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Celiac Sprue Association Revises its Dietary Guidelines

Celiac.com 08/10/2001 - The Celiac Sprue Association, under the new leadership of Mary Schluckebier, has recently taken an important step towards eliminating the lingering confusion surrounding its position on gluten-free foods. According to Janet Rinehart, the CSAs "Basics for a Celiac Diet" guidelines have recently been revised to include the following key changes:

  • Canola oil is not mentioned (except where you might assume the connection for "general recommendations for those with a depressed immune system)."
  • Rather than stating that quinoa, amaranth and teff are not safe for the celiac diet, the document now says: "Some celiacs have demonstrated toxicity or sensitivities to the following cereals: quinoa, amaranth and teff."

Distilled vinegar, however, is still on the CSAs "Low Gluten Items to Avoid List." The CSA still maintains that distilled vinegar and alcohol are "questionable," even if there is no detectable gluten/gliadin in them, and even though the Gluten Intolerance Group (GIG), Celiac Disease Foundation (CDF) and the new guidelines from the American Dietetic Association (ADA) all include them on their safe lists . The CSA urges celiacs to ascertain the source of any questionable ingredients from their manufacturers.

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The CSAs new version of their "Celiac Disease Self-Management Chart for the Clinical Diet" advocates:

  • A "self-management" approach to the diet, where the first stage is to eliminate anything questionable -conservative approach. Zero gluten is the goal.
  • The second stage is to develop good methods for questioning products and controversial items/information. Then introduce new items, one at a time, at least two weeks apart.
  • The third stage is to maintain a stable diet, using as many tools as possible. There is also a sample Food Diary Chart to use when beginning the zero gluten diet to track your meal planning (be sure to include brand names for reference).

According to Janet Rinehart the CSAs new guidelines "are not incompatible with the new ADA recommendations in the later stages." Further: "We can use the CSA diet to start with, and then use the ADA recommendations and those published by GIG/CDF, depending on individual food sensitivities." She urges celiacs and support groups to quite blaming the CSA and instead work together to contribute positively to the success of all celiacs in all groups.

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1 Response:

 
Sharon Fountain
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said this on
20 Nov 2007 5:52:01 AM PST
You just saved me again. I purchased a product to provide a basic quick supplement meal to my diet as I learn how to live as a celiac only to have an obvious reaction. I was very confused as to why until I read this article. Thank you




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You are replying to a 7 year old post, so I doubt you will hear back.

Message to Hertzya is there anyway to contact you outside the forum? My daughter is in the Navy and was just tested for Celiac. I heard that if it?s positive she will get a medical discharge. She?s freaking out. How did you manage to get around that? Is there a precedent? Hope you can help! ...

Thanks very much everyone

First, you're not really "young" to be diagnosed. Most people are diagnosed when they're older but it isn't because they didn't have it when they were young. It's because until recently people were being told they have IBS and everything else under the sun before they were finally told they have ...

http://www.cureceliacdisease.org/ University of Chicago Celiac Center.