23773 The National Foundation for Celiac Awareness Gets $2 Million for Research and Awareness - Celiac.com
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The National Foundation for Celiac Awareness Gets $2 Million for Research and Awareness

Celiac.com 11/13/2014 - An anonymous donor has made a $2 million dollar contribution to the National Foundation for Celiac Awareness (NFCA).

Photo: Wikimedia Commons--National Museum of American HistoryThe donation is the largest in the organization's history, and will support the NFCA’s mission is to raise celiac disease awareness, promote research and testing testing, and improve the quality of life for celiacs eating a gluten-free diet.

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Since 2003, the NFCA has worked to promote celiac disease research and awareness.

The grant will help to ensure support for the NFCA as it looks to increase research and awareness into the future.

Stay tuned for updates on how the NFCA supplements or expands its ongoing efforts on behalf of people with celiac disease and gluten intolerance.

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2 Responses:

 
Maris
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said this on
17 Nov 2014 9:26:34 AM PDT
This is great news! I look forward to your updates on how the money is spent, types of research, etc.

 
Ellen M Thompson
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said this on
24 Nov 2014 8:00:42 PM PDT
Just this minute came across you site. I am 60, Irish and have lived with coeliac all my life. I am also a medical professional. I could also write an encyclopedia on the condition. Looking forward to reading your data/site at a later time.




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Wish I could give you a hug. Unfortunately I know how that feels with Neurologists, Internists, Endocrinologists, Rheumatologists, GIs..... I got so tired of crying my drive home after refusing yet another script for Prozac. I do hope your GI can give you some answers even if it is just to rule out other possible issues. Keep on the gluten and we are here for you.

It is too bad that so often a full panel isn't done. Glad your appointment got moved up and hopefully you will get a clearer answer from the GI. Do keep eating gluten until the celiac testing is done. Once the testing is done do give the diet a good strict try. Hang in there.

That makes sense...I cried with relief when I got my diagnosis just because there was finally an answer. Please know that you are not weak or crazy. Keep pushing for testing. It could still be celiac, it could be Crohns. Push your Dr's to figure this out. Best wishes.

Thank you all very much. I actually cried when I got the answer. I wanted an explanation that I could "fix." Now I'm back to thinking I'm just weak and possibly crazy. I know I'm not crazy, but you know.

From what I have read online there is about a 1-3% chance of getting a false positive for celiac disease from a blood test. Was it a blood test that you got done? It may be worth your while to get a biopsy or more testing just to confirm it. I know being gluten free is a pain but it is better than getting cancer or other auto immune disorders.