• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Member Statistics

    Total Members
    Most Online
    hayley stan
    Newest Member
    hayley stan
  • 0

    Gluten in Pharmaceutical Products

    Scott Adams

    Ads by Google:

    Ads by Google:

    Am J Health-Syst Pharm 58(05):396-401, 2001

    Celiac.com 04/12/2001 - Patients with celiac disease must eliminate all gluten from their diets, including any that might be present in the pharmaceutical or nutritional products that they consume. Researchers Sister Jeanne Patricia Crowe and Nancy Patin Falini designed a study to identify pharmaceutical companies whose policy is to manufacture only gluten-free products, and to determine the accuracy of product information held by companies whose products might contain gluten. The accuracy of this information is crucial for the effective treatment of patients with celiac disease.

    The researchers mailed 172 surveys to pharmaceutical companies listed in the 1998 Physicians Desk Reference and the 1998 generics supplement to Pharmacy Times, and made follow up telephone calls to companies that did not respond. The survey was strictly designed to determine the companies’ policies with regard to the use of gluten in their products, and if they use gluten, to determine their knowledge with regard to its content in their products.

    Almost all of the 100 companies that responded to the surveys (52 surveys, 26 letters and 22 oral responses were received) warned that they could not guarantee the possibility that minute amounts of gluten contaminants existed in the raw materials for their inactive ingredients. Many also warned that their products were gluten-free at the time of the survey, but their suppliers of raw materials for their inactive ingredients could change at any time without notice, and this could affect the gluten-free status of their products.

    Out of all those who responded, only five had a policy of producing gluten-free products, and could guarantee the gluten-free status of their products. Another group of respondents did not refer to their products as gluten free but stated that they added no ingredients derived from wheat, oats, rye, barley, or spelt. Many companies responded with legal disclaimers stating that although they believed that their products did not contain gluten, they neither certified their gluten-free status nor tested them for gluten. Some said that they could not make this guarantee because of the uncertainty with their suppliers of raw materials. Some said that their responses concerning ingredients were only as current as the date of correspondence.

    Currently few medications are labeled “gluten-free,” and labeling medications as such would be a great help to those on gluten-free diets. With most products a patient, pharmacist or doctor must periodically contact the manufacturer to determine the continuing gluten-free status of the product. This process is time consuming and costly for all involved. A reliable means of determining the gluten-free status of medications and nutritional products is badly needed, and is essential to the health of people on gluten-free diets.


    User Feedback

    Recommended Comments

    This situation is very much a problem. After taking some Gluten-Free Niacin capsules, I awoke in the middle of the night barely able to breathe. I don't have any problems with it if I pull open the capsule, dump the Niacin powder in my mouth, and throw the empty capsule away.

    Lesson learned: Avoid vitamins and medicines in capsule form - especially the "Time Release" granule types. They often use wheat starch as a disintegrating agent.

    Share this comment

    Link to comment
    Share on other sites
    Guest Marcia


    I cannot understand in this day and age, with all of the information out there regarding celiac disease/and gluten intolerance, why there is not a list for gluten-free pharmaceutical companies updated monthly. I had to change all of my medicines because of cost and it has been a very trying experience.

    Share this comment

    Link to comment
    Share on other sites

    Your content will need to be approved by a moderator

    You are commenting as a guest. If you have an account, please sign in.
    Add a comment...

    ×   Pasted as rich text.   Paste as plain text instead

      Only 75 emoji are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.

  • Popular Contributors

  • Ads by Google:

  • Who's Online   7 Members, 0 Anonymous, 299 Guests (See full list)

  • Related Articles

    Dyani Barber
    Celiac.com 04/12/2011 - Paul Seelig was found guilty today of 23 counts of obtaining property by false pretense after a two-week trial in Durham, NC. The jury found that he illegally represented baked goods as gluten-free, but they actually contained gluten. Mr. Seelig received an 11 year prison sentence for his crimes, which included the sickening of more than two dozen customers, one of whom had a premature delivery that was possibly caused by her involuntary gluten consumption.
    Seelig's company, Great Specialty Products, purchased regular gluten-containing items from companies in New Jersey such as Costco, and then repackaged them in his home kitchen and sold them as "gluten-free" at the NC State Fair, various street fairs and via home delivery. Seelig claimed that his baked items were homemade in his company's 150,000-square-foot commercial kitchen, and that his company raised its own grains on its 400-acre farm. High gluten levels were detected by both customers and investigators in Seelig's supposedly gluten-free bread, even though he claimed that he tested his bread weekly for gluten and found none. Mr. Seelig could not produce any of his test results at trial.


    Sheila Hughes
    Celiac.com 05/29/2013 - Television's the Disney Channel has always been known to be kid friendly and parents approved, but a recent airing has parents viewing this network in a new light.
    "Jessie," a fairly new sitcom, premiered on September 30, 2011. It follows the life of an eighteen year old who nannies for a high profile family of four children. Seemingly harmless, right? In a recent episode titled “Quitting Cold Koala,” Stuart, a gluten-free child, is victimized. Several jokes were made in reference to the character's diet such as, "You call me sweetie again, and you'll be eating some gluten-free knuckles." In another part of the episode another child throws pancakes at Stuart as he screams "gluten!" and wipes his face.
    Those who are diagnosed with celiac disease must live a completely gluten-free life. Gluten is a very common protein which is found in foods made with wheat, rye, and barely. When ingested their immune system literally starts destroying them from the inside out.
    Amy Raslevich, was outraged by the episode in question when she watched it with her two gluten-free children. She was quoted in the Pittsburgh Post-Gazette saying, "There were tears in my daughter's eyes, and my son's fist was clenched.” She started her own petition on Change.org asking the Disney Channel to no longer air this episode.
    Disney has made the decision to pull this episode for now, and is currently re-evaluating whether it will be shown again.

    Jefferson Adams
    Celiac.com 05/16/2014 - More than half of U.S. chain restaurants plan to expand their gluten-free menus in the next year, according to a national menu price survey by restaurant supply-chain co-op SpenDifference.
    "Operators recognize that a growing number of customers have health-related dietary restrictions, and they are revamping their menus to include choices for them, as well as for those who simply want more healthful choices,” said SpenDifference president and CEO Maryanne Rose.
    Currently, 55 percent of restaurants surveyed serve gluten-free menu items. According to the new survey, the majority of those businesses will be expanding that selection in the coming year.
    The survey supports projections that indicate that the demand for gluten-free menu items “will be with us for a long time," said Rose.
    The findings are included in SpenDifference's third menu price survey, which for the first time asked chain-restaurant operators about their plans to offer more healthful menu options.
    Read more at: Fastcasual.com.

    Jefferson Adams
    Celiac.com 03/31/2015 - Here is Celiac.com's list of Gluten-free and Gluten-safe Candy for Easter 2015.
    Below the list of SAFE candy, you will find a list of UNSAFE, NON–gluten–free candies, along with a partial list of major candy makers with links to their company websites.
    Please keep in mind that this list is not complete, or definitive, and should only be used as a guideline.
    Before eating any candy on the list, be sure to read labels, check manufacturer’s information, and gauge your purchases according to your own sensitivity levels, or those of your children.
    Check manufacturer websites for official information on any specific products.
    For a comprehensive list of gluten-free candy and manufacturers, see Celiac.com’s Gluten-free and Gluten-safe Halloween Candy.
    Almond Joy Eggs Andes Creme de Menthe Thins B
    Baby Ruth original and fun size Bazooka Big Mix (contains bubble gum, bubble gum filled candy, candy chews, and bubble gum filled lollipops) Bazooka Ring Pops Bazooka Push Pops Bazooka Baby Bottle Pops Bit•O•Honey Big Blow bubblegum Bubbly lollipop and gum Butterfinger bar, original and fun size C
    Cadbury Caramel Eggs Cadbury Caramello Bunnies Cadbury Creme Eggs Cadbury Dairy Milk Chocolate Bunny Cadbury Dairy Milk Buttons Chicks Cadbury Easter Egg Trail Pack Cadbury Egg Heads Cadbury hollow milk chocolate egg filled with Cadbury mini-eggs Cadbury Mini Caramel Eggs Cadbury Mini Chocolate Eggs Cadbury Mini Crème Eggs Cadbury Mini Daim Eggs Cadbury Mini Eggs Cadbury Orange Creme Eggs Carousel Bubble Gum Eggs Carousel Easter Egg Surprise Lollipops Charms Blow Pops and Blow Pop Minis Cry Baby Eggs D
    Dairy Good Easter bunnies (chocolate flavored, foil-wrapped) Dairy Good Easter eggs (chocolate eggs) Dairy Good Chocolate and White Chocolate Crosses Disney Princess plastic eggs with candy and stickers inside Dove Chocolates Dove Chocolate Eggs Dove Fairy Bunny hollow milk chocolate Dove Solid Chocolate Bunnies, milk chocolate Ingredients Dove Solid Chocolate Bunnies, dark chocolate Dove Truffle Eggs Dubble Bubble Eggs (egg-shaped bubble gum) and Speckled Bubble Gum E
    Easter Bunny Egg-head family filled with Power Candy F
    Farley’s Kiddie Mix—contains Now & Laters, Jawbreakers, Super Bubble bubble gum, Tootsie Roll Midgees, Sassy Tarts and Smarties Florida Natural Healthy Treats fruit snacks eggs Frankford Marshmallow Chicks and Bunnies G
    Gimbal’s candies H
    Haribo Gold-Bears Heath milk chocolate English toffee bar and snack size - contains almonds Hershey’s Milk Chocolate Bunnies, Springtime Flowers, and Crosses Hershey’s milk chocolate hollow egg with candy-coated milk chocolate eggs inside Hershey’s candy-coated milk chocolate eggs Hershey’s Solid Milk Chocolate Speedy Bunny and Princess Bunny Hershey’s milk chocolate hollow Bunny Hershey’s milk chocolate eggs Hershey’s Special Dark chocolate eggs Hershey’s Marshmallow Eggs Hershey’s Blisschocolate candy Hershey’s Bliss milk chocolate eggs with a meltaway center Hershey’s Bliss dark chocolate eggs Hershey’s Bliss Hollow Milk Chocolate Bunny Hershey’s Kisses Hershey’s Kisses filled with Caramel Hershey’s Kisses with Almond Hershey's Nuggets (Milk Chocolate, Milk Chocolate with Almonds, Milk Chocolate with Toffee and Almonds, Special Dark, Special Dark with Almonds), Hershey's Skor Toffee Bars Hot Tamales J
    Jelly Beans—Top gluten-free brands include: Jelly Belly Jelly Beans Just Born Jelly Beans Just Born Marshmallow Treats  K
    Kellogg’s Spongebob Squarepants fruit flavored snacks Kinder Surprise Eggs L
    Lemon Delight; Lime Delight; Mystery Flavored Marshmallow Chicks; Orange Delight; Party Cake; Sour Watermelon; and Sweet Lemonade Flavored Marshmallow Chicks
    Lifesaver hard candies—Original and Pastels Lifesaver Eggsortment (including jellybeans, gummies and pops) Lifesaver Gummies—Original, and Bunnies and Eggs M
    Melster Chocolate Flavored Marshmallow Bunnies M&M’s—Original, Peanut, Speck-tacular Eggs, and Bunny Mix M&M’s Easter Pastel Colored Coconut M&M’s Mike and Ike Berry Blast Mike & Ike Jelly Beans Mike and Ike Lemonade Blends Mike and Ike Original Mike and Ike Zours Mounds Eggs N
    Nestle’s Nest Eggs (EXCEPT Crunch Nest Eggs) Nestle’s milk chocolate Nest Eggs Nestle’s creamy caramel Nest Eggs Nestle’s Butterfinger chocolate Nest Eggs Nestle’s Butterfinger Creme Eggs P
    Palmer Holiday Candy Palmer’s Bunny Bites foil-wrapped eggs—all flavors Palmer’s Baby Binks hollow milk chocolate bunny Palmer’s Bunnyettes (milk chocolate) Palmer’s Butter Cream Flavored eggs Palmer’s Carrot Patch Pete Palmer’s Fudge Filled Big Ears Palmer’s Hollow Bunnies Palmer’s Little Beauty milk chocolate bunny Palmer’s Milk Chocolate Flavored and premium milk chocolate eggs Palmer’s Peanut Butter Filled chocolate eggs Palmer Poppin’ Rockin’ Egg (hollow egg filled with Pop Rocks) Palmer’s Soft Caramel Cups Palmer’s Super Sports Balls Peeps Chocolate Dipped Marshmallow Chicks Peeps Chocolate Mousse Flavored Marshmallow Chicks Peeps Chocolate Covered Marshmallow Chicks Peeps Chocolate Mousse Flavored Marshmallow Bunnies Peeps Decorated Marshmallow Eggs Peeps Large Marshmallow Bunny Peeps Marshmallow Bunnies—Yellow, lavender, pink, orange, green, blue, and white Peeps Mystery Flavored Marshmallow Bunnies Peeps Original Marshmallow Chicks—Yellow, white, orange, green, pink, blue, and lavender Peeps Flavored Chicks, including:Blue Raspberry; Bubble Gum; Peeps milk chocolate covered marshmallow PEZ candy Pixy Stix Green Grass (Wonka) Giant Pixy Stix (Wonka) Pop Rocks in plastic egg PLASTIC EGGS WITH ASSORTED CANDY
    Bee Flowers and Fairies Egg Hunt (contains Smarties, Super Bubble bubble gum, Taffy Werks, Jelly Bean Werks, and Lemonheads) Bee Sport Ball Eggs (contains Smarties, Super Bubble bubble gum, Taffy Werks, Jelly Bean Werks, and Lemonheads) Bee Noah’s Ark Easter Egg Hunt (contains Smarties, Super Bubble bubble gum, Taffy Werks, Jelly Bean Werks, and Lemonheads) Bug Collector Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Peace and Love Egg Hunt (contains Ferrara Pan jellybeans, Red Hots, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Dress Up Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Farm Friends Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Game Time Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Glow in the Dark Egg Hunt (contains Ferrara Pan jellybeans, Red Hots, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Mmmm…Cupcakes Egg Hunt (contains Ferrara Pan jellybeans, Red Hots, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Nighttime Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Outdoor Adventure Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Pet Shop Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Rainforest Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) Speedster Cars Candy Filled Egg Hunt (contains Ferrara Pan jellybeans, Tropical Chewy Lemonhead and Friends, Chewy Lemonhead and Friends, Jaw Busters) R
    Reese’s Peanut ButterChocolate candy Reese’s Easter Assortment Eggs (including peanut butter eggs, white peanut butter eggs, and miniatures)—EXCEPT the foil-wrapped mini eggs, which contain gluten Reese’s Peanut Butter Cup miniatures Reese’s Pieces Pastel Eggs Reese’s Peanut Butter Eggs—large and small size, EXCEPT the foil-wrapped mini eggs, which contain gluten Reese’s Reester Bunny—large size only! Mini-sized unsafe Ring pops Russel Stover Pectin Jelly Beans  S
    See’s Candies—See’s candies do not contain gluten Sixlets Skittles eggs and fun-size Smarties candy rolls Snickers mini’s Sour Patch Bunnies Spree Jelly Beans—Cherry, Lemon and Green Apple Surf Sweets Jelly Beans Starburst fruit chews—All Original and Easter-themed Starburst candy, including jelly beans and special Easter candy packages Starburst Jellybeans—original, tropical, and red fruits Swedish Fish Eggs soft and chewy candy Sunny Seed Drops chocolate covered sunflower seeds T
    Teenee Beanee Jelly Beans—including Americana Medley, Country Retreat, and Island Breeze flavored packages Easter-themed Tootsie Roll candy, including Dubble Bubble Easter egg-shaped bubble gum, Tootsie Pops, Charms Blow Pops and Charms Candy Carnival products W
    Wonka Giant Chewy Nerds Jelly Beans Wonka Everlasting Gobstopper Eggbreakers Wonka Fun Dip Wonka Giant Pixy Stix Wonka Hoppin’ Nerds Wonka Runts Freckled Eggs Wonka Egg Hunt with a Golden Egg (contains Nerds, Laffy Taffy, and SweeTarts) Wonka Egg Hunt Zero Gravity (contains Nerds, Laffy Taffy, and SweeTarts) Wonka Egg Hunt Hard 2 Find (contains Nerds, Runts, and SweeTarts) Y
    York Peppermint Patties Z
    Zachary real chocolate Marshmallow Eggs Zachary solid milk chocolate Bunnies Zipperz Lollipops WARNING! THESE UNSAFE CANDIES CONTAIN OR MAY CONTAIN GLUTEN:
    Airheads Candies are “Manufactured in a facility that processes wheat flour.” Airheads Xtremes Rolls contains wheat flour ANNABELLE’S
    Abba Zabba—Contains: peanuts, soybean oil and soy lecithin, wheat/gluten Big Hunk—Made in a facility that uses peanuts, tree nuts and wheat Look—Contains wheat/gluten Rocky Road, Rocky Road Mint, Rocky Road Dark—Contain wheat/gluten U-No—Contains wheat/gluten AMERICAN LICORICE CO.
    Sour Punch Sticks, Twists, Bits, Bites, Straws—Contains wheat/gluten Red Vines—all varieties contain wheat/gluten, including Black, Natural and Fruit Vines B
    All Brach's candy should be considered NOT gluten–free! Please be careful, as I have seen Brach's candies included on gluten-free safe lists! C
    Child’s Play Easter Mix—Made in a facility that uses peanuts, tree nuts and wheat Chick Feed sunflower seeds “May contain wheat, peanuts, and tree nuts.” F
    Ferrero Rocher candy—Contains wheat/gluten Frankford Cookies and Creme Eggs—Contains wheat/gluten Frankford Crispy Eggs (milk chocolate flavored)—Contains wheat/gluten, and made in a facility that uses peanuts and wheat. Frankford solid milk chocolate bunny—Made in a facility that uses peanuts and wheat H
    Black Licorice Wheels Brixx Fruity Pasta Konfekt and Pontefract Cakes Red Licorice Wheels Sour S’ghetti HERSHEY
    Hershey’s miniatures—Label states: “May contain wheat.” Hershey’s Cookies ‘n’ Creme egg—Contains wheat/gluten Hershey’s Bliss (Milk Chocolate, Milk Chocolate with Almonds, Milk Chocolate with Meltaway Center, White Chocolate with Meltaway Center, Milk Chocolate with Raspberry Meltaway Center, Dark Chocolate) – No gluten ingredients, but not on Hershey’s official gluten-free list Hershey's Good & Plenty Hershey’s Mr. Goodbar fun size K
    Kit Kat Bunny Ears and Kit Kat minis—Contains wheat/gluten L
    Lindt Chocolate — Lindt US website states that they “cannot guarantee that Lindt chocolate is gluten free.” M
    Mayfair Kid’s Play basket stuffers (including Fuit Chews, Teaberry Gumballs, Spout Bubble Log, Atomic Fireballs, Super Bubble bubble gum, Easter Pops, Jawbreakers, Airheads, Lemonhead, and Smarties—Made in a facility that uses peanuts, tree nuts and wheat Mighty Malts Speckled Malted Milk Eggs —Contains wheat/gluten Milky Way minis—Contains wheat/gluten Milky Way Bunnies—Contains wheat/gluten N
    Butterfinger Crisp or Butterfinger Stixx—Contain wheat/gluten Crunch—Contains wheat/gluten Nestle Butterfinger Egg with pieces in chocolate—Contains wheat/gluten Nestle Crunch Nest Eggs—Contains wheat/gluten Hundred Grand Bar—Contains wheat/gluten P
    PAAS eggs—Contains wheat/gluten Palmer’s Double Crisp chocolate candy (including Bunnies, Bunnyettes, Pops, Chick a Dees, Bunny Munny and Eggs)—Contain wheat/gluten Palmer’s Lil’ Crispy chocolate bunny—Contains wheat/gluten Palmer’s My Little Bunny—Contains wheat/gluten Palmer’s Cookies ‘n Creme Eggs—Contains wheat/gluten Palmer’s Crispy Peanut Butter flavored eggs—Contains wheat/gluten Palmer’s Eggbert Double Crisp—Contains wheat/gluten Palmer’s Quax hollow milk flavored candy duck (“The Yummy Ducky”) Peter Rabbit real milk chocolate bunny—Made in a facility that uses peanuts, tree nuts and wheat Peter Rabbit hollow milk chocolate bunny—Made in a facility that uses peanuts, tree nuts and wheat R
    Reese’s milk chocolate and peanut butter eggs (mini eggs foil-wrapped individually)—Contains wheat/gluten Reese’s mini-Reester Bunnies—Contains wheat/gluten Russell Stover chocolate candy—Made in a facility that uses peanuts, tree nuts and wheat S
    Snickers Eggs—Label states: May contain tree nuts, egg, and wheat. Snickers Creme Sports Eggs—Label states: May contain tree nuts, egg, and wheat. SpongeBob Squarepants Eggs plastic egg with sour candy and stickers—Made in a facility that uses peanuts, tree nuts and wheat SpongeBob Squarepants gummy Krabby Patties—Made in a facility that processes peanuts, tree nuts and wheat SweetTart Gummy Bunnies (Wonka)—Contains wheat/gluten T
    Trolli Gummi Bunnies—Made in a facility that processes peanuts, tree nuts and wheat Twix—Contains wheat/gluten Twizzlerscandy—Contains wheat/gluten Twizzlers Tweeters—Contains wheat/gluten Twizzlers Rainbow Twists—Contains wheat/gluten Twizzlers Strawberry Mini Bars—Contains wheat/gluten Twizted Strawberry Blast pull-n-peel candy—Contains wheat/gluten W
    Whitman’s Sampler—Made in a facility that processes peanuts, tree nuts and wheat Whoppers Robin Eggs, including mini-Robbin Eggs—Contains wheat/gluten Wonka’s Eggs—Made in a facility that processes peanuts, tree nuts and wheat Wonka Easter Nerds Rope—Made in a facility that processes peanuts, tree nuts and wheat Wonka Mix-Ups (including SweeTart chews, Laffy Taffy, SweeTarts, and Nerds)—Made in a facility that processes peanuts, tree nuts and wheat Wonka Oompas and the Wonka Bar are NOT gluten–free. CANDY MANUFACTURERS
    Here is a partial list of major candy manufacturers and how to contact them:
    Adams & Brooks – 213-749-3226 American Licorice Co. – 866-442-2783 BEE International – 619-710-1800 Ferrara Candy Company – 888-247-9855 Ferrero Rocher – 732-764-9300 FLIX – 847-647-1370 Gimbal’s Fine Candies – 888-841-9373 Goetze’s Candy Company – 410-342-2010 Hershey's – 800–468–1714. Here's a link to Hershey's official gluten-free list. Impact Confections – 303-626-2222 Jelly Belly – 800–522–3267 Just Born – 888–645–3453. Here's a link to Just Born Gluten-free FAQs Kraft Foods – 877-535-5666 Mars Chocolate – 800–627–7852 Necco – 781–485–4800 Nestle USA – 800–225–2270 Palmer – 610 372-8971 Pearson's – 800–328–6507 PEZ – 203.795.0531 Pop Rocks – 770-399-1776 Tootsie Roll – 773–838–3400 Additional information and lists of gluten-free safe and unsafe candies can be found at:
    About.com Celiaccentral.com Celiacfamily.com DivineCaroline.com Surefoodliving.com Foodallergyfeast Medpedia Glutenfreefacts

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
    The team cross-referenced each article with the words ‘Asia,’ ‘Europe,’ ‘Africa,’ ‘South America,’ ‘North America,’ and ‘Australia.’ They defined celiac diagnosis based on European Society of Pediatric Gastroenterology, Hepatology, and Nutrition guidelines. The team used 96 articles of 3,843 articles in their final analysis.
    Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals. That means that numerous people with celiac disease potentially remain undiagnosed.
    Rates of celiac disease were 0.4% in South America, 0.5% in Africa and North America, 0.6% in Asia, and 0.8% in Europe and Oceania; the prevalence was 0.6% in female vs 0.4% males. Celiac disease was significantly more common in children than adults.
    This systematic review and meta-analysis showed celiac disease to be reported worldwide. Blood test data shows celiac disease rate of 1.4%, while biopsy data shows 0.7%. The prevalence of celiac disease varies with sex, age, and location. 
    This review demonstrates a need for more comprehensive population-based studies of celiac disease in numerous countries.  The 1.4% rate indicates that there are 91.2 million people worldwide with celiac disease, and 3.9 million are in the U.S.A.
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.

    Jefferson Adams
    Celiac.com 06/16/2018 - Summer is the time for chips and salsa. This fresh salsa recipe relies on cabbage, yes, cabbage, as a secret ingredient. The cabbage brings a delicious flavor and helps the salsa hold together nicely for scooping with your favorite chips. The result is a fresh, tasty salsa that goes great with guacamole.
    3 cups ripe fresh tomatoes, diced 1 cup shredded green cabbage ½ cup diced yellow onion ¼ cup chopped fresh cilantro 1 jalapeno, seeded 1 Serrano pepper, seeded 2 tablespoons lemon juice 2 tablespoons red wine vinegar 2 garlic cloves, minced salt to taste black pepper, to taste Directions:
    Purée all ingredients together in a blender.
    Cover and refrigerate for at least 1 hour. 
    Adjust seasoning with salt and pepper, as desired. 
    Serve is a bowl with tortilla chips and guacamole.

    Dr. Ron Hoggan, Ed.D.
    Celiac.com 06/15/2018 - There seems to be widespread agreement in the published medical research reports that stuttering is driven by abnormalities in the brain. Sometimes these are the result of brain injuries resulting from a stroke. Other types of brain injuries can also result in stuttering. Patients with Parkinson’s disease who were treated with stimulation of the subthalamic nucleus, an area of the brain that regulates some motor functions, experienced a return or worsening of stuttering that improved when the stimulation was turned off (1). Similarly, stroke has also been reported in association with acquired stuttering (2). While there are some reports of psychological mechanisms underlying stuttering, a majority of reports seem to favor altered brain morphology and/or function as the root of stuttering (3). Reports of structural differences between the brain hemispheres that are absent in those who do not stutter are also common (4). About 5% of children stutter, beginning sometime around age 3, during the phase of speech acquisition. However, about 75% of these cases resolve without intervention, before reaching their teens (5). Some cases of aphasia, a loss of speech production or understanding, have been reported in association with damage or changes to one or more of the language centers of the brain (6). Stuttering may sometimes arise from changes or damage to these same language centers (7). Thus, many stutterers have abnormalities in the same regions of the brain similar to those seen in aphasia.
    So how, you may ask, is all this related to gluten? As a starting point, one report from the medical literature identifies a patient who developed aphasia after admission for severe diarrhea. By the time celiac disease was diagnosed, he had completely lost his faculty of speech. However, his speech and normal bowel function gradually returned after beginning a gluten free diet (8). This finding was so controversial at the time of publication (1988) that the authors chose to remain anonymous. Nonetheless, it is a valuable clue that suggests gluten as a factor in compromised speech production. At about the same time (late 1980’s) reports of connections between untreated celiac disease and seizures/epilepsy were emerging in the medical literature (9).
    With the advent of the Internet a whole new field of anecdotal information was emerging, connecting a variety of neurological symptoms to celiac disease. While many medical practitioners and researchers were casting aspersions on these assertions, a select few chose to explore such claims using scientific research designs and methods. While connections between stuttering and gluten consumption seem to have been overlooked by the medical research community, there is a rich literature on the Internet that cries out for more structured investigation of this connection. Conversely, perhaps a publication bias of the peer review process excludes work that explores this connection.
    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023