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Attitude Counts

Your approach, attitude and degree of personal commitment to lifelong dietary restrictions is so important. You can make protecting your intestinal health a positive and creative experience rather than getting mired in regret or resentment over having to sacrifice certain foods. I have always viewed my diet as the glass more than half full and made every effort to maximize the appeal of permitted food. think my diet is fun and am not ashamed to say so! The most difficult part of following a regime for celiac has
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not been about the food, but about having to answer questions and give explanations to the curious and let's face it, food is usually a chosen topic of conversation. People also try and anticipate what you do eat and start making so many well meaning suggestions. When you figure it happens at least once a day and I've been at this for 3,000, well it's exhausting. My best defense is pointing out that my physical age is probably twenty years less than my chronological age. When I bring one of my homemade concoctions to a family gathering, I often anticipate rejection, but it always turns out that the gluten food I bring becomes a favorite with the "civilians"" and I have to scramble to ensure there is is a portion for me.

As always, welcomes your comments (see below).

Spread The Word

2 Responses:


said this on
22 Dec 2007 3:04:06 PM PDT
Your story is amazing! I am so happy to see that other people are out there turning it into not such a bad thing, I know I hate explaining it to people, and I am not much of a chef, but I am learning some of the things that I can have, and getting books and more information on it, and cookbooks so i too can have cakes and cookies, and fried chicken... I just want to thank you for giving me hope!

Jodi Mills


said this on
25 Dec 2007 2:04:37 PM PDT
I am sooo glad to find that what I am experiencing is not an isolated thing. I too have a lot of pain when I eat potatoes, rice, corn... things that 'gluten free' guides say i should have no problem with. Due to this though, I am afraid to eat the carbs these guides say I am allowed to eat without problems. I have just found the website, this has helped me a lot to realize the seriousness of celiac disease, as the doctors I have had contact with so far have very limited info. I have no clue what the initial recovery period is about, and have been winging it for a year and a half, with what feels like negative results, as I have had no guidance. Thanks to finding the website just this week I have had a pain free week for the first time in a very long time.

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In's Forum Now:

Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA al...

This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven? My point is, that getting the gene testing is not an...

Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,

LilyR, jmg has given you good resources/links. I used to have constant issues with ear infections that went away when I went gluten free. And recurrent bronchitis they I never have now. NCGS can cause low grade inflammation that you don't realize at the time . .. till you stop...

"If the biopsy is negative, then is there another test that can be done to make sure I really don't have celiac? " Yes, we can do a genetic testing for the celiac gene, I think it is the DQ2 and DQ8 gene, and maybe one other. If you don't have one of these genes, I was told that you can no...