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Celiac World Loses Renowned Gluten-Free Author

Celiac.com 05/22/2013 - Tragedy has struck the celiac community when an established author's life was taken while crossing a street in Calgary, Canada. She was a popular published author by the name of Wendy Turnball. She was made famous by her first book, Canadian Bestseller "Gems of Gluten-Free Baking."

Photo: CC--Andrea_NguyenWendy was diagnosed with celiac as an infant and was immediately put on a gluten-free diet. Physicians told her parents it was a childhood disease which she would outgrow. In her thirties infection reactivated her celiac symptoms.

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Wendy was passionate about baking gluten-free foods that could stand up to regular foods. She developed her very own whole-grain flours, which she called GEMS flour. She's left behind a gluten-free baking staple for celiacs everywhere to enjoy.

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1 Response:

 
W. Jackson
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said this on
27 May 2013 9:51:42 PM PDT
An unbelievable horrific tragedy for her family as well as for the gluten - free community. She will be missed very much. Our prayers for her family and friends.




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I was diagnosed in 2002 and I think I have had maybe 2 actual colds since then. I figured the same as you that with my immune system not having to try and 'save' me from gluten that it now is able to fight off the occasional virus. The only thing it hasn't been able to fight off is shingles. Thankfully those are clearing and I blame myself for that with lack of sleep and a very poor diet for a bit. Lesson learned, one does not live off crackers and cheese alone.

Welcome to the board. I agree with the previous posters that you are very likely looking at celiac. Please do keep her on gluten until all celiac related testing is finsihed. After that do give the diet a good strict try even if the biopsies are negative. Also keep in mind that celiac is genetic so it would be a good idea to screen others in the family even if they don't seem to have symptoms.

@jddh So...did the restricted diet you were going to implement work (FODMAP or Whole Foods)? I recall that you were mis-diagnosed at one point with refractory celiac disease, but it was later determined that you were getting trace amounts of gluten in your diet. If you are not catching colds, I assume that you have healed from the damages of celiac disease? I hope so!!! ?

Peter is correct. You do have a positive so that warrants further investigation. Here is a link supporting our comments: http://www.cureceliacdisease.org/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease/ http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Does she have celiac disease? You will never know for sure without an endoscopy. Even then, there is a chance the biopsies are negative, but keep in mind that she might just be starting to develop celiac disease or that the damage was not captured (the small intestine is the size of a tennis court if spread out). Personally, I tested negative on all but the DGP IgA, yet I had moderate to severe intestinal damage. The celiac blood tests are good, but they do not catch all celiacs, some celiacs can even test negative to ALL the blood tests. Consider yourself fortunate that your doctor ordered several of the tests and not just the screening TTG IgA (very good, keeps cost down, but does not catch all). The DGP is the preferred test in small children. I do not know why it caught me because I am old, but it did! Confusing, isn't it? I wish there was an easier way to diagnose, but we have to work with what we have available to us.

Thank you for your reply, though it's not necessarily what I wanted to hear, it is what I was thinking.