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Pictures of Dermatitis Herpetiformis & Article Links

The following are links to sites have of dermatitis herpetiformis. Some of the photos are biopsies as seen through a microscope, and some are regular photographs of people with dermatitis herpetiformis, some of which are quite graphic. Pictures and an excellent article on dermatitis herpetiformis by Harold T. Pruessner, M.D., University of Texas Medical School at Houston:
http://www.aafp.org/afp/980301ap/pruessn.html

The University of Iowa:
http://hardinmd.lib.uiowa.edu/dermnet/dermatitisherpetiformis.html

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Dermis.New Web Page:
http://www.dermis.net/dermisroot/en/29366/diagnose.htm

Medline:
https://www.nlm.nih.gov/medlineplus/ency/article/001480.htm

The Dermatitis Herpetiformis Online Community:
http://www.dermatitisherpetiformis.org.uk/

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19 Responses:

 
Gerald Fontenot
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said this on
15 Nov 2007 2:58:30 AM PDT
Finally I found something. Thank You so very much. GF

 
Brwnlow Elaine
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said this on
11 Dec 2007 11:29:34 PM PDT
Your site I have just found and is very interesting Thank you

 
Elaine
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said this on
12 Dec 2007 9:40:20 AM PDT
Doctors are always puzzled ..now I have something concrete to bring to his office to look at ..thanks

 
carole colon
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said this on
09 Jan 2008 5:24:39 PM PDT
You've totally saved my life, I've suffered for years and my 8 yearr old was going the same route, thanks.

 
an unknown user
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said this on
26 Jan 2008 1:19:47 PM PDT
Thank you for all the work you have put into this site, its awesome.

 
Argelia
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said this on
26 Mar 2008 8:30:13 PM PDT
Very informative

 
Adriana
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said this on
27 Mar 2008 7:03:09 PM PDT
Thank you!!!!!! It gives me hope to know that there is more I can do. Thank you for all you do. I am just learning about this disease and all the pieces of the puzzle seem to fit together and date back as far as childhood. I can not thank you enough!!

 
Gerald
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said this on
20 May 2011 7:06:34 PM PDT
I see on your site articles about celiac disease and diet, and the relationship to dermatitis which I was unaware of. I know that dermatitis and most skin diseases have a diet root cause, but all you hear about is this pill or that cream or ointment. I'm a former Crohn's disease and ulcerative colitis sufferer and eventually learned that my problems were dietary. Thank you for making me feel that I'm not alone in my beliefs.

 
Karen Thorp

said this on
13 May 2008 1:47:49 PM PDT
I have had Celiac disease for a couple of years now but seem to still be getting tired all the time with depression and recently all my hair is starting to thin. someone recommended I check all my products I'm using to see if I'm getting gluten in them. So far I've found gluten in my deodorant, shampoo, moisturizers and hair mouse.
Is there such a thing as a list of ingredients so I can check all my other lotions and soaps etc, I don't know what to look for.

Thanks, Karen

 
Mo Rainault
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said this on
17 Nov 2010 3:47:00 PM PDT
Karen, did you ever find a list of ingredients in your products? I have celiac and dermatitis herpetiformis, I was diagnosed this past July, I have been miserable for years.

 
Caroline
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said this on
20 Jun 2008 12:26:24 PM PDT
I was diagnosed with fibromyalgia many years ago, however after reading about celiac disease, I realize that I have had symptoms of this since childhood, beginning with what was called 'allergies' when I was about 4, I also always got canker sores as a child, and it goes on from there. I now have what I believe is Erythema on my buttocks. I will have my doctor look at this, and run the tests for celiac disease. I wish I had known about this long ago, as I am now in my 60s, and the damage is done. Thanks for your site, I will surely be back if the tests come out positive, although I don't think that's really an IF.

 
nora
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said this on
06 Feb 2009 7:43:35 AM PDT
Thank you...finally I know why I break out with all this itching. I was diagnosed with celiac disease in may 2007.

 
Linda
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said this on
24 Feb 2009 3:53:54 PM PDT
Thank you...a lot of info about side effects of celiac disease. My son has itchy skin problems which I had no idea could be connected to celiac. I have given the web site details to both my adult children as they are both affected by celiac disease.

 
Denise
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said this on
12 Aug 2009 10:44:58 AM PDT
I have never been diagnosed with celiac disease however when young was diagnosed with allergy to milk, wheat, chicken, corn, pork, and atmospheric allergies. As a teen I returned to a "normal" diet and didn't pay attention to what I was ingesting with little to no side-affects. Since 1995 I have suffered very bad acne (huge hard sores) on my face and once pregnant in 1999 spread to chest and all over my arms. No one could tell me what was wrong. I have also suffered from IBS symptoms becoming worse as a teen. I started studying on my own the affects of gluten when family members were dying of colon cancers and had such sever IBS they were hospitalized. Now I see pictures that match my sores.

WOW...I started gluten-free. milk-free diet just recently and I'm staying with it. Maybe I will be clear skinned and healthy weight again for the first time in over 15 years.

Thanks

 
Debbi
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said this on
13 Apr 2010 6:31:18 PM PDT
I was diagnosed with celiac two years ago and I too was misdiagnosed with allergies and irritable bowl syndrome. It was the nurses where I work at that helped me with my diet and life style changes. Your web sight has also been a god send to me. I recommend it to any new patients we have with celiac/ gluten intolerance.
thank you

 
Lucille T Trotta
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said this on
09 May 2010 3:54:40 AM PDT
All of your articles are very informative. Thank you.

 
Freda
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said this on
16 Dec 2010 8:56:21 PM PDT
I have been told have dermatitis herpetaformis and my doctor just put me on medication, I am a very nervous person and I pick at them.

 
Jen C
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said this on
30 Jan 2012 10:51:05 AM PDT
After having recently ingested some gluten (my own careless fault) I found out I'm one of the minority of celiacs who also suffers from Dermatitis Herpetiformis. It's slowly getting better but I couldn't understand why it would flare up after eating some foods (specifically potato). After a little research I found out that iodine can make the rash worse but once it clears up I'm good to eat it again. Just a little tip for anyone suffering from the same.

 
karon
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said this on
26 Jan 2015 6:17:59 AM PDT
Wow I will really be trying this. I have been itching and swelling for the past week and like everyone else am told it is eczema. I was thinking butter since everything I love has it. I will be giving this a try or get tested to find out for sure.




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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Yes the first has wheat gluten in the ingredients, the second via the wheat flour. Here in the UK manufacturers HAVE to highlight gluten sources. Check the ingredients and if WHEAT, BARLEY, or RYE are mentioned *usually highlighted, italicised or underlined, then you will know there's gluten. Most of iceland's processed foods will probably be gluten filled to be honest. Any breadcrumbed or battered foods for instance. Ps, you and me both have another disease, the british one of apologising You don't need to, you're very welcome here and all of your questions are valid and understandable. It's going to get better

Hi, I am deeply sorry for posting on here again. As I am scheduled for an Endoscopy on the 9th May, I wanted to make sure that my gluten intake is being kept the same. I was wondering if the ingredients to these products contain gluten even though dextrose is in one of them? http://groceries.iceland.co.uk/iceland-32-breaded-chicken-nuggets-448g/p/52275 Chicken Breast Fillet (60%), Water, Wheat Flour, Breadcrumbs (Wheat Flour, Dextrose, Salt, Yeast), Rapeseed Oil, Salt, Wheat Gluten, Sugar, Yeast Extract, Garlic Powder, Onion Powder, White Pepper, Dried Sage. http://groceries.iceland.co.uk/iceland-10-breaded-chicken-burgers-550g/p/52276 Chicken Breast Fillet (60%), Water, Wheat Flour, Breadcrumbs (Wheat Flour, Dextrose, Salt, Yeast), Rapeseed Oil, Salt, Wheat Gluten, Sugar, Yeast Extract, Garlic Powder, Onion Powder, White Pepper, Dried Sage. Thank you for all your help so far,

JMG got it down pretty much, the painful and gluten effects from eating it should clear up in a month, damage symptoms you might notice some differences as early as 2-4months but most do not noticed major improvements til about 6 months to a year. I have been gluten-free for over 3 years all my villi have healed according to the doctor on my last scope. It is very important to not cheat and avoid any kind of CC as it can set you back weeks or months. I would suggest a whole foods only diet for the first month or two, no dairy, simple stews, soups, etc. make for easy to digest and simple meals. Check out the 101 thread for some good information. PS a new combo crockpot, steamer, rice cooker combo and liners for a crock pot will be a life saver for making simple meals and easy clean ups. Quick cook microwave ware will also be handy making sure you have gluten-free cooked meals if you can not get new cookware immediately. I normally suggest cleaning out the entire house, scrubbing down knobs, handles, on the drawers, sink, fridge, cubbards etc. throw out condiment jars, checking ingredients on everything in the house including your hygiene and makeup. Putting in drawer organizers for new utensils, throwing out scratched glass, teflon, plastic, and steel cookware. Throwing out any Tupperware, and cutting boards, some utensils that can not be cleaned well. Some times you can save cast iron and stainless steel cook ware if you can run it in your ovens cleaning cycle over 600F. Gluten is a protein like blood if you can not clean a item where a CSI team will not find it give it up, it is not a germ that can be killed with disinfectant. I use freezer paper for clean prep surfaces, also makes clean up a breeze, I tend to use gloves alot also when fixing foods,

Hi Allie and welcome First off, I know 3 years was a long wait, but at 17 you've figured out celiac way before many people do. That should make a big impact on minimising its effects and helping you with the diet, so, bizarrely enough, congratulations! A lot of good advice has been brought together in this thread: Don't worry that your symptoms are bad now. As you follow the diet your body will begin healing itself and you're still very young so hopefully this will go really smoothly. Think in terms of the next 6 months rather than weeks however, recovery will likely take a little time. Eat as healthily as you can, lots of whole foods and try to avoid the gluten free processed substitutes as your digestive system needs all the help it can get at this moment. You may want to avoid dairy as well for now and think about reintroducing it later. This site has been really helpful to me and others. I hope you find it just as useful. Best of luck! ps, your increased reaction to gluten during the challenge phase was perfectly normal. Many find that reintroducing it much worse than the initial affects and take some time to get over the challenge. That's why you'll see lots of posts here urging folks to 'stay on gluten' till their testing is complete! PPS( ) Inasmuch as your post can convey emotion, your's seemed positive Stay that way! At times the diet can be a bit isolating and some friends and family may struggle to understand. I'm sure it will be difficult at times making good choices and staying vigilant when everyone around you doesn't have to think twice. Stick with it, your health is paramount and it will be worthwhile. In time your good friends will get it and those that don't aren't worth worrying about. There are great foods you can eat and if not, learn to cook them yourself

Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!