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Petition to FDA to Disclose Barley and Rye Ingredients on Food Labels

Hi All,
Back in September of 2008, I submitted a petition to FDA to include rye and barley in the list of most common allergens which must be disclosed on packaging. Right now, only wheat has to be disclosed, but as we all know the gluten of rye and barley is just as offensive to celiacs as that of wheat. So to include wheat in the list, without including rye and barley was nonsensical. The list needs to be amended so that rye and barley sources are also disclosed.

Without this disclosure, such things as "modified food starch", "flavor," "natural flavor" and other ambiguous ingredients may be derived from
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rye or barley without disclosure. This means that currently we cannot buy or eat anything with such "ambiguous" ingredients without a great deal of risk. My petition is now available to be seen and publicly commented upon at:
http://www.regulations.gov/fdmspublic/component/main?main=DocketDetail&d=FDA-2008-P-0509.

I hope you will go there, and read my petition, and leave a comment in favor of it for the FDA's consideration. The more positive comments we get stored in FDA's database, the sooner we are likely to get action on this.

As always, Celiac.com welcomes your comments (see below).


Spread The Word







1 Response:

 
Kim Hopkins

said this on
07 May 2009 6:35:36 AM PDT
Hi Hallie,

In my process of starting up a personal coaching & consultation business to help people with food challenges, I came across this blog. I have left a comment, and I am going to post this both on my blog and on my website advocacy page. This is extremely important, and I thank you for your hard work!




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In Celiac.com's Forum Now:

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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Hi wondering if someone could help. my daughter has mildly raised TTG levels and the gliadine levels, she has one Coeliacs gene, but her biopsy came back negative. We have kept her off gluten (and low dairy) for nearly a year to see if her symptoms improved. They haven't. But I don't know if they are related to gluten specifically. Just wondering if anyone has other suggestions that may be going on with her. Her symptoms are: - Short stature, she's nearly 9 and my 6 year old boy is nearly bigger than her - bumps on back of her arms - urine leaking and occasional soiled pants, which could be from constipation she has at time's - sticking out stomach - dry patchy rashes on her face - joint pain sporadically - vomits every 6 weeks, but hasn't had gluten and seems to be no food connection - reoccurring thrush She had gluten last night at a party and was fine today. I'm a bit lost and not sure where else to turn. Thanks for any help.

We have gone gluten free, our whole house, as of a month ago. It was pretty seamless since I had been gluten-free for 5 months last year. I have found many good recipes, and my picky husband and one of my boys who is also a picky eater, even prefer many gluten-free recipes to the regular ones. My husband did see my point about the size of the gluten protein means nothing. Its a gluten protein period, that's what you are avoiding. It doesn't matter if its hiding in the scratch of your baking sheet and you can't see it. You can't see the wind, but it's still there. I hear you on the anemia. I've been anemic for several years, I just thought it as because I was getting a little older. Has your anemia gone away or do you still have problems with it?

Ennis, it is made out of metal, coated with plastic I think. You have such a hard time, my heart really hurts for you. But you are such a support to those on this board, and a great teacher for those of us who are new.

Thanks everyone! I think its hard for people to fully accept because they cant see the damage it does every time you get glutened. It's invisible. Im glad to know I wasnt being paranoid. I sure was when I was first diagnosed. I laugh at myself now, but its a pretty steep learning curve.

FYI......anxiety is a common symptom with celiac disease and NCGI. It seems to resolve on a gluten-free diet. ?