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What Are the Barriers to Celiac Screening in Populations with High Celiac Rates?

Celiac.com 05/09/2014 - Even though we now have cheap, readily available celiac blood screening tests, more than eight out of every ten people with celiac disease remain undiagnosed, and the average time to in diagnosis of symptomatic individuals with celiac disease ranges from about six to eleven years.

Photo: Wiki Media Commons--Van Damme.A team of researchers recently set out to assess if patient-centered barriers have a role in stifling serologic screening for celiac disease in individuals from high-risk populations.

The research team included Erika M. Barbero, Shawna L. McNally, Michael C. Donohue, and Martin F. Kagnoff. They are variously affiliated with the Department of Medicine’s Division of Gastroenterology, and the Department of Family and Preventive Medicine’s Division of Biostatistics and Bioinformatics at the University of California San Diego in La Jolla, California, and with the Harvard Center for Population and Development Studies in Providence, Rhode Island.

The team recruited, from the general population, 119 adults at a higher risk for celiac disease. These participants answered a survey/questionnaire that addressed demographic information, celiac disease related symptoms (gastrointestinal and extra-intestinal), family history, co-morbid diseases and conditions associated with celiac disease, and patient-centered barriers to screening for celiac disease.

The team then screened all participants celiac disease using the IgA tissue transglutaminase antibody (IgA tTG), confirming positive results with an anti-endomysial antibody (IgA EMA) test.

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They found two significant barriers to serologic testing across the participant pool. The first was lack of knowledge of their higher risk level celiac disease. The second was a lack of knowledge about where and how to get tested.

They also noted that lack of access to a doctor ordered celiac screening test was a significant barrier for participants earning less than $25,000/year and those under the average participant age. This was also strongly correlated with participants lacking health insurance.

Patients with negative IgA tTG and those who tested positive showed similar symptoms and co-morbid conditions.

There are a number of major patient-centered barriers stifle celiac blood test screening. These patient-centered barrier contribute to the delayed celiac detection and diagnosis.

Education of the public and health care professionals about celiac disease symptoms, risk factors, and serologic testing can help to reduce these barriers.

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1 Response:

 
celiacMom
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said this on
14 May 2014 5:22:52 AM PST
As always, glad you are keeping us informed of latest research.




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Yep. Initially I had the full panel. DGP was the only positive and it's the only one my doctor orders now.

Well I wish mine was dia. earlier, I got all kinds of other food issues, and other auto immune disease that came up as complications. If you deal with and change over now you can prevent a even more limited diet. I was running a bucket list thinking I was going to die before my dia. I had slight ...

So, do they just test your DGP like they just test my TTG?

The only test I have had done is the TTG because that's what I had done initially after taking matters into my own hands and going to my local health fair. Celiac is so common they do that screening at our health fair. My number was so high that my doctor didn't order other labs and went straight...

Celiac used to be considered a children's disease - so, by the old standards, you are a bit old to be diagnosed. We now know that Celiac can start at any age. I don't know if you are a male or a female, but untreated Celiac can lead to miscarriages and infertility. And all the other stuff...