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R.O.C.K. (Raising Our Celiac Kids) - National Celiac Disease Support Group

R.O.C.K. Raising Our Celiac KidsDanna Korn founded R.O.C.K. in 1991 after her son, Tyler, was diagnosed with celiac disease. It has grown to international proportions, helping families all over the world deal with the unique challenges of raising a child on a gluten-free diet. When children are diagnosed with celiac disease at an early age, they usually have a severe intolerance to gluten, and are often extremely sick when ultimately diagnosed. Most parents share horror stories of visiting several doctors before finally arriving at a diagnosis, and are frustrated, exasperated, and angry, yet relieved to finally have a direction in which to turn. Sometimes it helps to talk about it, and it always helps to have some guidance when initially diving into the gluten-free diet.

Raising Our Celiac Kids is a support group for parents, families and friends of kids with celiac disease or gluten intolerance. We welcome families of autistic kids involved in a gluten-free/casein-free dietary intervention program. We concentrate on dealing with the unique challenges that we have, including:

  • Finding "fun" gluten-free treats for kids
  • Menu ideas for school lunches, quick dinners, and sports snacks
  • Helping the kids to take responsibility for reading labels, cooking and planning/preparing food
  • How to prepare for unexpected birthday parties and food-oriented activities at school, church, and elsewhere
  • Halloween, Easter, and other special days - how do we include our kids safely?
  • Educating day-care providers and teachers - without burdening them
  • Dealing with grandparents, babysitters, and "helpful" friends who offer gluten-containing foods to our kids
  • Ensuring our kids won't cheat, and what to do WHEN they do
  • Sending kids away to camp, friends' houses, and other times when we're not around to help
  • The psychological impact of growing up with celiac disease (peer pressure, teenage years, and more)

What do R.O.C.K. chapters do?
R.O.C.K. chapters have R.O.C.K. parties! How often you meet will be up to you and your chapter members, but we suggest meeting every two months to start; you can judge from that point whether you'd like to meet more or less often. We'd like to eventually have a chat room, where local chapters can talk to each other or with other chapter members. (In the meantime, people can chat at

What goes on at a R.O.C.K. party?
R.O.C.K. parties are for the kids and the adults. The kids enjoy gluten-free food and play, while the parents exchange new-product information, questions and concerns, and anything that they feel is pertinent. You may invite speakers (child psychologists, pediatricians, pediatric gastroenterologists, dietitians), and even provide entertainment (clowns, face painters, toys) for the kids. Remember your community centers - they often have teenagers who will entertain the kids - for free!

Remember, you may have just a few families at first, but "build it and they will come" - keep it in mind!

Should I start a R.O.C.K. chapter or do something on my own?
I don't personally profit from any R.O.C.K. activities, so it doesn't benefit me either way. My vision for R.O.C.K. is to provide accurate, supportive information to families of gluten-free kids to make their lives easier and their kids' lives more enjoyable. The more cohesive we are, the more credible we are to new members, vendors, and the gluten-free community as a whole. If you decide to pursue a group on your own, I sincerely wish you the best of luck and hope you'll ask me for help in setting up your group if you need it.

If there isn't a R.O.C.K. chapter in your area yet and you're interested in starting one, 
please contact Danna Korn at

R.O.C.K. Chapters in the United States


Support Group - Mobile
Contact: Marilyn Taylor
ROCK’n Mobile, Alabama
Tel: (251) 633-3528

Slocomb - Support Group
Contact: Nichole Alexander
Tel: (334) 886-7150


Chugiak - Support Group
Raising Our Celiac Kids (R.O.C.K.) - ROCK'n Alaska 
Contact: Debbie Saddler 
Chugiak, AK 99567 
Tel: (907) 688-6879 


Gilbert - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Gilbert Chapter 
Contact: Deanna Frazee
Gilbert, AZ
Tel: (480) 641-8821

Phoenix - Support Group
Greater Phoenix R.O.C.K.
Contact: Lisa Potts
FB Page:
Phone: (858) 442-5956

Tucson - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Tucson Chapter
Contact: Liz Attanasio
Tel: (520) 877-9181

Tucson - ROCK'n Tucson
Contact: Shelli Hanks 
Tucson, AZ 85750 
Tel: (520) 577-0774


Fayetteville, AR 
Melanie Faught 
Fayetteville, AR 72704 
Tel: (479) 582-9232 


Conejo Valley - Support Group
ROCK'n Conejo Valley
Contact: Melissa Riches
Westlake Village, CA 91361
Tel: (818) 706-0197

Danville - Support Group
Contact: Ann Reigelman 
Raising Our Celiac Kids (R.O.C.K.) - Danville Chapter
Danville, CA

Lake Balboa - Support Group
Contact: Melissa Gray
Raising Our Celiac Kids (R.O.C.K.) - Lake Balboa Chapter
Tel: (818) 510-0534

Los Angeles - Support Group
Contact 1: Amy Harley
Tel: (818) 249-2432
Contact 2: Cheryl Cohen
Tel: (818) 784-4516

Moreno Valley - Support Group
Contact: Kellee Shearer
Raising Our Celiac Kids (R.O.C.K.) - Moreno Valley Chapter 
10034 Snipe Circle 
Moreno Valley, CA 92557 
Tel: (951) 242-8448

Orange County - Support Group
Contacts: Randi Leinen
Raising Our Celiac Kids (R.O.C.K.) - Orange County Chapter

Palo Alto - Support Group
Contact: Kelly Velez or Debbie Duncan
Bay Area ROCK
Tel: (650) 303-8409
Tel: (650) 494-6959

San Diego - Support Group
Raising Our Celiac Kids (R.O.C.K.) - San Diego Chapter
Contact: Brenda McDowell

San Francisco - Support Group
Contact: Lisa Palme
Raising Our Celiac Kids (R.O.C.K.) - San Francisco Chapter

Sebastopol - Support Group
ROCK North Bay Chapter
Contact: Jennifer Iscol
Sebastopol, CA 95472
Tel: (707) 824-5830

Visalia (Central) - Support Group
Contact: Shannon Williams
Tel: (559) 741-1671
Visalia, CA


Peyton - Support Group
ROCK’n Peyton, CO
Crystal Brauer
Tel: (719) 494-8590 



Raising Our Celiac Kids (R.O.C.K) Fairfield County CT
Contact: Karen Loscalzo/ Monika Lazaro/ Carolyn Caney

Simsbury - Support Group
Raising Our Celiac Kids - R.O.C.K. - Simsbury Chapter 
Contact: Mark & Tracy Saperstein 
Tel: (860) 651-4857

Waterford - Support Group
Raising Our Celiac Kids - R.O.C.K. - Waterford Chapter 
Contact: Donna Kensel
Waterford, CT

District of Columbia (Washington D.C.)

District of Columbia - Support Group
Contact: Linda Hickman
Northern VA/Washington DC R.O.C.K.
Tel: (410) 290-5224


Apopka - Support Group
Contact: Deborah Pfeifle
Raising Our Celiac Kids (R.O.C.K.) - Apopka Chapter 
Apopka, FL 32712
Tel: (407) 880-6104

Coral Springs/Palm Beach - Support Group
Contacts: Janna Faulhaber and Stacey Galper
Raising Our Celiac Kids (R.O.C.K.) - Coral Springs/Palm Beach Chapter
Tel: (954) 255-7855 

Odessa (Tampa) - Support Group
Contact: Terri Willingham
Raising Our Celiac Kids (R.O.C.K.) - Odessa Chapter

Orlando - ROCK'n Celebration - Support Group
Contact: Rose Parvaz
Celebration, FL 34747

Palm Beach gardens - Support Group 
ROCK'n Palm Beach Gardens
Contact: Kimberly Wade
Palm Beach Gardens, FL 33418
Tel: (561) 625-9005

Tampa - Support Group
Contact: Melissa Ransdell
Raising Our Celiac Kids (R.O.C.K.) - Tampa Chapter
14521 Nettle Creek Rd.
Tampa, FL 33624
Tel: (813) 265-8105


Atlanta - Support Group
Contact: Jeff Lewis, M.D. 
Children's Center for Digestive Health Care 
Raising Our Celiac Kids (R.O.C.K.) - Atlanta Chapter


Chicago - Support Group
ROCK'n Chicago
Contact: Alexandra Vavouliotis
Tel: (847)-962-7244

Dekalb - Support Group
Contact: Audrey O'Sullivan
Raising Our Celiac Kids (R.O.C.K.) - Stillman Valley Chapter
Dekalb, IL
Tel: (815) 756-2606

ROCKn DuPage & Cook County
Aleksandra de Leon -DuPage County
Tel: 630-745-7429
Ilene Harris- Cook County
Tel: 847-222-9950

Moline - Support Group
Contact: Lesley Lamphier
ROCK'n Illinois (Moline) 
Moline, IL 61265
Tel: (309) 736-1507

Springfield - Support Group
Land of Lincoln Celiac Support Group
Contact: Joyce Hall
Raising Our Celiac Kids (R.O.C.K.) - Springfield Chapter
Springfield, IL

Washington - Support Group
Heart of Illinois Celiac Kids 
Contact: Samantha Young


Henryville - Support Group
Contact: Kristie Williams
ROCK'n Indiana (Henryville) 
Henryville, IN 47126
Tel: (812) 294-1179

Indianapolis - Support Group
Contact: Kelly Kurzhal
ROCK’n Indianapolis
Indianapolis, IN  46217
Tel: (317) 697-4933

Mooresville - Support Group
Contact: Cindy Holder
Raising Our Celiac Kids (R.O.C.K.) - Mooresville Chapter
375 E. Countyline Rd.
Mooresville, IN 46158
Tel: (317) 831-9871


Des Moines - Support Group
Contact: Lindsay Amadeo
Raising Our Celiac Kids (R.O.C.K.) - Des Moines Chapter
Des Moines, IA 



ROCK'n Maryland
Contact: Steffani Mykins
Tel: (410) 626-1958

ROCK’n Maryland
Contact: Lindsay Moe
Mt. Airy, MD 21771
(443) 799-3432



Longmeadow - Support Group
Contact: Christie Freda
Longmeadow, MA 01106
Tel: (413) 567-5748

Somerset - Support Group
Contact: Stacey Nasrallah
ROCK'n Somerset (MA)
Somerset, MA 02726
Tel: (508) 674-6211


Ann Arbor - Support Group
Contact: Anne MacDougald
ROCK’n Michigan

Macomb Township - ROCK'n MI Support Group 
Contact: Kimberly Fanelli
Macomb Township, MI 48044
Tel: (586) 226-8480

West Bloomfield - Support Group
Contact: Gail Smoler
Raising Our Celiac Kids (R.O.C.K.) - West Bloomfield Chapter
4358 Strathdale Court
West Bloomfield, MI 48323
Tel: (248) 851-9451 


Minneapolis/St. Paul Support Group
Contact: Lynda Benkofske
Raising Our Celiac Kids (R.O.C.K.) - ROCK-Minneapolis/St. Paul Chapter
15470 County Rd. 35
Elk River, MN 55330
Tel: (763) 263-7679


Columbia - Support Group
Contact: Beth Broom
Raising Our Celiac Kids (R.O.C.K.) - South Mississippi Chapter
50 Wilks Road
Columbia, MS 39429 


O'Fallon - Support Group
Contact: Beth Anne Miller
7264 Sweetcider Lane
O'Fallon, MO 63366 
Tel: (636) 294-2037


Billings - ROCK'n Montana Support Group
Billings, MT 59102
Contact: Perrin Grubbs
Tel: (406) 655-7897


Reno - Support Group
Contact: Carrie Owen
Raising Our Celiac Kids (R.O.C.K.) - Reno Chapter 
Tel: (775) 857-2708



New Hampshire

Manchester - Support Group
Contact: Michelle Ouellette
ROCK'n New Hampshire
Manchester, NH 03102
Tel: (603) 627-1831



New Jersey

Blairstown - Support Group
Contact: Marla Benson
Raising Our Celiac Kids (R.O.C.K.) - Blairstown Chapter
Blairstown, NJ
(808) 362-7752

Freehold - Support Group
Contact: Elissa Carlin
Raising Our Celiac Kids (R.O.C.K.) - Freehold Chapter
Marlboro, NJ 07746
Tel: (732) 252-8309

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Morristown - Support Group
ROCK'n New Jersey
Contact: Andrea Kitzis Smith
Morristown, NJ 07960
Tel: (201) 965-7309

Short Hills - Support Group
Contact: Ellie Fried
Raising Our Celiac Kids (R.O.C.K.) - North Jersey Chapter
Tel: (973) 912-0253

New Mexico

Albuquerque - Support Group
Contact: Traci Shrader 
Tel: (505) 450-1156

New York

Auburn - Support Group
R.O.C.K.'n Auburn
Contact: Nicki Hai
Tel: (315) 252-2764

Glens Falls Region - Support Group 
Contact: Lisa Fox
Lake George, NY 12845
Tel: (518) 668-5838

ROCK’n Hudson Valley, NY
Contact: Terresa Bazelow
Thompson Ridge, NY
Tel: (845) 609-7432

Long Island - Support Group
Contact: Christine Lauria
East End Raising Our Celiac Kids (R.O.C.K.)

Nassau County- Support Group
Contact: Angela Silverstein
Raising Our Celiac Kids (R.O.C.K.) - Lynbrook
Tel: (516) 593-2904

Nassau/Suffolk - Support Group
Contact: Randi Albertelli
Raising Our Celiac Kids (R.O.C.K.) - Long Island Chapter
Contact 2: Jill Schneider
Tel: (516) 551-4564

Rockland, NY - Bergen, NJ
Raising Our Celiac Kids (R.O.C.K.) - Rockland, NY - Bergen, NJ Chapter
Contact: Gabrielle Simon
Telephone: (646) 342-6960

Rome - Support Group
Mohawk Valley R.O.C.K. (upstate New York)
Contact: Rebecca Madeira
Rome, NY
Tel: (315) 337-7671

Upstate - Support Group
ROCK'n Upstate New York
Contact: Karen Dorazio
Jamesville, NY 13078
Tel: (315) 469-8154

Vestal, NY
ROCK’n Vestal, NY
Contact: Razi Lissy

Western New York - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Western New York Chapter
Buffalo / Niagara Falls NY 
Contact: Jeanette Yuhnke
Tel: (716) 625-8390

Westchester, NY
ROCK’n Westchester, NY
Contact: Erica Peltz
Tel: (917) 612-4676

North Carolina

Charlotte, Support Group
Contact: Nikki Everett
Raising Our Celiac Kids (R.O.C.K.) - Charlotte Chapter 
Huntersville, NC  28078
Tel: (704)  804-4090

Harrisburg - Support Group
Contact: Linda Witherspoon
5018 Wynford Ct.
Harrisburg, NC 28075
Tel: (704) 957-6100 

Stantonsburg - Support Group
ROCK’n North Carolina
Contact: Carrie Forbes
Stantonsburg, NC 27883
Tel: (252) 238-3132

North Dakota

Fargo - Support Group
Contact: Stacey Juhnke
Tel: (701) 237-4854


Akron - Support Group
Contact: Sue Krznaric
Raising Our Celiac Kids (R.O.C.K.) - Akron Chapter
Akron, OH
Tel: (330) 253-1509

Akron - Support Group
Contact: Therese Semonin
Raising Our Celiac Kids (R.O.C.K.) - Akron Chapter
CSA Chapter 111, S.O.S. Save Our Stomachs

Cincinnati - Support Group
Contact: Beth Koenig
Raising Our Celiac Kids (R.O.C.K.) - Cincinnati Chapter 
Cincinnati, OH
Tel: (513) 923-4435

Cleveland - Support Group
ROCK’n Cleveland
Contact: Tracey Lavine
Solon, OH 44139
Tel: (216) 533-1285

Toledo - ROCK'n Toledo Support Group 
Contact: Amy Kinkaid
Toledo, OH 43615
Tel: (419) 509-6913


Salem - Support Group
Contact: Kristen Klay
Raising Our Celiac Kids (R.O.C.K.) - Salem Chapter
Tel: (503) 581-3884



Greenville - Support Group
Contact: Fiona Garner
Raising Our Celiac Kids (R.O.C.K.) - Greenville Chapter
Greenville, PA

Glenside - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Glenside
Contact: Wilhelmina Green
Glenside, PA 19038
Tel: (215) 756-2708

Greensburg - Support Group
Contact: Martin Martinosky, Jr.
Raising Our Celiac Kids (R.O.C.K.) - Greensburg Chapter 
Greensburg, PA
Tel: (724) 834-3435 

Hanover - Support Group
ROCK’n Hanover
Contact: Melissa Panzer
Hanover, PA  17331
Tel: (717) 633-1667

Harrisburg - Support Group
Gluten Intolerance Group of Harrisburg
Harrisburg, PA 
Tel: (717) 520-9817

Lancaster/York - Support Group
Contact: Janelle Gregory
Tel: (717) 687-8586

Lansdale - Support Group
ROCK Bucks Montgomery
Contact: Holly and Steve Staugaitis
Lansdale, PA  19446
Tel: (215) 997-2706


South Carolina

Charleston - Support Group
Contact: Cathy Leeke
Lowcountry R.O.C.K.
Tel: (678) 637-3277

Clover - Support Group
Contact: Lauretta McInnis 
Raising Our Celiac Kids (R.O.C.K.) - Clover Chapter 
Tel: (803) 222-5143 

Easley - Support Group
Contact: Laura Armstrong
Raising Our Celiac Kids (R.O.C.K.) - Easley Chapter 
Easley, SC
Tel: (864) 850-0344

Lexington - Support Group
Contact: Gail Fox
Raising Our Celiac Kids (R.O.C.K.) - Lexington Chapter 
Lexington, SC 29072
Tel: (803) 957-7658



Nashville - Support Group
Contact: Janet Lowery
Raising Our Celiac Kids (R.O.C.K.) - Nashville Chapter
Tel: (615) 758-2674

Woodlawn - Support Group
Contact: Shantal Green
Woodlawn, TN
Tel: (931) 648-2289


Austin - Support Group
Contact: Frances Kelley
ROCK'n Austin - Alamo Celiac GIG 
Austin, TX 78739
Tel: (512) 301-2224

Dallas/FortWorth - Support Group
Contact: Kelly LeMonds, Leader
Raising Our Celiac Kids (R.O.C.K.) - Wylie Chapter 
1821 Spinnaker Way Drive
Wylie, Texas 75098-7855
Tel: (972) 442-9328

Dallas/FortWorth - Support Group
Contact: Diane McConnell
Raising Our Celiac Kids (R.O.C.K.) - Dallas/FortWorth Chapter 
Tarrant County, TX
Tel: (817) 849-8646

Houston - Support Group
Contact: Janet Y. Rinehart, Chairman
Houston Celiac Sprue Support Group
Raising Our Celiac Kids (R.O.C.K.) - Houston Chapter 
13722 Ashley Run
Houston, TX 77077-1514
Tel: (281) 679-7608

Houston - Support Group
Contact: Faye Sallee
Raising Our Celiac Kids (R.O.C.K.) - Houston Chapter
14830 Sagamore Hills
Houston, TX 77082
Tel: (281) 496-9166

Houston - ROCK'n Houston Support Group 
Comtact: Monica Ryan
Houston, TX 77025
Tel: (713) 667-1963

Lubbock - Support Group
Contact: Beth Trostle
ROCK'n Lubbock
Tel: (806) 794-5917

San Antonio - Support Group
Contact: Rose and Michael Stevens
Raising Our Celiac Kids (R.O.C.K.) - San Antonio Chapter 
San Antonio, TX
Tel: (210) 495-7757

Victoria - Support Group
Contact: Julie Bauknight
Raising Our Celiac Kids (R.O.C.K.) - Victoria Chapter
Victoria, TX 77901
Tel: (361) 572-9252


Holladay - Support Group
Contact: Cathy Snowball
ROCK’n Utah
Holladay, UT  84121

Ogden - Support Group
Contact: Eileen Leatherow
Raising Our Celiac Kids (R.O.C.K.) - Ogden Chapter
Ogden, UT


Ashburn - Support Group
Keith Bird 
Tel: (703) 348-7607

Bristow - Support Group
ROCK’n Bristow
Contact: Michael and Elizabeth Brown
Bristow, VA 20136
Tel: (703) 753-9161

Fredericksburg - Support Group
ROCK’n Fredericksburg
Contact: Kathy Paz-Craddock
Tel: (703) 507-0609

Paeonian Springs - Support Group
Raising Our Celiac Kids (R.O.C.K.) - Paeonian Springs
Becky Shore
Tel: (571) 252-0036

Virginia Beach - Support Group
Contact: Cynthia Olson 


Bellingham - Support Group
Contact: Jean McFadden Layton
ROCK'n Washington
Bellingham, WA 98229
Tel: (360) 734-1659

Bothell, WA - Support Group
Contact: Lynn Crutcher
Rock'n Washington
Bothell, WA 98011
Tel: (425) 205-1327

Poulsbo - Support Group
Contact: Tim & Dawn Simonson
Raising Our Celiac Kids (R.O.C.K.) - Poulsbo Chapter 
Poulsbo, WA 98370
Tel: (360) 779-9292

Seattle - Support Group
Contact - Irina Risuhina
Raising Our Celiac Kids (R.O.C.K.) - Seattle Chapter

Spokane - Support Group
Contact: Jennifer Fancher
ROCK'n Spokane, WA
Spokane, WA 
Tel: (509) 891-7250

Vancouver - Support Group
Contact: Theressa Rachetto 
Vancouver, WA 98662 
Tel: (360) 713-1504

Yakima - Support Group
ROCK’n Yakima, WA
Contact: Shanta Gervickas
Tel: (509) 965-1130  

West Virginia

Hurricane - Support Group
Contact: Karen Daniel
Raising Our Celiac Kids (R.O.C.K.) - Hurricane Chapter
340 Green Acres Dr.
Hurricane, WV 25526
Tel: (304) 757-0696


DePere - Support Group
Contact: Pam Rourke 
Tel: (920) 339-7867

Jackson - Support Group
Contact: Yvonne Schwalen
Raising Our Celiac Kids (R.O.C.K.) - Jackson Chapter


R.O.C.K. Chapters in Canada


ROCK 'n Olds
Olds, Alberta, Canada
Amy Smart
403-415-5789 welcomes your comments below (registration is NOT required).

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1 Response:

Carol Engel
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
26 May 2010 10:04:45 AM PST
FYI - The ROCK phone number for Illinois - DeKalb is no longer in service. :(

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In's Forum Now:

Celiac Disease is damage to the nooks and crannies in our intestines leading to malnutrition, vitamin deficiencies with all the various symptoms that make it so hard to diagnose. Then you add years of the antacids, antibiotics, Tylenol, opioids, alcohol, etc., each with their own particular side ...

We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.

Hi Kurasz, How's it going? Any change for the amazingly better? Or slightly better? If not, hang in there, and keep praying! :)

Garden of Life brand Dr. Formulated Organic Fiber. It's certified gluten free. Also free of psyllium husk, dairy and soy. Also found that just simply increasing fiber intake works wonders. Perhaps try skipping a protein for at least one meal and fill up on veggies and fruits.

When you're looking for answers the negative endoscopy may seem like bad news in a funny way, it did for me when the doctor told me, but really as CL said it's good. Keep working with your doctors. From what you've said before gluten could still be the problem. Now you've eliminated celia...