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May is Celiac Disease Awareness Month


Photo: CC-jayneandd

Celiac.com 05/21/2011 - May is National Celiac Disease Awareness month, as designated by the National Foundation for Celiac Awareness (NFCA), a 501©(3) non-profit organization dedicated to raising awareness and funding for celiac disease. That means a month of official and unofficial events to promote awareness of celiac disease.

A few of the official events scheduled for National Celiac Disease Awareness month include:

1) Gluten-Free Food Labeling Summit
The first annual Gluten-Free Food Labeling Summit will gather legislators, celiac disease researchers, gluten-free community leaders and food corporations as they call upon the Food and Drug Administration (FDA) to enforce a standard for safe and effective labeling of gluten-free food.

When: Wednesday, May 4, 2011
Time: VIP Reception for sponsors, 5-8:30 p.m.
Where: Embassy Suites Convention Center
900 10th Street Northwest
Washington, DC 20001

2) #GFchat on Twitter (featuring Ask the Dietitian experts): May 10, 17, 24, 31 - Chats will take place on Tuesday evenings at 8 p.m. ET/5 p.m. PT. Those interested in participating should follow and use the hashtag #GFchat to keep the conversation in one central steam.

3) LIVE with Jill's List: Should You Be Gluten-Free?
May 11 - Join LIVE with Jill's List to listen to and CHAT LIVE with celiac and gluten-free experts:

* Mark Hyman, MD - NY Times Best Selling Author and family physician
* Alice Bast - Founder and President of the National Foundation for Celiac Awareness
* Jill Brack - Founder of GLOW Gluten Free Cookies

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4) Celiac 60+: Meeting the Needs of the Mature Celiac
This free online webinar will feature Veronica Alicea, M.B.A., R.D., a well-known dietetic consultant in the celiac and gluten-free fields, leading an hour-long discussion on the rising number of celiac diagnoses in the mature adult population. Wednesday, May 18th at 1 pm ET/10 am PT.

5) Catwalk for Celiac
All proceeds will be donated to the National Foundation for Celiac Awareness.
When: Thursday, May 19, 2011
Time: 6-10:30 p.m.
Where: Fiesta Banquet Hall
255 Route 17 S
Wood-Ridge, NJ 07075
Cost: $35 for students, $42 for adults

6) Celiac Awareness Night at the Mets
Join the National Foundation for Celiac Awareness and R.O.C.K. Long Island for Celiac Awareness Night at the Mets. The New York Mets will be taking on the Philadelphia Phillies, and catch all the action from special sections in the Left Field Landing - tickets  $35 or $20 each. Gluten-free concessions will be available.

When: Friday, May 27, 2011
Time: 7:10 p.m.
Where: Citi Field
Flushing, NY

Corporate promotions for Celiac Disease Awareness Month include:

7) Rudi's Unbelievably Good Gluten-Free Recipe Contest
Submit your original gluten-free recipe using Rudi's Gluten-Free Bakery products (including their new buns and pizza crust) for the chance to win a trip to Colorado and star in an Alternative Appetites video with Dan Kohler!

Some Important Contest Dates:
April 18 – May 20:  Recipe submissions accepted on the recipe contest tab on the Rudi’s Gluten-Free Bakery Facebook page
April 18 – June 6:  Online voting open to the public
June 13:  Top 3 finalists announced
June 24:  Top 3 finalists compete in Final Recipe Cook-Off at Restaurant 4580 in Boulder, Colorado.

Check your local gluten-free or celiac disease support group for details on events in your area. Or get together with friends and family and create your own fun for Celiac Awareness Month!

Celiac.com welcomes your comments below (registration is NOT required).





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I would not worry. Things might resolve on the gluten free diet as celiac disease does impact fertility in many ways. I hit perimenopause at 40. It lasted over a decade (the range of years varies from person to person) and I experienced every single perimenopause symptom (on and off) in the book. I was diagnosed with celiac disease after I went though menopause because of anemia that would not resolve. You could ask your GP/PCP to order a hormonal panel (include thyroid) if you see him/her sooner. This will let you know if you are starting perimenopause. My Mom breezed through menopause. Not me!!!!!

.." Gluten Free Watchdog we have been testing a wide variety of products with the Nima Sensor. It is very difficult to put the results of testing completed to date into proper context due to the lack of a published validation report on this device. One goal of our testing is to provide recommendations for consumer use of the Nima Sensor. This is proving to be impossible at this time. In the opinion of Gluten Free Watchdog the Nima Sensor was released into the marketplace prematurely. Given the current state of development of this sensor, Gluten Free Watchdog cannot support its use by the gluten-free community at this time...." https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-position-statement-on-consumer-use-of-the-nima-sensor-to-test-food-for-gluten/

https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-position-statement-on-consumer-use-of-the-nima-sensor-to-test-food-for-gluten/ "t Gluten Free Watchdog we have been testing a wide variety of products with the Nima Sensor. It is very difficult to put the results of testing completed to date into proper context due to the lack of a published validation report on this device. One goal of our testing is to provide recommendations for consumer use of the Nima Sensor. This is proving to be impossible at this time. In the opinion of Gluten Free Watchdog the Nima Sensor was released into the marketplace prematurely. Given the current state of development of this sensor, Gluten Free Watchdog cannot support its use by the gluten-free community at this time."

Yeah, I was pretty surprised. However, lots and lots of fantastic wine and gin. Even the house wine at a pub is going to be a nice French or Spanish something. Also drank a lot of port. And they take their gin super seriously there, some really good stuff. The closest I got to having a beer was trying some gin distilled from geuze (wild-fermented beer). Very nice. Make up for the lack of beer by eating all the fries.

This sounds familiar. Does the pain feel like its actually in your ribs, sore when you press on it? It could be costochondritis, which is inflammation of the cartilage between your ribs. It seems to be one of those weird things that tends to affect celiacs, could be a symptom of glutening or brought on by something else. I had a bad case of it a few months after going gluten free. Started as just a weird ache, and one morning it felt like I was being stabbed. Spent all day in emergency while they ruled out heart issues. Anti-inflamatories helped and it went away after a few days. Never came back that bad again. It could also just be heartburn-type symptoms triggered by gluten. I would see a doctor though, because you want to rule out whether its your heart or something. You're still early in your healing process, so not only are you probably not an expert at the gluten-free diet yet, but your body is readjusting to the new reality and doing all kinds of weird stuff. Hopefully this will resolve soon and not be a regular occurrence. It would only have a connection to your bowel issues in that it could be yet another fun affect of Celiac disease. Good luck and feel better soon!