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May 2003 Updates

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    * Subscribe to the Gluten-Free Food & Drug SmartLists to have the latest mainstream gluten-free product & drug information.
    * Order Scott-Free newsletter today and get four new issues over the next year, plus free on-line back issues.
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    * The following new articles were added to the Celiac Disease Research: Associated Diseases and Disorders section:
          o Gluten-free Diet Prevents Diabetes (Type 1) at Same Rate as Gluten-enriched Diet
          o Increased Cancer Risk Associated with Delayed Diagnosis of Celiac Disease
    * The following new article was added to the Celiac Disease Diagnosis, Testing & Treatment section:
          o New Method of Diagnosing Celiac Disease Looks Promising
    * The following new articles were added to the all new Gluten-Free Food Reviews section:
          o Garbo Toast Bread: For Those About to Toast, Garbo Salutes You!
          o Marthas Tasty All Breast Meat Gluten-free Chicken Nuggets
          o Dr. Praegers Gluten Free Fish Sticks and Fish Fillets Hit the Spot
          o Dads Gluten-free Pizza Crust is sure to Please
    * The following new recipes have been added to the Gluten-Free Recipes section:
          o Lentil Soup (Gluten-Free)
          o Creamed Chipped Beef on Toast (Gluten-Free)
          o Sloppy Joes (Gluten-Free)
          o Magic Muffins - Universal Gluten-Free Muffin Mix
    * The Celiac Disease in the Media section always has up-to-date links to media articles regarding celiac disease and the gluten-free diet.
    * You are invited to use our sites free, and very popular Celiac Disease Message Board/Forum and Calendar.

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You would think that there is enough people out there, people with celiac disease, that we'd be able to push for a better standard than 20ppm. The problem is the FDA. Too much lobbying involved. It's no different than the fight people are having with Monsanto. I hear that there are several medications that are showing promise in Canada who I think also has a better standard than us.(not positive about that though)

Make sure that you ask the doctor how long she has to stop the supplements before you have her levels tested and be sure to take them all with you when you have the appointment so the doctor knows what she is taking.

Talk to your doctor. With your family history and symptoms he/she may be able to diagnose based on resolution of your symptoms and family history. Also check with your local hospital if it has it's own lab. Mine covered any labs at a greatly reduced cost based on a sliding fee scale. Did you have an MRI before they did the spinal? Celiacs with neuro impact will have white spots on an MRI that resemble the lesions found with MS. Many neuro doctors don't know this. I went through what you did and they did a spinal on me also based on the MRI results. If my doctor had know what the UBOs (unidentified bright objects) were I would have been diagnosed a couple years sooner than I was. Make sure if you supplement that you ask your doctor which ones you need to stop taking and for how long before they do a blood test to check levels. Sublingual B12 is a good idea when we have nervous system issues, but needs to be stopped for at least a week for an accurate blood level on testing. I hope you get some answers and feel better soon.

Thanks for that. Will get her tested for deficiencies. I did take her to a naturopath and get her on a bunch of vitamins, but she never was tested via bloods, so will get on to that, thanks

Hi Could a mod please move this post: and my reply below to a new thread when they get a chance? Thanks! Matt