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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    MORE CELEBRITIES GO GLUTEN-FREE: GUESS WHO?


    Jefferson Adams

    Celiac.com 03/21/2012 - What do Zooey Deschanel, Keith Olbermann and Billy Bob Thornton have in common with tennis stars Novak Djokovic and Andy Murray? They are all eating gluten-free.


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    Photo: CC-breezy421Cases of celiac disease have quadrupled in the past 60 years, according to recent research. As the number of people diagnosed with celiac disease and gluten sensitivity continues to rise, so, too, does the of celebrities who avoid gluten due to celiac disease or gluten-sensitivity.

    It's not just major athletes, like tennis stars Novak Djokovic and Andy Murray, for whom sporting success requires peak conditioning and efficient nutritional uptake.

    The number Hollywood A-listers and other celebrities who have hoisted the gluten-free flag is rising, as well, and many are singing the praises of their gluten-free diet. Novak Djokovic, for example, credits his switch to a gluten-free diet to his rise to the top of his game, and near dominance in pro tennis events over the last year.

    A partial list of some noteworthy celebrities and athletes who reportedly follow a gluten-free diet due to celiac disease, gluten-intolerance, or other reasons include:
    pro quarterback Drew Brees, news anchor Heidi Collins, Katherine, Dutchess of Kent, news host Keith Olbermann, actor and writer Billie Bob Thornton, author Sarah Vowell, and actresses Zooey Deschanel, Susie Essman, Jennifer Esposito, Goldie Hahn, Gwyneth Paltrow, Emily Rossum, and Rachel Weisz.

    Let's not forget that first-daughter emeritus Chelsea Clinton's gluten-free wedding cake made quite a splash.

    So, with the growing awareness of celiac disease, and a rising interest in all things gluten-free, count on seeing more gluten-free celebrities and athletes in the news.

    And, before you roll your eyes, remember that increased awareness of celiac disease and the gluten-free diet are both upsides of high-profile athletes and celebrities touting a gluten-free diet.


    Image Caption: Photo: CC-breezy421
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    Guest Charlie

    Posted

    How many of the celebs are gluten-free because of celiac disease and how many are just fad gluten-free dieters try to be cool or fashionable?

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    Guest admin

    Posted

    How many of the celebs are gluten-free because of celiac disease and how many are just fad gluten-free dieters try to be cool or fashionable?

    From the perspective of bringing more attention to this issue, it really doesn't matter does it? In this case I believe that any publicity is good publicity.

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    Guest Gluten Dude

    Posted

    I'm very surprised celiac.com would promote this kind of stuff on their site. Celebrities going gluten free does not help our cause. It just diminishes it.

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    Guest Charlie

    Posted

    Good question , it's good to raise awareness and get publicity, but I think celebs going gluten-free for fashion takes away the seriousness of celiac disease?

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    Guest dappycharlie

    Posted

    How many of the celebs are gluten-free because of celiac disease and how many are just fad gluten-free dieters try to be cool or fashionable?

    Yes, who cares? The celebs may help to get the message out much quicker than we can...

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    Emmy Rossum is celiac. She was the young actress & singer in Phantom of the Opera 2004.

     

    I don't care if "famous" people go gluten-free for health or fad reasons. As long as there is good publicity, the more foods & recipes become available to all gluten-free people and the safer it becomes for us to eat out!

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    Guest admin

    Posted

    I'm very surprised celiac.com would promote this kind of stuff on their site. Celebrities going gluten free does not help our cause. It just diminishes it.

    The publicity that a single celebrity can bring to this disease and diet can't be matched by all the support groups combined. Elisabeth Hasselbeck, for example, likely caused more people to become aware of this diet than all my work over the last 15 years...so why is that a bad thing?

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    Guest JennaB

    Posted

    It is a serious issue, if people believe it is just for fad purposes it leaves us true sufferers at risk because people won't take the needed precautions to keep us safe. I have heard it said "so and so is on a gluten free diet, and they are not as strict as you" they don't have celiac disease that is why they aren't as strict.

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    Guest Nancy

    Posted

    Do you not believe in non-celiac gluten sensitivity? Some of us don't have the gene but cannot tolerate gluten. Don't we count, too?

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    Guest admin

    Posted

    It is a serious issue, if people believe it is just for fad purposes it leaves us true sufferers at risk because people won't take the needed precautions to keep us safe. I have heard it said "so and so is on a gluten free diet, and they are not as strict as you" they don't have celiac disease that is why they aren't as strict.

    I believe that the less people who know about this the more you are at risk--celebrities are bringing a huge awareness to celiac disease and the gluten-free diet, which makes you less at risk.

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    Guest Gluten Dude

    Posted

    The publicity that a single celebrity can bring to this disease and diet can't be matched by all the support groups combined. Elisabeth Hasselbeck, for example, likely caused more people to become aware of this diet than all my work over the last 15 years...so why is that a bad thing?

    Because "going gluten free" is not the cause we want to promote. Being an advocate for celiac is what's important. Who cares what celebrities are gluten free if they don't have celiac disease? It's a tabloid headline that perpetuates the myth that going gluten free is cool.

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    Guest admin

    Posted

    Because "going gluten free" is not the cause we want to promote. Being an advocate for celiac is what's important. Who cares what celebrities are gluten free if they don't have celiac disease? It's a tabloid headline that perpetuates the myth that going gluten free is cool.

    I glad you know the cause I want to promote Gluten Dude. I have an idea, your promote your cause your way, and I'll do the same...how does that sound?

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    Guest jessica

    Posted

    I don't see any harm in this type of article. I think it can even be comforting to some to see other people (even the famous) with the disease or intolerance. It makes us feel less alone and mutant.

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    Guest Kimberly McClain

    Posted

    If it wasn't for an article I read about Jennifer Esposito and her celiac symptoms I would never have known that I to had some of the same ailments leading me to be tested positive for celiac. I was always under the impression I had exzema. I believe any info is beneficial. And the more people who chose to be gluten-free means numbers sway in our direction and that is never a bad thing.

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    Guest MamaWalser

    Posted

    It actually made me smile to discover that I have something in common with (in my opinion) the most beautiful and talented woman in the world, Zooey Deschanel. Also, as Drew Brees is the national spokesperson for Advocare, it is EXTREMELY helpful to know that he is gluten intolerant/sensitive!

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    Guest gfmomma

    Posted

    The more that know about it the better! The more that know the more healthy options I have.as long as I'm still vigilent I don't see how it's more dangerous. My server in my restaurant knows what gluten is, and that's a great start to getting a healthy meal!

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    admin

    Celiac.com 06/12/2006 - Starting with the May 2006 school lunch menu, the Mendon Upton Regional School District will be serving gluten free meals. Mr. Paul Daigle, Superintendent of Schools commented: “Food allergies have become an increasingly important area of concern in our public schools. The district is committed to provide all students with a safe and healthy school lunch experience.” Anne Crisafulli, the district’s Food Service Coordinator, put her can-do attitude to work to identify and provide for gluten free meals to be available for the children in the district who have celiac disease and/or are gluten sensitive.
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    A new parent group will be formed to identify and address gluten and other common food issues that are of concern in the Mendon Upton public school system. The kickoff meeting is scheduled for May 18, 2006 at 7:00 in the Miscoe Hill School Auditorium. For more information please contact one of the chairpersons: Diane Mercier (508) 529-4433, Shirley Warren (508) 529-3552 or Daniele West (508) 634-3936.

    Jefferson Adams
    Celiac.com 08/05/2013 - It's well-publicized that the market for gluten-free products continues to experience double-digit growth. A new analysis of the various segments of the global gluten-free product market is helping researchers to better understand the finer aspects of the market, and to better forecast global volume and revenue prospects for gluten-free products. It also looks at the major forces both driving and impeding the global gluten-free product market.
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    Jefferson Adams
    Celiac.com 03/13/2014 - Two recent articles in Bloomberg Businessweek offer some excellent lessons for companies seeking to introducing gluten-free products at the retail level. Both articles are by associate Bloomberg Businessweek editor Venessa Wong.
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    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
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    Celiac.com 04/18/2018 - To the relief of many bewildered passengers and crew, no more comfort turkeys, geese, possums or other questionable pets will be flying on Delta or United without meeting the airlines' strict new requirements for service animals.
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    admin
    WHAT IS CELIAC DISEASE?
    Celiac disease is an autoimmune condition that affects around 1% of the population. People with celiac disease suffer an autoimmune reaction when they consume wheat, rye or barley. The immune reaction is triggered by certain proteins in the wheat, rye, or barley, and, left untreated, causes damage to the small, finger-like structures, called villi, that line the gut. The damage occurs as shortening and villous flattening in the lamina propria and crypt regions of the intestines. The damage to these villi then leads to numerous other issues that commonly plague people with untreated celiac disease, including poor nutritional uptake, fatigue, and myriad other problems.
    Celiac disease mostly affects people of Northern European descent, but recent studies show that it also affects large numbers of people in Italy, China, Iran, India, and numerous other places thought to have few or no cases.
    Celiac disease is most often uncovered because people experience symptoms that lead them to get tests for antibodies to gluten. If these tests are positive, then the people usually get biopsy confirmation of their celiac disease. Once they adopt a gluten-free diet, they usually see gut healing, and major improvements in their symptoms. 
    CLASSIC CELIAC DISEASE SYMPTOMS
    Symptoms of celiac disease can range from the classic features, such as diarrhea, upset stomach, bloating, gas, weight loss, and malnutrition, among others.
    LESS OBVIOUS SYMPTOMS
    Celiac disease can often less obvious symptoms, such fatigue, vitamin and nutrient deficiencies, anemia, to name a few. Often, these symptoms are regarded as less obvious because they are not gastrointestinal in nature. You got that right, it is not uncommon for people with celiac disease to have few or no gastrointestinal symptoms. That makes spotting and connecting these seemingly unrelated and unclear celiac symptoms so important.
    NO SYMPTOMS
    Currently, most people diagnosed with celiac disease do not show symptoms, but are diagnosed on the basis of referral for elevated risk factors. 

    CELIAC DISEASE VS. GLUTEN INTOLERANCE
    Gluten intolerance is a generic term for people who have some sort of sensitivity to gluten. These people may or may not have celiac disease. Researchers generally agree that there is a condition called non-celiac gluten sensitivity. That term has largely replaced the term gluten-intolerance. What’s the difference between celiac disease and non-celiac gluten-sensitivity? 
    CELIAC DISEASE VS. NON-CELIAC GLUTEN SENSITIVITY (NCGS)
    Gluten triggers symptoms and immune reactions in people with celiac disease. Gluten can also trigger symptoms in some people with NCGS, but the similarities largely end there.

    There are four main differences between celiac disease and non-celiac gluten sensitivity:
    No Hereditary Link in NCGS
    Researchers know for certain that genetic heredity plays a major role in celiac disease. If a first-degree relative has celiac disease, then you have a statistically higher risk of carrying genetic markers DQ2 and/or DQ8, and of developing celiac disease yourself. NCGS is not known to be hereditary. Some research has shown certain genetic associations, such as some NCGS patients, but there is no proof that NCGS is hereditary. No Connection with Celiac-related Disorders
    Unlike celiac disease, NCGS is so far not associated with malabsorption, nutritional deficiencies, or a higher risk of autoimmune disorders or intestinal malignancies. No Immunological or Serological Markers
    People with celiac disease nearly always test positive for antibodies to gluten proteins. Researchers have, as yet, identified no such antobodies or serologic markers for NCGS. That means that, unlike with celiac disease, there are no telltale screening tests that can point to NCGS. Absence of Celiac Disease or Wheat Allergy
    Doctors diagnose NCGS only by excluding both celiac disease, an IgE-mediated allergy to wheat, and by the noting ongoing adverse symptoms associated with gluten consumption. WHAT ABOUT IRRITABLE BOWEL SYNDROME (IBS) AND IRRITABLE BOWEL DISEASE (IBD)?
    IBS and IBD are usually diagnosed in part by ruling out celiac disease. Many patients with irritable bowel syndrome are sensitive to gluten. Many experience celiac disease-like symptoms in reaction to wheat. However, patients with IBS generally show no gut damage, and do not test positive for antibodies to gliadin and other proteins as do people with celiac disease. Some IBS patients also suffer from NCGS.

    To add more confusion, many cases of IBS are, in fact, celiac disease in disguise.

    That said, people with IBS generally react to more than just wheat. People with NCGS generally react to wheat and not to other things, but that’s not always the case. Doctors generally try to rule out celiac disease before making a diagnosis of IBS or NCGS. 
    Crohn’s Disease and celiac disease share many common symptoms, though causes are different.  In Crohn’s disease, the immune system can cause disruption anywhere along the gastrointestinal tract, and a diagnosis of Crohn’s disease typically requires more diagnostic testing than does a celiac diagnosis.  
    Crohn’s treatment consists of changes to diet and possible surgery.  Up to 10% of Crohn's patients can have both of conditions, which suggests a genetic connection, and researchers continue to examine that connection.
    Is There a Connection Between Celiac Disease, Non-Celiac Gluten Sensitivity and Irritable Bowel Syndrome? Large Number of Irritable Bowel Syndrome Patients Sensitive To Gluten Some IBD Patients also Suffer from Non-Celiac Gluten Sensitivity Many Cases of IBS and Fibromyalgia Actually Celiac Disease in Disguise CELIAC DISEASE DIAGNOSIS
    Diagnosis of celiac disease can be difficult. 

    Perhaps because celiac disease presents clinically in such a variety of ways, proper diagnosis often takes years. A positive serological test for antibodies against tissue transglutaminase is considered a very strong diagnostic indicator, and a duodenal biopsy revealing villous atrophy is still considered by many to be the diagnostic gold standard. 
    But this idea is being questioned; some think the biopsy is unnecessary in the face of clear serological tests and obvious symptoms. Also, researchers are developing accurate and reliable ways to test for celiac disease even when patients are already avoiding wheat. In the past, patients needed to be consuming wheat to get an accurate test result. 
    Celiac disease can have numerous vague, or confusing symptoms that can make diagnosis difficult.  Celiac disease is commonly misdiagnosed by doctors. Read a Personal Story About Celiac Disease Diagnosis from the Founder of Celiac.com Currently, testing and biopsy still form the cornerstone of celiac diagnosis.
    TESTING
    There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
    Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis. Also, it is now possible to test people for celiac disease without making them concume wheat products.

    BIOPSY
    Until recently, biopsy confirmation of a positive gluten antibody test was the gold standard for celiac diagnosis. It still is, but things are changing fairly quickly. Children can now be accurately diagnosed for celiac disease without biopsy. Diagnosis based on level of TGA-IgA 10-fold or more the ULN, a positive result from the EMA tests in a second blood sample, and the presence of at least 1 symptom could avoid risks and costs of endoscopy for more than half the children with celiac disease worldwide.

    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com