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Celiac Disease Screening in Risk Groups: A 14 Year Follow-up Study Focusing on Compliance and Quality of Life

Aliment Pharmacol Ther. 2005;22(4):317-324.

Celiac.com 09/14/2005 - In an effort to determine whether general screening for celiac disease should be conducted in high-risk groups, Finnish researchers conducted a 14 year follow-up study which focused on dietary compliance, quality of life, and bone mineral density in 53 consecutive screen-detected celiac disease patients who were diagnosed and treated around 14 years ago. The researchers assessed dietary compliance via an interview, a 4-day food record, and a blood antibody screening. Quality of life was measured via the Psychological General Well-Being and SF-36 questionnaires, while gastrointestinal symptoms were evaluated using the Gastrointestinal Symptom Rating Scale, and bone mineral density was measured using dual-energy x-ray absorptiometry. The researchers compared the results of these evaluations with those of 44 symptom-detected and treated celiac disease patients, 110 non-celiac disease subjects, and the general population.

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The researchers found that 96% of screen-detected and 93% of symptom-detected celiac disease patients adhered to a strict or fairly strict gluten-free diet. In the screen-detected group quality of life and gastrointestinal symptoms were similar to that of the symptom-detected patients and non-celiac disease controls, and their bone mineral densities were similar to that of the general population.

The researchers conclude that dietary compliance in long-term screen-detected patients was good, and quality of life and bone mineral densities were comparable to that of the non-celiac disease subjects and the general population. Based on these results active screening for celiac disease in risk groups is beneficial and in no way harmful.

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Thank you for taking the time for sharing that info. Don't we have the best disease ever! There's got to be a better way to cut down the scarring. Yes, I've scratched till it bleed. Can't help it. It's like having a bunch of mosquito bites. Yes, only gluten free now. Still have bursts, so probably am being exposed to gluten. Will need to stop dapsone soon. Good luck with your situation.

Best Foods or Hellman's on the East Oast is Gluten free. You can make your own too! Easy! http://www.foodnetwork.com/recipes/alton-brown/mayonnaise-recipe I buy any brand of sugar.

Are you sure you do not have fractures? I fractured two vertebrae two months after my celiac disease diagnosis DOING NOTHING!!!! Turns out I have osteoporosis from untreated celiac disease. ? Consider a bone scan.

Be sure to let us know how it goes! Help keep them in business by writing a review on Find Me Gluten Free! Enjoy! ?

I'm a naturalist -- I don't use drugs, creams, etc. I do, however, scratch** the rash until I'm almost bleeding and then dump isopropyl alcohol in it -- that relieves the itch for quite some time. (Stings at first though.) I get the rashes on my legs. ANYWAY, I have found that a gluten-free diet is the only (or best) approach -- it's certainly the most natural, in my opinion. It took six months before I felt I was cleansed of gluten. I went nine months (or more) without a rash. Then, I mistakenly ate some soup with barley in it. Got the rash. I let it run its course while getting back to & staying on a gluten-free diet. My best advice is just to stay on a gluten-free diet. Be strong, brave. You can do it! ** I should clarify that when my rashes start itching, I can't help but scratch (excessively). I am not suggesting scratching yourself (with or without cause) as a means to an end. Don't scratch if you can.