "share" and to eat for themselves. From donuts to buns to cookies and cake, secret ingredients and special recipes galore, there is no end to what people think is safe to bring into my home. I have only managed to eat out just a few times without having a gluten issue. I do not trust ANY kitchen but my own! Once we stayed at a resort that insured me before hand that the chef was well trained in gluten-free cooking. Yes, he was, but his staff failed me and I became very ill, ending our vacation on a bad note with a very uncomfortable trip home. I have celiac disease with severe dermatitis herpetiformis.

    What is severe dermatitis herpetiformis? What reactions are there when you have dermatitis herpetiformis?

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  • About Me

    Miranda Jade became extremely involved in celiac disease, gluten sensitivity and gluten issues a number of years ago after many years of misdiagnosing. Since this time, she has engaged in diligent research and writing about these topics, developing gluten-free recipes, and reviewing companies for the celiac consumer’s safety on her award-winning website: GlutenFreeHelp.info. Being a first time mother, Miranda is diligently working hard to help all families increase their awareness, the signs, diet changes and testing options regarding gluten issues. She believes raising a healthy happy gluten-free family doesn’t have to be difficult.

  • Related Articles

    Dyani Barber
    Paul Seelig Found Guilty of Selling Fake Gluten-Free Bread Gets 11 Years
    Celiac.com 04/12/2011 - Paul Seelig was found guilty today of 23 counts of obtaining property by false pretense after a two-week trial in Durham, NC. The jury found that he illegally represented baked goods as gluten-free, but they actually contained gluten. Mr. Seelig received an 11 year prison sentence for his crimes, which included the sickening of more than two dozen customers, one of whom had a premature delivery that was possibly caused by her involuntary gluten consumption.
    Seelig's company, Great Specialty Products, purchased regular gluten-containing items from companies in New Jersey such as Costco, and then repackaged them in his home kitchen and sold them as "gluten-free" at the NC State Fair, various street fairs and via home delivery. Seelig claimed that his baked items were homemade in his company's 150,000-square-foot commercial kitchen, and that his company raised its own grains on its 400-acre farm. High gluten levels were detected by both customers and investigators in Seelig's supposedly gluten-free bread, even though he claimed that he tested his bread weekly for gluten and found none. Mr. Seelig could not produce any of his test results at trial.
    Source:

    http://www.newsobserver.com/2011/04/12/1123724/bread-seller-lied-jurors-find.html

    Jefferson Adams
    Celiac.com 03/29/2013 - Parents of children with food allergies can take heart in recent developments at the federal level that are mandating changes in the ways colleges and universities address food-allergy issues in their students.
    A recent federal civil rights settlement between the Department of Justice and Lesley University that arose from Lesley's failure to provide gluten-free food shows that traditional one-style-fits-all dining options are no longer an ­option for our institutions of higher learning.
    The settlement requires Lesley to “continually provide” students with gluten-free dining options and pay $50,000 in damages to ensure the university is in compliance with a federal law that protects people with disabilities.
    As a result, more and more universities are scrambling to make safe food alternatives available to students with severe food allergies, including those with celiac disease, as required by the under the Americans with Disabilities Act.
    This adjustment includes gluten-free food offerings, and colleges and universities in Massachusetts are among the first to attempt the adjustment. Their approaches differ slightly, but the goal is to provide a safe, reliable dining experience to students with food allergies.
    The University of Massachusetts Boston and Boston University have created gluten-free zones in cafeterias and food courts, while others are taking a more individual approach. Tufts and Harvard University, for example, are having nutritionists and dining hall staff work with students to figure out what prepared foods can and cannot be eaten and ordering specialty items as necessary.
    Tufts' plan also includes establishing a dedicated freezer-refrigerator unit in its two dining halls that is stocked with gluten-free foods. The units are kept locked, and only students with special dietary needs are given keys
    UMass Amherst publishes dining hall menus online, and identifies gluten-free offerings with a special icon. The school also has an extensive handout on what foods to avoid and whom to contact if students need gluten-free food.
    About a year ago, UMass Boston created a gluten-free zone in its food court, with a dedicated refrigerator, microwave, and toaster to minimize the risk of contamination.
    Look for the trend to continue as more and more colleges deal with the new legal realities of feeding students who have food allergies.
    Sources:
    http://www.bostonglobe.com/metro/2013/01/16/college-dining-halls-latest-challenge-gluten-free/ZGWMFABp0ruPI87L8BV8wM/story.html http://www.dailynebraskan.com/news/article_32cd62de-6908-11e2-951f-0019bb30f31a.html

    Jefferson Adams
    Celiac.com 11/01/2013 - Dairy and gluten contain "opioid peptides," that belong to the same family as opium. Dairy products contain small amounts of casomorphin, while gluten contains small amounts of gluten exorphin, and gliadorphin/gluteomorphin.
    When peptides from either gluten or casein react with opiate receptors in the brain, they produce effects similar to opiate drugs, such as heroin and morphine, albeit on a much more subtle level.
    These receptors influence the part of the brain involved with speech and auditory integration, which means this part of the brain can cause addiction to foods, spacing out or having foggy brain, migraines/headaches, sleepiness, chronic fatigue, aggressive behavior, moodiness, anxiety, depression, and high tolerance to pain.
    Little research exists on the potentially addictive qualities of gluten and dairy. However, there is plenty of research to back up how a gluten-free and casein-free diet can help improve those who suffer from ADHD, depression, anxiety, OCD, schizophrenia and Autism Spectrum Disorders.
    Many people first beginning a gluten-free and casein-free diet experience withdrawal symptoms, many experience powerful cravings. People can get cranky and irritable, and even pick fights and throw tantrums.
    How do you know if you might be sensitive to gluten or casein?
    Signs that you might be having a reaction to gluten or casein include abnormal bowel movements, either constipated or poorly formed; headaches; aggressive behavior, such as biting, hitting, pushing; inability to focus at school; erratic sleep or rising early -- before 6 a.m.
    Also, if your diet is heavily wheat and dairy based, as many are, it can take up to three weeks to fully be rid of gluten and casein with no reactions.
    If you think you or your child might have an allergy to gluten or casein, you should consider visiting a doctor for an IgG food allergy blood panel to see if that really is the problem. Blood tests are not 100 percent conclusive, but still a good measure.
    If you're still not sure, then ditch all the gluten and dairy in the house, and try a 30-day elimination diet should help return to normal.
    Source:
    Chicagoparent.com

    Jefferson Adams
    Celiac.com 05/25/2015 - Many people who are concerned that they may have celiac disease are not sure where to begin. Many people simply stop eating gluten and call it a day, choosing to avoid what can be a long, drawn-out process of getting an official diagnosis.
    If you suffer from any of the 10 Most Common Complaints of Celiac Patients, you might want to consider the possibility of celiac disease.
    Most doctors, however eager they may be to render proper treatment, are bound by clinical treatment protocols and guidelines that limit the circumstances under which they can order blood screens for celiac disease.
    So, when should doctors test people for celiac disease? According to the American College of Gastroenterology's (ACG) clinical guideline on diagnosis and treatment of celiac disease, people should be tested for celiac disease if they have:
    Signs and symptoms of malabsorption, including chronic diarrhea with weight loss, steatorrhea, abdominal pain after eating, and bloating.
    Or Laboratory evidence of malabsorption, particularly in people who have a first-degree family member with a confirmed celiac disease diagnosis. This includes associated nutritional deficiencies.
    Or A personal history of an autoimmune disease, or an IgA deficiency.
    Or Biopsy-proven DH, iron-deficiency anemia refractory to oral supplementation, or hypertransaminasemia with no other origins. It's interesting to me that the above guidelines don't match up very well with the top ten physical complaints of people who have celiac disease. Those complaints are: Osteopenia/Osteoporosis; Anemia; Cryptogenic hypertransaminasemia; Diarrhea; Bloating; Aphthous stomatitis; Alternating bowel habit; Constipation; Gastroesophageal reflux disease and Recurrent miscarriages.
    What do you think? Do doctors need to have more freedom to conduct blood screens when considering the possibility of celiac disease?
    Source:
    US Pharmacist. 2014;39(12):44-48. 

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