Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):

  • Join Our Community!

    Ask us a question in our celiac / gluten-free forum.

  • Scott Adams

    Researchers Seek Data on Celiac Disease and COVID-19 Viral Pneumonia Risk

    Scott Adams
    2 2
    Reviewed and edited by a celiac disease expert.

      Are people with celiac disease at greater risk of COVID-19, or viral pneumonia? Researchers are trying to get answers.

    The registry entry should be done by health care practitioners only, not patients. Image: CC BY 2.0--Got Credit
    Caption: The registry entry should be done by health care practitioners only, not patients. Image: CC BY 2.0--Got Credit

    Celiac.com 04/11/2020 - We know that people with celiac disease have higher risk of bacterial pneumonia, especially those who have not received a vaccine for pneumococcal pneumonia, which is recommended for everyone with celiac disease, even if you are young.

    However, we don't have any good information on whether people with celiac disease might be at higher risk for viral pneumonia, which is of special interest, given the outbreak of coronavirus. Do people with celiac disease have higher risk of getting cover? Are they at greater risk for viral pneumonia?

    Celiac.com Sponsor (A12):

    Celiac.com Sponsor (A12-m):

    Numerous people with celiac disease have sought guidance on these and related issues from clinicians, but there's been no study so far on celiac disease and viral pneumonia risk. There have also been no studies on celiac disease and coronavirus. Without data, there's only guesswork. The questions are serious enough for researchers to make a push to gather data related to celiac disease, COVID-19, and viral pneumonia risk.

    Benjamin Lebwohl, MD, MS, Director of Clinical Research, The Celiac Disease Center at Columbia University and colleagues have set up an online, confidential, de-identified secure registry for doctors worldwide to report cases of those with celiac disease who get Covid-19. The registry entry should be done by health care practitioners only, not patients.

    Dr. Lebwohl specifically mentions the increased risk for pneumococcal pneumonia in people with celiac disease as one reason to look for any elevated viral pneumonia risk in celiacs, among other risks. A recent email from Dr. Lebwohl to fellow celiac researchers reads as follows:


    We have been asked by our patients about whether celiac disease is an 'underlying condition' that may predispose to more severe outcomes. There have been some helpful responses by celiac organizations with an overall reassuring tone.

    Still, there are theoretical concerns related to the fact that patients with celiac disease have a slightly higher risk of developing zoster and complications from influenza and pneumococcal pneumonia, risks that persist in the long term after adoption of the gluten-free diet. Thankfully, these increases are small in magnitude, far smaller than risk factors such as immunosuppressant use or chronic lung disease.

    In the face of uncertainty, we should be studying this. Our group is working to set up an international, web-based registry of celiac disease patients with COVID-19. We will be inviting health care professionals to submit clinical details in a concise and easy-to-input way. The registry will contain only de-identified data.

    Stay tuned for more developments on this and related stories. Curious about the celiac disease, COVID-19, and viral pneumonia?

    Covid-19 Topics on Celiac.com Forums
    Keep up with the conversation or share information about coronavirus (Covid-19) and celiac disease on the Celiac.com Forum:
    Coronavirus More Susceptible to Celiacs?

    Covid-19 Resources
    Center for Disease Control
    UK Health Advice on Social Distancing

    Edited by Scott Adams

    2 2

    User Feedback

    Recommended Comments

    The only things that bother me about having celiac disease:

    1. The massive # of cross-reactors that leads to a severely restricted diet. E.g. yeast, egg, dairy, preservatives, oils (except EVVO) 

    2. Inability to eat at restaurants due to cross-contamination with wheat or yeast. 

    3. Demineralization & loss of enamel on teeth. Tooth #3 just cracked.

    4. Social isolation.

    5. Newest statistic found: 30% of the US population has some form of gluten sensitivity and/or intolerance.

    Pandora's Box is wide open.

    Share this comment

    Link to comment
    Share on other sites

    Join eNewsletter


    1.  Research Mast Cell Activation Syndrome and Histamine Intolerance.

    2.  Try the Autoimmune Protocol Diet (just meat and veg, like Steak and salad).

    3.  Eat your leafy greens like kale.     https://www.medicalnewstoday.com/articles/322585#non-dairy-sources-of-calcium

    4.  We're here for you on-line, like everybody else social isolating.

    5.  Research High Caloric Malnutrition and Thiamine deficiency.  And enjoy this article...


    Would you like to be poked by a stick every day?  I wouldn't.  

    Quit poking yourself with the stick of what you CAN'T have.   

    Concentrate on what you CAN do:

    You can adjust your attitude.

    You can be thankful your "cure" is good wholesome food and not chemotherapy or expensive medications or surgery.

    You can choose happiness.

    You can educate yourself!  

    Knowledge is POWER!

    You can be successful!


    Share this comment

    Link to comment
    Share on other sites

    Join eNewsletter

    Join the conversation

    You are posting as a guest. If you have an account, sign in now to post with your account.
    Note: Your post will require moderator approval before it will be visible.

    Add a comment...

    ×   Pasted as rich text.   Restore formatting

      Only 75 emoji are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.

  • About Me

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):

    Celiac.com Sponsors (A17-m):

  • Related Articles

    Jefferson Adams
    Celiac.com 06/22/2016 - Doctors generally recommend that celiac disease patients receive pneumococcal vaccination, but little has been done to quantify risk levels.
    A team of researchers recently set out to quantify the risk of community-acquired pneumonia among patients with celiac disease, assessing whether vaccination against streptococcal pneumonia modified this risk. The research team included F. Zingone, A. Abdul Sultan, C. J. Crooks, L. J. Tata, C. Ciacci & J. West. They are variously affiliated with the Division of Epidemiology and PublicHealth, University of Nottingham, CityHospital, Nottingham, UK, and with the Coeliac center within the...

    Jefferson Adams
    Celiac.com 03/18/2019 - There have been a few studies linking celiac disease to a higher risk of pneumonia and other related bacterial infections, but good data is still lacking. In an effort to clarify the picture a team of researchers recently set out to assess the risk of hospitalization for bacterial pneumonia or pneumococcal infections in a cohort of young individuals with celiac disease, compared to matched references.
    In all, the team looked at 213,635 residents of Friuli-Venezia Giulia, Italy, who were born in between 1989 and 2012. The team used various medical records to identify 1,294 celiac patients, along with 6,470 control patients...

    Jefferson Adams
    Celiac.com 03/19/2020 - The Covid-19 outbreak has people searching for answers regarding the virus, its symptoms and course, and any risk factors for certain groups. One question we are seeing a lot is: Do people with untreated celiac disease face a higher risk of developing complications with the coronavirus? Should they take extra precautions?
    The answers are not totally clear, but in the interest of keeping people with celiac disease informed, healthy and safe, here are some answers to some basic questions, along with some helpful tips for dealing with the Covid-19 outbreak. 
    We know that the coronavirus can cause extreme respiratory ...

    Scott Adams
    Celiac.com 03/27/2020 - Benjamin Lebwohl, MD MS (Adult Gastroenterologist, Columbia University Irving Medical Center) has opened an online, confidential, de-identified secure registry for doctors worldwide to report cases of those with celiac disease who get Covid-19. 
    Note that this is a doctors only registry: "Registry entry should be done by health care practitioners only, not patients," and is designed to allow physicians to report such cases, so that patient outcomes can be tracked. 
    The goal of the registry it to study whether those with celiac disease and Covid-19 infection will have different outcomes than those without CD.