Jump to content
  • Sign Up
  • Join Our Community!

    Get help in our celiac / gluten-free forum.

  • Phillipa Sheard
    Phillipa Sheard

    The Happiest Child

    Reviewed and edited by a celiac disease expert.

      Journal of Gluten Sensitivity Winter 2010 Issue. NOTE: This article is from a back issue of our popular subscription-only paper newsletter. Some content may be outdated.


    Caption: Image: CC BY-SA 2.0--m_e_mccarron

    Celiac.com 11/22/2019 - Our son, Howard, was diagnosed with multiple, life-threatening food allergies, meaning he is allergic to almost everything but cocoa.  He also reacts to airborne and contact allergens so he cannot touch play dough, ice cream, gluten, meats, peanuts, shellfish, eggs and milk. 

    The most common question I am asked is: “Then what do you feed him?” Howard is fed foods that are rated class 3 and below, which includes rice, potatoes, beans, quinoa, and vacuum-packed tilapia fish.  He must be pre-medicated daily with Xyzal for hives and rash, and Qvar inhalant to protect his lungs, all of which is much better than having a feeding tube.

    Since Howard is also allergic to cats, dogs, and cockroaches, his allergies restrict social encounters to places where these allergens are less likely to be present.  Therefore, I used to take him to the Cortlandt Town Center, where he was given special attention by Mr.  Willie who works at Walmart.  He gave Howard smiley face stickers and Howard could also interact with other kids shopping with their parents.  Jimmy, from the Mohegan Lake Post Office, used to let Howard play with his pigs.  Mrs. Lan from Rite Aid, just spoiled him with all sorts of gifts.  Although Howard was happiest during those times, he would sometimes say, “Mommy, I am sad.  I want to go to school and meet friends that are not cousins.” So I tried to find him a daycare.  We were rejected at every one I found because they said it would be difficult for them to monitor Howie.  It saddened me each time he was rejected.

    One day, as I was standing in line at TD Bank in Jefferson Valley, I saw a man wearing a Mohegan Lake Fire Department T-Shirt and I asked him about a recent incident in our community.  Meanwhile, Howie was clowning around with Frank, an employee of TD Bank, who asked if I had found a school for Howard yet.  The fireman, Mr. Tommy Russo, asked if I had tried Tom Thumb because the fire department could respond to them in 5 minutes.  He also mentioned that his wife works there and that Mrs.  Brody would never turn a kid away.

    I drove straight from the bank to Tom Thumb and met Mrs.  Brody and told her that my son wanted to go to school but no one wanted him because of his allergies.  She said, “We have two kids with allergies and we have the Mohegan Lake Fire Department next door so we will be happy to take him.” She told me to inform the staff that he would be attending pre-school at Tom Thumb and to make sure we got an Action Plan from his pediatrician and allergist.

    After leaving Tom Thumb I went to the Mohegan Lake Fire Department and spoke to the Chief who let Howie sit and have his picture taken in the fire truck.  He told me that “He’s in good hands.” 

    Howard is now the happiest child in the world.  Tom Thumb is ordering gluten free Play Dough for the entire school.  They are even changing the finger paint to protect any children who might have unrecognized allergies.  

    I would like to thank: Dr. Rodd Stein of Yorktown Pediatrics and Dr. Robert Goldman of Hudson Valley Asthma and Allergy Associates for saving our son’s life; Doctors Cox and Novak from Mt.  Sinai Kravis Children’s Hospital; Dr Parvez and Lenn from Maria Fareri Childrens Hospital; Dr. Li and Dr. Hom from Westchester Medical; Mrs. Roberta Gershner, the nutritionist who is part of Howie’s team; The staff at Mrs. Green’s in Yorktown Heights; Susan Zajicek, Ingrid Smith, and Karen Miller of Three Dogs Gluten-Free Bakery who will take on the challenge of making the first birthday cake that Howard can eat.
     
    Thanks to you all.  We love you.


    User Feedback

    Recommended Comments

    Fantastic!!!  What a wonderful community to come together in support of one another!!  I’m so happy to hear about the wonderful people in your lives doing what we were put on earth to do. Thank you for sharing your sweet boy and his triumphs with us!!  

    Share this comment


    Link to comment
    Share on other sites
    Guest Mtn Momma Celiac

    Posted

    I just read the article about the boy with severe allergies & HIVES. I was diagnosed with celiac disease 12 years ago. 10 & 5 years Previous to diagnosis I had HIVES for 5 months & 9 months-having two breakouts per day over most of my body & angio edema where my lips & face swelled up occurred several times a week.  None  of the doctors could come up with a cause & I was given lots of antihistamines. 
    In 2008 I got hives that lasted 4 1/2 years that suddenly stopped. I didn't know why until I read an article that linked hives to Hashimotos disease.  I had been taking Levothroxine for thyroid for at least a year.   Fast forward to 2018 & I asked my dr to check for Hashimotos. He said it didn't matter that the treatment was the same. Any way, I was tested & it came back positive.  At lease I now have a cause & no more hives. 

    Share this comment


    Link to comment
    Share on other sites
    24 minutes ago, Guest Mtn Momma Celiac said:

    I just read the article about the boy with severe allergies & HIVES. I was diagnosed with celiac disease 12 years ago. 10 & 5 years Previous to diagnosis I had HIVES for 5 months & 9 months-having two breakouts per day over most of my body & angio edema where my lips & face swelled up occurred several times a week.  None  of the doctors could come up with a cause & I was given lots of antihistamines. 
    In 2008 I got hives that lasted 4 1/2 years that suddenly stopped. I didn't know why until I read an article that linked hives to Hashimotos disease.  I had been taking Levothroxine for thyroid for at least a year.   Fast forward to 2018 & I asked my dr to check for Hashimotos. He said it didn't matter that the treatment was the same. Any way, I was tested & it came back positive.  At lease I now have a cause & no more hives. 

    Me too!  Hives.  I do have Hashimoto’s and Autoimmune Gastritis (which is commonly linked to Hashimoto’s, so heads up).  A celiac disease flare up, will trigger my hives. Like clockwork, they would erupt every afternoon — head to toe.  My allergist suspect Mast Cell issues too as bug bites and medications will caused me to faint, vomit, and swell, in addition to the hives.     For me, they lasted for just six months or so.  I am sorry you went years suffering.  

    I am on a strict gluten-free diet with a focus of avoiding most processed foods.  Finally, I am really well.  No more hives, even with a bug bite.  Have not had the courage to try any NSAIDs (ibuprofen/aspirin) or acetaminophen  yet.  

    Share this comment


    Link to comment
    Share on other sites

    I have the same problem. Sounds like he either has a genetic immune deficiency and/or mast cell activation disorder or mastocytosis. I have both myself. Needs an immunologist and treatment for mast cell disorder to see if improves, he's already on part of the treatment.

    Share this comment


    Link to comment
    Share on other sites
    7 hours ago, Guest Bluewriter said:

    I have the same problem. Sounds like he either has a genetic immune deficiency and/or mast cell activation disorder or mastocytosis. I have both myself. Needs an immunologist and treatment for mast cell disorder to see if improves, he's already on part of the treatment.

    I agree with Bluewriter  it sounds a lot like Mast Cell Activation. Not every allergist knows about it so if it hasn’t been brought up as a possibility it doesn’t mean it isn’t one. Fortunately, there are treatments other than antihistamines like mast cell stabilizers and Xolair, which for me from being limited to five foods to eating in restaurants. Please find us on Facebook. We’re a large community who knows what you’re going through.

    Share this comment


    Link to comment
    Share on other sites


    Join the conversation

    You are posting as a guest. If you have an account, sign in now to post with your account.
    Note: Your post will require moderator approval before it will be visible.

    Guest
    Add a comment...

    ×   Pasted as rich text.   Paste as plain text instead

      Only 75 emoji are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.


  • About Me

    Phillipa lives in New York with her son Howard.

×
×
  • Create New...