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Amount of Research Done in the USA / Celiac Disease Incidence in the USA

Below is in excerpt from THE SPRUE-NIK PRESS which was sent out on Thursday, 7 Dec 1995 as an Automatic distribution (AFD) of the file CELIAC SPRUENIK. If you would like to get this excellent celiac resource, contact Mike Jones at mjones@digital.net

Note that the endomysial test he used correlates well with a damaged mucosa. Less severe forms of gluten intolerance would have an even higher incidence. - Don Wiss

Dr. Fasano, from the University of Maryland School of Medicine, began the meeting with some interesting data on celiac research:

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Over the past 30 years there have been 6,276 papers published on celiac disease and only 10 of these were from the USA.

In an effort to quantify the number of celiacs in the USA Dr. Fasano took his own money and purchased 2000 blood samples from the Red Cross. He screened each of the blood samples for celiac disease using the endomysial antibody test. Eight of these samples tested positive. This indicates a potential ratio of 1/250 people in the USA with celiac disease or with the genetic potential to develop CD. If this ratio were to hold true for the entire USA population, it would mean there are over one million celiacs in this country. Remember this is one small study, using samples from the Baltimore area. The point is, we need more studies such as this, using a larger sample size derived from multiple areas around the country, to get a reliable estimate of the incidence of celiac disease in this country.

For more information on the incidence of celiac disease see the Research Data On Celiac Disease page.

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Thought cyrex is very similar to a celiac testing panel? Mostly I was just curious if IGG test results are worth anything as an indicator. I've read they can just indicate that you're actually tolerate or have recent eaten the foods (I was prior to the test).

The other alternative is just eliminating it from your diet and seeing if you do end up feeling better. There?s a chance your not celiacs and could be intolerant which is just as bad for reactions but can?t be proven with the celiac testing. It depends on how bad you would feel eating it every ...

I am the only one in my immediate family (out of my 3 siblings and both parents) to have celiacs even thought I inherited the autoimmune thyroid issues from my parents, but have a second cousin who was diagnosed 8 years ago and that?s it.

One other thought to consider is other food allergies/intolerances you may have that you didn?t know of before that could be causing this change. Is there any food that you may have added in or increased the frequency of eating since removing gluten from your diet? I know this has happened with...

Hey I?m new here too- but totally get what your talking about! I have some friends that claim to be ?gluten free? but if they are hungry will eat a piece of bread and it can be frustrating to have them later complain to you about how hard it is to eat a gluten-free diet!