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November 2005 Updates

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    * Subscribe to the Gluten-Free Food & Drug SmartLists to have the latest mainstream gluten-free product & drug information.
    * Order Scott-Free newsletter today and get four new issues over the next year, plus free on-line back issues.
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    * The following new articles were added to the Celiac Disease Research: Associated Diseases and Disorders section:
          o Gluten-free Diet Prevents Diabetes (Type 1) at Same Rate as Gluten-enriched Diet
          o Increased Cancer Risk Associated with Delayed Diagnosis of Celiac Disease
    * The following new article was added to the Celiac Disease Diagnosis, Testing & Treatment section:
          o New Method of Diagnosing Celiac Disease Looks Promising
    * The following new articles were added to the all new Gluten-Free Food Reviews section:
          o Garbo Toast Bread: For Those About to Toast, Garbo Salutes You!
          o Marthas Tasty All Breast Meat Gluten-free Chicken Nuggets
          o Dr. Praegers Gluten Free Fish Sticks and Fish Fillets Hit the Spot
          o Dads Gluten-free Pizza Crust is sure to Please
    * The following new recipes have been added to the Gluten-Free Recipes section:
          o Lentil Soup (Gluten-Free)
          o Creamed Chipped Beef on Toast (Gluten-Free)
          o Sloppy Joes (Gluten-Free)
          o Magic Muffins - Universal Gluten-Free Muffin Mix
    * The Celiac Disease in the Media section always has up-to-date links to media articles regarding celiac disease and the gluten-free diet.
    * You are invited to use our sites free, and very popular Celiac Disease Message Board/Forum and Calendar.

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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Kaiser offers the full panel, but a primary care MD can not order it -- only a GI. Again, a visual is not needed. Damage is usually severe if it can be seen visually (e.g. Scalloping, etc.). Villi are microscopic though. When you got the referral, you probably should have found a GI on your own by searching through the Kaiser directory and finding one who has some mention of celiac disease in his bio. Too late, but that is kind of how it works. Your PCP does not know the GI docs. The scheduler just makes appointments. So, now, that you have been referred to a GI, you can probably schedule another appointment on your own by passing your PCP. Wait first for the pathologist's report. They might not put it on the patient portal, so get a hard copy for your records. If it is negative and they took four or biopsies, you will have your answer. Then you can consider trialing the diet. If they did not take enough samples, ask for the DGP and EMA tests, including the control test IGA deficiency (which affects 10% of celiacs, but do not quote me on this). You could wait a few years until you think damage is severe enough to find. celiac disease can be hard to diagnose. It can develop at anytime. Don't forget you might have a gluten sensitivity too and not celiac disease. Kaiser responds well to requests in writing. Try the patient portal first before a registered letter. If they are not following the standard level of care, they are at risk for a lawsuit. Be nice. Say something lame in your letter like, "We had such a nice short visit, so I forgot to ask ....blah, blah, blah." My own relatively new PCP is still learning about celiac disease. That is okay. At least she has an open mind.

It is gluten free...I eat it regularly and have had no issues and it tastes yummy. ?

A quick update: I emailed my primary doctor and she is on the same page as the GI doctor, saying the Endoscopy looks normal. Even before we've gotten the biopsy back. By the way, I should mention I'm dealing with Kaiser in the Bay Area, CA and everything I've found about Kaiser on these forums is horrible and similar to my own experience. I specifically asked about all the components of the full celiac panel and that I would like to get it and all she said was: "The lab tests are not perfect. Although they may indicate an increased risk for celiac, they are not as specific as the biopsy." So, now we should just ignore the positive IgG? How am I supposed to know if I'm IgA deficient if they don't test for that? I replied and asked again and she said that Kaiser doesn't offer the full panel. Why not? And I said I want vitamin and iron tests and no reply to that yet.

Thank you so much for all the help and support you have given me. I cannot thank you enough. I am ever so sorry to post again here but wondered if I could check with you about this. When at work, I very rarely get chance to eat a lot and so have always been eating the Milky Way UK bars, which I believe contain gluten or barley. I usually have around 6 of these as they tide me over until getting home. I also have two slices of bread on a morning. I was wondering whether this would be sufficient as I am worried in case I haven't had enough gluten? Thank you for everything and I wanted to apologise for being a nuisance on here.

Thanks Matt I appreciate your response and assistance getting " moved to my own thread" thanks so much. I do have the results of my labs they took and am unsure which labs are which so I will try to attach them and perhaps someone can help me decode them.? Thanks again Heidi