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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    GLUTEN-FREE SPECIALTY STORE CHARGES FIVE BUCKS FOR LOOKING


    Jefferson Adams

    Celiac.com 05/03/2013 - Would you fork over five dollars just for browsing in a store?


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    Photo: CC--plantingdollarsMore and more brick and mortar stores are fighting against a practice called 'showrooming,' where consumers visit a store to view an item in person before buying it online. Charging a fee to visitors who do not buy anything is one new strategy in that fight.

    Adelaidenow.com.au reports that Brisbane-based Celiac Supplies, a gluten-free specialty food store in Australia, recently announced that it will charge customers $5 for browsing. The money will be refunded when the customers purchase an item.

    In an article that appeared on the Consumerist.com website, the store-owner, who gave her name only as Georgina, says that she implemented the fee to curb “showrooming.” Her store has seen a "high volume of people who use this store as a reference and then purchase goods elsewhere," according to a note, a photo of which appeared on Reddit.com

    Georgina's note adds that the showroomers she complains about "are unaware our prices are almost the same as the other stores plus we have products simply not available anywhere else.”

    The note closes by saying that the $5 fee “is in line with many other clothing, shoe, and electronic stores" that also face the same problem.

    Georgina told the website that she spent hours giving advice to as many as 60 people per week, who would go into the store, ask questions, and then leave without buying anything.

    “I’ve had a gut full of working and not getting paid,” Georgina was quoted as saying. “I’m not here to dispense a charity service for Coles and Woolworths to make more money.”


    Image Caption: Photo: CC--plantingdollars
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    Guest Faye

    Posted

    My feelings about this are extremely negative. This woman and other stores that have instituted such a policy should be cleaning toilets for a living. Any customer in their right mind would not cross the threshold. If a retailer appropriately markets their business and daily determines if they are price competitive, they will have a store full of purchasing customers. These retailers have forgotten that they are members of a "service community." I.e., it is their responsibility to "service" their clientele. That is the reason the phrase "customer service" exists.

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    Guest John Fuselier

    Posted

    I understand the frustration of the shop owner, but the question left unanswered is why she is not able to compete with other online stores. If she has them in conversation online and fails to make a sale, there is something wrong with her salesmanship. Online customers are sensitive to nuances in presentation, and while they may be grateful for information, they flee from a sour attitude.

     

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    Guest dappy

    Posted

    Well, they must charge upfront - so you have the option of not going in at all. Wonder what she loses with that option?? I would not go in and wish her "Lots of Luck"!!

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    Guest TXEdie

    Posted

    Great way to reduce the number of customers! If the store is competitive, then the offensive, penalty tactic is unnecessary. Sounds like a plan to go out of business.

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    Guest Donnie

    Posted

    I would never pay a fee to browse in a store. I have celiac disease, but I'm also severely allergic to corn and sulfites. Gluten-free foods are likely to contain one or both of them. I have to read labels to make sure that foods and products don't contain gluten, corn, sulfites or any other of my food allergens. I also have to avoid perfume because it can trigger my allergies and asthma, so I often have to leave a store empty handed for legitimate reasons. There are many other people who have the same problems I do. So, we are not likely to pay a fee for nothing.

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    Guest Robert

    Posted

    Fantastic! In time, Georgina may have to pay customers to shop. Or earn business the old fashion way: work harder/smarter.

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    Guest Cindy

    Posted

    I'm not sure I would go into a store that I had to pay to look at their stuff. I think that is going to back fire.

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    Guest Susie

    Posted

    I would never pay a fee to browse in a store. I have celiac disease, but I'm also severely allergic to corn and sulfites. Gluten-free foods are likely to contain one or both of them. I have to read labels to make sure that foods and products don't contain gluten, corn, sulfites or any other of my food allergens. I also have to avoid perfume because it can trigger my allergies and asthma, so I often have to leave a store empty handed for legitimate reasons. There are many other people who have the same problems I do. So, we are not likely to pay a fee for nothing.

    I have the same problem with many more allergies/intolerances than just my celiac disease. I often leave a site to go to the manufacturer's website to see what else they manufacture due to cross contamination. I also like to look for personal comments on items before spending my hard earned cash on a product I've never tried before. I will never pay to browse!

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    Guest Stacy

    Posted

    I understand why she is doing it -- why should she spend time serving as a nutritionist to people who enter the store for the sole purpose of having her services, not to purchase items from her? Maybe a loyal customer card in lieue of the $5 for those who are repeat shoppers who might not find what they are looking for during a particular visit?

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    Guest abornet

    Posted

    I understand the frustration of the shop owner, but the question left unanswered is why she is not able to compete with other online stores. If she has them in conversation online and fails to make a sale, there is something wrong with her salesmanship. Online customers are sensitive to nuances in presentation, and while they may be grateful for information, they flee from a sour attitude.

    She has a physical store you can do hands on, her complaint is folks who visit just to see products in person before ordering elsewhere online. What I don't understand is why she does not have an online component to her store and advertise her online competitive prices in the physical store.

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    Guest Betty

    Posted

    I understand why she is doing it -- why should she spend time serving as a nutritionist to people who enter the store for the sole purpose of having her services, not to purchase items from her? Maybe a loyal customer card in lieue of the $5 for those who are repeat shoppers who might not find what they are looking for during a particular visit?

    If the problem is that people are not paying for the nutritional advice she provides she could either:

    1. Stop providing the advice

    or

    2. Charge for her nutritional services.

    Either way she is not charging a browsing fee. Having staff that is knowledgeable about the products the store carries is not really nutritional advice so much as doing one's job. We expect restaurant staff to know what's in the food they serve - it is the same for a grocery store. We expect even more out of specialty stores and restaurants who cater to people who need these services like those of us with celiac disease. That is the whole selling point of their company. Again, that is customer service and being knowledgeable about what you do not necessarily an added service or nutritional advice. For example, I am a house painter. I offer free color suggestions to all of my customers but if you want a full color consult that is an extra fee. The fee is reduced if you use our painting services. She could do the exact same. Give free advice and charge for full nutritional consulting. Reduce the fee if they buy a bunch of food. Really the issue is the owner needs to figure out how to run a profitable business and I don't think this is the solution.

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    Sad. Great service would increase profit more than this as well as good pricing. If I see something I know markets for 2 bucks why pay 8?

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    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
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    NO SYMPTOMS
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    CELIAC DISEASE VS. GLUTEN INTOLERANCE
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    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
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    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
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    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

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    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
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    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com

    Jefferson Adams
    Celiac.com 04/16/2018 - A team of researchers recently set out to investigate whether alterations in the developing intestinal microbiota and immune markers precede celiac disease onset in infants with family risk for the disease.
    The research team included Marta Olivares, Alan W. Walker, Amalia Capilla, Alfonso Benítez-Páez, Francesc Palau, Julian Parkhill, Gemma Castillejo, and Yolanda Sanz. They are variously affiliated with the Microbial Ecology, Nutrition and Health Research Unit, Institute of Agrochemistry and Food Technology, National Research Council (IATA-CSIC), C/Catedrático Agustín Escardin, Paterna, Valencia, Spain; the Gut Health Group, The Rowett Institute, University of Aberdeen, Aberdeen, UK; the Genetics and Molecular Medicine Unit, Institute of Biomedicine of Valencia, National Research Council (IBV-CSIC), Valencia, Spain; the Wellcome Trust Sanger Institute, Hinxton, Cambridgeshire UK; the Hospital Universitari de Sant Joan de Reus, IISPV, URV, Tarragona, Spain; the Center for regenerative medicine, Boston university school of medicine, Boston, USA; and the Institut de Recerca Sant Joan de Déu and CIBERER, Hospital Sant Joan de Déu, Barcelona, Spain
    The team conducted a nested case-control study out as part of a larger prospective cohort study, which included healthy full-term newborns (> 200) with at least one first relative with biopsy-verified celiac disease. The present study includes 10 cases of celiac disease, along with 10 best-matched controls who did not develop the disease after 5-year follow-up.
    The team profiled fecal microbiota, as assessed by high-throughput 16S rRNA gene amplicon sequencing, along with immune parameters, at 4 and 6 months of age and related to celiac disease onset. The microbiota of infants who remained healthy showed an increase in bacterial diversity over time, especially by increases in microbiota from the Firmicutes families, those who with no increase in bacterial diversity developed celiac disease.
    Infants who subsequently developed celiac disease showed a significant reduction in sIgA levels over time, while those who remained healthy showed increases in TNF-α correlated to Bifidobacterium spp.
    Healthy children in the control group showed a greater relative abundance of Bifidobacterium longum, while children who developed celiac disease showed increased levels of Bifidobacterium breve and Enterococcus spp.
    The data from this study suggest that early changes in gut microbiota in infants with celiac disease risk could influence immune development, and thus increase risk levels for celiac disease. The team is calling for larger studies to confirm their hypothesis.
    Source:
    Microbiome. 2018; 6: 36. Published online 2018 Feb 20. doi: 10.1186/s40168-018-0415-6