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Chronic Fatigue Syndrome (myalgic encephalomyelitis or ME, PVS, post viral fatigue syndrome or PVFS)

In the Friday, February 9, 1996 edition of the Independent newspaper (UK), there was a short article reporting research into ME (myalgic encephalomyelitis) by doctors at the Royal Hallamshire Hospital in Sheffield. Their research was published that same weeks Lancet.

Mysterious symptoms, including muscle weakness, wasting, and poor coordination and balance may be due to an undiagnosed allergy to wheat, barley, oats or rye, according to new research which may have implications for some people with ME...A study of 53 patients with these and other unexplained

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functions, and diseases of the nervous system.'); return false">neurological symptoms, found that nearly three-fifths of them had antibodies to gluten in their blood...none of the patients in the Sheffield group had been diagnosed with celiac disease but when samples of tissue were removed from their gut, more than a third showed evidence of the disease or inflammation of the middle and lower gut.

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4 Responses:

 
maureen mccutcheon
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said this on
31 Aug 2008 1:13:06 AM PST
Look forward to more info about ME and gluten.

 
Edward
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said this on
08 Mar 2012 12:53:14 PM PST
Last month I had a blood test for celiac and I just received a phone call from my GI doctor that the test came back positive. I going in for an upper GI and they are going to do a biopsy. Could you explain to me what they would be looking for exactly. I know they want to rule out cancer but if the test came back positive, I would think that there is already cancer. I just want to know what I could be facing as far as a treatment option. Could it be that because the test came back positive they are just checking to make sure there is no cancer? What are the percentages if you know for it either being or not being cancer?

 
Beckyrkcm
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said this on
07 Apr 2012 1:01:47 AM PST
Hi Edward. I was diagnosed with coeliac disease about 10 years ago in my late 20's. I also had a blood test that came back positive and had to have an endoscopy where they take a small biopsy. Don't be too alarmed, they do this to check the size and shape of the 'villi' which determines whether you have coeliac disease. This is the only accurate way to confirm the diagnosis. It does not necessarily mean you have cancer. I certainly didn't so I thought I would put this message on the site to reassure you.

 
Linda
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said this on
16 Sep 2013 4:13:29 PM PST
Hi, Linda here. I go alright through the day as long I don't have anything with gluten or maybe wheat. When I have this I get the strangest feeling, weak, pale, almost lack of conciseness, racing feeling, weak muscles, fatigued. It's so scary. I know that these things affect me this way but still eat a little through the day. How do you get passed that craving.
Thanks !




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I just quoted a little part but really much of your experiences could be mine. I won't bore you with it all, but chest pains came from 19, herniated disk came at 21, followed by 20 years of sciatic back pain. Depression at or about the same time. Brain fog little later. There was lots more, prima...

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Getting a celiac disease diagnosis is shocking. Expect to go through all the stages of grief. Your best defense is to learn how to read labels, avoid cross contamination and consider eating as few processed foods for a few weeks. It may speed healing (wish someone would have advised me to do s...

That is very helpful. Thank you so much.

I would read it as ?high?. In any case, you were positive on the TTG and the DGP. You only need one positive. I had pretty severe intestinal damage and never even had a positive on the EMA or the TTG even when they were re-run several times during follow-up visits.