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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    COLORADO CHEF DAMIAN CARDONE BRAGS ABOUT ENDANGERING THE HEALTH OF UNSUSPECTING GLUTEN-FREE DINERS


    Wendy Cohan

    Celiac.com 04/01/2011 - On March 10th, Chef Damian Cardone boasted on Facebook that he delights in feeding diners who specifically requested gluten-free meals a variety of gluten-filled dishes instead. He states on his Facebook page that he does not believe in gluten intolerance and that it’s “all in their disturbed little heads.” Clearly, chef Cardone did not attend a reputable institution of culinary arts, where classes in food allergies are now standard, and guest lecturers who are specialists in celiac disease and gluten intolerance are frequently invited to speak to students. Hopefully in the future, dining will be safer, gluten-free guests will be accommodated with creativity and courtesy, and uneducated, malicious food workers like Mr. Cardone will be unable to find employment in the food industry.


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    I am also very surprised by Mr. Cardone’s naiveté, in assuming none of the diners who ate at his establishment would take legal action, and that there would be no repercussion. We are a litigious society, and I certainly hope that once word gets out in the gluten-free community, and make no mistake—it will—that legal action will be taken. I must also assume that Mr. Cardone is not aware of the current correctional institutional residence of a certain bread baker in North Carolina, who also knowingly sold gluten-containing items marketed as “gluten-free” to unsuspecting consumers. When these consumers became ill, they reported this to health authorities, who investigated. Their investigation quickly led to charges, and the conviction of the criminal involved. Most criminals are not very intelligent, and that’s why they are eventually caught, so I hope that Mr. Cardone keeps this in mind. If for no other reason than to save his own skin, this Colorado “Chef” should immediately give up any participation in the food preparation industry. His behavior is not intelligent, and he is not worthy of diners’ trust. This brings up another interesting line of thought regarding food service.

    Does Mr. Cardone break any other rules? Does he wash his hands after using the bathroom, blowing his nose, or touching raw meat? Does he believe in food-borne illnesses such as Salmonella, E. coli outbreaks, or Clostridium? Does he feed soft cheeses to pregnant women, who may suffer miscarriage due to Listeriosis?

    People can, and do, die from complications related to celiac disease, which now affects an estimated 1 in 100 people in the U.S. Non-celiac gluten intolerance may affect up to 12% of the population. That means that on a night when he plated 100 dinners, not uncommon for a mid-size restaurant, that 12 of those dinners had the potential to cause a negative reaction in the consumer. Mr. Cardone is apparently unaware that most reactions to gluten are not, in fact, gastrointestinal. Neurological reactions to gluten far outnumber gastrointestinal reactions. Neurological reactions can include: contributing to abnormal behaviors in children with Autism Spectrum Disorder, foggy or disturbed thinking, ataxia (disturbances in gait and coordination), tremors, exacerbating and triggering MS symptoms, muscle weakness, fatigue, depression, bipolar disorder, and even schizophrenia. I personally know and have helped to treat gluten-intolerant patients with all of these disorders. So, Mr. Cardone was partially right. For many patients, it is “all in their heads”, but that doesn’t mean that the symptoms aren’t real, and that they are not caused by ingesting gluten. In fact, Mr. Cardone’s disturbed behavior may be caused by consuming a diet filled with gluten. Perhaps he deserves our compassion, and he needs a medical checkup—Pronto!

    I am a foodie—a former prep, pantry, line-cook, and pastry chef. I have spent years working at many of the finer dining establishments in Boulder and Steamboat Springs, Colorado. Does Mr. Cardone think that I would willingly have given up making and eating my own gluten-filled homemade croissants, danish, challah, bagels, black forest cake, salmon-en-croute, beef wellington, spanakopita, and baklava if I didn’t have to? Celiac disease nearly killed me, and it caused me over a decade of severe pain, none of which was located in my gastro-intestinal tract. In my restaurant days, I had what I thought was “a cast-iron stomach”, never once experiencing a bout of diarrhea, bloating, indigestion, heartburn, or gas related to my dietary intake. But, eventually my health deteriorated, and eventually I was diagnosed with celiac disease, and all of my extra-gastrointestinal symptoms have subsided on a 100% gluten-free diet. It scares me to think that anyone would deliberately sabotage my health by substituting foods containing gluten for my specially requested gluten-free meal. I certainly hope there aren’t any copycats out there, who are stupid enough to engage in such risky and criminal behavior. Intentionally inflicting harm on anyone is a crime.

    When dining out, I call ahead, I speak politely to my waitperson and often ask them to communicate with the chef, I eat what I’m served without complaint, I give verbal thanks, and I tip extraordinarily well when my request for a safe, gluten-free meal is accommodated. But Mr. Cardone does not want guests like me in his restaurant. That is his loss, but it is not and never will be his right, to purposefully inflict pain and suffering on other human beings, people who are paying him money to serve them safe food. He is guilty of so many crimes it’s difficult to fathom, and I certainly hope that his days of freedom to continue poisoning diners will end soon.

    Luckily, the gluten-free community has many other options, and gluten-free diners will learn to avoid any establishment in which Mr. Cardone has any affiliation. Even though Mr. Cardone does not deserve any compassion, I would never wish for him, or anyone, to be diagnosed with celiac disease. It’s just too painful…

    Author's Note:
    Thank you to Chad Hines for spreading the word about this occurrence. Mr. Cardone live in Glenwood Springs, Colorado, where he works as a private chef, and also at the Italian restaurant "Florindo's" in Glenwood Springs, Colorado.


    Image Caption: Chef Damian Cardone
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    I've been following this story closely, and it turns out as of 3/15 he's no longer working at Florindo's and no longer lives in CO. He's rumored to have moved to NJ but there's nothing concrete yet that I've seen.

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    Guest Colette ledoux

    Posted

    I am shocked how little attention this has received from the mainstream media. Many outraged celiacs have fired off emails to media outlets, and I personally sent an email to Gawker, without response. It behooves me to see the drivel they call "newsworthy", and yet a whole group of people are completely ignored, as if this is after all, no big deal. How sad, how sad....

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    This chef has been fired from the above listed restaurant! This article serves as a ever present fact that eating anywhere but your own kitchen when dealing with any food issues in your diet is a potential nightmare!

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    Guest John McDevitt

    Posted

    Having a daughter and grandchildren with some gluten intolerance, this really raised my ire.

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    All chefs are arrogant. Some are dangerously narcissistic and without the ability to empathize. I was told by people in the industry many times to never ever order anything special because that is begging for trouble--you will be punished for questioning the chef's control. He WILL put anything on your plate he pleases. That's what gets him off. That's his pathetic little world of control.

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    Guest Dave Baird

    Posted

    All in their head? I have DH (dermatitis herpetiformis) and Gluten attacks my skin (actually my imune system attacks the cells that received the gluten). I get very itchy skin and then the blisters come. That's not in my head although it can end up on my head. I also have celiac so I have the double whammy!

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    Obviously Mr. Cardone can think for the individuals who order in his restaurant. NOT. This reminds me of a former colleague, who thought it was all in my head. Guess what? He's been diagnosed as gluten sensitive, and has to eat gluten-free.

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    Guest Heather

    Posted

    In doing some research on this article, it should be said that this man did not work as a chef at Florindo's, he worked as a waiter. He apparently was a disgruntled ex-employee out to take revenge on the owners. The owner is the one and only chef. Too bad for the restaurant as it is privately owned and has taken a big hit by this story. I wish this had been pointed out in the article.

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    Guest admin

    Posted

    In doing some research on this article, it should be said that this man did not work as a chef at Florindo's, he worked as a waiter. He apparently was a disgruntled ex-employee out to take revenge on the owners. The owner is the one and only chef. Too bad for the restaurant as it is privately owned and has taken a big hit by this story. I wish this had been pointed out in the article.

    I can't speak for Florindo's, but even as a waiter Mr. Cardone could easily have not written down the very important words "gluten-free" on orders that he was taking...so to me it does not matter whether he was a waiter or a cook, he should not have been working in the restaurant industry.

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    Guest Deanna

    Posted

    All chefs are arrogant. Some are dangerously narcissistic and without the ability to empathize. I was told by people in the industry many times to never ever order anything special because that is begging for trouble--you will be punished for questioning the chef's control. He WILL put anything on your plate he pleases. That's what gets him off. That's his pathetic little world of control.

    Your view point seriously scares me. All chefs are NOT arrogant and your opinion is clearly skewed. My daughter has celiac and we have had numerous positive experiences. Your opinion is yours and yours only.

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    All chefs are arrogant. Some are dangerously narcissistic and without the ability to empathize. I was told by people in the industry many times to never ever order anything special because that is begging for trouble--you will be punished for questioning the chef's control. He WILL put anything on your plate he pleases. That's what gets him off. That's his pathetic little world of control.

    Actually, not all of us appreciate when people such as yourself make such broad strokes of stereotype. From the way you wrote this I would assume you also feel that all blacks are drug dealers, all Asians are bad drivers, and all Hispanics are lazy. As a Chef I always took GREAT pride in taking care of the needs of my customers. Maybe, just maybe, you should spend some time working in a restaurant in order to see for yourself before you go relying solely on the word of "a friend in the industry".

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    Guest Earli

    Posted

    In doing some research on this article, it should be said that this man did not work as a chef at Florindo's, he worked as a waiter. He apparently was a disgruntled ex-employee out to take revenge on the owners. The owner is the one and only chef. Too bad for the restaurant as it is privately owned and has taken a big hit by this story. I wish this had been pointed out in the article.

    Heather, thanks for setting the record straight. This all goes to prove that anybody can say anything on the social networking sites and it will be believed at 'face' value. Too bad Ms Cohan did not do a little research before printer in rebuttal.

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    Guest Cindy

    Posted

    After eating what was supposed to be a gluten-free meal recently, I became violently ill, fainting 4 or 5 times between the car and the bathroom. Had I hit my head on the concrete stairs going into my house, or on the sink, tub, or toilet in the bathroom, I would have been seriously injured, but my husband prevented me from doing so. And had I been injured, I would definitely be suing the restaurant that served me, either accidentally or intentionally, gluten in my meal.

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    Guest Jennifer

    Posted

    Thank you Heather, for pointing that out...it needs to be reported accurately, or it becomes about misinformation. No he shouldn't be working in the food industry, but it should also be reported that the restaurant itself offers gluten-free selections and is celiac-friendly. I live here, and live with celiac, and hate to see one of the places that offers delicious alternatives take the hit because of an ignorant server. It's the man, not the place.

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    Guest Tallulah

    Posted

    I am still stunned after reading this article. Thank goodness Mr. Cardone got fired...let's hope he is never able to work in the food industry again. What a jerk. What goes around, comes around...

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    Guest ColoradoSue

    Posted

    Another very big reason why I don't go out to eat anymore. Even with restaurants that "guarantee" gluten free menu's, they cannot guarantee that their employees will follow the guidelines!!!! I have been fortunate to have 94% control on my diet. I wish I could say it is 100%. With idiots like this in the public sector, I will never be.

    I must also mention that well-meaning friends and family members who also don't or won't accept this very serious health condition are also just as big a problem. Despite my best efforts at education over and over again, invariably one's feelings are hurt because the meal or fruit cake that was made especially for me is left alone or behind. I will still continue to hand out gluten free recipes, or bring my own food. However, I have noticed that invites to eat at other homes, (etc.) have dwindled to nothing. Lucky Me! Which, frankly, is ok. I'm too tired just trying to live with celiac disease (and all of the other health issues) and all of the pain and destruction that continues. I just turned 58 on the 10th. Had I'd known this going to be the rest of my life, I would have taken up sky diving long ago! Peace be with thee!

    PS: I do wish that Mr Cardone is diagnosed with celiac disease.

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    Guest Celiac

    Posted

    While it's clear that this man is *likely* less of a$$ and more of an angry uneducated man simply wanting revenge on his former bosses (thanks to the posts that clarified the source of the story), this serves as a great reminder for those of us with celiac and/or food allergies to not eat out. It is NOT the job of restaurant staff to ensure that your meal is gluten-free or safe. They simply can't. All it takes is ONE worker who doesn't know/care/pay attention and your meal is no longer safe. There is no way the food industry can keep up with everyone's different needs. If you have celiac and/or deadly food allergies, eat out at your own risk, IMHO. I am less worried about those with "gluten intolerance" because most of them won't sustain actual damage to their bodies, risk a hospital trip. etc. They may be fine eating out (they just may get sick), but celiacs and those with gluten induced neuro disorders, DH, etc. should never eat out at all unless they personally know and trust the chef. Even then it is always a risk. I hate hate hate having celiac and deadly food allergies, but this is my life now. I can't ever be normal again no matter what I want. A lunch bag that goes everywhere with you should be your best friend.

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    Such behavior is incredibly unprofessional at best. Whether your customer requires gluten-free food due to a food intolerance, or refuses to eat anything red because it upsets his chakkra spirits, you do your best to satisfy their needs, because THAT'S WHAT THEY ARE PAYING YOU FOR!

    This man shouldn't be allowed to work for McDonalds!

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    fdfworld.com

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
     
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    Source:
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764

    Jefferson Adams
    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
    If you’ve flown anywhere lately, you may have seen them. People flying with their designated “emotional support” animals. We’re not talking genuine service animals, like seeing eye dogs, or hearing ear dogs, or even the Belgian Malinois that alerts its owner when there is gluten in food that may trigger her celiac disease.
    Now, to be honest, some of those animals in question do perform a genuine service for those who need emotional support dogs, like veterans with PTSD.
    However, many of these animals are not service animals at all. Many of these animals perform no actual service to their owners, and are nothing more than thinly disguised pets. Many lack proper training, and some have caused serious problems for the airlines and for other passengers.
    Now the major airlines are taking note and introducing stringent requirements for service animals.
    Delta was the first to strike. As reported by the New York Times on January 19: “Effective March 1, Delta, the second largest US airline by passenger traffic, said it will require passengers seeking to fly with pets to present additional documents outlining the passenger’s need for the animal and proof of its training and vaccinations, 48 hours prior to the flight.… This comes in response to what the carrier said was a 150 percent increase in service and support animals — pets, often dogs, that accompany people with disabilities — carried onboard since 2015.… Delta said that it flies some 700 service animals a day. Among them, customers have attempted to fly with comfort turkeys, gliding possums, snakes, spiders, and other unusual pets.”
    Fresh from an unsavory incident with an “emotional support” peacock incident, United Airlines has followed Delta’s lead and set stricter rules for emotional support animals. United’s rules also took effect March 1, 2018.
    So, to the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service and emotional support animals.
    Source:
    cnbc.com

    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com