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Great Family and Friends to Support Your Gluten-Free Diet!

Good Morning All!  Well as good as it can be considering it is Monday.  I have to tell you all how important  a great support system is when it comes to celiac disease.  As the only cook in my house for my husband I cannot tell you what a blessing it is to have friends and family who help you with this chore of love.  We had a party to attend on Saturday and my friend went out of her way (it was her daughter's 13th b-day party) to make my husband the best pasta salad he has had in a while.  We all ate it.  Then
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on Sunday, my mom made meatloaf and because she did not have enough gluten free breadcrumbs she made some to use and was even very careful how she seasoned and toasted the bread crumbs. They used them to make my husband his own meatloaf.  With working full time it is hard to keep the menu fresh during the week when you are cooking regular food.  But we all know when a specific diet enters the picture it is even harder.  So to have people around you that really care to help keep your loved ones safe is the best gift to get.  Thanks to all my wonderful friends and family, you ROCK!

As always, Celiac.com welcomes your comments (see below).


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8 Responses:

 
Jane

said this on
20 Aug 2009 11:24:24 AM PDT
I'm new to this blog and am testing my diet with gluten-free foods (and keeping a diet journal) to find out if symptoms that I've had for the past few years are related to medication side affects or if its celiac disease and/or wheat intolerance. After about a week on the diet, my symptoms have calmed down and everything seems more normal. I have not been tested, but I'll stay on the diet and keep records. I do notice that when I eat wheat, there's a definite reaction down under! So, I'm guessing that I do have a wheat intolerance. (?) I still need to find out if I'm celiac. Will check with my doctor after another week or so. Maybe. If I'm feeling much better now, why bother? My body's telling me what's right or wrong. Suggestions or feedback would be appreciated.

 
katie

said this on
14 Aug 2009 7:44:45 AM PDT
Lucky you. Not ONE SINGLE PERSON in my family or my husband's family takes our diagnosis seriously or supports us. They all constantly question our diagnosis, and then laugh at us behind our backs. Even our friends do this. It has been agonizing and we have been glutened repeatedly since our diagnosis in 2005 by these same people. The diagnosis was liberating for us all, as all 4 of us are now gluten-free. The symptoms disappeared one by one. But not having a support group or family that cares is SO hard---------I mean truly agonizing. To have them constantly question your diet, call it a "Diet Du Jour" or wonder if all of your research and reading about it has made it psychosomatic----no matter that we have valid tests to prove them wrong. It sucks! Bravo to you having such a wonderful, supportive family. We want to run away and live in a cave away from ours...

 
mbrookes

said this on
28 Oct 2009 9:25:31 AM PDT
Those people are as toxic as gluten! Stay away unless they can treat you with the respect you deserve. Best lesson in a while for me: NO ONE CAN ABUSE YOU WITHOUT YOUR PERMISSION. Belive that and do not allow yourself to be mistreated.

 
Nancy
( Author)
said this on
14 Aug 2009 9:50:31 AM PDT
Katie, I am truly sorry to hear about your situation. We have had a few people who started out saying "oh so you can't eat bread, no big deal." But I soon educate them and they are shocked to hear the real truth. Have you tried finding a support group in your area? Your doctors office or local hospital should be able to put you in touch with one. Then invite some family members to go it would be good for them. Or your last resort would be to always go to your friends and family's places with gluten-free food and not eat what they make. It is very hard to do. We went to an outing with my husbands work and there was nothing he could eat but he made do and I am sure he got some gluten. It is impossible to be 100% gluten-free so my motto is I try to keep him 100% gluten-free so that means that maybe we are at 85%. Keep on doing what your doing because regardless of your support system you have to do it for your health. Good Luck.
Nancy

 
mcmama

said this on
14 Aug 2009 7:54:16 PM PDT
Thanks for sharing. I am newly diagnosed and am spinning with information overload. I didn't realize there was a difference between lactose free and dairy free, until I dealt with the harsh lesson, myself. I am allergic to gluten & dairy, but can have oats. Am I an unusual case?

 
Nancy

said this on
15 Aug 2009 8:12:16 AM PDT
Hello McMama, I have learned a couple things. For example I read that people with Celiac disease MAY be lactose intolerant. This is because the villi is damaged and until it heals then lactose may be a problem. Our doctor told my husband that in time he maybe able to tolerate lactose again. As for the oats, when my brother was little he could not eat WRBO (wheat, rye, barley, oats). Again I have learned in researching this stuff that some people eat oats and others do not. My understanding of oats being in the list is because of where it is processed which is usually with the other 3 so there are cross contamination issues. We try to do what we can just in case but do not got distraught in a pinch. Good luck with it!

 
debbi

said this on
25 Aug 2009 11:47:43 PM PDT
I'm so glad to hear that there are some families that support your diagnosis. My family is not, however my coworkers are fantastic. When I was diagnosed with celiac the staff on my floor talked to a GI doctor and nutrition department and helped me gather information on the disease.

 
Danny

said this on
31 Aug 2009 9:41:11 AM PDT
That's wonderful that you're getting such support from your family and friends.




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you're lucky you dont catch colds. im the opposite i catch everything very easily and get alot sicker than whoever i caught it from and take much longer to get better.

Even one positive can be diagnostic. This is one: Gliadin deamidated peptide IgG 33.9. If unsure, a biopsy of the small intestine will provide definite confirmation. There is a control test to validate the other ones, but I don't see it there. What is does is validate the others by checking on the overall antibody levels. But it is to detect possible false negatives. A positive is a positive. I think your daughter has joined our club.

My daughter, almost 7 years old, recently had a lot of blood work done, her Dr is out of the office, but another Dr in the practice said everything looked normal. I'm waiting for her Dr to come back and see what she thinks. I'm concerned because there is one abnormal result and I can't find info to tell me if just that one test being abnormal means anything. The reason for the blood work is mainly because of her poor growth, though she does have some other symptoms. IgA 133 mg/dl Reference range 33-200 CRP <2.9 same as reference range Gliadin Deamidated Peptide IgA .4 Reference range <=14.9 Gliadin deamidated peptide IgG 33.9 Reference range <=14.9 TTG IgA .5 Reference range <=14.9 TTG IgG <.8 Reference range <=14.9

Just watch out. I just went to the expo in Schaumburg, IL, and ended up getting glutened. I realized afterward that I ate all these samples thinking they were gluten free, and they weren't. One company was advertising some sugar, and had made some cake, but then I realized.... How do I know if this contains any other ingredients that might have gluten? Did they make it with a blender or utensils that had gluten contamination? Makes me realize the only safe things would be packaged giveaways with gluten free labeling. My fault for not thinking things through. It was just too exciting thinking i could try it all and enjoy without worry.

No fasting required for a celiac blood test unless they were checking your blood glucose levels during the same blood draw.