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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    GLUTEN-FREE BEERS AND CIDERS FOR THE HOLIDAY SEASON AND BEYOND


    Jefferson Adams

    Celiac.com 11/16/2012 - Many of the increasing number of folks who suffer from celiac disease and/or gluten-intolerance also happen to love beer. So, what to do? For those who are loathe to give up on one of their favorite beverages, there are a number of delicious, gluten-free alternatives that will help to keep the smiles coming. For those who prefer cider over beer, we've also included a list of some mighty tasty, gluten-free ciders to warm you on the dark nights ahead.


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    Here is a partial list of gluten-free beers and ciders that will take even the most discerning gluten-free beer drinker through the holiday season and beyond:

    Gluten-free Beers

    Photo: CC--sanbeijiHarvester Brewing Dark Ale
    Harvester Brewing is a dedicated gluten-free brewery founded by James Neumeister in 2011, after his wife was diagnosed with celiac disease. Harvester's website says that every beer that they make is gluten-free, and "made in our brewery where no gluten containing items are allowed through the door." In place of wheat and/or barley, Neumeister uses chestnuts, which he roasts and brews specifically for each product Harvester makes.

    Harvester's Dark Ale uses a very dark, near espresso-like, roasted chestnuts, which yields a brew that has hints of chocolate, coffee, dark fruits, and a rich chestnut finish.

    Brunehaut Bio Amber
    Brunehaut's hefty, certified-organic amber ale uses de-glutenized barley to produce a rich, copper colored brew with a beige head, and notes of caramel and fresh bread with hoppy accents of pine and citrus, along with hints of vanilla, toffee, butterscotch and ripe fruit. Alcohol is 6.5% by volume.

    Estrella Damm Daura
    In 2011, Estrella Damm's gluten-free Daura fended off entries from all over the globe to win Gold Medals at the World Beer Championships and the International Beer Challenge, and won the World’s Best Gluten-free Lager Award at the World Beer Awards.

    Gluten-free beer drinkers consistently report that Daura is one of the best beers they have tasted. The beer has limited distribution in the US, and, for many gluten-free beer drinkers, finding it can be like finding the Holy Chalice. Here's a handy link to help you find Estrella Damm Daura in your area.

    Green’s Quest Gluten Free Tripel Blonde Ale
    For those who prefer Trappist style ales, but can't have the traditional malted barley, the folks at Green's use millet, sorghum, buckwheat, and rice, to brew a refermented tripel blonde ale that offers an herby, yeasty aroma, with hints of pear and apple, spice, and flavors of candied fruit. Alcohol is 8.5% by volume.

    Green's Endeavour Dubbel Ale
    Green's Endeavour is brewed in the classic dubbel fashion. The result is a brew that offers hints of dark-sugar and toffee flavor with a traditional Belgian yeast bouquet. Alcohol is 7.0% by volume.

    Green’s Discovery Amber Ale
    Green’s Discovery is a medium-bodied amber ale with subtle caramel and nut flavors, and a refined, herbal hop bouquet and finish. Alcohol is 6.0% by volume.

    Since 2004, Green's beers have been brewed in Lochristi, Belgium at the highly-regarded DeProef Brewery. Inspired by tasty, full-bodied European beers and developed to a closely guarded secret recipe, these strong beers offer a crisp taste and a refreshing flavor, while eliminating allergens. Because they are bottle-conditioned with genuine Belgian yeast, all of Green's Beers have a full five-year shelf life.

    According to Green's website, the characteristic tastes and aromas of their beers result from the specially selected de-glutenised barley malt and hop varieties and are brewed to age old recipes.

    New Planet Tread Lightly Ale
    For their gluten-free Tread Lightly Ale, New Planet uses sorghum, corn extract, orange peel, hops, and yeast to brew a refreshing, light bodied beer without the aftertaste of many sorghum-based beers.

    New Planet Off Grid Pale Ale
    For their Gluten-free Off Grid Pale Ale, New Planet uses sorghum and brown rice extract, molasses, tapioca maltodextrin, caramel color, hops, and yeast to produce a classically styled pale ale with a distinctly deep amber color and great character and body. Three varieties of hops impart a delightful citrus aroma and a spicy hop flavor.

    Omission Gluten-Free Lager,
    Omission uses aromatic hops to brew a refreshing and crisp beer in the traditional lager style. Alcohol is 4.6% by volume.

    Omission Gluten-Free Pale AleBold and hoppy, Omission Pale Ale is a hop-forward American Pale Ale, brewed to showcase the Cascade hop profile. Amber in color, Omission Pale Ale’s floral aroma is complimented by caramel malt body. Alcohol is 5.8% by volume.

    Their website states that, before shipping, Omission tests gluten levels in every batch both at the brewery, and at an independent lab, using the R5 Competitive ELISA gluten test, to ensure that the beers measure well below the Codex gluten-free standard of 20 ppm or less.

    Sprecher Shakparo Ale
    Sprecher's gluten free Shakparo Ale is a West African Shakparo-style beer brewed from sorghum and millet. An unfiltered, light, crisp ale with a cider or fruit highlights and a dry aftertaste.

    For the more adventurous, Sprecher also brews Mbege Ale, which is an unfiltered ale brewed with bananas, yes, bananas, in the African style. Light hints of banana remain present in the aroma and flavor of this unique offering.

    Steadfast Sorghum Pale Ale
    Steadfast brewery uses Cascade-and Columbus hops and White sorghum syrup and molasses to brew their golden amber, Indian/American-style Steadfast Sorghum Pale Ale. Alcohol is 6.8% by volume.

    Gluten-free Ciders

    Crispin Browns Lane
    Browns Lane by Crispin is a lightly sparking, crisply effervescent cider made with traditional English bittersweet cider apples sourced in the Malvern Hills of Worcestershire.

    The result is a rich cider with a dark straw color, and an aroma that evokes an almost traditional farmhouse cider bouquet. Soft, subtle natural apple sweetness up front, with a slightly dry, woody, lingering finish.

    Crispin Original Cider
    Crispin Super Premium Hard Apple Cider is naturally fermented using fresh pressed apple-juice, not apple-juice concentrate, from a premium blend of US West Coast apples, with no added malt, grape-wine, or spirit alcohol. The crisp flavor of Crispin is polished with pure apple juice, with no added sugar, colorants or sorbate or benzoate preservatives and cold filtered for crisp refreshment.

    Strongbow Cider
    Strongbow uses a traditional English recipe to brew a crisp, refreshing premium cider.

    Magners Cider
    Magners uses 17 varieties of apples and ferments their cider up to two years to deliver a full-bodied, well-rounded traditional cider.


    Image Caption: Photo: CC--sanbeiji
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    I am quite surprised to see this apparent endorsement for Omission beers and Estrella Damm Daura on celiac.com, where there are also plenty of posts attesting to the fact that the ELISA test cannot identify hordein, the offensive protein found in barley.

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    I am quite surprised to see this apparent endorsement for Omission beers and Estrella Damm Daura on celiac.com, where there are also plenty of posts attesting to the fact that the ELISA test cannot identify hordein, the offensive protein found in barley.

    There is more than one type of ELISA test. Omission uses the competitive R5 ELISA, which is specifically designed to detect hydrolyzed gluten. If they were to use the Sandwich R5 ELISA, underestimation might be a problem. But they don't.

     

    According to this study, there is no significant difference in either test's ability to detect proteins from the various cereals used in beer production (hordein from barley, secalin from rye and gliadin from wheat): http://link.springer.com/article/10.1007%2Fs00216-009-3080-6?LI=true

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    admin
    (Celiac.com 05/14/2000) Some bishops conferences (e.g.: Chile) have allowed communicants to take communion in the form of consacrated wine alone. Nowadays, in some countries (the U.K. for instance), wafers made of wheat which contains only traces of gluten - and hence probably not deletereous for the celiac patient - are being made. The Vatican has allowed the use of such wafers through a statement of the Congregation for the Doctrine of Faith of June 19th, 1995.
    The Bishops Conference of England and Wales, for instance, has stated recently that they follow the 1995 norms on low-gluten altar breads from the Congregation for the Doctrine of the Faith. In implementing these norms, the Conference established a certificate for those affected by the coeliac condition. This is then administered in the local diocese.
    The following comes from the report of the English and Welsh bishops meeting of November 1997. Certificate for coeliac sufferers:
    At its Low Week 1996 meeting, the Bishops Conference asked that its advisory panel on the coeliac condition draw up a suitable certificate for use by those with the coeliac condition to show that they have received permission for the use of low-gluten altar breads as valid matter for the celebration of Mass. Such a certificate was approved by the Bishops Conference. Britain has one of the highest rates of the coeliac condition in the world. This certificate enables sufferers to present a low-gluten host for consecration, particularly when traveling and in regions where they are not known by the priest. Those with the condition may obtain the certificate by applying to their parish priest. - Congregation for the Doctrine of the Faith, norms concerning the use of low-gluten altar breads and mustum [non-alcoholic wine] as matter for the celebration of the Eucharist, 22 June 1995.
    I. Concerning permission to use low-gluten altar breads: A. This may be granted by Ordinaries to priests and laypersons affected by celiac disease, after presentation of a medical certificate. B. Conditions for the validity of the matter: 1. Special hosts quibus glutinum ablatum est are invalid matter for the celebration of the Eucharist; 2. Low-gluten hosts are valid matter, provided that they contain the amount of gluten sufficient to obtain the confection of bread, that there is no addition of foreign materials, and that the procedure for making such hosts is not such as to alter the nature of the substance of the bread. II. Concerning permission to use mustum: A. The preferred solution continues to be Communion per intinctionem, or in concelebration under the species of bread alone. B. Nevertheless, the permission to use mustum can be granted by Ordinaries to priests affected by alcoholism or other conditions which prevent the ingestion of even the smallest quantity of alcohol, after presentation of a medical certificate. C. By mustum is understood fresh juice from grapes, or juice preserved by suspending its fermentation (by means of freezing or other methods which do not alter its nature). D. In general, those who have received permission to use mustum are prohibited from presiding at concelebrated Masses. There may be some exceptions however: in the case of a Bishop or Superior General; or, with prior approval of the Ordinary, at the celebration of the anniversary of priestly ordination or other similar occasions. In these cases, the one who presides is to communicate under both the species of bread and that of mustum, while for the other concelebrants a chalice shall be provided in which normal wine is to be consecrated. E. In the very rare instances of laypersons requesting this permission, recourse must be made to the Holy See. III. Common Norms: A. The Ordinary must ascertain that the matter used conforms to the above requirements. B. Permissions are to be given only for as long as the situation continues which motivated the request. C. Scandal is to be avoided. D. Given the centrality of the celebration of the Eucharist in the life of the priest, candidates for the priesthood who are affected by celiac disease or suffer from alcoholism or similar conditions may not be admitted to Holy Orders. E. Since the doctrinal questions in this area have now been decided, disciplinary competence is entrusted to the Congregation for Divine Worship and the Discipline of the Sacraments. F. Concerned Episcopal Conferences shall report to the Congregation for Divine Worship and the Discipline of the Sacraments every two years regarding the application of these norms. Thanks are given to Tom Horwood, Esq., Catholic Media Office, The Bishops Conference of England and Wales, and to Ernesto Guifaldes, M.D. of the Pontificia Unicersidad Catolica de Chile.

    According to the UK Coeliac Society you can now obtain gluten-free Communion Wafers from the following:
    Eiren Religious Supplies
    Concord House
    Union Drive
    Sutton Coldfield
    West Midlands
    IB73 5TE
    UK

    admin
    Summary prepared by Mardena Waller
    Here is the Summary on the Bioengineered Foods and Celiac Awareness meeting February 24, 2001 at Caltech, sponsored by CDF - Burbank, Glendale, Pasadena Connections Group. Pasadena (CA) Wild Oats provided free gluten-free foods, and is a stand-out, and nearly stand-alone, market promoting education on gmo-free foods. Let them know you appreciate what they are doing, and tell them you support them. Ask them for a copy of Genetically Engineered Foods - Are They Safe? (Scientists explain health and environmental risks.)
    Heres an example of what Marshall Crostowski cautioned: Question #1: Are biogeneticists working to reduce or eliminate gluten proteins adversely affecting celiac suffers?
    Short Answer: Glutens are mainly found in wheat and the related cereals barley, rye and triticale and are important components not only in baked goods but also in a large number of processed food, medicines and cosmetics. Most of the current genetic modifications are to increase the quantity and quality of gluten and to introduce wheat gluten genes into other crops such as barley, maize, sorghum, tobacco, and perhaps rice. There may be some research in Europe toward eliminating or neutralizing wheat gluten or the bodys immunological reaction to it.
    Gluten Biotech Watch recommends when you e-mail food companies asking about ingredients, tell them you dont want gmo foods, and ask them to go (and label) gmo/gluten-free! Groups and individuals can support companies that do, boycott companies that dont. Make some noise! To help, E-mail GBW at noyodelling@yahoo.com (we DO have a sense of humor!). Robert Jeffers, Ph.D., and Marshall Crostowski will lead GBW to monitor gmo/gluten research.

    Jefferson Adams
    Celiac.com 08/09/2012 - Among many gluten-free catholics, there's been a good deal of excitement lately about low-gluten and gluten-free communion wafers for Mass in the Catholic church.
    However, much of that excitement seems to have been misplaced, at least in Ohio. That's because the Catholic Diocese of Columbus recently said that gluten-free wafers don’t meet Vatican standards because they don’t contain wheat.
    For Catholics, consecrated bread and wine are the literal body and blood of Jesus, and the sacrament of Holy Eucharist is “the heart and the summit of the Church’s life,” according to its catechism.
    Because Jesus ate wheat bread with his apostles before his Crucifixion, church law requires the host to be wheat and only wheat, said Deacon Martin Davies, director of the Office for Divine Worship at the Diocese of Columbus. Without wheat, the wafers cannot be consecrated and used in Mass, so no gluten-free wafers.
    In 1995, the Vatican said low-gluten hosts are valid if they hold enough gluten to make bread. Worshippers wanting the low-gluten option were required to present a medical certificate and obtain a bishop’s approval.
    The policy was loosened in 2003 to eliminate the medical-certificate requirement and to allow pastors to grant approval. The Vatican also said that Catholics with celiac disease could receive Communion via wine only.
    However, for faithful catholics with celiac disease and gluten intolerance who want to participate more fully, the low-gluten version, which some say tastes terrible, remains the only communion wafer option.
    U.S. Catholic bishops have approved two manufacturers of low-gluten wafers. One is the Benedictine Sisters of Perpetual Adoration in Missouri; the order’s website says it has provided hosts for more than 2,000 celiac sufferers. The other is Parish Crossroads in Indiana, which provides low-gluten hosts made in Germany.
    The low-gluten wafers made by the Benedictine Sisters contain less than 100 parts per million, says Mary Kay Sharrett, a clinical dietitian at Nationwide Children’s Hospital. She said the amount of gluten in one of the hosts is 0.004 milligrams and that researchers have found it takes about 10 milligrams per day to start a reaction.
    The U.S. Food and Drug Administration has proposed a rule that says products could be labeled gluten-free if the gluten content is less than 20 parts per million.
    Source:
    The Columbus Dispatch

    Jefferson Adams
    Celiac.com 06/12/2013 - Pregnant women with higher levels of issue transglutaminase (anti-tTG), an antibody common in people with celiac disease, at risk for low fetal and birth weight in their babies, according to a new study in Gastroenterology.
    A number of studies before this one have confirmed an association between celiac disease and poor growth fetus growth, but very little study had been done as to how the level of celiac disease might affect fetal growth, birth weight or birth outcome.
    In an effort to better understand how the level of celiac disease affects fetal growth, birth weight, and birth outcome, a team of researchers set out to assess the associations between levels of antibodies against tissue transglutaminase (anti-tTG, a celiac disease marker) and fetal growth and birth outcomes for pregnant women.
    The research team included J.C. Kiefte-de Jong, V.W. Jaddoe, A.G. Uitterlinden, E. A. Steegers, S.P. Willemsen, A. Hofman, H.Hooijkaas, and H.A. Moll of the Generation R Study Group at Erasmus University Medical Center in Rotterdam, The Netherlands.
    They conducted a population-based prospective birth cohort study of 7046 pregnant women. Serum samples were collected during the second trimester of pregnancy and analyzed for levels of anti-tTG.
    Based on these levels, they grouped each woman into groups of negative anti-tTG (≤0.79 U/mL; n = 6702), intermediate anti-tTG (0.8 to ≤6 U/mL; n = 308), or high anti-tTG individuals (over 6 U/mL; n = 36). They then collected data for fetal growth and birth outcomes from ultrasound measurements and medical records.
    The fetal growth data showed that, on average, fetuses of women in the positive anti-tTG group were 16 g lighter than those of women in the negative anti-tTG group (95% confidence interval [CI], -32 to -1 g) during the second trimester and weighed 74 g less (95% CI, -140 to -8 g) during the third trimester.
    The birth outcome data revealed that newborns of women in the intermediate and positive anti-tTG groups weighed 53 g (95% CI, -106 to -1 g) and 159 g (95% CI, -316 to -1 g) less at birth, respectively, than those of women in the negative anti-tTG group. Of mothers in the intermediate anti-tTG group, those with HLA-DQ2 or -DQ8 had reduced birth weights that were double those of mothers without HLA-DQ2 or -DQ8.
    This study led the researchers to conclude that levels of anti-tTG in pregnant women are inversely associated with fetal growth. The higher the anti-tTG in women, the lower the birth weights of their babies. So, women with the highest levels of anti-tTG (over 6 U/mL) saw the greatest reduction in birth weight of their babies.
    Also, women with intermediate levels of anti-tTG (0.8 to ≤6 U/mL) saw lower birth weights that were even further reduced if they carried the HLA-DQ2 and -DQ8 gene markers.
    Source:
    Gastroenterology. 2013 Apr;144(4):726-735.e2. doi: 10.1053/j.gastro.2013.01.003.

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    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.