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Associazione Famiglie Bambini Celiachi
Contact: Emilia Romague
Via Masia 21
I-40138 Bologna, Italy
Tel: 39/51/391980

A.I.C. Associazione Italiana Celiachia
Home page:
Contact: Anna Maria Vallesi
Via Picotti 22
56124 Pisa, Italy
Tel/Fax: +39 (50) 580939

Group: Marche
Contact: Ratini Paolo
Via A.Rocca, 20
60011 Arcevia (Ancona)
Tel. +39-731-9047

Group: Assoc Famigilie Bambini Celiaci
Contact: Silvio Costantini
Via Masia 21
I-40138 Bolgna
Tel. +39-51-391980

Group: Alto Adige
Contact: Sinn Franz
Via Am Eichamt, 29
39050 Cornaiano (Bolzano)
Tel. +39-471-662424

Group: Sardegna
Contact: Maria Teresa Russo
Via Sassari, 69
09121 Cagliari
Tel. +39-70-652912

Resource of Italy
Contact: Luigi Delussu
Strada 47, Poggio dei Pini
09012 Capoterra CA
Tel: 39 70 725483

Contact: Quattromani Antonio
Via Brigata, 7
88100 Catanzaro
Tel. +39-961-782310

Group: Puglia - Basilicata
Contact: Gasperi Anna Maria Pia
Via Padre Ardelio della Bella, 13
71100 Foggia
Tel. +39-881-686930

Group: Liguria
Contact: Spanio Barbara
Via Telesio, 4/3
16145 Genova
Tel. +39-10-319232

Italian Coeliac Association
Piazza Costituzione Italiana, 2
50023 Figline Valdarno

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Group: Lombardia
Piazza Erculea, 11
20122 Milano
Tel./Fax: +39-2-86.78.20

Group: Campania
Via Fiorentine a Chiaia, 9
80122 Napoli
Tel. +39-81-7612112

Group: Sicilia
Donizetti, 12
90134 Palermo
Tel./Fax. +39-91-320702

Group: Umbria
Contact: Pellicori Spinelli Elsa
Via Cortonese, 74/A
06127 Perugia
Tel. +39-75-5007369

Group: Abruzzo
Contact: Innamorati Paolo
Via Botticelli, 53
65100 Pescara
Tel. +39-85-4210355

Group: Toscanav
Contact: Ricci Viviana
Viale Montegrappa, 314
50047 Prato
Tel. +39-574-583169

Reggio Emilia
Group: Emilia Romagna
Contact: Gualtieri Mauro
Via Bonazza, 22
42016 S.Giorgio Di Guastalla (Reggio Emilia)
Tel. +39-522-830328

Group: Lazio
Contact: Sgroi Maria Rosa
Via dei Giovi, 45
00141 Roma
Tel. +39-6-87181786

Group: Piemonte - Valle dAosta
Contact: Lucia Bramante
Via Palestro, 11bis
10036 Settimo Torinese (Torino)
Tel. +39-11-8950476

Contact: Vettori Elsa
Loc.Man S.Antonio, 25
38050 Villazzano (Trento)
Tel. +39-461-922117

Group: Veneto
Contact: Finardi Umberto
Via Fabia, 17/9
31010 One Di Fonte (Treviso)
Tel. +39-423-948166

Group: Friuli Venezia Giulia
Contact: Spinelli Caterina
Via Tolmezzo, 8
34100 Trieste
Tel. +39-40-422472 welcomes your comments below (registration is NOT required).

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In's Forum Now:

All Activity Celiac Disease & Gluten-Free Diet Forum - All Activity

Hello I was diagnosed Dec 15 of last year and went totally gluten-free the next day. I actually got worse before I got better - it's a steep learning curve - but now, 4 1/2 months later I'm finally seeing improvement. Hang in there.

Called my GI doctor today to make sure he is going to look at my small intestine and do biopsy for Celiac for my EGD and he is. Thanks for the tip everyone about have to start eating gluten again. The office told me to break my gluten free diet and start eating gluten everyday until my EGD. Here's to being miserable again for a few weeks ???

I can completely relate! The horrible mental effects that I have been living with for years is the absolute worst side effect of eating gluten, HANDS DOWN. Worse than the endless tummy aches, worse than the constant diarrhea, worse than the week long migraines, worse than the daily fatigue and body pain.... I honestly though there was something seriously wrong with me and hated my life because of how I felt mentally. I always felt like I was drowning, not in control of my thoughts, trapped in some unexplained misery. My head was always so cloudy, and I was mad because I always felt so slow and stupid. I would feel so lethargic and sad and empty while at the same time be raging inside, wanting to rip out of my own skin. I was mean, terrible, would snap at the people closest to me for no good reason and just felt like I hated everyone and everything. Think of how crappy you feel when you have a terrible cold and flu - I felt that crappy, but mentally. Some days were really bad, some were mild. I always thought it was because I was getting a migraine, or because I had a migraine, or because I had just overcome a migraine, because I didn't sleep well, because....always a random reason to justify why we have all these weird unrelated symptoms before we get diagnosed. I'm happy to say that I have been gluten-free for about 2 months now and though I am not symptom free, the first thing that improved was my mood. I no longer feel foggy and miserable. For the first time in years, my head is clear, I can actually think, and I feel positive and like I am in control of what's going on in my head. I don't hate the world. I don't spend every day bawled up on the corner of the couch depressed and angry. The release of these horrible symptoms is enough to never make me want to cheat, no matter what I have to miss out on. So insane how a little minuscule amount of a stupid protein can wreck such havoc.

I wanted to collect some of the info on NCGI in one place so that visitors who test negative but may still have an issue with gluten can be directed there. I'll add to this post as I find new links, but feel free to add or contribute anything you think may be of use! Matt --- Useful links: An overview from Alessio Fasano, one of the world's leading researchers on celiac and gluten sensitivity: Umberto Volta, another leading researcher in the field gives some of the latest findings about NCGI: Presentation slides from Dr Volta's visit to Coeliac UK - NCGS about halfway through A scholarly overview from celiac disease magazine: A good overview from a sceptical but fair perspective: Another overview: University of Chicago's excellent celiac site's take: A compelling account in the British Medical Journal from an NCGI patient: Here's some positive news about a potential new test: NCGI in children: NCGI and auto immune study: Also consider: Fodmaps: This Monash study: suggested some who think they're reacting to gluten should actually be reducing fodmaps Sibo:

I was just diagnosed in March and I totally feel you. I'm having a hard enough time with determining which lip glosses are safe, let alone all my face products etc. I feel like this 'grey area' is the biggest annoyance with Celiac. So many foods/cosmetics I thought were safe after reading the ingredient list are actually not safe at all! One website says it's safe, one says its not. All these unfamiliar ingredients and even after googling term after term still so many grey areas!! I'm sure in time it gets easier and second nature and you learn by trial and error but holy this constant uncertainty is super annoying haha.