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August 2007 Updates

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    * The following new articles were added to the Celiac Disease Research: Associated Diseases and Disorders section:
          o Gluten-free Diet Prevents Diabetes (Type 1) at Same Rate as Gluten-enriched Diet
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    * The following new article was added to the Celiac Disease Diagnosis, Testing & Treatment section:
          o New Method of Diagnosing Celiac Disease Looks Promising
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          o Garbo Toast Bread: For Those About to Toast, Garbo Salutes You!
          o Marthas Tasty All Breast Meat Gluten-free Chicken Nuggets
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          o Dads Gluten-free Pizza Crust is sure to Please
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Took me less than a minute, although why did they need our addy and phone?

As mentioned before you said she had rashes, have they checked if that is DH? That is a positive sign of celiac and those with the DH manifestation can have problems getting a postive with the gut biopsy. Here are some links. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ https://www.gluten.org/resources/getting-started/dermatitus-herpetiformis/ Please read up on this. She can get the rash tested for the disease if it is DH.

Thanks for your reply. I will get her retested. She hasn't had any gluten for a year and is very good at not eating it, but had some cake that night. It's so hard because the Dr who did the biopsy said there wasn't any damage so she can't be classed as Coeliacs. She had ten samples taken, but yes, like you say the intestines are huge.

Thank you for your informative reply. Yes I think you are right in that she is still getting dome cross contamination exposure through chopping boards, condiments etc. I will get her bloods redone to see if her levels have dropped and do a gluten challenge again. We all are on a whole foods diet, buy not all Gluten-Free. I find extended family difficult as because she had a negative biopsy they don't believe she could still possibly have it and aren't so careful with her. Thank you for the links, all very helpful.

Why do you make it so freaking hard to sign up? It's easier to find a replacement for rye bread!