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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    SUMMARY OF THE 02/24/2001 BIOENGINEERED FOODS AND CELIAC AWARENESS MEETING


    admin

    Summary prepared by Mardena Waller


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    Here is the Summary on the Bioengineered Foods and Celiac Awareness meeting February 24, 2001 at Caltech, sponsored by CDF - Burbank, Glendale, Pasadena Connections Group. Pasadena (CA) Wild Oats provided free gluten-free foods, and is a stand-out, and nearly stand-alone, market promoting education on gmo-free foods. Let them know you appreciate what they are doing, and tell them you support them. Ask them for a copy of Genetically Engineered Foods - Are They Safe? (Scientists explain health and environmental risks.)

    Heres an example of what Marshall Crostowski cautioned: Question #1: Are biogeneticists working to reduce or eliminate gluten proteins adversely affecting celiac suffers?

    Short Answer: Glutens are mainly found in wheat and the related cereals barley, rye and triticale and are important components not only in baked goods but also in a large number of processed food, medicines and cosmetics. Most of the current genetic modifications are to increase the quantity and quality of gluten and to introduce wheat gluten genes into other crops such as barley, maize, sorghum, tobacco, and perhaps rice. There may be some research in Europe toward eliminating or neutralizing wheat gluten or the bodys immunological reaction to it.

    Gluten Biotech Watch recommends when you e-mail food companies asking about ingredients, tell them you dont want gmo foods, and ask them to go (and label) gmo/gluten-free! Groups and individuals can support companies that do, boycott companies that dont. Make some noise! To help, E-mail GBW at noyodelling@yahoo.com (we DO have a sense of humor!). Robert Jeffers, Ph.D., and Marshall Crostowski will lead GBW to monitor gmo/gluten research.


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    Celiac.com 07/12/2004 - There have been numerous claims that traditional barley-based beers are gluten free or that all beers are gluten free. Unfortunately, the area is very grey and substantiated on technicalities. The purpose of this post is to eliminate the confusion about gluten as it relates to beer. Gluten is an umbrella term used to describe a mixture of individual proteins found in many grains. Celiac disease (celiac sprue or gluten intolerance, gluten sensitivity) is an autoimmune disorder that is triggered by the ingestion of some of these glutens. People with classic celiac disease are intolerant to the gluten proteins found in wheat, barley, rye, spelt and a couple other lesser known grains. All these grains have a relative of the gluten protein. Interestingly, corn, rice and sorghum also have gluten proteins but are not toxic to celiacs. Herein lies one of the fundamental problems; the use of the term gluten intolerance to cover only certain gluten containing grains is confusing for consumers and food manufacturers alike. Unfortunately, it seems that the inertia for using celiac disease and gluten intolerance as synonyms is unstoppable. Therefore, it becomes the responsibility of both consumers and manufacturers to make sure the terms being discussed are defined and understood.
    As this relates to beer, there is a gluten protein found in barley. This protein is known as hordein. Wheat gluten is known as gliadin. Rye gluten is known as secalin. Presently, assay tests (or lab tests) are only commercially available for the testing of gliadin. We are unaware of any tests for hordein or any manufacturer that presently tests for hordein (Note: If you know of anyone that does in fact test specifically for hordein, please let us know). Therefore the idea that a barley based beer can be considered gluten free based upon the lack of testing is very difficult to fathom. It should be understood that a company using an assay test for gliadin to test for hordein will not return accurate results.
    There has been widespread speculation that the brewing process eliminates these hordein proteins making all beers gluten-free. Although commercial assay tests for hordein are not available there is conclusive evidence that the brewing process does not degrade hordein to non-toxic levels. A research study in Australia on improving beer haze shows that hordein is still present in beer after the brewing process (http://www.regional.org.au/au/abts/1999/sheehan.htm). Therefore, claims that hordein or gluten is destroyed in the brewing process is unsubstantiated and clearly, based upon the Australian research, is highly questionable.
    Based upon the continuous claims by beer companies that beers are gluten free, it is clear that the issue is misunderstood and, as always, it is up to the consumer to educate them on the facts. Hopefully, the information provided here will give consumers and manufacturers alike the ability to discuss these gluten issues intelligently and effectively.
    About the author: Kevin Seplowitz is the President and Co-founder of the Bards Tale Research Company, LLC and organization that researches the correlations between nutrition, diet, and autoimmune disorders. Bards Tale Research owns and operates Bards Tale Beer Company, LLC (www.bardsbeer.com) a company that develops commercial gluten-free beers. Mr. Seplowitz is a diagnosed Celiac.

    admin
    Celiac.com 09/13/2010 - Happy National Celiac Disease Awareness Day! Here at Celiac.com we sometimes forget this special day because to us every day is Celiac Awareness Day!
    For those who don't know, each September 13th is the official "National Celiac Disease Awareness Day" due to United States Senate Resolution (S.Res. 563), which was adopted in 2006.
    September 13th was chosen for this important day because it is Dr. Samuel Gee’s birthday—who was the first medical doctor to discover a link between celiac disease and a person's diet, way back in the late 1800's. He once said "if the patient can be cured at all, it must be by means of diet."
    Celiac.com hereby proclaims that forthwith on this day EVERYONE should eat gluten-free—and everyone should also be sure to hug a celiac! Oh, and don't forget to give thanks to Dr. Gee before eating that gluten-free food—after all, if it weren't for him we would probably all be pretty miserable right now!
    More information about Dr. Samuel Gee can be found at:

    https://www.celiac.com/articles/77/1/The-Celiac-Affection-in-Children-1---Edinburgh-Med-Journ-Vol-XXXV-NOIV-Oct-1889-pp-321-330/Page1.html http://www.whonamedit.com/doctor.cfm/1312.html http://www.aim25.ac.uk/cgi-bin/search2?coll_id=7101&inst_id=8 Source:
    http://www.csaceliacs.org/documents/CeliacAwarenessDaySamuelGee.pdf

    Jefferson Adams
    Celiac.com 11/19/2012 - The U.S. market for gluten-free foods and beverages is growing even faster than projected, and will hit $4.2 billion by the end of 2012, according to the latest news from Packaged Facts.
    Demand for gluten-free foods and beverages will begin to slow a bit over the next five years, but is still projected to top $6.6 billion by 2017.
    According to the 2012 report, titled “Gluten-Free Foods and Beverages in the U.S.," the compound annual growth rate for gluten-free products rose 28% over previous four year period.
    Snack and granola bars led the overall, racking up 15% of total sales.
    According to the researchers, the growth is fueled by an increase in celiac disease and food allergy awareness among patients, healthcare practitioners, and the general public; awareness that has led to higher rates of diagnosis than before.
    These facts, coupled with the introduction of more and better products, and the tendency for friends and family members to eat gluten-free in support loved ones, are the major factors driving the ongoing growth of the market for gluten-free products.
    A survey done this past August by Packaged Facts showed that 18% of adult consumers are buying or eating gluten-free foods, compared with 15% in October 2010.
    Moreover, the number of gluten-free consumers who are buying more gluten-free foods has risen dramatically, while the percentage of total shoppers who are buying more gluten-free foods has doubled.
    According to David Sprinkle, research director at Packaged Facts, these numbers are driven by the belief that "gluten-free products are generally healthier…"
    Source:
    Food Product Design

    Jefferson Adams
    Celiac.com 12/07/2012 - In a recent interview with S.Z. Berg, singer/guitarist Allie Moss, who is best known for her single "Corner," discusses being diagnosed with gluten sensitivity, and adjusting her diet habits to regain her health.
    For Moss, her journey to the diagnosis began a few years back when she was diagnosed with acid reflux. She did not suffer from classic acid reflux symptoms, like heartburn. However, she did notice that she felt bloated and unhealthy even though she ate a fairly healthy diet. Her doctor had prescribed medication, and sent her on her way. However, Moss began to feel that the prescription was causing more problems than it was solving.
    Seeking an answer that would provide her some relief, she went to see a holistic doctor of nutrition. After considering her symptoms, the nutritionist suggested that she suffered from low, rather than high, acid, along with gluten sensitivity.
    Less than a week after she began her gluten-free diet, Moss said that she noticed substantial improvement, like she had been in a fog than suddenly lifted. She told Berg that she now feels "more alert and energetic overall," that her digestion "has improved dramatically, [her] skin is clearer, and [her] voice feels great."
    As a result, Moss says that she is rising to the challenge by changing the way she cooks at home, and the way she eats on the road. She makes sure to keep gluten-free food options on hand, "things like salad fixings, hard-boiled eggs, and gluten-free bread…" She also uses the website and iPhone app called Find Me Gluten Free, which she calls "a lifeline."
    Read the complete interview at Huffingtonpost.com.
     

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    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
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    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
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    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
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    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
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    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
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    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com