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Attitude Counts

Your approach, attitude and degree of personal commitment to lifelong dietary restrictions is so important. You can make protecting your intestinal health a positive and creative experience rather than getting mired in regret or resentment over having to sacrifice certain foods. I have always viewed my diet as the glass more than half full and made every effort to maximize the appeal of permitted food. think my diet is fun and am not ashamed to say so! The most difficult part of following a regime for celiac has
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not been about the food, but about having to answer questions and give explanations to the curious and let's face it, food is usually a chosen topic of conversation. People also try and anticipate what you do eat and start making so many well meaning suggestions. When you figure it happens at least once a day and I've been at this for 3,000, well it's exhausting. My best defense is pointing out that my physical age is probably twenty years less than my chronological age. When I bring one of my homemade concoctions to a family gathering, I often anticipate rejection, but it always turns out that the gluten food I bring becomes a favorite with the "civilians"" and I have to scramble to ensure there is is a portion for me.

As always, Celiac.com welcomes your comments (see below).


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2 Responses:

 
Jodi

said this on
22 Dec 2007 3:04:06 PM PDT
Your story is amazing! I am so happy to see that other people are out there turning it into not such a bad thing, I know I hate explaining it to people, and I am not much of a chef, but I am learning some of the things that I can have, and getting books and more information on it, and cookbooks so i too can have cakes and cookies, and fried chicken... I just want to thank you for giving me hope!

Jodi Mills

 
colette

said this on
25 Dec 2007 2:04:37 PM PDT
I am sooo glad to find that what I am experiencing is not an isolated thing. I too have a lot of pain when I eat potatoes, rice, corn... things that 'gluten free' guides say i should have no problem with. Due to this though, I am afraid to eat the carbs these guides say I am allowed to eat without problems. I have just found the website, this has helped me a lot to realize the seriousness of celiac disease, as the doctors I have had contact with so far have very limited info. I have no clue what the initial recovery period is about, and have been winging it for a year and a half, with what feels like negative results, as I have had no guidance. Thanks to finding the website just this week I have had a pain free week for the first time in a very long time.




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Those labs do not look like celiac tests. The first three MIGHT just be measuring total antibody levels of the three different classes, but on the very right it has IgA Serp (Serp cut off?) and I don't know what the Serp is referring to. The first column is the test name, the second column your value, the third column the units of measure, the fourth column the normal range. The first one is a tiny bit low, all the rest in the normal range.

Since this post is going around again, I thought I would add my recent experience at Rudy's. The staff was very helpful and accommodating. I ordered my family's food first put it on a tray and then ordered mine separately. I ordered only chicken and turkey. The staff changed gloves and used a new cutting board and knife. My server washed his hands, wiped down the scale and put my meat separately into a tray. I washed my hands before I ate. I did not eat any of the side and brought my own fruit to go with it. Since I don't get immediate symptoms, I can't tell you if that was enough. But, their meat (except the pork - maybe ) is gluten free. I think I did everything I can to avoid CC and the staff was extremely helpful . This is the only restaurant I have eaten at in 4 months if that tells you anything. I love Rudy's!!!

I got my script from the doc... it's for total IGA and TTG-IGA. Guess that's a good start? It also says "fasting" on the requisition, do I really need to be?

Something that's always weirded me out since I became somewhat non-responsive on repeat biopsies: I don't get colds anymore. Ever. I used to get maybe 5 a year ? standard stuff. Nothing in the past 3 years. I get a lot of sleep these days, but still. My girlfriend gets sick; I do not. Anyone else find their common transient illnesses take a strange turn after diagnosis? I hypothesize having an abnormal/overactive immune system might take down common bugs hard, but I also assume it's far more complicated than that.

Hello, Has anyone ever heard of a celiac diagnosis through an ultrasound? I have a friend who had an ultrasound for diverticulitis issues and the dr said he also had celiac disease. No blood test, no endoscopy. I don't think he wants to make this life change in his diet without knowing for sure.