Specific Gene Tied to Dermatitis Herpetiformis

I found this extremely interesting as I am a celiac and also have a tendency to dermatitis herpetiformis. Before I discovered that I have celiac disease I did have DH on my upper arms and back but I find that now I control my diet I only get the odd patch occasionally.

Having both celiac and Dermatitis Herpetiformis I am very interested in research on both topics

I was diagnosed with dermatitis herpetaformis in 1972 I took dapasone for years then had to go on 100% diet. I sometimes get DH on my elbows.

I have dermatitis herpetaformis - very severe. I am on 100% gluten free diet. I had 70% of my body covered with lesions before going on the diet. I still have to take dapsone. I have about 2% of my skin still involved...but it's improving. However, anything I eat that has any traces of gluten causes a severe bout of itching followed by lesions that take months to clear up. I have to be extremely vigilant about what I eat. I can NEVER cheat.

This is great news. I was diagnosed with Dermatitis Herpetaformis, then celiac disease 4 months later. I am also vigilant where they gluten is concerned (and am on the BOD of my local Celiac Disease Foundation Chapter). I wish there was more to help others with Dermatitis Herpetaformis, perhaps this will get us on track.

This is fabulous research to track. After plenty of research and experiments, I've found my 3 year old son also suffers Dermatitis Herpetaformis, as well as cocoa and lactose allergies, all thanks to his skin reacting - from blisters to rough patches. So much for the 'dermatolgist' suggesting steroid cream and 'Hamiltons' lotions - ha! Find a good diet and naturopath and stick to him! Keep the research coming!

Wow. It took us 18 months to find the celiac diagnosis in my wheelchair-bound, renal failure son. The existing diagnosis led the dermatologist to 'assume' the sudden appearance of skin issues were related. Although we are now almost 4 weeks into the celiac diagnosis (2 previous gastroenterologists missed it), it was not until I read this article that I knew what the skin condition is called. Maybe I should educate the dermatologist.

I have terrible itchy area that I believe is Dermatitis Herpetaformis, and I have celiac disease as my tTG was very very high (181) I am always looking for info. on DH, as i suffer terrible from painful itch. It eased with gluten free but worse while in FLA. So might have some other issues. Anyone know an expert in DH in the northeast?

I have it on my face all of a sudden. I went on the gluten-free diet and it cleared mostly but now....yuk!

I got glutened when the hurricane hit and couldn't get my gluten-free foods and have had a terrible time getting things back to where I was prior to that event.

I have found that using hydrogen peroxide after washing with a mild soap and rinsing well seems to help the lesions heal faster.

I was treated by my Dr. For ulcers on my hands [ I had had a + lupus test and had told him I was allergic to penicillin] with penicillin and lost all the skin on my body tanned by the sun I almost died. He Died, new Dr would not take biopsy for celiac. I had rash on 70% of my body I went gluten free and have only small rash on feet, hands and elbows. What do you do to get 100% proof, without going back to gluten and the rash.

After years of treating my Dermatitis Herpetiformis with Dovonex and fluocinonide creams I found out 6 weeks ago that I had celiac disease. I then went on a gluten free diet and my Dermatitis Herpetiformis is clearing up. I have Dermatitis Herpetiformis on my elbows, knees and shins. I still have to get the B12 shot each month and still take folic acid (2 pills ) everyday but I am feeling better. I am just amazed that with all the doctors and dermatologist that it took the Veterans Hospital in Richmond VA to find out the correct diagnosis of this disease.

Good article on Dermatitis Herpetaformis. I hope they will find a cure for this soon.