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Celiac Disease & Gluten Intolerance Internet Sites

Sites by National Support Organizations

The Celiac Disease Foundation (USA):
http://www.celiac.org/

The Celiac Sprue Association (USA):
http://www.csaceliacs.org

The Gluten Intolerance Group of North America (USA):
http://www.gluten.net/

Canadian Celiac Association:
http://www.celiac.ca/

The Coeliac Society of Ireland:
http://www.coeliac.ie/

Association of European Coeliac Societies (AOECS)
http://www.aoecs.org

The Coeliac Society of Australia
http://www.coeliac.org.au

Celiac Research Centers

University of Maryland Center for Celiac Research Center for Celiac Research:
http://www.celiaccenter.org/

The Mayo Clinic has a good section on celiac disease on their site:
http://www.mayoclinic.org/celiac-disease/index.html

Celiac Disease Center at Columbia University:
http://www.celiacdiseasecenter.columbia.edu/CF-HOME.htm

The University of Chicago Hospitals Celiac Disease Progam
http://www.uchospitals.edu/specialties/celiac/index.html

William K. Warren Medical Research - Center for Celiac Disease
http://celiaccenter.ucsd.edu/index.html

Medical Journal Articles

Dr. Joseph Murray of the Mayo Clinic has written an excellent general article about celiac disease (recommended reading for all - American Journal of Clinical Nutrition, Vol. 69, No. 3, 354-365, March 1999):
http://www.ajcn.org/cgi/content/full/69/3/354

Dr. Harold Pruessner has written an excellent article about celiac disease titled Detecting Celiac Disease in Your Patients (American Family Physician, March 1, 1998/Volume 57, Number 5):
http://www.aafp.org/afp/980301ap/pruessn.html

Conleth Feighery, Professor (Department of Immunology, St Jamess Hospital, Dublin 8, Ireland) has written an excellent general article titled Coeliac Disease (BMJ 1999;319:236-239 - 24 July):
http://www.bmj.com/cgi/content/full/319/7204/236

Another great article by M. Hadjivassiliou, et. al., discusses the broad range of symptoms celiac disease can present, and what its effects can be - Gluten Sensitivity: A Many Headed Hydra. Heightened Responsiveness To Gluten Is Not Confined To The Gut. (BMJ 1999;318:1710-1711 - 26 June):
http://www.bmj.com/cgi/content/full/318/7200/1710

Sites by Individuals

The collected writings of Dr. Reichelt contain papers on the connection between Mental Disease, Autism, Allergies, etc., and Celiac Disease:
http://www.gluten-free.org/reichelt.html

The collected writings of Ron Hoggan contain papers on many a large variety of disorders that are related to and Celiac Disease: http://www.panix.com/~donwiss/hoggan/

Don Wiss has created a comprehensive collection of celiac disease links:
http://www.panix.com/~donwiss/

Ads by Google:

Danna Korn will soon open a site for kids with celiac disease at:
http://www.celiackids.com/

Autism Network for Dietary Intervention by Lisa Lewis and Karyn Seroussi:
http://www.autismndi.com/

The Dermatitis Herpetiformis Online Community:
http://www.dermatitisherpetiformis.org.uk

The Gluten File
http://jccglutenfree.googlepages.com

Notes, Links, and Essays on Gluten Intolerance & Celiac Disease by Harold Kraus
http://www.members.cox.net/harold.kraus/gluten.htm#_Disclaimer

Dr. Rodney Ford - The Food Doctor
http://www.thefooddoctor.org/FoodDoctor/RodneyFord.html

Dr. Scott Lewey - the food doc
http://www.thefooddoc.com

 

Recipe, Food & Drug Sites

These sites provides gluten-free restaurant cards in many different languages including: Chinese, Dutch, English, German, French, Italian, Turkish and Spanish:
http://members.aol.com/zoeliak
http://www.enabling.org/ia/celiac/basic.html#cards
http://www.sci.fi/~keliakia/tiedote/kielet.htm

The USDA has a searchable nutrient database at:
http://www.rahul.net/cgi-bin/fatfree/usda/usda.cgi

Food and Drug Administration - Information about nutrition and drugs from the FDA:
http://www.fda.gov/

The CODEX ALIMENTARIUS COMMISSION has a web site where you can find more information about the organization and its procedures:
http://www.codexalimentarius.net/web/index_en.jsp
The Codex Standard for Gluten-Free Foods:
http://www.codexalimentarius.net/download/standards/291/CXS_118e.pdf

Food Allergy Survivors Together (FAST)
http://www.angelfire.com/mi/FAST/

Healing Foods Reference Database
http://www.healingfoodreference.com

International Food Information Council (IFIC) - Food Ingredients, Colors, Additives
http://ific.org/publications/brochures/foodingredandcolorsbroch.cfm

Pictures of Dermatitis Herpetiformis

The following are links to sites have of DH. Some of the photos are biopsies as seen through a microscope, and some are regular photographs of people with DH, some of which are quite graphic.

Pictures and an excellent article on DH by Harold T. Pruessner, M.D., University of Texas Medical School at Houston:
http://www.aafp.org/afp/980301ap/pruessn.html

The University of Iowa:
http://tray.dermatology.uiowa.edu/DPT/Hist/DH-H-01.jpg
http://tray.dermatology.uiowa.edu/DPT/Hist/DH-DIF-01.jpg

The Gastrolab Image Gallery:
http://www.gastrolab.net/ng016.htm

Dept. of Dermatology - University of Iowa College of Medicine:
http://tray.dermatology.uiowa.edu/DH-001.htm
http://tray.dermatology.uiowa.edu/DH-002.htm

Pictures of Celiac Disease Biopsies

The University of Utah:
http://www-medlib.med.utah.edu/WebPath/GIHTML/GI152.html

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In the rare instance that "modified food starch" is made from wheat, it will say so in the ingredients or Contains statement. If you wonder what it is made from, email or call and ask. I think its usually corn, Progresso is part of a large company. they would not label something gluten-free unless they know it is. Its a law in the US and Canada.

Progresso soup check the label on their gluten free products, modified food starch is not gluten free.

A recent issue of JAMA, the US Preventive Services Task Force (USPSTF) critically examines screening for celiac disease in asymptomatic adults, adolescents, and children. Celiac disease exhibits a broad spectrum of symptoms, from subtle or no symptoms to severe malabsorption. Celiac diagnoses have increased significantly over the past few decades, in part because of greater awareness, but possibly because of an actual increase in disease rates. Researchers estimate current rates of celiac disease at 0.71% among US adults, and 0.76% among US children. View the full article

I have notice that I am sick much less often.

Thanks everyone. I appreciate the answers. I'm waiting to hear back from her dr and then we will go from there. If the dr doesn't think the results show anything then I will get a second opinion thanks to everything that has been shared on here. I will make sure and not change her diet for now. I am planning on getting tested myself, I have had suspicions since last summer that I could have it. I have a form of autoimmune arthritis, just unclear exactly what it is at this time. I going to ask to be tested for celiac at my next appt though.