996 March 2006 Updates - Celiac.com
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March 2006 Updates

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    * Subscribe to the Gluten-Free Food & Drug SmartLists to have the latest mainstream gluten-free product & drug information.
    * Order Scott-Free newsletter today and get four new issues over the next year, plus free on-line back issues.
          o Celiac Disease Newsletter
                + Preview back issues of Scott-Free
    * The following new articles were added to the Celiac Disease Research: Associated Diseases and Disorders section:
          o Gluten-free Diet Prevents Diabetes (Type 1) at Same Rate as Gluten-enriched Diet
          o Increased Cancer Risk Associated with Delayed Diagnosis of Celiac Disease
    * The following new article was added to the Celiac Disease Diagnosis, Testing & Treatment section:
          o New Method of Diagnosing Celiac Disease Looks Promising
    * The following new articles were added to the all new Gluten-Free Food Reviews section:
          o Garbo Toast Bread: For Those About to Toast, Garbo Salutes You!
          o Marthas Tasty All Breast Meat Gluten-free Chicken Nuggets
          o Dr. Praegers Gluten Free Fish Sticks and Fish Fillets Hit the Spot
          o Dads Gluten-free Pizza Crust is sure to Please
    * The following new recipes have been added to the Gluten-Free Recipes section:
          o Lentil Soup (Gluten-Free)
          o Creamed Chipped Beef on Toast (Gluten-Free)
          o Sloppy Joes (Gluten-Free)
          o Magic Muffins - Universal Gluten-Free Muffin Mix
    * The Celiac Disease in the Media section always has up-to-date links to media articles regarding celiac disease and the gluten-free diet.
    * You are invited to use our sites free, and very popular Celiac Disease Message Board/Forum and Calendar.

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George, i am sorry that you are not feeling well! ?? I am not a doctor, but just trying out drugs to stop your symptoms just seems like a band aid approach. It sounds like he suspects IBS which is really, in my opinion, "I be stumped". Has inflammatory bowel disorder (IBD) (more lovely autoimmune disorders) been ruled out? This includes both Crohn's and Colitis. My niece was diagnosed with Crohn's finally with a pill camera after all other tests were given. The damage was not within reach of any scope. I am just throwing out suggestions. Hopefully, you and your doctor will figure it out soon!

Celiac disease is an autoimmune disease that happens to have a known trigger -- gluten. Flare-ups develop (antibodies) causing damage. Not just in the small intestine, but systemically. One gluten exposure can cause antibodies to increase for days or months! Antibodies are being measured during the celiac blood tests. If there is no gluten exposure, there will be no antibodies. These antibodies can come down in some people in as little as two weeks. Recommendations require gluten 2 to 4 weeks daily for the biopsies taken via endoscopy in order to be sure to catch damage, but 8 to 12 weeks for the blood tests. The endoscopy is considered the "gold standard" in helping to diagnose celiac disease, but there are other things that can damage the small intestine. So, the blood test helps solidify the diagnosis. So, if you want a good result on your endoscopy, you need to be eating gluten daily for two week prior at a minimum. I know it is tough and you are feeling sick. Wish there was a better way to catch active celiac disease.

Hi everyone, Just an update to my situation. I had thought that I might be getting better since I started adding gluten-free grain back into my diet but I was wrong. It seems that the Methscopalamine Bromide just delayed the effects, didn't stop them. I had to stop taking it because one of the side effects is to stop sweating, which I did. There were times when I felt hot and almost couldn't catch my breath. Anyway, my doc put me on Viberzi instead. I took 3 doses, 1 Tuesday evening and then 1 Wednesday morning and then again Wednesday evening. Each time I took 1, it seemed that about half an hour later I would develop severe abdominal cramping, pain in my neck, shoulders and upper back and a feeling like my insides were on fire. My face felt like it was hot and tingling. It wasn't warm to the touch but felt like it to me. Worse of all is it didn't work anyway, I still had diarrhea. I stopped taking Viberzi after reading the precautions pamphlet which said, "stop taking Viberzi and tell your doctor if you have abdominal cramping, pain which radiates to your shoulders or upper back." Go figure. Anyway, today is 3 weeks straight of diarrhea and still no diagnosis and not sure what he's going to want to do next. George

I'm still really new to all this but is it common to have trouble with sleep? I swear since my symptoms got really bad a few months ago I can't get 1 good nights sleep, like a 5 hour stretch is doing real good. Wake up at 3am wide awake almost every night. Told my doctor and they've recommended melatonin, that doesn't work. Tried chamomile and lavender tea, no help. Tried zzquil, that will knock me out but maybe for like an extra hour then I'm really drowsy the next morning from it. I don't know what to do.

I have 2 copies of DQ9. One from each parent.