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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    GLUTEN IN COSMETICS: A THREAT TO PEOPLE WITH CELIAC DISEASE?


    Jefferson Adams

    Celiac.com 12/09/2011 - Gluten in lip, facial or other body products may be a threat to people with celiac disease, according to a new study.


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    A research team from George Washington University evaluated products from the top ten American cosmetics companies. They found a troubling lack of information about product ingredients. Only two of the ten companies featured clear, detailed ingredients, and none of the companies offered products that were gluten-free.

    Photo: CC--cerromijaresThe study findings were revealed at the annual scientific meeting of the American College of Gastroenterology in Washington, D.C.

    The results are worrisome, because cosmetics that contain gluten can "result in an exacerbation of celiac disease," said researcher Dr. Pia Prakash. "This study revealed that information about the ingredients, including the potential gluten content, in cosmetics is not readily available."

    A number of smaller cosmetic companies produce gluten-free alternatives, said Prakash, who added that larger companies should take steps to inform consumers
    with gluten sensitivity whether their products are safe for those individuals.

    The study came about partly because doctors had seen a 28-year-old woman with celiac disease who suffered a worsening of symptoms, including gastrointestinal complications and a skin rash, after she used a "natural" body lotion.

    The doctors and the woman had a hard time trying to figure out if the lotion contained gluten. However, Prakash said, "…once she stopped using the body lotion her symptoms resolved."

    Such cases highlight the huge challenge faced by people with celiac disease in trying to determine if their cosmetic products contain gluten.

    Because the results of the study were presented at a medical meeting, the data and conclusions should be considered preliminary until peer-reviewed and published in a medical journal.

    Source:


    Image Caption: Photo: CC--cerromijares
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    Guest Cecilia Grech

    Posted

    I have personally experienced this. I am a very sensitive gluten intolerant following a very strict gluten free diet. I had bought an oil for my nails which I had been applying for quite a while and I wasn't feeling well at all. After a while I realized that when I applied the oil I felt unwell. Looking into the ingredients this oil contained wheat germ. Sustaining your article.

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    Guest Spruenik

    Posted

    I've known this for over ten years, and it's so frustrating. I'm very symptomatic, and not intolerant or allergic to any other food substance but gluten. I've given up using daily cosmetics (and am depressed about it), except on holidays and special occasions, knowing I will suffer gut symptoms for days afterwards. I've been diagnosed with rosacea, and I have no idea what to use for it. I use clear soft soap and coconut oil, which aren't enough to treat rosacea. I read somewhere that if a substance is crystal clear, it can't have gluten. Gluten gives a cloudy appearance. But does anyone really know whether say, iron oxides (and zinc, titanium) contain any wheat as filler?

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    As an individual with gluten sensitivity, it would have been better if you had mentioned some of the gluten free products.

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    Guest Christine

    Posted

    What I want to know is which companies and products contain wheat gluten. Is this too much to ask? It scares me to know that the cosmetics that I use may contain wheat gluten, which when I eat anything with wheat, I get really sick to my stomach, suffer cramping, diarrhea and constipation. What cosmetics are ok for me to use, and I have been all over the internet researching it. And where can I purchase the cosmetics, other than the internet?

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    Guest Coloradosue

    Posted

    Not surprising to read about this problem. I have emailed Avon, Clinic, several other high priced as well as average over the counter makeup companies and the only response I ever got from any of them that their products were proprietary therefore will not be divulged to the public. Kinda like what the big pharmaceutical companies say about their drugs up until they lose their rights to a drug that goes generic. So I stick to Johnson and Johnson baby products for most skin care and makeup that I've tried and had no visible reaction to my skin. And I react very quickly to glutenous products on my skin. Otherwise "Au naturale" is a daily makeup I use.

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    Guest Just Jenn

    Posted

    I've known this for over ten years, and it's so frustrating. I'm very symptomatic, and not intolerant or allergic to any other food substance but gluten. I've given up using daily cosmetics (and am depressed about it), except on holidays and special occasions, knowing I will suffer gut symptoms for days afterwards. I've been diagnosed with rosacea, and I have no idea what to use for it. I use clear soft soap and coconut oil, which aren't enough to treat rosacea. I read somewhere that if a substance is crystal clear, it can't have gluten. Gluten gives a cloudy appearance. But does anyone really know whether say, iron oxides (and zinc, titanium) contain any wheat as filler?

    Spruenik, you can still wear lipstick at least on the holidays (or everyday) without making yourself sick. Check out Zuzu Luxe by which makes a gluten-free lipstick! I've felt a lot better since I switched. (And no, I don't work for them but am just really happy I can wear makeup that won't make me throw up.).

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    Try Merle Norman cosmetics. I am most concerned with lipstick being a problem and the sales girl was able to call their head office and get a list of which of their lipsticks are gluten free. I imagine they can do the same for the rest of their product line.

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    Guest Stephani

    Posted

    Why is there more information about the author than the names of the cosmetics tested? Thank you Coloradosue for giving some names of a couple. I appreciate it. I was going to throw out that since I got rid of all lotions and bath washes and started using pure coconut oil, I have had NO issues whatsoever and my skin looks and feels great. I also eat 2 tbsp of it each day to heal from the inside out. I feel a million times better. I get my coconut oil at www.tropicaltraditions.com because you can buy it in bulk and they always have some sort of special. Mineral oil is also something you have to watch out for.... so look for products that don't carry mineral oil.

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    I've known this for over ten years, and it's so frustrating. I'm very symptomatic, and not intolerant or allergic to any other food substance but gluten. I've given up using daily cosmetics (and am depressed about it), except on holidays and special occasions, knowing I will suffer gut symptoms for days afterwards. I've been diagnosed with rosacea, and I have no idea what to use for it. I use clear soft soap and coconut oil, which aren't enough to treat rosacea. I read somewhere that if a substance is crystal clear, it can't have gluten. Gluten gives a cloudy appearance. But does anyone really know whether say, iron oxides (and zinc, titanium) contain any wheat as filler?

    I am also gluten intolerant suffering with rosacea. I have been using MetroGel for some time now and have not noticed any adverse symptoms. It does not rid me of the rosacea but controls it from spreading.

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    Guest Naomi

    Posted

    I've known this for over ten years, and it's so frustrating. I'm very symptomatic, and not intolerant or allergic to any other food substance but gluten. I've given up using daily cosmetics (and am depressed about it), except on holidays and special occasions, knowing I will suffer gut symptoms for days afterwards. I've been diagnosed with rosacea, and I have no idea what to use for it. I use clear soft soap and coconut oil, which aren't enough to treat rosacea. I read somewhere that if a substance is crystal clear, it can't have gluten. Gluten gives a cloudy appearance. But does anyone really know whether say, iron oxides (and zinc, titanium) contain any wheat as filler?

    I was considering permanent makeup and am even more determined now! (Permanent makeup tattooed on you by a professional certified permanent makeup artist- NOT the tattoo shop down the road! And no, you won't look like a clown, do a lot of research and look at photos!) But I read that gluten can't be absorbed through your skin??? Burt's bees and Red apple create lip balm/stick that is gluten free, I was killing myself with regular chap sticks.)

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    Guest Theresa

    Posted

    I was considering permanent makeup and am even more determined now! (Permanent makeup tattooed on you by a professional certified permanent makeup artist- NOT the tattoo shop down the road! And no, you won't look like a clown, do a lot of research and look at photos!) But I read that gluten can't be absorbed through your skin??? Burt's bees and Red apple create lip balm/stick that is gluten free, I was killing myself with regular chap sticks.)

    Gluten can't be absorbed through your skin but if you apply makeup with your fingers/hands and lotion as well, you can ingest the substance from your fingers when you touch your mouth. Lipstick especially gets ingested all day long! Organix makes a line of lotions and other products with Coconut oil that are gluten free.

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    Gluten can't be absorbed through your skin but if you apply makeup with your fingers/hands and lotion as well, you can ingest the substance from your fingers when you touch your mouth. Lipstick especially gets ingested all day long! Organix makes a line of lotions and other products with Coconut oil that are gluten free.

    Gluten can be absorbed through the skin.

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    Spruenik, you can still wear lipstick at least on the holidays (or everyday) without making yourself sick. Check out Zuzu Luxe by which makes a gluten-free lipstick! I've felt a lot better since I switched. (And no, I don't work for them but am just really happy I can wear makeup that won't make me throw up.).

    I found a lip gloss that is gluten free....Nude Balm by L'Oreal. It's Wonderful.

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    I've known this for over ten years, and it's so frustrating. I'm very symptomatic, and not intolerant or allergic to any other food substance but gluten. I've given up using daily cosmetics (and am depressed about it), except on holidays and special occasions, knowing I will suffer gut symptoms for days afterwards. I've been diagnosed with rosacea, and I have no idea what to use for it. I use clear soft soap and coconut oil, which aren't enough to treat rosacea. I read somewhere that if a substance is crystal clear, it can't have gluten. Gluten gives a cloudy appearance. But does anyone really know whether say, iron oxides (and zinc, titanium) contain any wheat as filler?

    Have you tried rosewater for your rosacea? I have heard of very good results with it. I am a cosmetologist and have been working in a hair salon for the past three years, and experiencing a mysterious (until reading this article!) major increase in intestinal issues. I self diagnosed my gluten intolerance in high school, and was doing great until the past few years. SO GLAD I read this article!!!

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    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
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    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
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    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

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    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
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    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com