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    Researchers Seek Data on Celiac Disease and COVID-19 Viral Pneumonia Risk

    Scott Adams
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    Reviewed and edited by a celiac disease expert.

      Are people with celiac disease at greater risk of COVID-19, or viral pneumonia? Researchers are trying to get answers.


    The registry entry should be done by health care practitioners only, not patients. Image: CC BY 2.0--Got Credit
    Caption: The registry entry should be done by health care practitioners only, not patients. Image: CC BY 2.0--Got Credit

    Celiac.com 04/11/2020 - We know that people with celiac disease have higher risk of bacterial pneumonia, especially those who have not received a vaccine for pneumococcal pneumonia, which is recommended for everyone with celiac disease, even if you are young.

    However, we don't have any good information on whether people with celiac disease might be at higher risk for viral pneumonia, which is of special interest, given the outbreak of coronavirus. Do people with celiac disease have higher risk of getting cover? Are they at greater risk for viral pneumonia?



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    Numerous people with celiac disease have sought guidance on these and related issues from clinicians, but there's been no study so far on celiac disease and viral pneumonia risk. There have also been no studies on celiac disease and coronavirus. Without data, there's only guesswork. The questions are serious enough for researchers to make a push to gather data related to celiac disease, COVID-19, and viral pneumonia risk.

    Benjamin Lebwohl, MD, MS, Director of Clinical Research, The Celiac Disease Center at Columbia University and colleagues have set up an online, confidential, de-identified secure registry for doctors worldwide to report cases of those with celiac disease who get Covid-19. The registry entry should be done by health care practitioners only, not patients.

    Dr. Lebwohl specifically mentions the increased risk for pneumococcal pneumonia in people with celiac disease as one reason to look for any elevated viral pneumonia risk in celiacs, among other risks. A recent email from Dr. Lebwohl to fellow celiac researchers reads as follows:

    Quote

    We have been asked by our patients about whether celiac disease is an 'underlying condition' that may predispose to more severe outcomes. There have been some helpful responses by celiac organizations with an overall reassuring tone.

    Still, there are theoretical concerns related to the fact that patients with celiac disease have a slightly higher risk of developing zoster and complications from influenza and pneumococcal pneumonia, risks that persist in the long term after adoption of the gluten-free diet. Thankfully, these increases are small in magnitude, far smaller than risk factors such as immunosuppressant use or chronic lung disease.

    In the face of uncertainty, we should be studying this. Our group is working to set up an international, web-based registry of celiac disease patients with COVID-19. We will be inviting health care professionals to submit clinical details in a concise and easy-to-input way. The registry will contain only de-identified data.

    Stay tuned for more developments on this and related stories. Curious about the celiac disease, COVID-19, and viral pneumonia?

    Covid-19 Topics on Celiac.com Forums
    Keep up with the conversation or share information about coronavirus (Covid-19) and celiac disease on the Celiac.com Forum:
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    Coronavirus More Susceptible to Celiacs?

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    Edited by Scott Adams

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    The only things that bother me about having celiac disease:

    1. The massive # of cross-reactors that leads to a severely restricted diet. E.g. yeast, egg, dairy, preservatives, oils (except EVVO) 

    2. Inability to eat at restaurants due to cross-contamination with wheat or yeast. 

    3. Demineralization & loss of enamel on teeth. Tooth #3 just cracked.

    4. Social isolation.

    5. Newest statistic found: 30% of the US population has some form of gluten sensitivity and/or intolerance.

    Pandora's Box is wide open.

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    Laura,

    1.  Research Mast Cell Activation Syndrome and Histamine Intolerance.

    2.  Try the Autoimmune Protocol Diet (just meat and veg, like Steak and salad).

    3.  Eat your leafy greens like kale.     https://www.medicalnewstoday.com/articles/322585#non-dairy-sources-of-calcium

    4.  We're here for you on-line, like everybody else social isolating.

    5.  Research High Caloric Malnutrition and Thiamine deficiency.  And enjoy this article...

    https://www.prevention.com/food-nutrition/healthy-eating/a20436562/why-modern-wheat-is-considered-frankenwheat/

    Would you like to be poked by a stick every day?  I wouldn't.  

    Quit poking yourself with the stick of what you CAN'T have.   

    Concentrate on what you CAN do:

    You can adjust your attitude.

    You can be thankful your "cure" is good wholesome food and not chemotherapy or expensive medications or surgery.

    You can choose happiness.

    You can educate yourself!  

    Knowledge is POWER!

    You can be successful!

    ?

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  • About Me

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.


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