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Beyond Celiac Announces Innovative Collaborative Research Effort: Go Beyond Celiac Digital Community

Research shows that the gluten-free diet is not enough.

Beyond Celiac has launched Go Beyond Celiac™, a digital community that will accelerate treatment options beyond the gluten-free diet. Go Beyond Celiac is designed to make it easier for people with celiac disease to share their stories at a population level with researchers and to participate in research themselves.

"The gluten-free diet is an incomplete and unreliable treatment, and yet it's all we've got," says Alice Bast, CEO of Beyond Celiac. "No other options have been developed since the connection to gluten was discovered some 70 years ago. We deserve better and Go Beyond Celiac will speed our progress."

Research shows that the gluten-free diet is not enough. Beyond Celiac Board Member Ciaran P. Kelly, MD, and Director of the Celiac Center at Beth Israel Deaconess Medical Center/Professor of Medicine at Harvard Medical School notes, "At least 10 percent of those with celiac disease who follow a gluten-free diet have ongoing or recurrent celiac disease-related symptoms or signs. Further, people with celiac disease report a very high burden of disease, comparable to end stage renal disease." In a recent Beyond Celiac survey, 71% of respondents report getting glutened at least occasionally, and more than a quarter of them get so sick that their ability to carry out every day activities is severely impaired.

Ads by Google:

Through Go Beyond Celiac people can share:

  • Experiences before, during and after diagnosis
  • Past and current symptoms
  • Psychological, emotional, and economic impacts of living with celiac disease

Go Beyond Celiac will also include a secure, one-of-a-kind celiac disease registry that will keep the community up to date on the latest in medical research and available clinical trials for which they may qualify and in which they may wish to participate.

Contact: Claire Baker, Director of Communications, cbaker@BeyondCeliac.org

Visit our site for more details.

Celiac.com welcomes your comments below (registration is NOT required).












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Interesting article. I do wonder how she was 'misdiagnosed' though and how she came to the conclusion she wasn't celiac.

Try dropping the oats for while and see if that helps. Some of us, myself included, react to even the ones that are certified as gluten free.

Hey guys, I appreciate the input, you are all very sweet and kind. I do not eat out at all. Only eat food I cook. No alcohol. Only certified gluten-free oats, grains, rice, etc. I have 3 roommates in a little house. I have my own gluten-free section to cook and prepare foo...

What was your gluten free diet like? I wonder if, when you were gluten-free, you went more whole food, less processed food? Or did you continue to eat processed food that was just gluten free? One reason I ask is that I have cut way back on grains and processed foods like gluten-free bread, but o...

Equal parts Hershey Coco Powder and a sweetener with a pinch of salt. Super easy to make your own. I like adding a bit to my coffee with almond milk, and lakanto sugar free maple, or a bit of monk fruit or stevia. PS you might want to drop dairy milk. The enzymes to break it down come from th...