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Preview of The Gluten Summit - Excerpts From Two Iconic Experts

Celiac.com 11/07/2013 - Several of the world's most prominent scientists, researchers, healthcare practitioners, nutritionists, patients, caregivers and others interested in improving the lives of those living with gluten-related disorders will gather online, November 11-17, 2013, for the first-ever Gluten Summit: A Grain of Truth.  An excerpt from two of the iconic speakers is below.

Dr. Thomas O'BryanHave you ever wondered what "the Godfather of celiac disease diagnosis" thinks about the fact that celiac disease is generally only recognized and treated if a patient has total villous atrophy (all the shags are worn away)? I went to the source!

I had the tremendous honor of traveling to Wolfson College, Oxford University in the United Kingdom to interview Dr. Michael Marsh, "the Godfather of celiac disease diagnosis", after whom the Marsh classification of intestinal damage in celiac disease was named.

Dr. Marsh has a powerful message for the world about the critical importance of identifying and treating the early stages of celiac disease in patients before it reaches the end-stage of total villous atrophy (Marsh III). In 2006 Dr. Marsh stood up at the International Celiac Disease Symposium in New York and asked the panel the hard question "If a patient has positive blood tests and a negative biopsy, and you do not recommend a GF diet, and the patient dies of lymphoma in two years, which one of you will be able to say that you practiced a good standard of care medicine?" This was a wake-up call to the world, and five years later non-celiac gluten sensitivity was recognized as a separate condition in a consensus by 16 global experts.

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In the first interview he has ever given, in the 21st birthday year of the Marsh classification system, Dr. Marsh speaks out on:

  •     Why normal villi can also be associated with a state of gluten sensitivity
  •     Why physicians must not wait for total villous atrophy to occur before treating gluten sensitive patients with a gluten-free diet
  •     Why a variety of disciplines beyond immunologists must now join together to study the early stages of celiac disease
  •     Dr. Marsh calls them out!

Dr. Hadjivassiliou - How GLUTEN can affect your NERVOUS SYSTEM!

Dr. O'Bryan: A suggestion that you have made in a number of your papers over the years is that "It is time to move on from gut to brain." Can you tell our listeners what you mean by this?

Prof. Hadjivassiliou: Sure. I think it was a comment in relation to try and escape from the existing belief that sensitivity to gluten is primarily or even exclusively a disease of the gut. You can see why it's always been thought of as a gastrointestinal disease, simply because that's where gluten gets ingested and absorbed. However, we are talking about an autoimmune disease, and therefore the manifestations of an autoimmune disease can be very diverse...It's about time we thought of this as a systemic disease that can affect different parts of the body rather than concentrating solely on the bowel. My main interest was whether patients can manifest exclusively with neurological (nervous system) problems.

Prof. Hadjivassiliou goes on to explain:

  •     The ratio of patients with nervous system issues vs. intestinal issues
  •     Why an early diagnosis is CRITICALLY IMPORTANT
  •     Why neurological patients may take longer to see results when they start a gluten-free diet
  •     The true impact of an accidental gluten exposure on a person whose nervous system is affected by gluten

Visit theglutensummit.com for a link to the world's first ever online Gluten Summit, which will take place from Nov.11-17, 2013, to listen to the entire interview with Prof.Hadjivassiliou and many, many more interviews with the experts on gluten-related disorders and diet, and their impact you and your children's health. The Gluten Summit is a unique and FREE event which aims to move the question, "Is gluten the cause?" into today's conversation between patients and healthcare professionals potentially improving the lives of millions now.

Celiac.com welcomes your comments below (registration is NOT required).












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2 Responses:

 
Robin
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said this on
19 Nov 2013 3:35:41 PM PST
Hello ~
Just wanted to send you a HUGE thanks for helping Dr Tom O'Bryan stage this fantastic event. He is an awesome man and a wonderful human being. The speakers he organized were tops in their fields and gave us so much important information, some of it cutting edge, some that has been 'out there' for years but widely unacknowledged. It has been a rare and extremely important summit which will help - and has already - many, many people to at last enjoy good, if not transformed, health.

I now recognise that gluten is a major problem for all humans, in one way or another (systemic). In some of us it just doesn't become obvious until years down the track. Thankfully, we read Dr Davis' book "Wheat Belly" nearly two years ago and have been grain & sugar-free (teeny bits of sugar very occasionally) since then. Have also read Dr Perlmutter's "Grain Brain". We weren't overweight, didn't seem to have any problems but I bet it was affecting our bodies (insulin, brain) so we're extremely grateful to have this knowledge.

Thanks again for being part of this and for supporting Dr Tom.

Kind regards
~ Robin

 
Elizabeth
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said this on
22 Jan 2014 2:36:32 AM PST
All Information change my life and well-being.




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An autoimmune disease can occur when the body's immune system mistakenly perceives a nonthreatening substance. In the case of people with celiac disease, gluten (a protein found in wheat, barley, rye, and oats) is seen as a foreign invader and is attacked by the immune system. This immune system ...

Might consider my approach of a dairy free keto diet with very limited meat intake. I live off of omelettes with veggies, veggie stir fries nut based breads, nut butters, seeds, avocados, coconut, coconut wraps, nut based milks and cheeses instead of dairy, and I tend to have Kal nutritional yeas...

Thank u for replying, My gp said the high normal is 10 and I am 41. Waiting to have my biopsy done. Have been so Ill since last December with lots of neurological problems have had brain mri and have a small lesion on my brain but not necciserily connected to ms but have to have a repeat scan. Af...

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Oh, the description said it was crispy but didn't realize it would be hard, what about this one? https://www.walmart.com/ip/4C-Gluten-Free-Plain-Crumbs-12-oz/39096467?wmlspartner=wlpa&adid=22222222227026826600&wl0=&wl1=g&wl2=c&wl3=43010521232&wl4=aud-310687321802:pla-81548181392&wl5=9004416&...