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About Danna Korn


About Danna Korn

Danna Korn is the author of Kids with Celiac Disease: A Family Guide to Raising Happy, Healthy Gluten-Free Children, published by Woodbine House; and Wheat-Free, Worry-Free: The Art of Happy, Healthy Gluten-free Living, published by Hay House. She has written dozens of articles on gluten-free living that have been published in national magazines and newspapers, and appears frequently on national and local broadcast media in an effort to raise awareness of celiac disease. Danna has been researching celiac disease since her son, Tyler, was diagnosed with the condition in 1991. That same year, she founded R.O.C.K. (Raising Our Celiac Kids), a support group for families of children on a gluten-free diet. Today, Danna leads more than 65 chapters of R.O.C.K. throughout the nation. She speaks frequently around the country to health care professionals, celiacs, parents of celiacs, parents of autistic kids involved in a gluten-free/casein-free dietary intervention program, and others on a gluten-free diet.

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Danna lives in Encinitas, CA with her children, Tyler and Kelsie.

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3 Responses:

 
Teal
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
29 Mar 2009 8:46:21 AM PDT
Beware of Gluten Free foods. Many have high glycemic index and can cause blood sugar problems:

Book Request: In addition to Gluten intolerance, I have casein intolerance, chronic hypoglycemia and problems with fatigue and in the past with candida. When I started to eat gluten free I did not realize that there would be problems with GI (glycemic index). Neither did I understand how glycemic index works.

I started to have problems with blood sugar! I need processed food, easy fast recipes and support for a gluten & casein free diet with a low glycemic index.

I am sure that I am not the only one who has had problems with blood sugar after starting a gluten free diet.

Please help! Write me a book that will help me, please.

 
Ike
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
28 Mar 2010 12:04:38 PM PDT
The best information that I have ever read. I passed it on to other family members, too.
Thank you.

 
Ike
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Apr 2010 3:51:38 PM PDT
I too, being a working lady, like the convenience for short cuts to a good meal. However, I am (with my husband) still a huge label reader. For now it takes some of my time at the stores , but my health is my life. I do e-mail any and all companies that state gluten free on their labels. As they too need to know the good, bad and ugly of what is out there.
I wish you all good health with good food.




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Hello I was diagnosed Dec 15 of last year and went totally gluten-free the next day. I actually got worse before I got better - it's a steep learning curve - but now, 4 1/2 months later I'm finally seeing improvement. Hang in there.

Called my GI doctor today to make sure he is going to look at my small intestine and do biopsy for Celiac for my EGD and he is. Thanks for the tip everyone about have to start eating gluten again. The office told me to break my gluten free diet and start eating gluten everyday until my EGD. Here's to being miserable again for a few weeks ???

I can completely relate! The horrible mental effects that I have been living with for years is the absolute worst side effect of eating gluten, HANDS DOWN. Worse than the endless tummy aches, worse than the constant diarrhea, worse than the week long migraines, worse than the daily fatigue and body pain.... I honestly though there was something seriously wrong with me and hated my life because of how I felt mentally. I always felt like I was drowning, not in control of my thoughts, trapped in some unexplained misery. My head was always so cloudy, and I was mad because I always felt so slow and stupid. I would feel so lethargic and sad and empty while at the same time be raging inside, wanting to rip out of my own skin. I was mean, terrible, would snap at the people closest to me for no good reason and just felt like I hated everyone and everything. Think of how crappy you feel when you have a terrible cold and flu - I felt that crappy, but mentally. Some days were really bad, some were mild. I always thought it was because I was getting a migraine, or because I had a migraine, or because I had just overcome a migraine, because I didn't sleep well, because....always a random reason to justify why we have all these weird unrelated symptoms before we get diagnosed. I'm happy to say that I have been gluten-free for about 2 months now and though I am not symptom free, the first thing that improved was my mood. I no longer feel foggy and miserable. For the first time in years, my head is clear, I can actually think, and I feel positive and like I am in control of what's going on in my head. I don't hate the world. I don't spend every day bawled up on the corner of the couch depressed and angry. The release of these horrible symptoms is enough to never make me want to cheat, no matter what I have to miss out on. So insane how a little minuscule amount of a stupid protein can wreck such havoc.

I wanted to collect some of the info on NCGI in one place so that visitors who test negative but may still have an issue with gluten can be directed there. I'll add to this post as I find new links, but feel free to add or contribute anything you think may be of use! Matt --- Useful links: An overview from Alessio Fasano, one of the world's leading researchers on celiac and gluten sensitivity: https://www.youtube.com/watch?v=VvfTV57iPUY Umberto Volta, another leading researcher in the field gives some of the latest findings about NCGI: Presentation slides from Dr Volta's visit to Coeliac UK - NCGS about halfway through A scholarly overview from celiac disease magazine: https://www.researchgate.net/profile/Knut_Lundin/publication/232528784_Non-celiac_Gluten_Sensitivity/links/09e415098bbe37c05b000000.pdf A good overview from a sceptical but fair perspective: https://sciencebasedmedicine.org/a-balanced-look-at-gluten-sensitivity/ Another overview: https://celiac.org/celiac-disease/understanding-celiac-disease-2/non-celiac-gluten-sensitivity-2/ University of Chicago's excellent celiac site's take: http://www.cureceliacdisease.org/category/faq-non-celiac-gluten-sensitivity/ A compelling account in the British Medical Journal from an NCGI patient: http://www.bmj.com/content/345/bmj.e7982 Here's some positive news about a potential new test: http://www.medicaldaily.com/non-celiac-gluten-insensitivity-blood-test-392850 NCGI in children: NCGI and auto immune study: https://www.ncbi.nlm.nih.gov/pubmed/26026392 Also consider: Fodmaps: http://www.kcl.ac.uk/lsm/research/divisions/dns/projects/fodmaps/faq.aspx This Monash study: http://fodmapmonash.blogspot.co.uk/2015/03/the-truth-behind-non-celiac-gluten.html suggested some who think they're reacting to gluten should actually be reducing fodmaps Sibo: http://www.webmd.boots.com/digestive-disorders/small-intestinal-bacteria-sibo

I was just diagnosed in March and I totally feel you. I'm having a hard enough time with determining which lip glosses are safe, let alone all my face products etc. I feel like this 'grey area' is the biggest annoyance with Celiac. So many foods/cosmetics I thought were safe after reading the ingredient list are actually not safe at all! One website says it's safe, one says its not. All these unfamiliar ingredients and even after googling term after term still so many grey areas!! I'm sure in time it gets easier and second nature and you learn by trial and error but holy this constant uncertainty is super annoying haha.