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Thanks for the responses raven and cyclinglady! I guess we just have to wait. Is it wrong that I want there to be no question that its celiac? She has had so many symptoms for awhile now--seemingly increasing--but I want there to be no question in her mind that she needs to be gluten-free--you...

https://okinawahai.com/tips-for-eating-gluten-free-in-okinawa/ Hope this helps!

Sorry you're feeling poorly Have you seen this page: https://www.peoplespharmacy.com/2015/07/27/getting-off-ppis-can-be-a-challenge/ I think you can get gluten free DGL, maybe worth a try?

I could be wrong but Methotrexate is an immune suppressant so it may affect Celiac testing. I have seen this mistake made with other people with RA. It may be that the only way you will know if it will help is to continue eating gluten free for awhile and see how well it does with the pain l...

Welcome! YES! Some of us who have problems with gluten do not test positive to celiac tests. There is a term for this, non celiac gluten sensitive NCGS and this could explain your symptoms. Having said that, it would be a good idea if you hunted down the actual results of your celiac test...