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    Jefferson Adams is a freelance writer living in San Francisco. He has covered Health News for Examiner.com, and provided health and medical content for Sharecare.com. His work has appeared in Antioch Review, Blue Mesa Review, CALIBAN, Hayden's Ferry Review, Huffington Post, the Mississippi Review, and Slate, among others.

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    Scott Adams
    The following report was prepared by Ann Whalen, celiac, and editor/publisher of Gluten-Free Living , which is a bimonthly newsletter for celiacs - Gluten-Free Living, PO Box 105, Hastings-on-Hudson, NY 10706.
    On March 10th, more than 20 members of the celiac community and celiac disease specialists (see list at end) attended a meeting of the Digestive Diseases Intra-agency Coordinating Committee, a part of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
    The meeting, held to update the current status of Celiac Disease, was chaired by Jay Hoofnagle, M.D., Director of the Division of Digestive Diseases and Nutrition at the NIDDK. At the meeting, presentations were made by Martin Kagnoff, M.D., Joseph Murray, M.D., Alessio Fasano, M.D., and Frank Hamilton, M.D.
    Dr. Kagnoff is a gastroenterologist and Professor of Medicine at the University of California, San Diego. He spoke about his research into the genetics of Celiac Disease, focusing on the pathogenesis. Dr. Kagnoff is well known for his research into the genetics of Celiac Disease, and several of his studies have been funded by the NIH.
    Dr. Murray, Associate Professor of Medicine and clinician at the University of Iowa Hospitals and Clinics, described his experience with Celiac Disease both in Iowa and in Ireland, noting that his interest in celiac disease is clinical. He emphasized what he called the Classic II symptoms, meaning the actual symptoms patients have today and not the Classic symptoms many doctors may be familiar with. He said the rate of diagnosis is proportional to suspicion.
    Dr. Murray described the celiac disease experience at the University of Iowa from 1985 to 1997, presenting statistics that indicated a steep increase in diagnosis. At our institution, Celiac Disease is an adult disease, he said, and is now seen as frequently as Crohns Disease.
    Anticipating the question, Why look for Celiac Disease?, Dr. Murray gave his reasons: preventing lymphoma and osteoporosis, as well as resolving fatigue and nonspecific symptoms and shortening the current significant delays in diagnosis.
    Dr. Fasanos presentation was called Where Have All the American Celiacs Gone? He described what has happened in the field of celiac disease in various parts of the world, including some parts of the United States, but emphasized the European experience. Dr. Fasano noted that plans are already underway in Italy to screen all seven-year-olds in 1999.
    Dr. Fasano explained why an epidemiology study is critically needed in this country. He pointed out the benefits of such a study for four groups:
    The American health care community: lower health care costs, increased awareness of celiac disease and more knowledge of its protein manifestations in the US Participating physicians: publications, more patients and increased credibility. The American people: the prevalence will be established and celiac disease will be diagnosed more quickly. Celiac Patients: free screening of first-degree relatives, federal support for dietary and drug regulations, an improved food supply, stronger local support groups and more funding for celiac research. Dr. Fasano added that such a study, whatever its findings, would end in a win-win situation for everyone. If the study shows that celiac disease is underestimated in this country, patients will benefit as physicians begin looking for the problem with the knowledge that they might well find it. If the study shows celiac disease is indeed rare in the United States, its even more exciting because we will be able to figure out why.
    Dr. Hamilton, chief of the Digestive Diseases Program Branch at the NIDDK, briefly described the celiac disease research, to date, that has already been funded by the NIH. He said $1.4 million has been granted for such research, adding that over the last five years, we have seen growth in the funding of Celiac Disease. He said he was pleased funding has increased, and felt a lot of work has to be done.
    Dr. Hamilton ended by saying, Todays meeting will serve as an impetus for a partnership between the National Institutes of Health, academe, and the lay groups to foster more research. He added that it was important for the investigators and support group representatives present at the meeting to get the word out, referring to information about Celiac Disease.
    These talks were followed by a round table discussion, between the members of the committee and the presenters. Later, audience comment was invited. The committee showed an interest in the current adult nature of the disease, the changing symptoms, current testing methods, and identification of the most critical research needs. Patients who spoke were anxious to let the committee know what they felt were the important concerns in the real world.
    At the end of the meeting, Dr. Hoofnagle said his division will prepare a short, pithy plan, then present it to Drs. Kagnoff, Murray and Fasano. He noted that the important issues are pathogenesis, delivering the message to physicians, clinical research issues and pediatric health concern.
    Some Quotes from the Meeting
    Elaine Monarch: There is a general lack of knowledge, awareness and interest in Celiac Disease among the medical profession. We celiacs can go for years with substantial symptoms but not diagnosis...The cost to the medical community is enormous.
    Joseph Murray, M.D.: There is more than one gene involved in Celiac Disease. Most Europeans are homogenous. Here we have a mongrelized population. What happens when you mix? How much does it change? Our mongrelized population may be at risk at a later age.
    Martin Kagnoff, M.D.: The issue of other genes is not at all clear. Like Joe (Dr. Murray), I see adult celiacs. Their time delay to diagnosis is not exaggerated, but what is striking is the lack of knowledge of doctors, even at the University of California. They really are not aware of this disease.
    Alessio Fasano, M.D.: We receive 10-15 calls a day. The vast majority are self diagnosed. They say, I know more than my gastroenterologist.
    Peter Green, M.D.: We need to emphasize education of gastroenterologists. At my institution (Columbia-Presbyterian Medical Center in New York City), doctors are not used to looking at the duodenum...We need to educate many levels of the medical community and tell them, If you dont recognize something, take a biopsy.
    Sue Goldstein: Im concerned about the people who have not yet been diagnosed and the reasons why a physician wont consider Celiac Disease. It all boils down to, its rare and you cant have it.
    In addition to the speakers, the following were among those who attended:
    Phyllis Brogden, celiac, founder and chairperson of the Greater Philadelphia Celiac Sprue Support Group. Winnie Feldman, celiac, Celiac Disease Foundation Kenneth Fine, M.D., gastroenterologist/ researcher at Baylor University Medical Center in Dallas. Al Fornace, M.D., celiac, National Cancer Institute Sue Goldstein, celiac, founder and advisor, Westchester Celiac Sprue Support Group Peter Green, M.D., clinician/researcher at Columbia-Presbyterian Medical Center in New York City. Joanne Hameister, celiac, former chairperson, Western New York Gluten-Free Support Group Ivor Hill, M.D., clinician/researcher at Bowman Gray School of Medicine, Winston-Salem, North Carolina. Beth Hillson, celiac and proprietor of the Gluten-Free Pantry. Karoly Horvath, M.D., clinician/researcher at the University of Maryland School of Medicine in Baltimore. Marge Johanamen, celiac, CSA Kentucky state coordinator Pam King, University of Maryland Bob Levy, Celiac Research Foundation Ruth Levy, spouse Jax Lowell, celiac and author of Against the Grain Elaine Monarch, celiac, founder and Executive Director of the Celiac Disease Foundation Selwyn J. Monarch, Board of Directors, CDF Diane Paley, celiac, governing board CSA/USA Michelle Pietzak, M.D., pediatric gastroenterologist at Childrens Hospital, Los Angeles Connie Tur, celiac, president Greater Louisville Celiac Sprue Support Group

    Scott Adams
    Gut Reaction is a one-hour radio documentary with The Gluten-Free Mall as a major underwriter, produced by Richard Paul for Public Radio with additional funding from the Celiac Sprue Association. Several stations across the USA have already aired it, and some got such a great listener response that they intend to air it again. You can help us spread the word about celiac disease in your community in a very simple way—we urge you to contact the program director of your local Public Radio station to request that they air Gut Reaction in your community. To locate the local director of your Public Radio station please click here:
    https://sgms.cpb.org/Public/PubPhoneBook.asp
    and use the info at the bottom of this article to fill in the form, which looks like this:
    SEARCH CRITERIA:
    First Name: Can be found in the list at the bottom of this article.
    Last Name: Can be found in the list at the bottom of this article.
    City: You can leave it blank if you dont know.
    State: (2 Character Postal Code): Can be found in the list at the bottom of this article.
    Entity Name: 4 digit radio call tag - Can be found in the list at the bottom of this article.
    Entity Type: Radio Station (select this).
    Once you have the contact information for the director of your Public Radio station, follow this advice from Richard Paul, the shows producer:
    Its best if you reach the program director directly and not leave a message on the listener-comment line and not send an email to the listener-comment email box.
    When you contact the program director, tell him or her that you want the station to play the show Gut Reaction. Dont have folks say You have to do this. Just, We want you to know that theres a community here that thinks this is important.
    It is vitally important to emphasize that Celiac Disease effects 1-in-133 Americans, though only 1-in-4,700 are ever diagnosed. And immediately after saying that, remind them of public radios public service mission. Tell them that it would be an enormous public service to notify the undiagnosed Celiacs in their listening audience. This point should be made strongly.
    Tell them that there will be a satellite feed of the show on January 7th and that the show is available right now via PRX (the Public Radio Exchange). Tell them that if theyre not a member of PRX, they can get the show at this web site – www.rlpaulproductions.com/interviews
    Tell them that she show is newscast compatible and that is has breaks at 20 and 40 (they will know what that means and they will consider it important).
    But EMPHASIZE the public service value of getting the word out to undiagnosed Celiacs. That will be the real drive-it-home point.
    If they ask how you found out about the show, mention how wired-together we Celiacs are -- how we share information with each other by email and so forth because doctors still know so little about the disease. You might suggest that because there is a large Celiac Community in their area, theres the chance that you could work together with the station on other get-the-word-out projects. Maybe if they have a daily talk show, people could come on and talk about celiac disease. Something like that.
    Anyway, I hope you can get folks together to get the word out.
    Thanks,
    Richard Paul
    rlpaulproductions, LLC
    List of Public Radio Program Directors by State (Search for their contact info here: https://sgms.cpb.org/Public/PubPhoneBook.asp). Find your station below:
    STATE: AL
    WBHM
    Michael Krall
    WJAB
    Ellen Washington
    WLRH
    Cheryl Carlson
    WLJS
    Josh Hilton
    WHIL
    JoAnn Breland
    WVAS
    Erica Fox
    WTSU
    Fred Azbell
    WUAL
    Roger Duvall
    STATE: AK
    KNBA
    Loren Dixon
    KSKA
    Bede Trantina
    KBRW
    Isaac Tuckfield
    KYUK
    Ron Daugherty
    KDLG
    Jeremy Cate
    KUAC
    Scott Diseth
    KZPA
    Irene Klatt
    KIYU
    Tim Bodony
    KHNS
    Byrne Power
    KBBI
    Sonya Oyler
    KTOO
    Jeff Brown
    KRBD
    Maria Dudzak
    KMXT
    Mike Wall
    KOTZ
    Jonathan Green
    KSKO
    Dusty Parker
    KFSK
    Suzanne Fuqua
    KCAW
    Valerie Lapinski
    KIAL
    Michael Edenfield
    KCHU
    Lisa West
    STATE: AZ
    KNAU
    KJZZ
    Scott Williams
    KUAT
    Lyle Kesterson
    KXCI
    Roger Greer
    KNNB
    Sylvia Browning
    KAWC
    Mark Reynolds
    STATE: AR
    KUAF
    Kyle Kellams
    KASU
    Marty Scarborough
    KUAR
    Ron Breeding
    STATE: CA
    KCHO
    Joe Oleksiewicz
    KVPR
    James Meyers
    KMUD
    Michael Jacinto
    KKJZ
    Sean Heitkemper
    KPFK
    Armando Gudino
    KUSC
    Eric Deweese
    KVMR
    Steve Baker
    KCSN
    Martin Perlich
    KAZU
    John McNally
    KPCC
    Craig Curtis
    KZYX
    Mary Aigner
    KXPR
    Carl Watanabe
    KVCR
    Steve Ward
    KPBS
    John Decker
    KALW
    Nicole Sawaya
    KQED
    Jo Anne Wallace
    KCBX
    Guy Rathbun
    KUSP
    Bonnie Jean Primbsch
    KCRW
    Ruth Seymour
    KBBF
    Francisco Carbajal
    KRCB
    Robin Pressman
    STATE: CO
    KRZA
    Deb Nichols
    KAJX
    Brent Gardner-Smith
    KGNU
    KDNK
    Luke
    KRCC
    Mario Valdes
    KBUT
    Shawna Claiborne
    KUVO
    Carlos Lando
    KUNC
    Kirk Mowers
    KSUT
    Steven Rauworth
    KVNF
    Jeff Reynolds
    KOTO
    Steve Kennedy
    STATE: CT
    WSHU
    Tom Kuser
    WNPR
    STATE: DC
    WAMU
    Mark McDonald
    WETA
    Ingrid Lakey
    STATE: FL
    WQCS
    Jim Holmes
    WGCU
    Haley Mitchell
    WUFT
    William Beckett
    WJCT
    Rick Johnson
    WFIT
    Todd Kennedy
    WDNA
    Michael Valentine
    WLRN
    Theodore Eldredge
    WMFE
    Mike Crane
    WUCF
    Kayonne Riley
    WKGC
    Wallace Crawford
    WUWF
    Joe Vicenza
    WFSU
    Caroline Austin
    WMNF
    Randy Wynne
    WUSF
    Robert Peterson
    WXEL
    Joanna Marie
    STATE: GA
    WUGA
    Robb Holmes
    WABE
    Lois Reitzes
    WCLK
    Bill Clark
    WRFG
    Evon Dooley
    WSVH
    Eric Nauert
    Stjohn Flynn
    network PD
    STATE: HI
    KHPR
    STATE: ID
    KBSU
    Jim East
    KRFA
    Mary Hawkins
    STATE: IL
    WSIU
    Jeff Williams
    WEFT
    Mick Woolf
    WBEZ
    Ron Jones
    WNIU
    Bill Drake
    WSIE
    Tom Dehner
    WIUM
    WCBU
    Nathan Irwin
    WQUB
    Mick Freeman
    WVIK
    Lowell Dorman
    WUIS
    Sinta Seiber-Lane
    WILL
    Jay Pearce
    STATE: IN
    WFIU
    Christina Kuzmych
    WVPE
    Lee Burdorf
    WNIN
    Daniel Moore
    WBNI
    Bruce Haines
    WFYI
    Richard Miles
    WBST
    Steven Turpin
    WVUB
    Michael Woods
    STATE: IA
    WOI
    Dave Becker
    KUNI
    Wayne Jarvis
    KCCK
    Bob Stewart
    KIWR
    Sophia John
    KSUI
    Joan Kirkman
    KWIT
    Gretchen Gondek
    KBBG
    Beverly Douglas
    STATE: KS
    KHCC
    Ken Baker
    KANU
    Darrell Brogdon
    KKSU
    Larry Jackson
    KRPS
    Tim Metcalf
    KMUW
    Mark McCain
    STATE: KY
    WKYU
    Peter Bryant
    WNKU
    Grady Kirkpatrick
    WUKY
    Stacy Yelton
    WFPK
    Stacy Owen
    WFPL
    Terry Rensel
    WMKY
    Charles Compton
    WKMS
    Mark Welch
    WEKU
    John Gregory
    WMMT
    Cheryl Marshall
    STATE: LA
    WBRH
    Larry Davis
    WRKF
    Shirley Sands
    KSLU
    Todd Delaney
    KRVS
    James Hebert
    KEDM
    Mark Simmons
    WWNO
    Fred Kasten
    WWOZ
    Dwayne Breashears
    KDAQ
    Adam Giblin
    STATE: ME
    WERU
    Joe Mann
    WMPG
    Jim
    WMEA
    Charles Beck
    STATE: MD
    WBJC
    Jonathan Palevsky
    WYPR
    Andy Bienstock
    WSCL
    Pamela Andrews
    STATE: MA
    WFCR
    Bob Paquette
    WBUR
    Peter Lydotes
    WGBH
    Steve Charbonneau
    WUMB
    Brian Quinn
    WCAI
    STATE: MI
    WGVU
    Rick Bierling
    WUOM
    Jon Hoban
    WDET
    Judy Adams
    WKAR
    Curt Gilleo
    WMUK
    Klayton Woodworth
    WNMU
    Nicole Walton
    WBLV
    Steve Albert
    WEMU
    Clark Smith
    STATE: MN
    KSJR
    Chris McNamara
    KUMD
    John Ziegler
    KAXE
    Mark Tarner
    KFAI
    Dan Richmond
    KUOM
    Mark LaCroix
    WCAL
    Michael Rathke
    MPR
    Eric Nycklemoe
    STATE: MS
    WUSM
    Elliott Crawford
    WMPN
    Bob Holland
    STATE: MO
    KRCU
    Jason Brown
    KBIA
    John Bailey
    KOPN
    David Owens
    KJLU
    Dan Turner
    KCUR
    Bill Anderson
    KKFI
    John Jessup
    KXCV
    Patty Holley
    KUMR
    John Francis
    KSMU
    Mike Smith
    KDHX
    Beverly Hacker
    KWMU
    Mike Schrand
    KCMW
    Jon Hart
    STATE: MT
    KEMC
    Marvin Granger
    KUFM
    Michael Marsolek
    STATE: NE
    KUCV
    Nancy Finken
    KZUM
    Craig Lowe
    KIOS
    Robert Coate
    KVNO
    Mike Hagstrom
    STATE: NV
    KNPR
    Flo Rogers
    KUNR
    Bobbie Lazzarone
    STATE: NH
    WEVO
    Michael Arnold
    STATE: NJ
    WBJB
    Rick Robinson
    WBGO
    Thurston Briscoe
    STATE: NM
    KANW
    Judy Valdez
    KUNM
    Marcos Martinez
    KCIE
    Romaine Wood
    KRWG
    Colin Gromatzky
    KABR
    Ruby Herrera
    KENW
    Shannon Hearn
    KTDB
    Bernie Bustos
    KSHI
    Duane Chimoni
    STATE: NY
    WAMC
    David Galletly
    WSKG
    Kate Cook
    WFUV
    Chuck Singleton
    WBFO
    David Benders
    WNED
    Al Wallack
    Peter Goldsmith
    WSLU
    Jacqueline Sauter
    WEOS
    Liz Kenney
    WJFF
    Christine Ahern
    WBAI
    Bernard White
    WNYC
    Michael Ellcessor
    WRVO
    John Hurlbutt
    WXXI
    Peter Iglinski
    WMHT
    Marianne Potter
    WAER
    Ron Ockert
    WCNY
    Don Dolloff
    STATE: NC
    WCQS
    Barbara Sayer
    WUNC
    George Boosey
    WFAE
    Paul Stribling
    WDAV
    Frank Dominguez
    WNCU
    B.H. Hudson
    WFSS
    Janet Wright
    WSHA
    Rashad Muhaimin
    WZRU
    Brian Lewis
    WNCW
    Kim Clark
    WHQR
    Susan Dankel
    WFDD
    Jay Banks
    STATE: ND
    KEYA
    Jarle Kvale
    KCND
    Bill Thomas
    KMHA
    Clarence Sun
    STATE: OH
    WOUB
    Rusty Smith
    Bryan Gibson
    WGUC
    Robin Gehl
    WVXU
    George Zahn
    WCPN
    David Kanzeg
    WCBE
    Mike Randolph
    Dan Mushalko
    WOSU
    Susan Lyons-Johnson
    WKSU
    Vincent Duffy
    WMUB
    John Hingsbergen
    WGTE
    Barbara Heslope
    WCSU
    Dr. John Logan
    WYSO
    Tim Tattan
    WYSU
    David Luscher
    STATE: OK
    KCCU
    Mike Leal
    KGOU
    Jim John
    KOSU
    Ted Riley
    STATE: OR
    KSJK
    Eric Teel
    KMUN
    Elizabeth Grant
    KOAC
    Lynn Clendenin
    Michele - asst.
    KLCC
    Don Hein
    KRVM
    Raymond Scully
    KMHD
    Greg Gomez
    KBOO
    Chris Merrick
    KBPS
    Donna Ross
    KOPB
    Lynn Clendenin
    STATE: PA
    WDIY
    Neil Hever
    WQLN
    Tom Tysz
    WITF
    Craig Cohen
    WLCH
    Maria Delvalle
    WHYY
    Christine Dempsey
    WRTI
    Jack Moore
    WXPN
    Bruce Warren
    WQED
    Ted Sohier
    WYEP
    Rosemary Welsch
    WPSU
    Kristine Allen
    STATE: SC
    WLTR
    John Gasque
    WSSB
    Jimmy White
    STATE: SD
    KILI

    KUSD
    Matt Weesner
    STATE: TN
    WUTC
    Mark Colbert
    WETS
    Dan Hirschi
    WUOT
    Daniel Berry
    WKNO
    Dan Campbell
    WYPL
    Chris Carwile
    WMOT
    Greg Lee Hunt
    WPLN
    Henry Fennell
    STATE: TX
    KUT
    Hawk Mendenhall
    KVLU
    Byron Balentine
    KAMU
    Rod Zent
    KETR
    Vicki Holloway
    KEDT
    Stewart Jacoby
    KERA
    Abby Goldstein
    KTEP
    Dennis Woo
    KMBH
    Chris Maley
    KTSU
    Aaron Cohen
    KUHF
    Robert Stevenson
    KTPB
    Manny Almanza
    KNCT
    Dan Hull
    KOHM
    Clinton Barrick
    KOCV
    Daphne Dowdy
    KPVU
    Charles Porter
    KPAC
    Nathan Cone
    STATE: UT
    KUSU
    Lee Austin
    KZMU
    Christine Williams
    KPCW
    Jan Govednik
    KBYU
    Walter Rudolph
    KRCL
    Ryan Tronier

    STATE: VT
    WVPR
    Jody Evans
    STATE: VA
    WTJU
    Charles Taylor
    WMRA
    Matt Bingay
    WHRV
    Dwight Davis
    WCVE
    Wayne Farrar
    STATE: WA
    KBCS
    Kristen Walsh
    KWSU
    Mary Hawkins
    KUOW
    Jeff Hansen
    KPBX
    Verne Windham
    KPLU
    Joey Cohn
    STATE: WV
    WVPN
    James Muhammad
    WVMR
    Shaun Harvey
    STATE: WI
    WLSU
    Eugene Purcell
    WPR
    Joy Cardin
    WUWM
    Bruce Winter
    WOJB
    Nicki Kellar
    WXPR
    Walter Gander
    STATE: WY
    KUWR
    Roger Adams
    PD/station manager

    Jefferson Adams
    Celiac.com 02/10/2014 - Dunkin' Donuts is quietly ditching its much publicized, much anticipated campaign to introduce gluten-free donuts across the nation.
    Information is scant, as Dunkin' has not issued any official press release. Dunkin' Donuts did, however, release the following statement to Gluten-Free Living:
    "In 2013, we tested a gluten-free Cinnamon Sugar Donut and Blueberry Muffin in select markets. We are currently assessing the results of this test, as well as feedback from our guests and franchisees, and we do not have plans to launch these products nationally at this time. We are continuing to develop additional gluten-free products for future tests, and we remain committed to exploring ways to offer our guests gluten-free choices."
    Word is that the rollout was doomed partly by complaints about the quality of the gluten-free donuts Dunkin' was offering, among other issues.
    We will do our best to keep you updated on this and other gluten-free stories.
    In the meantime, what do you think of the news? Is it better to not do gluten-free at all than to do it poorly? Are you disappointed? Share your comments below.
    Source:
    Glutenfreeliving.com

    Jefferson Adams
    Celiac.com 11/03/2014 - Some data have suggested that introducing gluten to infants at 4 to 6 months of age can help to lower the risk of celiac disease. To get a clearer picture of any potential benefits of introducing gluten within this time period, a team of researchers performed a multi-center, randomized, double-blind, placebo-controlled dietary-intervention study.
    The research team included Sabine L. Vriezinga, M.D., Renata Auricchio, M.D., Enzo Bravi, M.S., Gemma Castillejo, M.D., Anna Chmielewska, M.D., Ph.D., Paula Crespo Escobar, B.Sc., Sanja KolaÄek, M.D., Ph.D., Sibylle Koletzko, M.D., Ph.D., Ilma R. Korponay-Szabo, M.D., Ph.D., Eckart Mummert, Ph.D., Isabel Polanco, M.D., Ph.D., Hein Putter, Ph.D., Carmen Ribes-Koninckx, M.D., Ph.D., Raanan Shamir, M.D., Ph.D., Hania Szajewska, M.D., Ph.D., Katharina Werkstetter, M.Sc., M.P.H., Luigi Greco, M.D., Ph.D., Judit Gyimesi, M.D., Corina Hartman, M.D., Caroline Hogen Esch, M.D., Ph.D., Erica Hopman, R.D., Ph.D., Anneli Ivarsson, M.D., Ph.D., Tunde Koltai, Ir., Frits Koning, Ph.D., Eva Martinez-Ojinaga, M.D., Chantal te Marvelde, B.Sc., Ana Pavic, M.D., Jihane Romanos, Ph.D., Els Stoopman, Vincenzo Villanacci, M.D., Ph.D., Cisca Wijmenga, Ph.D., Ricardo Troncone, M.D., Ph.D., and M. Luisa Mearin, M.D., Ph.D.
    For their study, the team recruited 944 children who were positive for HLA-DQ2 or HLA-DQ8, with at least one first-degree relative with celiac disease. From 16 to 24 weeks of age, 475 participants received 100 mg of immunologically active gluten daily, and 469 received placebo.
    The team then made periodic measurements of anti–transglutaminase type 2 and antigliadin antibodies. The overall goal was to determine the frequency of biopsy-confirmed celiac disease at 3 years of age.
    The team confirmed celiac disease through biopsy in 77 children, while three more received a celiac diagnosis of based on the 2012 European Society for Pediatric Gastroenterology, Hepatology, and Nutrition diagnostic criteria for a total of 80 celiac children.
    The cumulative incidence of celiac disease among patients 3 years of age was 5.2% (95% confidence interval [CI], 3.6 to 6.8), with similar rates in the gluten group and the placebo group (5.9% [95% CI, 3.7 to 8.1] and 4.5% [95% CI, 2.5 to 6.5], respectively; hazard ratio in the gluten group, 1.23; 95% CI, 0.79 to 1.91). Both groups also showed similar rates of elevated levels of anti–transglutaminase type 2 and antigliadin antibodies (7.0% [95% CI, 4.7 to 9.4] in the gluten group and 5.7% [95% CI, 3.5 to 7.9] in the placebo group; hazard ratio, 1.14; 95% CI, 0.76 to 1.73).
    The team also noted that breast-feeding, regardless of whether it was exclusive or whether it was ongoing during gluten introduction, had no substantial impact on the later development of celiac disease.
    Compared to the placebo, introducing small quantities of gluten to high-risk children at 16 to 24 weeks of age had no impact on rates of celiac disease at 3 years of age. So, basically, the data show that there is no need for parents to fret or worry about when their child first begins to consume gluten.
    There is no magic window or timeframe for introducing gluten to their child’s diet that will change the risk for developing celiac disease later on.
    Source:
    N Engl J Med 2014; 371:1304-1315October 2, 2014. DOI: 10.1056/NEJMoa1404172

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/25/2018 - The latest studies show that celiac disease now affects 1.2% of the population. That’s millions, even tens of millions of people with celiac disease worldwide. The vast majority of these people remain undiagnosed. Many of these people have no clear symptoms. Moreover, even when they do have symptoms, very often those symptoms are atypical, vague, and hard to pin on celiac disease.
    Here are three ways that you can help your healthcare professionals spot celiac disease, and help to keep celiacs gluten-free: 
    1) Your regular doctor can help spot celiac disease, even if the symptoms are vague and atypical.
    Does your doctor know that anemia is one of the most common features of celiac disease? How about neuropathy, another common feature in celiac disease? Do they know that most people diagnosed with celiac disease these days have either no symptoms, or present atypical symptoms that can make diagnosis that much harder? Do they know that a simple blood test or two can provide strong evidence for celiac disease?
    People who are newly diagnosed with celiac disease are often deficient in calcium, fiber, folate, iron, magnesium, niacin, riboflavin, vitamin B12, vitamin D, and zinc. Deficiencies in copper and vitamin B6 are less common, but still possible. Also, celiac disease is a strong suspect in many patients with unexplained nutritional anemia. Being aware of these vague, confusing symptoms of celiac disease can help people get bette advice, and hopefully speed up a diagnosis.
    2) Your dentist can help spot celiac disease
    Does your dentist realize that dental enamel defects could point to celiac disease? Studies show that dental enamel defects can be a strong indicator of adult celiac disease, even in the absence of physical symptoms. By pointing out dental enamel defects that indicate celiac disease, dentists can play an important role in diagnosing celiac disease.
    3) Your pharmacist can help keep you gluten-free
    Does your pharmacist know which medicines and drugs are gluten-free, and which might contain traces of gluten? Pharmacists can be powerful advocates for patients with celiac disease. They can check ingredients on prescription medications, educate patients to help them make safer choices, and even speak with drug manufacturers on patients’ behalf.
    Pharmacists can also help with information on the ingredients used to manufacture various vitamins and supplements that might contain wheat.
    Understanding the many vague, confusing symptoms of celiac disease, and the ways in which various types of health professionals can help, is a powerful tool for helping to diagnose celiac disease, and for managing it in the future. If you are suffering from one or more of these symptoms, and suspect celiac disease, be sure to gather as much information as you can, and to check in with your health professionals as quickly as possible.

    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
    Ingredients:
    2 cans gluten-free green chili enchilada sauce (I use Hatch brand) 1 small head cauliflower, roasted and chopped 6 ounces chicken meat, browned ½ cup cotija cheese, crumbled ½ cup queso fresco, diced 1 medium onion, diced ⅓ cup green onions, minced ¼ cup radishes, sliced 1 tablespoon cooking oil 1 cup chopped cabbage, for serving ½ cup sliced cherry or grape tomatoes, for serving ¼ cup cilantro, chopped 1 dozen fresh corn tortillas  ⅔ cup oil, for softening tortillas 1 large avocado, cut into small chunks Note: For a tasty vegetarian version, just omit the chicken, double the roasted cauliflower, and prepare according to directions.
    Directions:
    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
    Add chicken and brown lightly on both sides. 
    Remove chicken to paper towels to cool.
     
    Cut cauliflower into small pieces and place in the oiled pan.
    Roast in oven at 350F until browned on both sides.
    Remove from the oven when tender. 
    Allow roasted cauliflower to cool.
    Chop cauliflower, or break into small pieces and set aside.
    Chop cooled chicken and set aside.
    Heat 1 inch of cooking oil in a small frying pan.
    When oil is hot, use a spatula to submerge a tortilla in the oil and leave only long enough to soften, about 10 seconds or so. 
    Remove soft tortilla to a paper towel and repeat with remaining tortillas.
    Pour enough enchilada sauce to coat the bottom of a large casserole pan.
    Dunk a tortilla into the sauce and cover both sides. Add more sauce as needed.
    Fill each tortilla with bits of chicken, cauliflower, onion, and queso fresco, and roll into shape.
    When pan is full of rolled enchiladas, top with remaining sauce.
    Cook at 350F until sauce bubbles.
    Remove and top with fresh cotija cheese and scallions.
    Serve with rice, beans, and cabbage, and garnish with avocado, cilantro, and sliced grape tomatoes.

     

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

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    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
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