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Great Family and Friends to Support Your Gluten-Free Diet!

Good Morning All!  Well as good as it can be considering it is Monday.  I have to tell you all how important  a great support system is when it comes to celiac disease.  As the only cook in my house for my husband I cannot tell you what a blessing it is to have friends and family who help you with this chore of love.  We had a party to attend on Saturday and my friend went out of her way (it was her daughter's 13th b-day party) to make my husband the best pasta salad he has had in a while.  We all ate it.  Then
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on Sunday, my mom made meatloaf and because she did not have enough gluten free breadcrumbs she made some to use and was even very careful how she seasoned and toasted the bread crumbs. They used them to make my husband his own meatloaf.  With working full time it is hard to keep the menu fresh during the week when you are cooking regular food.  But we all know when a specific diet enters the picture it is even harder.  So to have people around you that really care to help keep your loved ones safe is the best gift to get.  Thanks to all my wonderful friends and family, you ROCK!

As always, Celiac.com welcomes your comments (see below).


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8 Responses:

 
Jane

said this on
20 Aug 2009 11:24:24 AM PDT
I'm new to this blog and am testing my diet with gluten-free foods (and keeping a diet journal) to find out if symptoms that I've had for the past few years are related to medication side affects or if its celiac disease and/or wheat intolerance. After about a week on the diet, my symptoms have calmed down and everything seems more normal. I have not been tested, but I'll stay on the diet and keep records. I do notice that when I eat wheat, there's a definite reaction down under! So, I'm guessing that I do have a wheat intolerance. (?) I still need to find out if I'm celiac. Will check with my doctor after another week or so. Maybe. If I'm feeling much better now, why bother? My body's telling me what's right or wrong. Suggestions or feedback would be appreciated.

 
katie

said this on
14 Aug 2009 7:44:45 AM PDT
Lucky you. Not ONE SINGLE PERSON in my family or my husband's family takes our diagnosis seriously or supports us. They all constantly question our diagnosis, and then laugh at us behind our backs. Even our friends do this. It has been agonizing and we have been glutened repeatedly since our diagnosis in 2005 by these same people. The diagnosis was liberating for us all, as all 4 of us are now gluten-free. The symptoms disappeared one by one. But not having a support group or family that cares is SO hard---------I mean truly agonizing. To have them constantly question your diet, call it a "Diet Du Jour" or wonder if all of your research and reading about it has made it psychosomatic----no matter that we have valid tests to prove them wrong. It sucks! Bravo to you having such a wonderful, supportive family. We want to run away and live in a cave away from ours...

 
mbrookes

said this on
28 Oct 2009 9:25:31 AM PDT
Those people are as toxic as gluten! Stay away unless they can treat you with the respect you deserve. Best lesson in a while for me: NO ONE CAN ABUSE YOU WITHOUT YOUR PERMISSION. Belive that and do not allow yourself to be mistreated.

 
Nancy
( Author)
said this on
14 Aug 2009 9:50:31 AM PDT
Katie, I am truly sorry to hear about your situation. We have had a few people who started out saying "oh so you can't eat bread, no big deal." But I soon educate them and they are shocked to hear the real truth. Have you tried finding a support group in your area? Your doctors office or local hospital should be able to put you in touch with one. Then invite some family members to go it would be good for them. Or your last resort would be to always go to your friends and family's places with gluten-free food and not eat what they make. It is very hard to do. We went to an outing with my husbands work and there was nothing he could eat but he made do and I am sure he got some gluten. It is impossible to be 100% gluten-free so my motto is I try to keep him 100% gluten-free so that means that maybe we are at 85%. Keep on doing what your doing because regardless of your support system you have to do it for your health. Good Luck.
Nancy

 
mcmama

said this on
14 Aug 2009 7:54:16 PM PDT
Thanks for sharing. I am newly diagnosed and am spinning with information overload. I didn't realize there was a difference between lactose free and dairy free, until I dealt with the harsh lesson, myself. I am allergic to gluten & dairy, but can have oats. Am I an unusual case?

 
Nancy

said this on
15 Aug 2009 8:12:16 AM PDT
Hello McMama, I have learned a couple things. For example I read that people with Celiac disease MAY be lactose intolerant. This is because the villi is damaged and until it heals then lactose may be a problem. Our doctor told my husband that in time he maybe able to tolerate lactose again. As for the oats, when my brother was little he could not eat WRBO (wheat, rye, barley, oats). Again I have learned in researching this stuff that some people eat oats and others do not. My understanding of oats being in the list is because of where it is processed which is usually with the other 3 so there are cross contamination issues. We try to do what we can just in case but do not got distraught in a pinch. Good luck with it!

 
debbi

said this on
25 Aug 2009 11:47:43 PM PDT
I'm so glad to hear that there are some families that support your diagnosis. My family is not, however my coworkers are fantastic. When I was diagnosed with celiac the staff on my floor talked to a GI doctor and nutrition department and helped me gather information on the disease.

 
Danny

said this on
31 Aug 2009 9:41:11 AM PDT
That's wonderful that you're getting such support from your family and friends.




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You responded to a post that is from 2009, Side thought many celiacs react badly to dairy based foods and products. Other thoughts you can find pure proteins, non dairy, hypoallergenic, gluten free, etc much easier now days. I personally use NutraKey V-Pro, MRM Veggie Elite, Naked Pea, Nutrb...

I heard that muscles are mostly made of glutamine. Glutamine powder is available at walmart, is labelled gluten free and it is cheap. It might also help repair your gut. I take it regularly.

I have tried removing nightshades and I don't think they effect me much. With some experimenting I have figured out how to successfully lower my uric acid blood levels and control my gout. Gout is one form of arthritis that is caused by diet in most cases and can be controlled by limiting alcohol...

i just read my BODY FORTRESS vanalla whey protein powder and it says GLUTEN FREE on the jug--SO GLAD

You're welcome ritamichelle. Yes, if you are biopsy confirmed then it will be much easier to get your daughter tested.