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Chronic Fatigue Syndrome (myalgic encephalomyelitis or ME, PVS, post viral fatigue syndrome or PVFS)

In the Friday, February 9, 1996 edition of the Independent newspaper (UK), there was a short article reporting research into ME (myalgic encephalomyelitis) by doctors at the Royal Hallamshire Hospital in Sheffield. Their research was published that same weeks Lancet.

Mysterious symptoms, including muscle weakness, wasting, and poor coordination and balance may be due to an undiagnosed allergy to wheat, barley, oats or rye, according to new research which may have implications for some people with ME...A study of 53 patients with these and other unexplained

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functions, and diseases of the nervous system.'); return false">neurological symptoms, found that nearly three-fifths of them had antibodies to gluten in their blood...none of the patients in the Sheffield group had been diagnosed with celiac disease but when samples of tissue were removed from their gut, more than a third showed evidence of the disease or inflammation of the middle and lower gut. welcomes your comments below (registration is NOT required).

4 Responses:

maureen mccutcheon
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said this on
31 Aug 2008 1:13:06 AM PDT
Look forward to more info about ME and gluten.

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said this on
08 Mar 2012 12:53:14 PM PDT
Last month I had a blood test for celiac and I just received a phone call from my GI doctor that the test came back positive. I going in for an upper GI and they are going to do a biopsy. Could you explain to me what they would be looking for exactly. I know they want to rule out cancer but if the test came back positive, I would think that there is already cancer. I just want to know what I could be facing as far as a treatment option. Could it be that because the test came back positive they are just checking to make sure there is no cancer? What are the percentages if you know for it either being or not being cancer?

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said this on
07 Apr 2012 1:01:47 AM PDT
Hi Edward. I was diagnosed with coeliac disease about 10 years ago in my late 20's. I also had a blood test that came back positive and had to have an endoscopy where they take a small biopsy. Don't be too alarmed, they do this to check the size and shape of the 'villi' which determines whether you have coeliac disease. This is the only accurate way to confirm the diagnosis. It does not necessarily mean you have cancer. I certainly didn't so I thought I would put this message on the site to reassure you.

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said this on
16 Sep 2013 4:13:29 PM PDT
Hi, Linda here. I go alright through the day as long I don't have anything with gluten or maybe wheat. When I have this I get the strangest feeling, weak, pale, almost lack of conciseness, racing feeling, weak muscles, fatigued. It's so scary. I know that these things affect me this way but still eat a little through the day. How do you get passed that craving.
Thanks !

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In's Forum Now:

Forum Members, This is a follow up question to a link posted in this thread I have read the Patient Celiac site before but she noted the possible use of Losartan (Potassium) contributing to Villi Blunting? This concerns me because I am now taking Losartan for blood pressure. ...

A few more thoughts. I also join others in saying ditch anything with oats for at least a while, even if they are certified. For hot breakfasts, have quinoa or buckwheat instead.

Oh how awful, and it sounds like there may be a CQ deficit among your medical helpers!, CQ being curiosity quotient. But maybe they?re researching it. It?s very difficult for me, too, to understand when I?ve been glutened ? to narrow down the culprit, or even if there is a culprit. I haven?t...

You've had great suggestions from everyone! Okay, some random thoughts from me. 3!.....almost a guarantee of something going wrong daily. They can't be using loose gluten flour, not to make cakes or gravy or anything. Flour hangs in the air for hours to days. What you breat...

Where can I go besides Europe? Anyone know of cool WWOOFing farms that support celiacs? specifically in South America or Asia?