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2003 Feedback

Date: Mon, 06 Jan 2003 07:19:02 0000
Subject: Newsletter

Just wanted you to know that Ive just finished reading all three issues of the Scott Free
newsletter. It is excellent! It is very professional; interesting articles. The
newsletter seems to have started at a good time--I was just diagnosed with Celiac Disease
in October 2002, and have been emersing myself in information about it. Thank you and
keep up the good work!!

Subject: thanks
Date: Thu, 23 Jan 2003 12:35:28 -0600

Thanks for the great website. I refer to it and recommend it all the time. Also I love your Scott Free newsletter. I have formed a local support group and used reference material from all the time. You have helped many people.

Keep up the good work!
Lila Brendel

Date: Fri, 7 Feb 2003 11:35:52 -0800 (PST)
Subject: Thank you

This is just a simple comment saying thank you for this website. I just turned 19 and have had stomach problems for 11 years now. Ive been to doctors before telling me that they thought it was nothing and so forth, and then I came upon this website and did a little "testing" as far as what I ate and what the results were. Sure enough I self-diagnosed myself and went on a Gluten-Free Diet after making another doctors appointment. It took nearly 2 months to finally get to the Doctor, but by then I had already determined I knew what was wrong with my body and had told him my situation and what I believed to be the problem. I had blood work done and they determined that I had celiac disease. I just want to thank you because you have no idea how much this boosts my emotions and my
self-esteem, b/c i will finally be able to gain weight, and most importantly be able to live a Healthy life. Thank you so much

-Patrick Dangolhick

Date: Sat, 8 Mar 2003 15:35:00 EST
Subject: Re: 2002 Summer Newsletter


Your website was my salvation when I was recently diagnosed with Celiac Disease. The doctor just told me to go on a gluten free diet and that was all the info I got. I ordered Shelly Longs book and the info I got from your site has given me the info I needed to start this whole new life style. Thank you for your website and the hard work (I know) you do to maintain and update it!

A Fan,
Pat Minnigh

Subject: Scott-Free Newsletter
Date: Mon, 17 Mar 2003 09:10:50 -0500

I dont usually send testimonials, but your newsletter is an excellent
source of up-to-date information about Celiac Disease. I highly recommend
it to anyone with celiac disease.

Mack Cawthon

Subject: Re: newsletter
Date: Tue, 15 Apr 2003 15:48:48 -0600

Thanks Scott, I want to tell you how much I appreciate your site. I am a mental health therapist and am accustomed to reading the original articles in journals. In several cases, I read the original article and your review later. I found your reviews to be on track in conveying the essential information in a vocabulary that is accessible to the layperson. Your site is my first stop when I need to do some research on a celiac topic. The Scott-Free newsletter appears to be maintaining that high standard already. Thank you for making being the mom of a kid with celiac a little less stressful.
Kathleen Apodaca

Date: Thu, 15 May 2003 21:29:09 EDT
Subject: I just want to say thank you!

I am 22 years old and I have been suffering with this disease for a number of years. My stomach would wake me up everyday with severe intestinal cramps and then I would commandeer the bathroom for about an hour (I am sure you know what I mean). Sometimes my intestines would wake me up in the middle of the night and I would be in the bathroom for hours. Just like you I have had a barrage of tests ranging from liver tests to being diagnosed with IBS. I did everything I could to restrict my diet (except eliminating gluten of course) but nothing seemed to help, until I began to eat less and less food because I was literally scared to eat. I gave up on doctors or ever possibly finding a cure. I began to rapidly lose weight, I scared my friends and family who automatically thought I was an anorexic (which is not the case fear of becoming fat and fear of food because it will make you ill are two different things). So anyway my mother found this page emailed it to me and I thought "I can give this diet a shot? Why not?", I am happy to report that I have not had the slightest bit of pain since starting this diet. I wake up in the morning and I could honestly cry because it is such a relief to not feel sick everyday with no apparent cause. I apologize for rambling but I want to thank you from the bottom of my heart because without you I might have died. So thank you again. You are a Godsend.

Feeling Healthy,


Date: Wed, 25 Jun 2003 09:33:42 -0400
Subject: Re:

Dear Scott,
I must tell you that your site saved my life. Its a long story, but I was just diagnosed with celiac at the age of 45 after a life time of stomach, bowel, joint and muscle problems. With the help of a nutritionist and your site, I was properly diagnosed and Im feeling better than I have ever felt in my life! Thank you for your continued hard work. We must continue to get the word out to friends, family and especially doctors, who seem to feel that celiac is not a major illness.
Take care and thanks a million.
Rita Gurkin

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Date: Sat, 12 Jul 2003 18:12:04 -0400
Subject: Thank you!!!!

I just found your site. It is absolutely incredible. My 18 year old son is celiac and some(most) of the recipes are so fantastic I cant wait to make them. I am just as excited about them as he is. He is going off to university in Sept. and most of the recipes say they keep well. One less worry for me, to know he has food he can eat!
Thank you so very much for all the work you have put into your site. You are a God-send!
Myra Lewis

Date: Tue, 5 Aug 2003 22:09:40 EDT
Subject: comments

I would like to congratulate you on your website, and newsletters.
The information is fantastic and very helpful.. Recently diagnosed with gluten intolerance (yeast and casein), I find your site one of the best for being informative.

thanks, Linda Rendely

Subject: Thank you
Date: Tue, 30 Sep 2003 15:30:33 -0700

The website is fabulous, well-constructed, and very useful. Thank you so much!

Leigh Davisson

Subject: RE: Scott-Free Newsletter - Technical Support
Date: Wed, 10 Dec 2003 08:56:39 -0500

Hi Scott,
Thanks for the info on the newsletter. Please accept my sincere thank you
for all the effort and work you put into producing the newsletter. I find
it to be a most valuable resource in managing my sons celiacs disease.

Best wishes for a safe and happy holiday season to you and your family.

Best wishes,
Lori Uerz

Date: Sun, 14 Dec 2003 09:15:14 -0700
Subject: Re:

Scott, thanks SO much for your help. I dont know how much of a one-person effort your newsletter is, but kudos to you and those who might be helping you. My daughter was not physically well enough to work but was always looking for ways in which to help others. Her ideas were grand but her diseases (diabetes and glucogen storage disease) were too devastating and her life all too short. She would have been 28 on December 18. I applaud your efforts to pass along such vital information to those who are gluten intolerant.
Have a blessed holiday season!
Terri Curry

Date: Sun, 21 Dec 2003 06:52:52 -0600 Update!Dear Mr. Adams,

I just had to send a note of thanks to you...I appreciate all the information you provide through Very informative and helpful!

Coming to learn about celiac disease/gluten intolerance in my family has answered many questions with health problems throughout the years. Having the information from your web site has been a primary source of information for us as we move from chronic sickness to new vitality. Thanks so are a blessing.

Grace and peace to you.

Bonnie Hafeman welcomes your comments below (registration is NOT required).

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Read this posted on the site:

Color me confused. I went to Costco yesterday and there were 2 products there that had GLUTEN FREE plastered on the box but then in the ingredients was a: May contain wheat. How is this possible? How can they still put gluten-free on the box? We should be able to trust gluten-free labeling no?? And second question: How many of you would still buy that item? I REALLY wanted to buy the Island Way Sorbet for my daughter as it is her FAVE. But I didn't want to take the risk. Maybe when she is healthier? I mean it is SORBET?! LOL So frustrating!

JMG I have never laughed so hard! This was the best epic comment I've read! Thankyou so much! Your all teaching me so much! Love the 'my glass to go' idea!! I will be adopting this... can't believe the mucky glasses we must be drinking from! Shocking! Im still baffled how so many people don't understand cross contamination i.e. The crumbs on the work surface to cut the lime for your tasty beverage! Your all amazing Thankyou x

Yes! I never really had GI symptoms, but I did have palpitations and restless leg syndrome from anemia. These went away within the first month. But myalgia and joint aches aren't better after 1 year. Waiting to get my antibodies re-tested and see if they're negative.....

I will just share an experience I had..... I went to a steak house where there weren't a lot of safe options for me. So, I decided just to order a drink and eat later. I asked the bar tender about how they made their margaritas - fresh lime juice, fresh orange juice and gluten free tequila. gluten-free all the way. My husband went back to order for me and noticed that the bartender was juicing the limes and serving bread to the customers at the bar at the same time. I would have totally drank that margarita had he not seen him doing that. I decided to skip the margarita because of the high chance of CC