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Gone Girl? A Spiritual and Digestive Reawakening

Hey, where ya been lady?

Celiac.com 05/14/2015 - A few years ago I ceased writing about the SCD (Specific Carbohydrate Diet) here on celiac.com because I feared I might be an impostor.  I was never formally diagnosed as celiac by way of a biopsy, and despite bloating, night rashes, brain fog, unpredictable bowel habits and headaches the main cause was identified as IBS (Irritable Bowel Syndrome). Still, the old shoe fit, because every time I tried to behave like a non-celiac, I got ill, very ill.

Photo: CC--ThiruvannamalaiFinally in 2010 during a routinely scheduled colonoscopy, a large polyp was discovered that could only be effectively removed via a surgical resection. The intestine is like a long garden hose and I only have half the previous length left.  Recovery was slow and difficult and I had barely been able to eat anything in hospital, so once home, I started the SCD all over again with the three day strict introductory regimen and had to reintroduce previously tolerated foods very gradually.

When I was completely recovered, I decided that after so many years of restriction and without a formal diagnosis it was easy to use the excuse that it was in my head more than in my tummy.  But you can't defy reality and the result was, and is, a re-commitment—a spiritual and digestive reawakening—combined with awareness of what today's expanded food culture is doing to us health-wise (more like unwise!).

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Some interesting things have been happening in the greater world of food and nutrition.  More and more reliable sources realize that the evolution of food products and eating habits over the past five decades is making too many people obese and/or ill.  I also discovered I have a food addiction and consequently am rededicated to being even more creative and imaginative about satisfying meal preparation. Good to know that pop culture is in my corner. 

Hello and "Bravo" to TV reality shows about cooking and home renovation. With no house to flip, no kitchen island to install, I am doing my fixer upper and making SCD cooking more enjoyable than ever with newer concoctions than I created before the surgery.  So, I'm back, avoiding food boredom and self pity, being good to myself and good for myself, and happy to encourage others to deal with their gastric issues. Now we are the envy if the food world. The ultimate irony of having been made to feel different is that gluten-Free has become almost a fad—often adopted by people who don't need to be gluten-free (present company definitely excluded)!

BTW: I am now 84.

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It took me 20 years or more Barry so I wouldn't claim any great insight on this I had a 'eureka' moment, up until then I was walking around with multiple symptoms and not connecting any dots whatsoever. It is very, very difficult to diagnose and that's something that's reflected in so many of the experiences detailed here. A food diary may help in your case. It helped me to connect the gaps between eating and onset. It could help you to track any gluten sources should you go gluten free. It is possible for your reactions to change over time. As to whether its celiac, that's something you could explore with your doctor, stay on gluten if you choose to go that way. best of luck! Matt

I took Zoloft once. Loved it until it triggered microscopic colitis (colonoscopy diagnosed it). Lexapro did the same. However, I have a family member who is fiagnosed celiac and tolerates Celexa well.

Thanks for the update and welcome to the club you never wanted to join! ?

Jmg, I am glad you were able to come to the realisation that the culprit was in fact gluten. For me its not so simple. IBS runs in the family, as do several food intolerances. Its just in the last while that I can finally reach the conclusion that for me its gluten. The fact that it is a delayed effect-several hours after, made it harder. Friday I had some KFC, felt great. Saturday evening felt sleepy, Sunday felt awful and my belly was huge. I think I have gone from mildly sensitive to full blown celiac over the course of five years-if that possible. Thanks for all your help.

I thought I'd take a moment to provide an update, given how much lurking I've done on these forums the last year. It took a long time, but I've since had another gastroenterologist visit, many months of eating tons of bread, and an endoscopy where they took several biopsies. I have to say, the endoscopy was a super quick and efficient experience. During the procedure they let me know that it looked somewhat suspicious, causing them to take many biopsies, and then did comprehensive blood work. About a month later, I received a call telling me that the TTG came back positive a second time, and that the biopsies were a mix of negative (normal) results and some that were positive (showing blunting of the villi). As a result, I've been given a celiac diagnosis. It's been about a month now that I've been eating gluten free. Not sure if I'm really feeling all that different yet. It's a bit twisted to say, but in some way I was hoping for this diagnosis ? thinking how nice it would be to have an explanation, a plan of action, and feeling better. It's certainly no small change to be totally gluten free, but I'm hopeful.