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Center for Celiac Research

University of Maryland Center for Celiac Research is an institution engaged in clinical care, diagnostic support, education, and clinical and basic science research in Celiac Disease.The paramount goal of the Center for Celiac Research is to increase the awareness of celiac disease in order to provide better care, better quality of life, and more adequate support for the celiac disease community. In order to achieve these goals the Center for Celiac Research has the following primary missions:

  • 1) To support cutting-edge, innovative, interactive, multidisciplinary research in all aspects of celiac disease including (1) epidemiology research to establish the prevalence of the disease worldwide; (2) basic research (pathophysiology, autoimmune mechanisms, inflammatory processes, genetics); (2) clinical research (clinical spectrum of celiac disease, association with other autoimmune diseases, complications including infertility, osteoporosis and malignant transformation); (3) challenges of treatment of the disease (psychological impact of the diagnosis on family dynamics and on the acceptance of the gluten-free diet, toxicity of traces of gluten in both symptomatic and asymptomatic patients);
  • 2) Increase the awareness of the disease among (1) health care professionals including primary and subspecialty physicians, nurses, nutritionists and dietitians; (2) public and private health care providers; (3) food regulatory agencies; (4) legislators; (5) general population;
  • 3) To provide state-of-the-art education opportunities for medical students, graduate students, post-doctoral fellows and visiting scientists in one or more of the broad areas outlined as mission 1; to offer educational exchange opportunities to international students, clinicians and scientists particularly from the developing countries;
  • 4) To provide consultation in the area of basic and clinical aspects of celiac disease, advise on the most appropriate algorithm for diagnosis and treatment of the disease;
  • 5) To implement the diagnostic tools for celiac disease including newly developed diagnostic strategies and international implementation of the standardization of these tools;
  • 6) To provide expert consultantship or committee membership to both national and international agencies as well as industry engaged in activities in celiac disease.

Organization Plan of the CFCR

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To achieve the mission and goals outlined in the previous section, it is pivotal that the Center has a multidisciplinary approach to research and education in celiac disease. Based on the recent scientific advances in this field, it became apparent that several expertises should interface under a common structure. Specifically the key components of the CFCR include:

(1) a diagnostic laboratory in which well standardized test for the diagnosis of celiac disease are used and implemented; (2) a strong clinical expertise for the diagnosis and treatment of celiac disease; (3) sophisticated immunology components to study the autoimmune process involved in the pathogenesis of the disease; (4) a strong basic science laboratory with expertise in molecular biology, intestinal pathophysiology, human genetics, and gut immunology; (5) food technology to implement the guidelines for safe gluten- free products, to improve the quality and the economical impact of the diet for celiac patients (5) a nutrition core facility that can provide the most updated information on diet guidelines; (6) a psychological core component knowledgeable of the emotional impact of the diagnosis and treatment of the disease.

University of Maryland Center for Celiac Research
22 S. Greene Street, Box 140
Baltimore, MD 21201
pking@peds.umaryland.edu
http://www.celiaccenter.org/

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Wish I could give you a hug. Unfortunately I know how that feels with Neurologists, Internists, Endocrinologists, Rheumatologists, GIs..... I got so tired of crying my drive home after refusing yet another script for Prozac. I do hope your GI can give you some answers even if it is just to rule out other possible issues. Keep on the gluten and we are here for you.

It is too bad that so often a full panel isn't done. Glad your appointment got moved up and hopefully you will get a clearer answer from the GI. Do keep eating gluten until the celiac testing is done. Once the testing is done do give the diet a good strict try. Hang in there.

That makes sense...I cried with relief when I got my diagnosis just because there was finally an answer. Please know that you are not weak or crazy. Keep pushing for testing. It could still be celiac, it could be Crohns. Push your Dr's to figure this out. Best wishes.

Thank you all very much. I actually cried when I got the answer. I wanted an explanation that I could "fix." Now I'm back to thinking I'm just weak and possibly crazy. I know I'm not crazy, but you know.

From what I have read online there is about a 1-3% chance of getting a false positive for celiac disease from a blood test. Was it a blood test that you got done? It may be worth your while to get a biopsy or more testing just to confirm it. I know being gluten free is a pain but it is better than getting cancer or other auto immune disorders.