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University Researchers Seek Families with Celiac Disease/Dermatitis Herpetiformis History

Celiac.com 05/12/2003 - Families that have had two or more relatives diagnosed with Celiac Disease or Dermatitis Herpetiformis are being sought for a study to identify factors associated with the development of celiac disease. The goal of the study is to find genes that may predispose individuals and their relatives to develop the condition. The study has been funded for the last six years by a grant from the National Institutes of Health.

Discovery of a gene for Celiac Disease could eventually lead to better diagnosis, treatment, and possibly even prevention of celiac disease. Ultimately, the research could result in development of preventive strategies and therapies for individuals who are at high risk for the condition. It is estimated that 1 in 200 people in the United States suffer from Celiac Disease.

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We are looking for individuals with proven celiac disease who have siblings or extended family members who have also been diagnosed with the disease. The study will accept families where at least two individuals in the same family, with the exception of simple parent-child pairs, have been diagnosed with celiac disease or dermatitis herpetiformis. Study participants will be asked to provide some family medical history and a small blood sample for genetic analysis. Participants will also receive a free Endomysial Antibody test for screening for Celiac Disease.

For further information, please contact Linda Steele at the City of Hope at (626) 471-9264 or toll-free at (800) 844-0049 or e-mail celiacstudy@coh.org.

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Just thought of something else. Have you tried cream of rice cereal? When I was at my worst, I'd have this a few times a day to settle my stomach.

The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkin...

You could certainly try. Just remember that, if the mix doesn't have xanthum gum, you may need a little.

Maybe the 20 mg. was too strong for you and increasing symptoms? I have a very low threshold for most meds, and do better on child sized doses. If you tolerate the 10 mg., that may be the way to go just to get symptoms under control and get stabilized. Or maybe 10 mg. every other day, if tha...

I am sorry that you are all having to go through this. I know all too well the neuro issues she is going through. The world seems so hopeless under that gluten cloud. But it does lift. There isn't much a neurologist is going to be able to do except to encourage her to be as strict as possible. ...