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  • Scott Adams
    Scott Adams

    United States - Doctors

    Reviewed and edited by a celiac disease expert.

    California

    Marvin Ament, M.D. - Pediatrician
    UCLA Medical Center
    200 UCLA Medical Plaza
    10833 La Conte Avenue
    Los Angeles, CA 90024
    Tel: (310) 206-6134
    Fax: (310) 206-0203

    Jeffrey M. Aron, M.D., Gastroenterologist
    2330 Post Street, Suite 460
    San Francisco, CA 94115
    Tel: (415) 563-3534

    Micheal Bender, M.D. - Gastroenterologist
    1828 El Camino Real
    Burlingame, CA
    Tel: (415) 692-1373

    Amy Burkhart, MD, RD
    1100 Lincoln Ave. Suite 200
    Napa, CA 94558
    Tel: (707) 927-5622
    Internet: www.TheCeliacMD.com

    Dr. Anders Dahlstrom, MD, PhD
    Pediatric Gastroenterology
    2505 Samaritan Drive, Suite 504
    San Jose, CA 95124
    Tel: (408) 358-3573
    Fax: (408) 356-2888

    Jesse Dohemann, M.D.
    California Pacific Medical Center
    San Francisco, CA
    Tel: (415) 923-3673

    Richard W. Fisher,M.D. - Gastroenterologist
    Gould Medical Foundation
    600 Coffee Rd.
    Modesto, CA
    Tel: (209) 524-1211

    Gary Gray, MD
    Professor of Medicine, Emeritus (Gastroenterology)
    269 Campus Dr., CCSR 3115; MC: 5187
    Stanford University Med. Ctr.
    Stanford, CA 94305
    Tel: (650) 725-6467

    Paul Harmatz, M.D.
    Children's Hospital
    Oakland, CA

    Dolores Kent CNC, CPT (Not an M.D.)
    Clinical Nutrition Designs For Health
    Specializing In Celiac Desase
    Morgan Hill, CA 95037
    Tel: (408) 710-5277
    E-mail: dolores.kent@gmail.com

    John Kerner, M.D. - Pediatrician
    Stnaford Medical center
    Stanford, CA
    Tel: (650) 723-5070
    Fax: (650) 723-2137

    John La Puma MD FACP
    123 West Padre Street, Suite B
    Santa Barbara  CA 93101
    Tel: (805) 284-2238

    Dr Charles Menz Gastroenterologist
    168 Brent St Suite 404
    Ventura, California 93003
    Tel: (805) 641-6525

    Dr Carrie Mousseau
    HealthNOW Medical Center
    1309 S. Mary Ave, Suite 100
    Sunnyvale, CA 94087
    Tel (408) 733-0400

    Dr. Olusola A. Oyemade
    Pediatrics and Ped. Nephrology
    77 Milliken, Ste. 360
    Rancho Cucamonga, CA 91730
    Tel: (909) 944-7099

    Michelle Pietzak, M.D.
    4650 Sunset Blvd.
    MS #78-Division of Gastroenterology
    Los Angeles, CA 90027
    Tel: (323) 669-2181
    http://chla.org/gastroenterology.cfm

    Samuel Marcus, M.D.
    2485 Hospital Drive, Suite 240
    Mountain View, CA 94040
    Tel: (650) 988 7488

    Frank Sinatra, M.D. - Pediatrician
    Children's Hospital and USC Medical Center
    Los Angeles, CA
    Tel: (213) 226-3801

    Dan Thomas, M.D. - Pediatrician
    Children's Hospital LA
    Tel: (213) 669-2181

    Dr. Joel M. Wittles
    36243 Inland Valley Drive #40
    Wildomar, CA 92595 909-600-0288

     

    Colorado

    Lawrence (Jack) Adams
    Colorado Springs Neurological Associates, P.C.
    175 S Union Blvd # 310
    Colorado Springs, CO 80910
    Tel: (719) 473-3272

    Pete H. Baker, M.D.,FACP
    Swedish Medical Plaza
    499 E. Hampden Ave., Suite 420
    Englewood, CO 80110
    Tel: (303)-788-8888
    Fax: (303)-788-6452

    Scot M. Lewey, D.O., FACP, FAAP
    Certified American Board Internal Medicine, Gastroenterology, Pediatrics
    Gastroenterology Associates of Colorado Springs
    1699 Medical Center Point
    Colorado Springs, CO 80907
    Tel: (719) 632-7101 or (719) 632-4468

    Dr. Ted. Stathos
    Rocky Mountain Pediatric Gastroneterologists
    1601 East Ninteenth Ave.
    Suite 3700
    Denver, CO 80218
    Tel: (303) 869-2121

    District of Columbia

    Parvathi Mohan, M.D. - Gastroneterologist
    Children's Hopital
    1111 Michigan Ave.
    N.W. Washington D.C. 20010

    Florida

    Dr. Juan Carrere
    4790 Barkley Circle
    Fort Myers, FL 33907

    Georgia

    Dr. Agnes Han
    960 Johnson Ferry Rd., Suite 515
    Atlanta, GA 30342
    Tel: (404) 252-8803

    Cynthia Rudert, M.D.
    5555 Peachtree Dunwoody Rd., Suite 312
    Atlanta, GA 30342
    Tel: (404) 943-9820

    Idaho

    Angela House, DO
    FP/Nutritional Medicine
    450 W. State St., Ste 250
    Eagle, ID 83616
    Tel: (208) 947-0925

    Illinois

    Dr. Alan F. Bain
    Chicago Health and Wellness Alliance
    55 E. Washington Street  #3305
    Chicago, IL 60602
    Tel: (312) 236-7010
    www.docintheloop.com

    Stefano Guandalini, MD
    University of Chicago Comer Children's Hospital
    5841 S. Maryland Ave MC 4065
    Chicago, IL 60637
    Tel: (773) 702-3051

    Barbara S. Kirschner, M.D.
    University of Chicago Comer Children's Hospital
    5841 S. Maryland Ave MC 4065
    Chicago, IL 60637
    Tel: (773)702-6152

    Indiana

    Arthur R. Baluyut, M.D., PhD
    Northside Gastroenterology
    8424 Naab Rd., 3-J
    Indianapolis, IN 46260
    Tel: (317) 872-7396

    Mark Bruns, M.D.
    Internist
    IU Medical Group
    1095 Broadripple Ave.
    Indianapolis, IN
    Tel: (317) 251-6121

    Dr. Joseph Fitzgerald
    Dr. Sonny Chong
    Dr. Joseph Croffie
    Dr. Sandeep Gupta
    Indiana University School of Medicine,
    Division of Gastroenterogy
    James Whitcomb Riley Hospital for Children
    Dept. of Pediatrics
    702 Barnhill Drive, Room 2728
    Indianapolis, IN 46202-5120
    Tel: (317) 274-3774

    Iowa

    David E. Elliott, MD, PhD
    Director, Celiac Disease Clinic
    University of Iowa Health Care
    200 Hawkins Road
    Iowa City, Iowa 52242
    Tel: (319)-356-4901

    John Kelly, M.D.
    Des Moines, IA

    Leon Qiao, M.D., Gastroenterologist
    931 8th Ave S.E.
    Cedar Rapids, IA 52401
    Tel: (319) 366-8695

    Kentucky

    M.K. Younoszai, M.D
    Pediatric Gastroenterologist
    Medical Towers North
    Suite 513
    Louisville, KY 40202
    Tel: (502) 629 5796

    Louisiana

    Firooz Jalili, MD
    Pedatric Gastroenterologist
    1211 Coolidge Blvd., Ste. 203
    Lafayette, LA 70503
    Tel: (337) 233-2535

    Maine

    Dr. John Bancroft (3 responses)
    Pediatric Gastroenterologist
    Maine Pediatrics Specialty Group
    887 Congress Street, Suite 420
    Portland, ME 04104
    Tel: (207) 772-2827

    Dr. Benjamin B. Potter
    Portland Gastroenterology Center
    1200 Congress Street, Suite 300
    Portland, ME 04102
    Tel: (207) 773-7964

    Dr. Igor Prokopiw
    1250 Forest Ave.
    Portland, ME 04103
    Tel: (207) 878-5100

    Dr. Michael A. Roy
    Portland Gastroenterology Center
    1200 Congress Street, Suite 300
    Portland, ME 04102
    Tel: (207) 773-7964

    Dr. Gilbert M Wilcox
    131 Chadwick Street, Suite 2
    Portland, ME 04102
    Tel: (207) 774-3461

    Maryland

    George Fantry, M.D. - Gastroenterologist
    University of Maryland in Baltimore
    Medical System
    22 S. Greene St.
    Baltimore, M.D. 21201
    Tel: (410) 328-5196

    Alessio Fassano, M.D. - Gastroenterologist/Pediatrician
    University of Maryland in Baltimore
    Medical System
    22 S. Greene St.
    Baltimore, M.D. 21201
    Tel: (410) 328-0812

    Karoly Horvath, M.D., Ph.D. - Gastroenterologist/Pediatrician
    Associate Professor of Pediatrics
    University of Maryland in Baltimore
    Medical System
    22 S. Greene St.
    Baltimore, M.D. 21201
    Tel: (410) 328-0812
    Fax: (410) 328-1072
    E-mail: khorvath@umabnet.ab.uM.D..edu

    David L. Hutcheon, M.D.
    10755 Falls Rd.
    Timonium, M.D. 21093
    Tel: (410) 583-2630

    Dr. Mark D. Noar, M.D., M.P.H, F.R.C.T.M.&H
    Therapeutic Endoscopy & Gastroenterology
    7402 York Road, Suite 100
    Towson, Maryland  21204
    Tel: (410) 494-1846

    Dr. Alan N. Schulman
    Digestive Disease Consultants
    15001 Shady Grove Road
    Rockville, MD 20850
    Tel: (301) 340-3252
    Fax: (301) 340-1423

    Massachusetts

    Catherine Petruff Cheney, M.D. - Gastroenterologist
    Beth Israel Deaconess Medical Center
    Divison of Gastroenterology and Hepatology
    330 Brookline Avenue
    Boston, MA 02215
    Phone: (617) 667-1846

    Myron Falchuck, M.D. - Gastroenterologist
    GI Associates Suite 8E
    110 Francis Street
    Boston, MA 02215
    Tel: (617) 734-5552

    Richard J. Grand, M.D. - Pediatrician
    New England Medical Center

    Ciaran Kelly, M.D. - Gastroenterologist
    Beth Isreal Hospital
    Boston, Massachusetts
    Tel: (617) 667-1272

    Gary J. Russell, M.D. - Pediatrician
    Massachusetts General Hospital

    Jerry S. Trier, M.D.
    Brigham & Women's Hosp
    75 Francis Street
    Boston, MA 02215
    Tel: (617) 732-5824

    Michigan

    Thomas J. Alexander, M.D., F.A.C.P., F.A.C.G
    Gastrointestinal Specialists, P.C.
    264 W. Maple Road, Suite 200
    Troy, MI 48084.
    Tel: (248) 273-9930

    Ann Silverman, MD
    Chief, Gastroenterology, Henry Ford Hospital
    West Bloomfield (Detroit)

    Minnesota

    Joseph Murray, M.D. - Gastroenterologist
    Mayo Clinic
    200 First St. S.W.
    Rochester, MN 55905
    Tel: (507) 284-2511
    E-mail: murray.joseph@mayo.edu

     

    Robert Wyllie, MD. - Pediatrician
    Mayo Clinic
    200 First St. S.W.
    Rochester, MN 55905
    Tel: (216) 444-2237

    Missouri

    Dr. Leonard Weinstock
    10287 Clayton Rd.
    St. Louis, MO
    Tel: (314) 997-0554

    Chandra Prakash, M.D., M.R.C.P.
    Assistant Professor of Medicine
    Washington University in St. Louis
    School of Medicine
    Campus Box 8124
    660 South Euclid Avenue
    St. Louis, MO. 63110-1093
    Tel: (314)747-2066

    Charlene Prather, M.D.
    St. Louis University Medical School
    Medical Group Building
    3660 Vista Avenue.
    St. Louis, MO 63110
    Tel: (314) 577-6150

    Nebraska

    Ed Schafer, M.D.
    Department Head at UNMC
    University of Nebraska
    Ddepartment of Gastroenterology
    Tel: (402) 552-2600

    David Watts, M.D., Dermatologist
    2808 S. 80th Ave.
    Omaha, NE
    Tel: (402) 390-0333

    Nevada

    Dr. Carl Dezenberg
    Pediatric Gastroenterology & Nutrition Associates
    3196 S. Maryland Pkwy, Suite #309
    Las Vegas, NV
    Tel: (702) 791-0477

    Dr. Dennis Yamamoto - Gastro.
    Digestive Health and Assoc.
    655 Sierra Rose Dr
    Reno, NV 89511
    Tel: (775) 829-7600

     

    New Hampshire

    David Golden, M.D. - GI
    Hitchock Clinic
    Nashua, NH 03060
    Tel: (603) 883-0326

    New Jersey

    Dr. Amy DeFelice
    Celiac Disease Center at Columbia/Presbyterian
    Tel: (212) 305-8802

    Debra Goldstein, MD
    The Middlesex Medical Group
    225 May Street, Suite E
    Edison, New Jersey 08837
    Tel: (732) 661-2020

    Dr. Peter Green
    Columbia Presbyterian Hospital
    Phone: 212-305-5590
    Fax: 212-305-3525

    Pamela Hoffley MD (Pediatric Gastroenterologist)
    Dartmouth, NH
    279 3rd Ave.
    Medical Center this month.
    Long Branch, NJ 07740
    Tel: (732) 222-4474

    Lawrence Pickover, M.D. - Gastroenterologist
    East Brunswick and New Brunswick, NJ
    Tel: E. Brunswick (908) 390-9200
    Tel: N. Brunswick (908) 846-2777

    Jack Rubin, M.D. - Gastroenterologist
    East Brunswick and New Brunswick, NJ
    Tel: E. Brunswick (908) 390-9200
    Tel: N. Brunswick (908) 846-2777

    Zalman R. Schrader, M.D. - Gastroenterologist
    101 Old Short Hills Road
    West Orange, NJ 07052

    Dr. Lawrence Stein
    1) Morristown (973) 455-0404;
    2) Denville (973) 625-5985


    New Mexico

    James E. Baum, D.O.
    Orthopedic, Functional & Anti-Aging Medicine
    Prolotherapy, Sclerotherapy & Neural Therapy
    AST Chelation Therapy
    Gluten Free Diet Specialist
    1850 Old Pecos Trail, Ste. L
    Santa Fe, NM 87505
    Tel: (505) 989-8647

    New York

    Dr. Keith Benkov
    Mt. Sinai Hospital
    (212) 241-5415

    Stuart Berezin, M.D. - Pediactric Gastroenterologist
    Westchester County Medical Center
    Valhalla, NY
    Tel: (914) 594-4610

    Thomas Bolte, M.D. (board certified, Internal Medicine)
    141 East 55th Street, Suite 8-H
    New York, NY 10022
    Tel: (212) 588-9314
    E-mail: TJBolte@juno.com

    Dr. Amy DeFelice
    Celiac Disease Center at Columbia/Presbyterian
    Tel: (212) 305-8802

    Peter Green, M.D. Columbia Presbyterian Medical Center
    161 Ft. Washington Ave.
    New York, NY 10032
    Tel: (212) 305-5590

    Phillip Kaslow - Pediactric Gastroenterologist
    Babies' Hospital
    Columbia, NY
    Tel: (212) 305-5903

    Vijay Kumar, Ph.D.
    IMMCO Diagnostics
    963 Kenmore Ave.
    Buffalo, NY 14223 USA
    Tel: (716) 876-5672

    Jack A. Pasquale, M.D.
    Physician Nutrition Specialist
    Board-Certified in Internal Medicine
    73-03 198th Street
    Fresh Meadows, NY 11366-1818
    Tel: (718) 465-0041
    Fax (718) 465-4224

    Dr. Nanci Pittman
    Mt. Sinai Hospital
    Tel: (212) 241-5415

    Dr. Lesley Smith, M.D. - Pediatrician GI
    Celiac Disease Center at Columbia/Presbyterian
    Tel: (212) 342-2914

    North Carolina

    John Baille, M.D. - Gastroenterologist
    Division of Gastroenterology
    Duke Medical Center
    Durham, NC 27710

    Ivor Dennis Hill, M.D.
    Clinical Pediatric Gastroenterology
    Chief of the Division of Pediatric Gastroenterology and Nutrition
    Bowman Gray School of Medicine
    Winston-Salem, NC
    Tel: (336) 716 4431

    Martin Ulshen, M.D. - Pediactric Gastroenterologist
    North Carolina School of Medicine
    CB # 7220 UNC
    Chapel Hill, NC 27599
    Tel: (919)-966-1343

    Ohio

    Ahmad Ascha,M.D. - Gastroenterologist
    9500 Mentor Ave #380
    Mentor, OH 44060
    Tel: (440) 352-9400
    E-mail: mail1@ascha.net

    Amy Jones, M.S., R.D., L.D.
    Logan County Celiac Support Group
    205 Palmer Ave.
    Bellefontaine, OH 43311
    Tel: (937) 651-6428
    Internet: http://www.logancountyceliac.org

    Dr. David Corrallo
    Beloit, OH
    Tel: (330) 938-3333

    Kirk Elliott, M.D. - Gastroenterologist
    Canton, OH
    Tel: (216) 492-4441

    Dr. Li - pediatric gastroenterologist
    Children's Hospital
    Columbus, Ohio

    Edward Schirack, M.D. - Gastroenterologist
    Canton, OH
    Tel: (216) 492-4441

    Dr. Arjun Venkat, M.D. - Gastroenterologist
    Akron Digestive Disease Consultants, Inc.
    570 White Pond Dr., Ste. 100
    Akron, OH 44320
    Tel: 330-869-0124

    Oklahoma

    Dr. Robert C. Brown
    Northwest Internal Medicine
    Division of Medical Group, PC
    3433 N.W. 56 Street, Suite 800
    Oklahoma City, OK 73112
    Tel: (405) 946-9831

    Dr. Debra Riggs
    Family Practice
    Mercy Health Center
    Bethany, Oklahoma
    Tel: (405) 789-4150

    Oregon

    Sarah Brendler, M.D.
    Lane Gastroenterology Associates
    960 N. 16th, Suite 203
    Springfield, OR
    Tel: (541) 726-4686

    Pennsylvania

    William Battle, M.D.
    Jeanes Physicians Office Building, Suite 209
    7600 Central Avenue
    Philadelphia, PA 19111
    Tel: (215) 728-6688

    Anthony Colatrella, M.D.
    David Limauro, M.D.
    David Glorioso, M.D.
    Pittsburgh Gastroenterology Associates
    Pittsburgh, PA 15219
    Tel: (412) 232-8104

    Keith Laskin, M.D.
    Main Line Gastroenterology
    Paoli Memorial Medical Building 3
    Suite 333
    255 West Lancaster Ave
    Paoli, PA 19301
    Tel: (610) 644-6755

    Thomas Pineo, DO
    Greenville Medical Center
    90 Shenango Street
    Greenville, PA 16125
    724-588-4240

    Marc A. Zitin, M.D.
    Main Line Gastroenterology Associates, P.C.
    252 Lankenau Med. Bldg. East
    Lancaster Ave & City Line
    Wynnewood, PA 19096
    Tel: (610) 896-7360, or (610) 896-8335

    Dr. Andrew Schwartz
    Fern Hill Medical Campus, Building B, Suite 300
    915 Old Fern Hill Road
    West Chester, PA 19380
    Tel: (610) 431-3122
    E-mail: info@westchestergi.com

    Rhode Island

    Pamela J. Connors, MD
    Gastroenterology Specialists, Inc.
    45 Wells Street, Suite 103
    Westerly, RI 02891
    Tel: (401) 596-6330

    James J. Murdocco, M.D.
    360 Kingstown Road
    Narragansett, RI 02882
    Tel: (401) 789-0226

     

    Tennessee

    Maurace Barnes, M.D.
    5651 Frist Blvd.
    Suite 214
    Hermitage, TN. 37076
    Tel: (615) 885-7788
    E-mail: summit@usit.net

    Dr. Lind, M.D. - Gastroenterologist
    Vanderbilt University Medical Center
    Tennessee
    Tel: (615) 322-5000

    Texas

    Alberto O. Barroso, M.D.
    6560 Fannin, Suite 1660
    Houston, TX 77030
    Tel: (713) 797-9595

    Dr. Kenneth Fine
    Finer Health Institute/Entero Labs
    10851 Ferguson Rd., Suite B
    Dallas, TX 75228
    Tel: (972) 686-6869
    E-mail: kdfine@finerhealth.com

    Craig Lubin - Gastroenterologist
    1910 W. 35th
    Austin, TX 78703
    Tel: (512) 454-4588

    John F. Pohl, M.D.
    Pediatric Gastroenterologist
    Scott & White Hospital
    Temple, Texas
    Tel: (254) 724-2491
    Tel: (877) 724-KIDS

    William Santangelo, M.D.
    Baylor University Medical Center
    Suite 809
    3600 Gaston Avenue
    Dallas, TX 75246
    Tel: (214) 818-0948

    John Secor, M.D.
    Presbyterian Professional Building
    8221 Walnut Hill Lane
    Dallas, TX
    Tel: (214) 368-6707
    Mesquite, TX
    Tel: (214) 289-0636

    John R. Stroehlein, M.D.
    Professor of Medicine
    Univ. of TX Health Science Center & Medical School
    6431 Fannin
    Houston, TX 77030
    Tel: (713) 500-6677

    Ray A. Verm, M.D.
    6560 Fannin, Suite 1625
    Houston, TX 77030
    Tel: (713) 791-1800

    Utah

    Linda S. Book, M.D.
    Primary Childrens Hospital
    Tel:(801) 588-3370

    Janet Harnsberger, M.D. - Pediatric Gastroenterologist
    Cottonwood Medical Tower
    250 E 5770 S #330
    Salt Lake City, UT 84107

    Dr. Michael J. Sossenheimer
    Utah Gastroenterology
    6360 S 3000 E #310
    Salt Lake City, UT 84121
    Tel: (801) 944-3144
    E-mail: msossenheimer@utahgastro.com

    Virginia

    Michael Hart, MS, M.D.
    Director, Pediatric Gastroenterology & Nutrition
    102 Highland Avenue, S.E. Suite 305
    Roanoke, VA 24013
    Tel: (540) 985-9832
    Fax: (540) 224-4421
    email: mhart@carilion.com
    website: www.michaelhart.yourmd.com

    Christopher N. Sheap, M.D.
    1741-B Erickson Avenue
    Harrisonburg, VA 22801
    Tel: (540) 442-6619

    Washington

    Patricia Elliott ND
    1155 N State St #610
    Bellingham, WA  98226
    Tel: (360) 647-0228

    Dr. Jean McFadden Layton, ND
    Natural Health Bellingham
    1329 Lincoln St Suite 3
    Bellingham, WA 98229
    Tel: (360) 734-1659

    Kasra Pournadeali, ND, Director
    Northwest Center for Optimal Health
    Clinical & Academic Faculty, Bastyr University
    President, Washington Association of Naturopathic Physicians
    316 State Avenue, Suite A; Marysville, WA 98270
    Tel: (360) 651-9355 

    Stephen O. Wangen, ND
    IBS Treatment Center
    Nordstrom Medical Tower
    1229 Madison St., Suite 1220
    Seattle, WA 98104

    Wisconsin

    Drew M Elgin, MD
    Board Certified in Gastroenterology
    Madison Medical Affiliates
    13133 N. Port Washington Road
    Seton Professional Building, Suite G16
    Mequon, WI 53097
    Tel: (262) 243-5000


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    I am in the diagnosis run around and have seen a ton of doctors these past two years. Being a physician myself, I can't believe how hard it it to get some doctors to believe you! As for this list:

    -Don't see Dr. Barroso. He was disrespectful and rude. He was visibly frustrated that I didn't have the lab values he expected. I believe he's burnt out and ready to retire.

    -In Chicago, Dr. Carol Semrad at the University of Chicago is very smart and a world expert on IBD and celiac. Very thorough. She's a true physician.

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    My MD at Red Cedar Medical Center in Menomonie, WI has been the most help with my family's complicated celiac diagnoses. She treats several of us. Her name is Dr. Kyja Stygar. Her celiac patient list is growing as people hear about her.

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    Hi Cindy, This might help. When I was first diagnosed I was as sick as you. It took 10 years, and several doctors, before I found out what it was. By then I weighed 98 pounds (I'm 5'8) and I couldn't leave my house, even to pick my kids up from school, in fear that I wouldn't make it home in time to use the bathroom. By the time I was finally diagnosed, my villi was so damaged, my gastroenterologist feared I had infractory sprue or intestinal lymphoma because I continued to lose weight and was still sick even on the diet. I was put on Prednisone, a few specific vitamins and ate nothing but boiled potatoes and bananas for several weeks. If I tried rice, or baked potatoes for example, I became ill. A nutritionist told me that I might have other food allergies in addition to my celiac sprue, which sent me into a tale spin. Luckily, my doctor was educated enough in the disease to tell me that when villi starts to heal (especially when it was as damaged as mine) all foods (especially dairy) can aggravate it. So, I stayed on my boiled potatoes (plain) and bananas for a long time, then I added a little chicken, etc. If something made me sick, I would back off, go back to the potatoes and bananas then work up again. Happy ending. Within a year, I was off all medicine, was eating whatever I wanted (minus gluten) and had gained 30 pounds. Now, 15 years later, I am so healthy, I eat out all the time and travel world-wide, on a regular basis. This is not a disease to play around with. You must not cheat, you must be extremely diligent in the first year especially. It will get better. Good Luck

    My daughter is extremely ill. She does IV fluids at home because she loses potassium with so much diarrhea... she also has lymphocytic colitis. She is basically house bound with the pain meds, etc. Were you ever replacing fluids at home?

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    I have had the disease since I was 2 and I was born in 1988. There need to be more doctors in Tennessee, especially in case some people can't afford medical. I have the skin rash from celiac disease and I am miserable with it. If they can't find a cure for the eating part of celiac disease, at least find one for the rash. My daughter was adopted, and I'm not sure if she is gonna get it. I hope she doesn't and can live a normal life.

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    I recommend Dr. Vakil just outside Milwaukee, WI. Board certified Gastroenterology. The first doctor I have been to who really cared what my symptoms were and listened. After 20 years, he was the first doctor to do a blood test and move beyond "it's IBS." Fantastic doctor and named one of the best doctors in Milwaukee.

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  • About Me

    Celiac.com's Founder and CEO, Scott was diagnosed with celiac disease  in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. Scott launched the site that later became Celiac.com in 1995 "To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives."  In 1998 he founded The Gluten-Free Mall which he sold in 2014. He is co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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