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Twittering the Gluten Free Way

So I’m new to all this funky technology.  LinkedIn, Technorati, Digg, Blogs, Carnivals, and I’m just really settling to Facebook and thesavvyceliac.com of course.  But right now “Twittering” (or is it sending “Tweets”) are all the rage.  It’s like consistently updating your status with people on Facebook.

But can it help us get gluten-free information?  Well, first off, it can’t if we cannot find people to follow, which is one thing I struggle with on Twitter.  You can’t search topics or names to find people you know or groups like Gluten Free Living unless you know its exact name.  So I’m here to help…Here are some good gluten-free Twitter feeds that are worth following.  When I reference them with regards to the feed, I will type them exactly the way they should be typed on Twitter.

Celiac-Related Twitter Feeds

Recently, I began “Following” GlutenSecret, CeliacHandbook, GFLiving, CSACeliacs and many other people with gluten free or celiac connections.  CeliacHandbook I have found to be one of the most interactive gluten-free organizations.  The CeliacHandbook Twitter feed poses cool gluten-free questions and does quick mentions of products it has heard about.  Celiac Handbook has its own website as well (linked down to the right) which includes restaurant information, celiac stories, lists of events and more.     I am connected with them on LinkedIn as well and the members of that group are very helpful and smart in the way they handle their celiac disease and diet.

Gluten-free Living (Twitter feed by the magazine Gluten Free Living) is very new and in its short time on Twitter doing a good job of spreading news and directing people to its site. In fact the most recent feed I saw was that a Baltimore restaurant is carrying gluten free beer and dessert.  Better go check out GFLiving’ss Twitter feed if you live there!  I am sure this feed will expand with the company’s comfort level.

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CSACeliacs is also new to the Twitter feed but so far hasn’t been majorly aggressive in its efforts to get out information. I would think it would be more aggressive considering the lengthy history of the organization.  I will cut them some slack.  They did respond to one of my blogs in the last week.  So I was happy about that.

GlutenSecret looks like it has potential.  I just started being “followed” by it today.  It’s latest feed promises that there is “so much more to come”.  Hmm makes you wonder what that will be — a GlutenSecret maybe?

And of course there’s me!  AmyLeger (No for some reason I didn’t sign on as thesavvyceliac.  How dumb?) Whenever I have a new post on my blog, I always post it to my Twitter feed!  So if you like thesavvyceliac.com, feel free to check out AmyLeger on Twitter.

Keep in mind, I couldn’t list all of my Twitter “followers” in this post, so if you want to see more, just check my feed.  This also doesn’t mean other gluten-free or celiac-related Twitter feeds are bad - it likely means I just haven’t found you yet! Which brings this post right back to where we began - why is it so difficult to find people on Twitter?

As always, Celiac.com welcomes your comments (see below).


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3 Responses:

 
said this on
19 Jan 2009 6:43:00 AM PDT
I'm pretty new to Twitter also. You're right. It's hard to find people. Thanks for your recommendations. I wasn't following a few of those.

 
Pearl McCarty

said this on
26 Jul 2009 11:35:16 AM PDT
I have a dilemma, my family have pot lucks often and we have about 4 diabetics so we all try to accommodate them and their diets. My brother is gluten intolerant. I have learned to make dishes gluten free so he can join in with something different, now I find it is almost impossible to find dishes gluten and sugar free. I did find a great rub for ribs that were such a hit on a fishing trip. I am getting requests/invites.

 
Adam

said this on
27 Sep 2010 9:01:40 PM PDT
Those are great suggestions for gluten free twitter accounts to follow. Twitter is a great resource for people on the gluten free diet.




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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

@jddh So...did the restricted diet you were going to implement work (FODMAP or Whole Foods)? I recall that you were mis-diagnosed at one point with refractory celiac disease, but it was later determined that you were getting trace amounts of gluten in your diet. If you are not catching colds, I assume that you have healed from the damages of celiac disease? I hope so!!! ?

Peter is correct. You do have a positive so that warrants further investigation. Here is a link supporting our comments: http://www.cureceliacdisease.org/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease/ http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Does she have celiac disease? You will never know for sure without an endoscopy. Even then, there is a chance the biopsies are negative, but keep in mind that she might just be starting to develop celiac disease or that the damage was not captured (the small intestine is the size of a tennis court if spread out). Personally, I tested negative on all but the DGP IgA, yet I had moderate to severe intestinal damage. The celiac blood tests are good, but they do not catch all celiacs, some celiacs can even test negative to ALL the blood tests. Consider yourself fortunate that your doctor ordered several of the tests and not just the screening TTG IgA (very good, keeps cost down, but does not catch all). The DGP is the preferred test in small children. I do not know why it caught me because I am old, but it did! Confusing, isn't it? I wish there was an easier way to diagnose, but we have to work with what we have available to us.

Thank you for your reply, though it's not necessarily what I wanted to hear, it is what I was thinking.

you're lucky you dont catch colds. im the opposite i catch everything very easily and get alot sicker than whoever i caught it from and take much longer to get better.

Even one positive can be diagnostic. This is one: Gliadin deamidated peptide IgG 33.9. If unsure, a biopsy of the small intestine will provide definite confirmation. There is a control test to validate the other ones, but I don't see it there. What is does is validate the others by checking on the overall antibody levels. But it is to detect possible false negatives. A positive is a positive. I think your daughter has joined our club.